kidman96:


Please wake up.

wake side

SS patient is down with malaria... Bro are u sure u know what ure saying at all

If u are in Lagos,there's a sickle cell centre opposite Luth in Idi Araba.
I suggest there mainly because of the emotional strength she will gain from knowing and seeing others suffering from same plight as her.
Medically for now,the condition is managed symptomatically as d crisis arises,paying particular attention to pain relief,blood boost and treatment or prevention of likely infections and infestation of malaria parasite.
The medical community too is handicapped on how much it can do for sufferers than relieving pain,which for some requires upgrade of pain killers because they sort of become non responsive to previously used ones as crisis returns.
Emotional support is vital,from family,friends and caregivers.

how do i contact u, lets talk privately

Sickle cell disease
Let her:

Drink enough water always

Eat balance diet.

Take daily multivitamins but it must not contain iron

Take preventive anti malaria drug called proguanil Daily

She should sleep under insecticide treated net

Niprisan can be of great help

See a Dr who knows what he is doing for advice on lifestyle modification




http://www.ozikspharma.com/2016/08/25/when-love-is-not-enough-sickle-cell-disease/

Sorry

I know how you feel bro....ave go one too a cousin,she is 16,my advice is this take her to any government medical center,there come a time when the type of medical treatment they give her won't work anymore...try and call me let me give you direction ....am a witness and ave been in this situation for real.07036906446

please look for where you can get SOLAMIN AND ESOMARUN. produced by esomaherbal. They are miracle drugs. Equally, Cellod S. the drugs are available In Abuja for 2200

WebSurfer:

I lost my mother to cancer too bro.. idont get alot of things in this World yet

Sorry about everything...I wish I could help but I will remember you guys in prayers.

If you need urgent solution to your sister's SS predicament just call my number 08176189222

WebSurfer:
I am truly tired of all the pains she goes true each time, i couldnt stand the cries today, i didnt know when i started asking why God allowed pains for such innocent people right from birth

why did u & ur wife go for blood test before marriege?

In addition to what the good doctor has said. To young people out there, sickle cell disease can be prevented by making sure all couples go and test their genotype before pregnancy happens,for every pregancy an AS woman carries for an AS man, has a 25%chance of having the disease, it means that every single child by the couple can have the disease, imagine if they now have 3 children all are SS, triple wahala.
Another thread asked on when it is appropiate to ask for their partner's genotypes,my response is as early as possible, before you start to catch feelings for him/her. It is also not enough to ask, both of you go for testing becos someone may be lying.
No child deserves to be born with sickle cell disease. I have lost many to it even relatives, i have seen friends and classmates become addicts to powerful painkillers (not paracetamol o, those very potent ones that are found only in the hospital) because of the disease. A few even tried to commit suicide because of the pains and/or drug withdrawal. Love cannot conquer sickle cell o. Love will fly out the window when you take a child to the hospital due to a crisis. The gist of this epistle is that AS and AS should not get married, good night.

justscorchone:



My brother most people here won't understand the pain you are going through they will just be suggesting things out the asss,my suggestion is for you to seek another hospital opinion, there are lot of shady hospitals out here claiming they understand every ailment yet they just want to milk your pocket.i don't know anything about SS but if the pains are elevating then I will advice you to act fast.

Thank you

Osama92:
Miracles Still Happen. Ask Jesus To Change His Genotype. God Can.

Pls keep shut

ozikspharma:
Sickle cell disease
Let her:

Drink enough water always

Eat balance diet.

Take daily multivitamins but it must not contain iron

Take preventive anti malaria drug called proguanil Daily

She should sleep under insecticide treated net

Niprisan can be of great help

See a Dr who knows what he is doing for advice on lifestyle modification




http://www.ozikspharma.com/2016/08/25/when-love-is-not-enough-sickle-cell-disease/

Noted, thank you

Please call me, I can be of help to you. 08176189222

WebSurfer:


Thank you for this post but in question of blood tonic, how does she cope with the blood loss or decrease almost everytime this illness comes up

folic acid for blood, plenty water for pain alot of vegitables also for blood too.

PastorSeun:
If you need urgent solution to your sister's SS predicament just call my number 08176189222

I have to ask if medically or what, sorry but seing you are a pastor, from nick, i have to

kaziblake:
Sorry about everything...I wish I could help but I will remember you guys in prayers.

thank you

ojinuocheibi:
folic acid for blood, plenty water for pain alot of vegitables also for blood too.

ok, thank you

praisedd:
how do i contact u, lets talk privately

cant do this here so that me and orher people seeking same help can see ?

