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A Thread For Sickle Cell Warriors And Doctors - Health (2) - Nairaland

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University Of Ibadan Discovers Cure For Sickle Cell / Pls I Need Help From Matured Minds And Doctors / Marriage And The Sickle Cell Genotype Issue (2) (3) (4)

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Re: A Thread For Sickle Cell Warriors And Doctors by MadCow1: 8:20am On Jul 24, 2014
Glock9: Hey Bro, I am a warrior too. The best thing is to nip crisis in the bud. Once you feel it coming on, take the necessary medication or check yourself into a clinic.

To the glory of God, I only had crisis once in my stay in the University. Tell God you don't want crisis at all. Make sure you eat well and also take a lot of water daily.

I take about 3 litres daily back in school.

Above all, trust in God who has given you life and have faith in Him.


Always with the 'God' angle.. grin

lol..

@OP.. Stay strong, live healthy, eat the right foods and always be alert to your body. Have you folks and Doctor on speed dail. Also, find a friend on campus that you can rely on and also keep that person on speed dail as your emergency contact person. Find a good hospital in the neighbourhood around your school and put them on a retainer.

Live Strong Bro.

1 Like

Re: A Thread For Sickle Cell Warriors And Doctors by Nobody: 8:40am On Jul 24, 2014
GodMode:

I am that I am.
this man blastphemes,let him die by hanging

1 Like

Re: A Thread For Sickle Cell Warriors And Doctors by sexylogan(m): 8:56am On Jul 24, 2014
OP, dont forget to take your Folic Acid tabs and Paludrine daily.
Avoid getting malaria at all costs and dont get exposed to cold.
Drink at least 3 litres of water daily.

And pray for good health.
For the crisis pains, I hope you dont experience this again because over-the-countr analgesics wont work. You will need opioid analgesics and many iv fluid infusions which you cant do yourself.
I wish you good health.
Re: A Thread For Sickle Cell Warriors And Doctors by Amhappy(f): 8:59am On Jul 24, 2014
I have a close friend who is a warrior. She sucessfully concluded her education and is now working. She is very healthy. May the Lord that pulled her through do same for OP. Amen.

2 Likes

Re: A Thread For Sickle Cell Warriors And Doctors by emymeeky: 9:05am On Jul 24, 2014
GodMode: don't smoke
No alcohol
No dancing
No partying
No running
Always stay in an environment with good air flow.
Always have panadol in your pocket.
Drink water regularly
No pepsi, coke .e.t.c
Don't stand for too long.
Don't stay in cold places.
Don't wear tight shoes.

The only cure for sickle cell is bone marrow/stem cell transplant... Don't let people tell u stories.

There is no God

So God can't your genotype... Accept the disorder and live wisely.

There is God . The greatest healer .Don't discredit God just to drive home your point.

6 Likes

Re: A Thread For Sickle Cell Warriors And Doctors by sisiafrika(f): 9:09am On Jul 24, 2014
sexyexcalibur:
der r diff types bro.. you just described acute bone pain crisis... der are also vaso-occlusive crisis , aplastic crisis ,
sequestration crisis and haemolytic crisis..
ITK! Get out!

3 Likes

Re: A Thread For Sickle Cell Warriors And Doctors by annblair1080(f): 9:17am On Jul 24, 2014
GodMode: don't smoke
No alcohol
No dancing
No partying
No running
Always stay in an environment with good air flow.
Always have panadol in your pocket.
Drink water regularly
No pepsi, coke .e.t.c
Don't stand for too long.
Don't stay in cold places.
Don't wear tight shoes.

The only cure for sickle cell is bone marrow/stem cell transplant... Don't let people tell u stories.

There is no God

So God can't your genotype... Accept the disorder and live wisely.
u must be an ingrate were did u come from we don't need discoragers like ur ass here if u don't have any positive thing to say jst... shush

2 Likes

Re: A Thread For Sickle Cell Warriors And Doctors by kennyfao(m): 9:25am On Jul 24, 2014
Some stories can touch shaa! I've being a warrior for the past 28 years. I have seen the good, the bad and the ugly. Guy, just believe sickle cell will not kill or hurt u. I have being away from my loved one abt three n half years ago and I have not had cause for alarm. I live normally, but when d pain wants to appear I use cataflam. It works but most importantly God has being enough.

