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Sickle Cell Anaemia (Genotype SS) - Health - Nairaland

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Sickle Cell Anaemia (Genotype SS) by esaias1(m): 2:39pm On Jan 02, 2016
Hello people,
I know several people living with this disease, even lived with one. little stress can easily lead to severe pain & crisis which lasts for days/weeks.
bathing with cold water sometimes leads to pains.
I need your educative opinion about this disease, how to reduce it's effect on patients ,are there any vaccines?

Thank you.
Re: Sickle Cell Anaemia (Genotype SS) by Nobody: 3:00pm On Jan 02, 2016
esaias1:
Hello people,
I know several people living with this disease, even lived with one. little stress can easily lead to severe pain & crisis which lasts for days/weeks.
bathing with cold water sometimes leads to pains.
I need your educative opinion about this disease, how to reduce it's effect on patients ,are there any vaccines?

Thank you.
The one I've known seem alright. There were no complications at all. The only unique thing about her is that she was not able to increase her body weight. She was constantly thin though she ate a lot.

1 Like

Re: Sickle Cell Anaemia (Genotype SS) by Horus(m): 11:38am On Jun 14, 2016

https://www.youtube.com/watch?v=TUWyo17wVMs

[size=14pt]Sickle cell Anaemia - (HELLO NIGERIA)[/size]

As part of efforts to educate the public on sickle cell Anaemia, the President of sickle cell foundation Lagos chapter - Bukola Bolarinwa, and a sickle cell patient- Mofeola Adisagbo , joined Olive Emodi and Gbenga Aborowa to discuss sickle cell and its effects on the society.

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Re: Sickle Cell Anaemia (Genotype SS) by omozu1(m): 12:17pm On Jun 14, 2016
sickle is not a death sentence you can live a healthy life with it
just get yourself inform about it. No what to do and not to do
Thank God for the internet
please always visit your health care provider
And also my blog i have enough for you there
like these one
Sickle cell anemia is an inherited disease of the blood. it is a condition in which there aren't enough oxygen for the whole body to use. the reason is that the red blood cells that carry oxygen throughout the body is not enough and some of the red blood cells have also been made sickle by this disease.
the red blood cells are flexible, round and they move easily through the blood vessels. but in sickle cell anemia, the red blood cells is rigid and sticky and are shaped like sickles. and The shaped cells like sickle can get stuck in smaller blood vessels, which can slow or block blood flow and oxygen to vita organs and the entire body.
problems associated with sickle cell anemia. these problems or signs don't appear until an infant is at least 8 months old and may include:
Anemia. Sickle cells are fragile. These cells live less than the normal 120 days unlike the normal red blood cells that live over 120 days and they break apart easily and die, leaving the entire body and its vita organs without a good supply of red blood cells. This always results in shortage of red blood cells (anemia). when the red blood cells in circulation is not enough, your body can't get the oxygen it needs to carry out its daily function and stay energized.
crises. crises, are a major symptom of sickle cell anemia. when sickle-shaped red blood cells block blood flow through tiny blood vessels to joints and other organs in the body there will be pains called crises in that part of the body. even in the bones pains can still come up. The pain can last for a few hours to a few weeks.the intensity also varies. Some people experience only a few episodes of pain may be once in a year or two times in five years. Others experience a dozen or more crises a year.
Hand-foot syndrome. Swollen hands or feet are the first signs of sickle cell anemia in infants. The swelling in the hands and feet is caused by sickle-shaped red blood cells blocking blood flow in and out of their hands and feet. these swollen can be treated or taken care of by simple medication.
Frequent infections. Sickle cells anemia can easily destroyed the spleen due to lack of oxygen and this is an organ that fights infection in the body. the use of antibiotics can prevent life-threatening infections.
Delayed growth. the functions of the Red blood cells is to provide your body with the oxygen and nutrients for growth and other functions. if the supply of red blood cells to the body is not enough, it can slow down the growth in infants and even delay puberty in teenagers.
Vision problems. sickle cell anemia can cause vision problems if the tiny blood vessels in the eyes lack oxygen, due to blockage. This can damage the eyes especially that portion of the eye that processes visual image.


