Abali2013: SAY NO TO AS/AS MARITAL RELATIONSHIP. If you must marry please go in for adoption, Love is a selfish reason for bringing untoward pain to that innocent child.

xandy84: Reading through all dis responses move me to tears.. Guess is time to get tested and know my gene so as not to make wrong decision cos life is 2 short... For all those sufferer, my heart goes out toward U n have strength in the lord..

Muh: Please advise, can scd patience continue to take it malaria medicine with cellod-s together.

annoymous:

Cellod-s is an anti-sickling agent. It can't change someone's genotype from SS to AA. And I don't like the blowing your trumpet part.

blink182: its not about blowing my trumpet, queen already gave me a very good reply and I'm following from there. No time to waste on insignificant issues. What matters most is bringing peace to sufferers.

I said claims and I didn't say it was backed by empirical evidence.

Abali2013:
Blink my brother Warrior, I have been trying to reach out to people the little way I can. Yes, I have not been a Crusader for Cellod-s because I don't want anybody mis-understanding my Campaign for awareness. I am not here to solicit for fund, but to create awareness and educate people the little I can.
In person and privately I have given sufferers advice about Cellod-s. Also Blink, like Binte said we have NAIJA SICKLE CELL WARRIORS on facebook. I expected you to have come on board and do your bid.
Moreover, you know how difficult it is to get post to the front page. I decided to use topics I have created on SCD as my signature.

Bay1970: Being AS and having AS wife/husband is not end of the world, it gives you only 25% of having SS(sickle cell), 25% of AA and 50% of AS. Can it be avoided if posible? yes, but education is only the answer. If you love your AS boy/girl friend, do not let AS stop you from having someone you really love as a life partner; you might end up having a bitch with AA and in hell for the rest of your life. If you are AS with AS wife/husband, please remember to do CVS on every pregency. CVS will detect SC at 12 wks 100%.

Abali2013:
I did a little bit of brain work to come out with a catchy Title to see if the MOD's of the Health section can take it to the Front page. I created about three topics on SCD, and this one was selected.
I will keep posting tweets about SCD, every now and then to help keep the thread alive.

queen binte o:
Oya carry ursef to our fb group sharp sharp.lol

Pdizzle: what a coincidence, why dis exact time, i just cnt stop crying. I got a call ystdy dat dami is dead, why God why, the only child for God sake, dis is d first time dis sickle cell loss is hitting me so bad, dami u were so brillant, ur future was so bright, cnt believe i will come bck after my i.t n u wont be sitting in class with us, tho u were frail n small but what u ve got upstairs is un imaginable, i remember the way u got ur nick name, the whispers n backpasses during exams. God i still cant believe, u were soo lively with ur tiny voice, i remember u stayn to play games after lectures n mama be calln,God why why

blink182: yes ma!

Ms.AfroZest:
For some weird reason this thread makes me angry and sad at the same time. Just like HIV, its not only the disease you get to fight but the stigma and rejection you get to face. We are all here talking about people avoiding AS/AS relationship. What about those already living with SS. How many people with the AA gene can truly come out and say I can marry an SS.

Pdizzle:
pls wat is the group's name

Abali2013:
How many people really care what happens?
Why the Non-Challant attitude, towards Sickle Cell Disease?
I don't care how long it will take, but I have made up my mind to lend my voice to SickleCellAwareness campaign. I am not soliciting for funds, neither am I advertising. But I have made it my life's duty to educate people about SCD. Not only because am a sufferer, but because I am a Survivor.

queen binte o:
Very few. The day a frd told me his fiancee is hbss,I cud nt contain ma joy. Since then I hold I'm in high esteem.now they are married wt a baby girl. So many hbAA won't marry hbSS/SC cos they believe we weill soon die.even if they want to,their fam wil kick against such union unless they are nt aware. I kno pple wt SCD who are happily married wt kids but some of us are stil unfortunate in that rgds.hopefully,we wil get married some day.

queen binte o:
Very few. The day a friend told me his fiancee is hbss,I cud nt contain ma joy. Since then I hold I'm in high esteem.now they are married wt a baby girl. So many hbAA won't marry hbSS/SC cos they believe we weill soon die.even if they want to,their fam wil kick against such union unless they are nt aware. I kno pple wt SCD who are happily married wt kids but some of us are stil unfortunate in that rgds.hopefully,we wil get married some day.

omoikhefue:

i dont pity you at all, rather i envy u... lets join voices and reach an even wider coverage. #teamSCAwarenesscampaign

Ms.AfroZest:


Amen. A friend shared a personal experience about how her boyfriend abonded her on an ICU bed when he realized she had SCD even when he was hbAA. She has lost all hope and is presently battling depression. I am amazed cos you would never know she is an SS cause she looks so healthy and shows amazing strenght. I think this are also issues we should include in our advocacy against sicke cell anaemia. Those living with it are not weaklings, they can partake in any activity only at their own pace and strength.

Ms.AfroZest:
For some weird reason this thread makes me angry and sad at the same time. Just like HIV, its not only the disease you get to fight but the stigma and rejection you get to face. We are all here talking about people avoiding AS/AS relationship. What about those already living with SS. How many people with the AA gene can truly come out and say I can marry an SS.