Abali2013: Today is World Sickle Cell Day... My thoughts are with those who suffer more than I do
#wscd2013

I really love this one.

uchechuwku:

I'm AA and you know the funniest sh*T ever was that it was my GF that broke up with me.
My mum was happy tho.
I love her to pieces.
She couldn't handle the love anymore saying that I'm with her out of pity. I'm much more of a nanny than BF.
I just couldn't help it. She's d best gurl ever (minus the crises tho)
I kept records for her.. Date of her crises, the last food she ate. Her drugs, weight gain/loss.
And she broke up with me?
Really, life is bleeped up..like so bleeped up.

uchechuwku:

I'm AA and you know the funniest sh*T ever was that it was my GF that broke up with me.
My mum was happy tho.
I love her to pieces.
She couldn't handle the love anymore saying that I'm with her out of pity. I'm much more of a nanny than BF.
I just couldn't help it. She's d best gurl ever (minus the crises tho)
I kept records for her.. Date of her crises, the last food she ate. Her drugs, weight gain/loss.
And she broke up with me?
Really, life is bleeped up..like so bleeped up.

Bay1970: Being AS and having AS wife/husband is not end of the world, it gives you only 25% of having SS(sickle cell), 25% of AA and 50% of AS. Can it be avoided if posible? yes, but education is only the answer. If you love your AS boy/girl friend, do not let AS stop you from having someone you really love as a life partner; you might end up having a bitch with AA and in hell for the rest of your life. If you are AS with AS wife/husband, please remember to do CVS on every pregency. CVS will detect SC at 12 wks 100%.

funshiba:

Sensitive topic for me.

Just few months back.... My ex and I broke up due to genotype issues....She is SS and im AS.... till now she hasnt forgiven me...we were meant to get married this year. But I guess I made a decision for us cos she couldnt bear losing me....

The most painful decision I ever made cos I love here dearly but I guess common sense has to prevail....I pray she understands someday and will forever be happy...

Abali2013:
universally, one of the reasons to marry is PROCREATION.
Please do not encourage people to bring unnecessary sufferings to that Innocent Unborn Child.
We that live with SCD know what it really means, you can only imagine. Behind those smiles, there may be pains going on.

Abali2013:
How many people really care what happens?
Why the Non-Challant attitude, towards Sickle Cell Disease?
I don't care how long it will take, but I have made up my mind to lend my voice to SickleCellAwareness campaign. I am not soliciting for funds, neither am I advertising. But I have made it my life's duty to educate people about SCD. Not only because am a sufferer, but because I am a Survivor.

ooua:

You said you are a sufferer, how come you married an AS to have a child that is SS, not trying to blame just want to know. Also talking out adoption I have seen couple who adopted only for the child to be SS. Dont know if we have the medical equipment to know if a new born is SS just for those planning adoption.

pappilo:

Marriage is not for procreation. Procreation only takes a minute or 2 and you sure as hell dont have to be married for that. Marriage is between 2 people who want to spend the rest of their lives together and not because of bearing children, sharing the mortgage/rent or any other stupid reason.

Abali1:
ONE OF THE REASONS for marriage is procreation.

pappilo:


One of a thousand and one reasons so why would you advice 2 carriers not to marry just because of one reason out of a thousand?

If 2 carriers 'truly' love themselves then there are ways round having SS children e.g. Adoption, CVS.

Why stop at asking 2 carriers not to get married? Why dont we campaign that people shouldnt marry carriers AS/SS so that the trait can be eradicated in maybe a generation or two. Should we also campaign that relationships where one or both partners is HIV positive, shouldnt lead to marriage?

I am not trying to put down your efforts and I would be lying if I said I can feel your pain but your campaign should be about educating people about the disease and not telling them who to marry.

Regards

Abali2013:
How many people really care what happens?
Why the Non-Challant attitude, towards Sickle Cell Disease?
I don't care how long it will take, but I have made up my mind to lend my voice to SickleCellAwareness campaign. I am not soliciting for funds, neither am I advertising. But I have made it my life's duty to educate people about SCD. Not only because am a sufferer, but because I am a Survivor.

Awareness is a form of campaign no doubt but i doubt how much results it produces. If not for the roman catholic church, many carriers still go ahead to marry themselves which i find very absurd.

the churches care about HIV but pay little or no attention to Sickle cell, Dr oni(not real name) has sickle cell kids, how do you explain that? a doctor? what other awareness does he need, well educated folks have sickle pro genies.

forgive me to say but i don't subscribe to your campaign, sickle cell organizations should lobby the National assembly to make it a felony for any parent/parents who has sickle cell progenies. This is man's inhumanity to Man and spouses are not ready to listen.

Having an SS child should carry the same sentence as willfully infecting someone with HIV because i see no difference.

my sickle cell campaign is simple, if you are SS, shoot your father in the Head, and there should be Amnesty for any child who adopts this noble medical Jihad

pappilo:


One of a thousand and one reasons so why would you advice 2 carriers not to marry just because of one reason out of a thousand?

If 2 carriers 'truly' love themselves then there are ways round having SS children e.g. Adoption, CVS.

Why stop at asking 2 carriers not to get married? Why dont we campaign that people shouldnt marry carriers AS/SS so that the trait can be eradicated in maybe a generation or two. Should we also campaign that relationships where one or both partners is HIV positive, shouldnt lead to marriage?