3 Likes

Re: A Thread For Sickle Cell Warriors And Doctors by ayox1(m): 9:27am On Jul 24, 2014

4 Likes

Re: A Thread For Sickle Cell Warriors And Doctors by lebienconnu: 9:31am On Jul 24, 2014
lomaxx: The pain faced by sickle cell patients in unbearable and cannot be understood by anyone other than the sickle cell patient.

Acute pain crisis in sickle cell patients is best controlled by opioids. If paracetamol and NSAIDs doesn't relive you, step it up to tram. You will need a prescription for this. You've gone to hospital to see the doctors?

The best way to control a crisis is to prevent one.

-No alcohol

-No smoking

-Take lots of fluids. ESP in hot weather and when you exercise. You need to stay hydrated all the time. Dehydration will risk a crisis. In fact you need at least 8 -10 glasses a day

-Exercise regularly. But not too much. Some press-ups, some push-ups, or just mild jogging. It keeps the blood flowing and your circulation active. Don't forget to drink plenty water - you will need to step up to 12 glasses now.

-Treat infections as soon as they occur. You notice a common cold, go to your doctor for antibiotic coverage, you don't wanna risk a respiratory tract infection. You have an injury, please antibiotic coverage. The professionals know how to take care of this one. Which is why going to hospital to be known by the specialists is fundamental.

-Don't risk cold weathers and environments. Always carry your sweater around. Stay warm. Don't stay in cold environments- no a.c, no plenty fan. By all means, stay warm. Exposing yourself to cold can trigger a crisis

- Remain focused, positive and live life to the fullest. Cos believe me, that's all you got.

I am always and will always be proud of you, lomaxx and lagusta. Please keep up this helpful and amiable attitude of yours when you finally get out there and sky will be your limit. You have inspired me a lot as a senior. Merci beaucoup, Doctoeur.

2 Likes

Re: A Thread For Sickle Cell Warriors And Doctors by kennyfao(m): 9:33am On Jul 24, 2014
GodMode: don't smoke
No alcohol
No dancing
No partying
No running
Always stay in an environment with good air flow.
Always have panadol in your pocket.
Drink water regularly
No pepsi, coke .e.t.c
Don't stand for too long.
Don't stay in cold places.
Don't wear tight shoes.

The only cure for sickle cell is bone marrow/stem cell transplant... Don't let people tell u stories.

There is no God

So God can't your genotype... Accept the disorder and live wisely.

Like seriously? You should have summarised all ur ill- talk by telling the guy not to live at all. Shoo? Why are u like this? No this no that. Next time just quiet ur mouth if nothing good will come out of it. It is only a fool that says there is no God. Being alive today is a manifestation of God's existence.

1 Like

Re: A Thread For Sickle Cell Warriors And Doctors by lebienconnu: 9:48am On Jul 24, 2014
sexyexcalibur:
der r diff types bro.. you just described acute bone pain crisis... der are also vaso-occlusive crisis , aplastic crisis ,
sequestration crisis and haemolytic crisis..

eh there? Do you know who lomaxx is? try and do before you start showing off unnecessarily. He is not doing a viva but talking to a layman like a good Doctor should without any ambiguity. If you are not like that try and learn from him. Thank me later.

1 Like

Re: A Thread For Sickle Cell Warriors And Doctors by Nobody: 11:09am On Jul 24, 2014
GodMode:

I am that I am.
...e gud for you
Re: A Thread For Sickle Cell Warriors And Doctors by GodMode: 11:12am On Jul 24, 2014
kennyfao:

Like seriously? You should have summarised all ur ill- talk by telling the guy not to live at all. Shoo? Why are u like this? No this no that. Next time just quiet ur mouth if nothing good will come out of it. It is only a fool that says there is no God. Being alive today is a manifestation of God's existence.

emymeeky:

There is God . The greatest healer .Don't discredit God just to drive home your point.

annblair1080: u must be an ingrate were did u come from we don't need discoragers like ur ass here if u don't have any positive thing to say jst... shush


I'm a sickle-cell carrier and I've been living with constant (daily) pain for over 6 years.

6 years ago, When the pain began.. All I could say was "God why me?"... I was believing a miracle would happen but it never happened.

I contemplated suicide during those 6 years but my subconscious (the real God in me) told me to live with it.