treatment for sickle cell anemia
the only know treatment for sickle cell anaemia is blood stem cell or bone marrow, transplant. the treatment has been successful in children with the disease. it is a process whereby the bone marrow of the child is completely destroyed using high dose of chemotherapy and which is then replace with marrow from a donor who must be close relative.
you can also manage the person with sickle cell anamia successfully and the person will live a normal life free of crises and frequent blood transfusion.
1, the person must stay hydrated. dehydration will affect the flow of blood in the body so getting enough water will help to hydrate the body. and cause the blood to flow well and also help remove all the dead red blood cell in the veins especially the smaller veins. the fluid must be pure water and not soda or other brevages. your body needs 2 to 3 quarts everyday to stay properly hydrated.
2, stay warm, cold cause the veins to constrict this will affect the flow of blood in the body. you must take measures if you stay in an environment that is cold to stay warm.
3, avoid high altitude due to lack of oxygen in these places. if you have sickle cell disease you must stay away from these places because oxygen is very vita to your been healthy. while flying use an aircraft with pressurized cabins.
4, exercise, moderate exercise and not intense exercise is recommended and before you start any form of exercise please see your health care provider for guidiance. exercises help improve blood flow in the body and also create alternative pathways if there is a blockage especially in the capillary.
5, rest, do you know stress can affect your overall health and wellness? it can also affect your immune system and even the flow of blood in your body. rest is very important if you are suffering from sickle cell anaemia.
6, immunization is very important if you do not want to always be on the sick bed. get all the necessary immunization for the children and even for those that are of age.
7, work on your immune system. the following things can help you support your immune system. 500 mg of vitamin c daily, vegetables and fruits free from iron, garlic, eat medicinal mushroom free from iron, get some rays from sunlight, avoid alcohol, avoid tobacco smoke.
8, folic acids and supplement, folic acids and other vitamins especially vitamin b complex help bone marrow produce new red blood cells and you can get these vitamins by eating plenty of fruits and vegetables or supplementing them.
9 stay positive and prayerful. you can live with sickle cell anaemia and be crisis free and also live a healthy life if you keep to these facts. and always remember that you are not a sickler but a winner.


When To Call a Doctor
if you have sickle cell disease and one or more of the following symptoms are present:
1, Difficulty breathing
2, Chest pain
3,Severe abdominal,
4,Sudden weakness
5,Sudden numbness or tingling in the hands, feet, fingers, or toes
6,Sudden poor balance and poor coordination
7, Garbled speech or an inability to speak
8, Sudden change in vision
9,Severe headache
10, Loss of consciousness
11, Fever higher than 101°F (38.33°C)
12, Severe cough
13, Repeated vomiting or persistent diarrhea
14, A sudden increase in the size of your or your child's spleen (Learn from your doctor how to feel your child's spleen to check its size.)
15, Increased paleness
16, Persistent erection of the penis
17, Severe pain that can't be relieved with your usual prescription painkilling drugs or other pain-relief methods
Call your doctor if you or your child has any of the following symptoms:
1, A painful event
2, An open sore (ulcer) on the leg
3, More frequent urination than usual

Vitamin and mineral supplementation: Blood levels of many vitamins and minerals square measure typically low in people with RBC illness, as well as A and carotenoids, vitamin B6, vitamin C, vitamin E, magnesium, and zinc. this will lead to a big deficiency of antioxidants, which can increase the danger of illness flare–ups. Studies indicate that vitamin–mineral supplements of bound nutrients (vitamins C and E, zinc, and magnesium) or treatment with a mixture of high–dose antioxidants willscale back the proportion of sickled red blood cells.
Omega–3 carboxylic acid supplements: Supplementation with omega–3 fatty acids will improve the membranes of red blood cells and should decrease flare–ups of the illness. atiny low preliminary study indicated that omega–3 carboxylic acid supplementation with animal oil reduced the amount of painful episodes requiring hospitalization. However, this finding has not however been confirmed in controlled

source
http://yourhealthandmy..com.ng/2015/08/sickle-cell-anemia.html

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Re: Sickle Cell Anaemia (Genotype SS) by omozu1(m): 12:23pm On Jun 14, 2016

The one I've known seem alright. There were no complications at all. The only unique thing about her is that she was not able to increase her body weight. She was constantly thin though she ate a lot.
please tell her to drink a lot of water like more than 7 liters a day even during bed time
and also eat enough tissue building foods like fruits and vegetables plenty of them daily and her body mass will increase

1 Like

Re: Sickle Cell Anaemia (Genotype SS) by esaias1(m): 5:41pm On Jul 25, 2016

The one I've known seem alright. There were no complications at all. The only unique thing about her is that she was not able to increase her body weight. She was constantly thin though she ate a lot.
Does she engage in physical activities?
Re: Sickle Cell Anaemia (Genotype SS) by VERTEX1: 1:07am On Nov 21, 2018
esaias1:
Does she engage in physical activities?

yes of course,

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