I am not trying to put down your efforts and I would be lying if I said I can feel your pain but your campaign should be about educating people about the disease and not telling them who to marry.

Regards

jp philips:


Awareness is a form of campaign no doubt but i doubt how much results it produces. If not for the roman catholic church, many carriers still go ahead to marry themselves which i find very absurd.

the churches care about HIV but pay little or no attention to Sickle cell, Dr oni(not real name) has sickle cell kids, how do you explain that? a doctor? what other awareness does he need, well educated folks have sickle pro genies.

forgive me to say but i don't subscribe to your campaign, sickle cell organizations should lobby the National assembly to make it a felony for any parent/parents who has sickle cell progenies. This is man's inhumanity to Man and spouses are not ready to listen.

Having an SS child should carry the same sentence as willfully infecting someone with HIV because i see no difference.

my sickle cell campaign is simple, if you are SS, shoot your father in the Head, and there should be Amnesty for any child who adopts this noble medical Jihad

Sincere Bigot: where are the inspirational tweets?

Abali2013: I will be posting some very inspirational tweets of people living with Sickle Cell Disease. (I apologise in advance if it affects your sensibilities).

Abali2013: I will be posting some very inspirational tweets of people living with Sickle Cell Disease. (I apologise in advance if it affects your sensibilities).

mikedore: Gudday poster,i just came across ur post. Am a sickle cell sufferer,i have passed tru many challenges and i thank God 4 good health. I wil lik to meet other sufferes. Do we have a union. Pls reach me on cal or text. 081xxxxxx God bless.

mikedore: Gudday poster,i just came across ur post. Am a sickle cell sufferer,i have passed tru many challenges and i thank God 4 good health. I wil lik to meet other sufferes. Do we have a union. Pls reach me on cal or text. 0813xxxxxxx God bless.

Bay1970: My last post on this
I respect everyone feelings on this issue.
I am only trying to provider an option for AS/AS in the house.

OB/GYN

qualified:
going through ur posts, all i see - ignorance, naivety, deceit and a dose of stupidity.
Are u a carrier?
Do u have carriers in ur family?
Do u have them as friends?
Have u experienced/ managed a crisis before?
If ur answer to any of these is NO, u dont qualify to make 'suggestions' in ds thread!
Guy, pls for d sake of God, dont advise people out there to bring kids into d world to suffer them; or, start committing abortions in a bid to kill unborn children 'carriers'.

pappilo:

You are the slowpoke and you are extremely stupid. I know people that have died from complications as a result of SCA.

I doubt you can comprehend. Where in my post have I said people should have SCA children. I clearly stated there are ways around that. How do you legislate for the thousands of SCA children born out of wedlock? Awarness of SCA Cell shouldnt be about telling people who or who not to marry but about how to avoid having children who will suffer from the condition.

Abali1:
I apologize on behalf of the poster you quoted.
The ways of going around having a SS child are CVs and adoptions. I already stated why those ways are really not the best for couples who will wish to have their own biological kids.
For instance one of the uses of Condom is to protect you from getting infected with HIV, and other STDs and of course pregnancy.
Papillo how many people in Nigeria will willingly sleep with an HIV infected person using Condom? Even with the awareness that they will be protected by the condom.
Most will not risk it, because condoms are not 100% fail-safe.
Then why should some people who are both AS willing copulate(I wrote copu.late) without protection, knowing fully well that there may be risk of bringing forth a SS child.

Pleasantme: I was really touched by ur post and all I can say is 'God knows best' she mite nt understand nw but I bet she wud b forever grateful 2u for d bold step in d nearest.future. N.B; next tym confirm and resolve genotype ishs b4 dstart of an affair so it doesnt seem like u r messing wit emotions....

Bay1970: Being AS and having AS wife/husband is not end of the world, it gives you only 25% of having SS(sickle cell), 25% of AA and 50% of AS. Can it be avoided if posible? yes, but education is only the answer. If you love your AS boy/girl friend, do not let AS stop you from having someone you really love as a life partner; you might end up having a bitch with AA and in hell for the rest of your life. If you are AS with AS wife/husband, please remember to do CVS on every pregency. CVS will detect SC at 12 wks 100%.

pappilo:

Truth is you never loved her. True love conquers all. You have left her to her fate and you will move on and source an AA chic to have children for you.

Abali1:
I apologize on behalf of the poster you quoted.
The ways of going around having a SS child are CVs and adoptions. I already stated why those ways are really not the best for couples who will wish to have their own biological kids.
For instance one of the uses of Condom is to protect you from getting infected with HIV, and other STDs and of course pregnancy.
Papillo how many people in Nigeria will willingly sleep with an HIV infected person using Condom? Even with the awareness that they will be protected by the condom.
Most will not risk it, because condoms are not 100% fail-safe.
Then why should some people who are both AS willing copulate(I wrote copu.late) without protection, knowing fully well that there may be risk of bringing forth a SS child.

standfirm:
Wow!! I never knew that dis is possible cos am a carrier an my girlfriend is also AS and i hve told her we cnt get married bt she refuse 2 understand bt with dis, i cn go along with d relationship. Tanx.