Op you are not alone, just know that and calm down.
I lost a sis to this terrible disease and my baby bro is a 'sickler' too but God has been faithful.
Like others have said, the folic and B-complex are essential and should be use on a daily basis but most importantly is the regular use of malaria drug, and don't try to manage the crises on ur own, take her to hospital regularly.
There are herbs that are use to prevent blood shortage, ensure she takes it regularly and have adequate rest, she shouldn't stress her self much. Above all, pray for her, our God is faithful.
There are many who live with d disease and are doing fine, I even know a guy who works at the bank, imagine how strenuous banking jobs are but he is doing fine. Just ensure she eats good food and enough rest. God will keep and preserve her in Jesus name.

eshiwe2020:
I know how you feel bro....ave go one too a cousin,she is 16,my advice is this take her to any government medical center,there come a time when the type of medical treatment they give her won't work anymore...try and call me let me give you direction ....am a witness and ave been in this situation for real.07036906446

She had been receiving treatments from a government hospital, its seems like same issue or complaints about the drugs not working anymore, and shes 16 too to be 17 in july

quintybabe:
Op you are not alone, just know that and calm down.
I lost a sis to this terrible disease and my baby bro is a 'sickler' too but God has been faithful.
Like others have said, the folic and B-complex are essential and should be use on a daily basis but most importantly is the regular use of malaria drug, and don't try to manage the crises on ur own, take her to hospital regularly.
There are herbs that are use to prevent blood shortage, ensure she takes it regularly and have adequate rest, she shouldn't stress her self much. Above all, pray for her, our God is faithful.
There are many who live with d disease and are doing fine, I even know a guy who works at the bank, imagine how strenuous banking jobs are but he is doing fine. Just ensure she eats good food and enough rest. God will keep and preserve her in Jesus name.

Amen and thank you very much. Will do this

observing in HD...

my best guess is that, the OP probably knows what to do!!!

well i just want to ask if she her sef eats well, hope she doesnt wear thing that are light? Hope she takes boiled and treated water, and let her eats more of vitamins with more of water

Hello websurfer, so sorry for the pains your sister has had to go through.they are indeed warriors.
A lot of people don't know this but there is a sickle-cell foundation directly opposite Luth at idi araba. There is a drug , you can Google it hydroxyl urea which reduces tremendously the amount of sickle cell in the blood which makes them sickly and she can take palodrine it is a malaria preventive drug , but please please don't self medicate so take her to the foundation, she will be attended to by doctors who are specialists they will run some tests and administer the right medications ,it is not expensive at all,and the drugs are more affordable if you get it there.
If you have any question don't hesitate to ask. My email is
Floxynap@yahoo.com
God bless you for caring for your sis.
Ps. Let her drink lots of water, stay in ventilated places and try not to eat late at night, very important.

WebSurfer:
Please i need help on suggestions on how to cope with my sister who happened to be an SS, shes almost 17 now but this frequent illness and blood shortages have always come up from time to time always leaving us in fear due to the height of pains and sorrows my sister pass through each time.

recently, she got down with malaria again, the doctor always prescribes drugs and all that whenever this happens but recently, she's complaining they are not working.

Please help with suggestions because we are really confused on what to do and cannot become ignorant.

We can't afford to loose such a rare gem and the brightest brain in our family.

i guess every sickler us different.am down with malaria and weak.but lonart D's helps me get by.havent had any crisis this year maybe verrry lil.try giving her lonartds.malaria drug.my phone screen is black so can't rily see wat am typing bitH but hope u got me

kidman96:


Is it you or me that didn't read the post? I am confused.

LMAO. Dont be confuse bro, that guy u quoted is a typical 'headliner', u knw those who dont read a post through but start commenting based on the headline.
Lol, very funny though.

holarcarny:
take these proscription it mighty help you.
1) she should make sure she drink plenty of water under normal circumstances she most take at least 5litters or more than of water everyday.
2) she must less take of anything inform of carbohydrates I.e anything made from cassava ( gari, bread, etc) corn ( semo because of preservative)
3) she must always eat vegetables regularly most especially ugu at least every week .
4) she must avoid any drugs that contains iron most especially blood tonic she should stay from it.
5) she should always takes folic acid and vitamin B complex including Reludrin everyday every evert important.
*** there are some other information I won't be able to pass here ****
if you need more information send me private message I will reply .

God bless you immensely fotlr this knowledge shared.

CaraJewel:
i guess every sickler us different.am down with malaria and weak.but lonart D's helps me get by.havent had any crisis this year maybe verrry lil.try giving her lonartds.malaria drug.my phone screen is black so can't rily see wat am typing bitH but hope u got me

Will put all these in notes, thank you very much