Since then I'd rather believe in myself than believe in something I can't see. I'm still in pain.. living on pain killers continuously for over 6 years.

SO PLS STOP SAYING OR COMMENTING RUBBISH COS YOU DON'T HAVE AN IDEA WHAT A SICKLER GOES THROUGH.

don't tell me that there is a God because the only God I see is me.

I guess u need read John 10:34 and Psalm 82:6.... In order to realise that humans are Gods.

But I don't believe in religion.

3 Likes

Re: A Thread For Sickle Cell Warriors And Doctors by Taeewo(m): 11:18am On Jul 24, 2014
Thanks
Edwardhead: engage in dispute that may lead to fight
Re: A Thread For Sickle Cell Warriors And Doctors by tonshipy: 11:48am On Jul 24, 2014
We understand this...Good luck to you in the university. You are no difference from others and you would excel in your academics.
Am sure you already know the dos and don't believe me that's all you need.
Always stay hydrated!its very important . If possible do upto 4litres everyday.
Avoid infections like plagues....go to the doctor immediately you notice 1...a specialist doctor
Always take your antimalaria prophylaxis...very important. Never miss a day
Always take your heamatinics...those drugs like folic acid, vit c, BCO...very important
Whenever you have a bone pain go to the hosp...Buh preferably take Tramadol or there are other painkillers that most be prescribed to avoid addiction
Always check your blood level and knw your stead state pcv.
Good nutrition...important
Never put your self under extreme weda conditions . move around with your pull over . no stress I repeat no stress.
Every thg wld be fine, Good luck my dear
Re: A Thread For Sickle Cell Warriors And Doctors by Elem1: 12:16pm On Jul 24, 2014
GodMode: don't smoke
No alcohol
No dancing
No partying
No running
Always stay in an environment with good air flow.
Always have panadol in your pocket.
Drink water regularly
No pepsi, coke .e.t.c
Don't stand for too long.
Don't stay in cold places.
Don't wear tight shoes.

The only cure for sickle cell is bone marrow/stem cell transplant... Don't let people tell u stories.

There is no God

So God can't your genotype... Accept the disorder and live wisely.
a fool says in his heart that there is no God

2 Likes

Re: A Thread For Sickle Cell Warriors And Doctors by stevecantrell: 12:28pm On Jul 24, 2014
GodMode:






I'm a sickle-cell carrier and I've been living with constant (daily) pain for over 6 years.

6 years ago, When the pain began.. All I could say was "God why me?"... I was believing a miracle would happen but it never happened.

I contemplated suicide during those 6 years but my subconscious (the real God in me) told me to live with it.

Since then I'd rather believe in myself than believe in something I can't see. I'm still in pain.. living on pain killers continuously for over 6 years.

SO PLS STOP SAYING OR COMMENTING RUBBISH COS YOU DON'T HAVE AN IDEA WHAT A SICKLER GOES THROUGH.

don't tell me that there is a God because the only God I see is me.

I guess u need read John 10:34 and Psalm 82:6.... In order to realise that humans are Gods.

But I don't believe in religion.

I see no reason why you should suffer constant pain for 6 years if you do not have tumor of some kind.

Painkillers like Non steroidal anti-inflammatory (NSAIDS) drugs will eventually pack your kidneys up. You need to re-evaluate your entire lifestyle if you're going to survive.

Start doing serious research for alternative medical management. Herbs and other natural foods.
You should seriously think of trying things to cleanse your lymphatics and nourish your liver and bone marrow eg Blackseed Oil, its a "remedy for all things except death."

1 Like

Re: A Thread For Sickle Cell Warriors And Doctors by Elem1: 12:35pm On Jul 24, 2014
GodMode:






I'm a sickle-cell carrier and I've been living with constant (daily) pain for over 6 years.

6 years ago, When the pain began.. All I could say was "God why me?"... I was believing a miracle would happen but it never happened.

I contemplated suicide during those 6 years but my subconscious (the real God in me) told me to live with it.

Since then I'd rather believe in myself than believe in something I can't see. I'm still in pain.. living on pain killers continuously for over 6 years.

SO PLS STOP SAYING OR COMMENTING RUBBISH COS YOU DON'T HAVE AN IDEA WHAT A SICKLER GOES THROUGH.

don't tell me that there is a God because the only God I see is me.

I guess u need read John 10:34 and Psalm 82:6.... In order to realise that humans are Gods.

But I don't believe in religion.
Yes HE lives in U. HE is omnipresent. Try nd know HIM more my dear friend
Re: A Thread For Sickle Cell Warriors And Doctors by Perpetual459: 12:36pm On Jul 24, 2014
Suarezpatrick: . Dear fellow warriors,I greet you with a happy and confused state of mind.
I am at a stage of my life when I have to face my greatest fear.am about getting into the university where I have to live with different set of people aside my family.
At my age,I still find myself screaming when in pain even in front of my siblings.and then I wonder what if am in the hostel or lodge? AM DETERMINE TO FURTHER MY EDUCATION but then I need help on how to survive out there on my own.
please doctors here and fellow warriors how do I recover from pains minutes after going into crisis? how do I manage myself, so that it won't disrupt my exams and studies? whats the best and fastest pain killers? PLEASE HELP ME
pls look for a competent doctor who has experience in sickle cell anaemia or visit a general hospital they shld ve sickle cell dept there and make sure u don't expose urself to cold.don't be without pain reliever like novalgin,cataflam etc,above all Trust in God cos He's a great healer.Relax u re more than conqueror
Re: A Thread For Sickle Cell Warriors And Doctors by GodMode: 12:50pm On Jul 24, 2014
stevecantrell:

I see no reason why you should suffer constant pain for 6 years if you do not have tumor of some kind.

Painkillers like Non steroidal anti-inflammatory (NSAIDS) drugs will eventually pack your kidneys up. You need to re-evaluate your entire lifestyle if you're going to survive.

Start doing serious research for alternative medical management. Herbs and other natural foods.
You should seriously think of trying things to cleanse your lymphatics and nourish your liver and bone marrow eg Blackseed Oil, its a "remedy for all things except death."


Its not a tumor. Nigerian doctors can't explain it. The point is most sicklers take at least one pain killer a day while some are lucky not to experience pain often. The pain made me a reader/researcher so I know the solutions to my problems but it requires a lot of money...

If my kidneys fail so be it... I have accepted my fate... The only things I can do is get rich legally and advise AS/AC carriers to never marry each other or die trying.
Re: A Thread For Sickle Cell Warriors And Doctors by GodMode: 12:52pm On Jul 24, 2014
Elem1: Yes HE lives in U. HE is omnipresent. Try nd know HIM more my dear friend

The Creator in humans is different from the God of the world. I know "it" more than you think
Re: A Thread For Sickle Cell Warriors And Doctors by stevecantrell: 1:12pm On Jul 24, 2014
GodMode:

Its not a tumor. Nigerian doctors can't explain it. The point is most sicklers take at least one pain killer a day while some are lucky not to experience pain often. The pain made me a reader/researcher so I know the solutions to my problems but it requires a lot of money...

If my kidneys fail so be it... I have accepted my fate... The only things I can do is get rich legally and advise AS/AC carriers to never marry each other or die trying.

Get the Blackseed oil. Its done wonders for many in your shoes. And screen yourself for typhoid. Salmonella osteomyelitis.
Re: A Thread For Sickle Cell Warriors And Doctors by Neye1973: 1:19pm On Jul 24, 2014
I understand what you are going throught but be courageous. I am 41 yrs old,with a child.I have lived here in nigerian and the UK. I have HND,B.SC and M.SC. So u don't fear ur future is great.just take care of yourself. My motto is take its easy and make it simple. Don't stress yourself,you are not them,don't be like them.don't run like them,don't drink like them,don't behave like them. Eat the food you can eat wether little or much,drink a lot water,go to hospital the moment you sence you might have crisis,pray,believe,take your folic acid regularly.take hot bath,relax and enjoy yourself

1 Like

Re: A Thread For Sickle Cell Warriors And Doctors by Suarezpatrick: 1:20pm On Jul 24, 2014
Glock9: Hey Bro, I am a warrior too. The best thing is to nip crisis in the bud. Once you feel it coming on, take the necessary medication or check yourself into a clinic.

To the glory of God, I only had crisis once in my stay in the University. Tell God you don't want crisis at all. Make sure you eat well and also take a lot of water daily.

I take about 3 litres daily back in school.

Above all, trust in God who has given you life and have faith in Him.
had crisis just once in the uni? glory be to god

1 Like

Re: A Thread For Sickle Cell Warriors And Doctors by Suarezpatrick: 1:22pm On Jul 24, 2014
fapcrook: God Almighty You are the Only Perfect and Ultimate Healer, pls heal all those that are suffering from this sickle cell, the warriors, ameen na
amennn
Re: A Thread For Sickle Cell Warriors And Doctors by Suarezpatrick: 1:23pm On Jul 24, 2014
lomaxx: The pain faced by sickle cell patients in unbearable and cannot be understood by anyone other than the sickle cell patient.

Acute pain crisis in sickle cell patients is best controlled by opioids. If paracetamol and NSAIDs doesn't relive you, step it up to tram. You will need a prescription for this. You've gone to hospital to see the doctors?

The best way to control a crisis is to prevent one.

-No alcohol

-No smoking

-Take lots of fluids. ESP in hot weather and when you exercise. You need to stay hydrated all the time. Dehydration will risk a crisis. In fact you need at least 8 -10 glasses a day

-Exercise regularly. But not too much. Some press-ups, some push-ups, or just mild jogging. It keeps the blood flowing and your circulation active. Don't forget to drink plenty water - you will need to step up to 12 glasses now.

-Treat infections as soon as they occur. You notice a common cold, go to your doctor for antibiotic coverage, you don't wanna risk a respiratory tract infection. You have an injury, please antibiotic coverage. The professionals know how to take care of this one. Which is why going to hospital to be known by the specialists is fundamental.

-Don't risk cold weathers and environments. Always carry your sweater around. Stay warm. Don't stay in cold environments- no a.c, no plenty fan. By all means, stay warm. Exposing yourself to cold can trigger a crisis

- Remain focused, positive and live life to the fullest. Cos believe me, that's all you got.
thanks its helps
Re: A Thread For Sickle Cell Warriors And Doctors by Suarezpatrick: 1:28pm On Jul 24, 2014
Valfrankie: Bros you MUST BELIEVE IN YOURSELF... I 've introduced myself in previous similar threads, I won't 've the time to do it again now. Get closer to your GOD, you must be prayerful n tell GOD and yourself that your academic pursuit must be a great success. My brother it is not easy, but believe. I'm currently in my final yr n to the glory of GOD who has been my strength, I haven't had any serious crisis in school, the mild ones I 've, I manage myself with SLEEP n REST... I wish I could go on, but I 've classes. Let's be friends on whatsapp, quote me with your mobile number.... Goodluck bro
08147278998
Re: A Thread For Sickle Cell Warriors And Doctors by Suarezpatrick: 1:31pm On Jul 24, 2014
jaziridon: My man remember, all is well. I took a supplement known as Discovite mixed it wit honey, u buy it. All tru my five years in d uni I Neva had 1 single crisis. I lived a normal life like every oda student. But avoid alcohol n cold. God will help u.
wow! is discovite a painkiller?
Re: A Thread For Sickle Cell Warriors And Doctors by Glock9(m): 1:32pm On Jul 24, 2014
muchex: Buy ciklavit syrup; it helps...

Yeah! Ciklavit helps. Its even in tablet form too.
Re: A Thread For Sickle Cell Warriors And Doctors by lepasharon(f): 1:34pm On Jul 24, 2014
Dude I used to be screaming in pain but then I discovered tramadol and its soooo good. Cocodamol also has that effect. Try the opioids
Re: A Thread For Sickle Cell Warriors And Doctors by Suarezpatrick: 1:34pm On Jul 24, 2014
hannne: Hmmmmmm.op,i understand
take water much.take enuf water
take ur routine drug i.e folic acid.ts recommended by all doctor
avoid mosquitos.malaria bring out d worst in us
avoid cold places.rainy season have a tendency of making us sick
eat well o.look healthy
Nd also d crying part when u have crises,ts normal bt u can still be brave.
As at july 2014,ts was 2 years since i had my major crises.ds weather kip makn me have mild crises sha.d doctor told me i dont look like one.i look vewi healthy.she refused to give me fluids cus i was not lukn weak.
Have a positive attitude in school.dnt start teln everybody what u are.jus tel true frds.read ur books.dnt use ur health as an excuse not to be d best in class.see it as an advantage.and also pray.
Watsapp me with ur number
whatsapp num08147278998 I appreciate alot

1 Like

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