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Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment - Health (4) - Nairaland

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Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by IvyGRush: 2:37pm On May 13, 2019
kelechiodo:


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Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by IvyGRush: 2:42pm On May 13, 2019
Winners72:


Please my nephew who is 16years of age has been suffering from severe epilepsy for about 7years now. We have consulted a lot of specialists but no solution. Can u be of help sir?

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Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by kowalsky: 1:51am On May 14, 2019
AngryParrot1:


The body can repair itself. I expect people from ur standpoint to dismiss this as foolishness.

The body has a limited capability of repairing itself. Several tissues cannot regenerate. Cardiac. Nervous. Etc. And 'healing' in the case where these tissues get damaged is basically fibrosis 'plugging up space' with fibrous tissue.

Buy that's even tissue, not DNA. inherited deficient DNA cannot self correct itself because DNA forms new DNA by duplicating itself (replication). If the parent strand is deficient, all daughter strands inherit this deficiency because the template for generating the new daughter strand is the deficient parent strand. For such a cell the deficient strand and its deficiencies is the correct genome and DNA polymerase will act to preserve the base composition of this deficient parent strand in the daughter strand by all means.

So no, the body cannot 'repair it self in this case.

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Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by SPOILT9JAOLOSHO(m): 2:28am On May 14, 2019
ZenoHobbes:


This is a very scary disease. I feel very much for her and her parents. I think she should be taken back to a specialist hospital where she can be better managed professionally. https://www.dailymail.co.uk/health/article-6497789/The-boy-butterfly-skin.html

Thanks dear
Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by SPOILT9JAOLOSHO(m): 2:29am On May 14, 2019
whiteseed:
educhristian21@gmail.com
Thanks
Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by AngryParrot1: 7:05am On May 14, 2019
kowalsky:


The body has a limited capability of repairing itself. Several tissues cannot regenerate. Cardiac. Nervous. Etc. And 'healing' in the case where these tissues get damaged is basically fibrosis 'plugging up space' with fibrous tissue.

Buy that's even tissue, not DNA. inherited deficient DNA cannot self correct itself because DNA forms new DNA by duplicating itself (replication). If the parent strand is deficient, all daughter strands inherit this deficiency because the template for generating the new daughter strand is the deficient parent strand. For such a cell the deficient strand and its deficiencies is the correct genome and DNA polymerase will act to preserve the base composition of this deficient parent strand in the daughter strand by all means.

So no, the body cannot 'repair it self in this case.
As a scientist, ur understanding of nature is based on 'facts'. There are a lot of things u do not know about nature, simply because u have not been taught in a class room.
When western medicine is ignorant about something concerning a disease, they say it has no cure, or they say it is impossible to heal. If I ask u if there is a cure for cancer, u will say no. Simply because oyibo has not told u that there is a cure, but people are healing everyday from cancer. Even the oyibo themselves are beginning to heal from cancer now, because they have submitted to nature. I have proof of this & I will show u.
If cancer can be healed thru natural therapy, why not this?
The body is genetically designed to heal itself IN ALL CASES if given the chance to.
Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by kowalsky: 11:16am On May 14, 2019
AngryParrot1:

As a scientist, ur understanding of nature is based on 'facts'. There are a lot of things u do not know about nature, simply because u have not been taught in a class room.
When western medicine is ignorant about something concerning a disease, they say it has no cure, or they say it is impossible to heal. If I ask u if there is a cure for cancer, u will say no. Simply because oyibo has not told u that there is a cure, but people are healing everyday from cancer. Even the oyibo themselves are beginning to heal from cancer now, because they have submitted to nature. I have proof of this & I will show u.
If cancer can be healed thru natural therapy, why not this?
The body is genetically designed to heal itself IN ALL CASES if given the chance to.

Lols. I understand who you are now and I'm sorry to have wasted both your time and mine smiley
Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by suyamasta(m): 6:31am On May 17, 2019
SPOILT9JAOLOSHO:
A big thank you to the mods and everyone for the kind feedback have liked all of them, I spoke with my sister and she said she isn't seeing any improvement when she checks on her and that it has started moving to other parts of her body.. She tried br**stfeeding her and the mouth was bleeding and couldn't allow her eat.
We are monitoring her and I will update the house.

Once again.. thanks all
Love you all!


How is she now I hope she is better?

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Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by AngryParrot1: 7:35am On May 17, 2019
I'm sorry. God knows best.

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Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by oxypress: 7:43am On May 17, 2019
suyamasta:



How is she now I hope she is better?
You suppose know watin don hapin wen dem dey treat emergency for house with brokoly and herbs. "Winch" doctors prescription wey full here giving counter productive advice.
Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by suyamasta(m): 8:16am On May 17, 2019
oxypress:

You suppose know watin don hapin wen dem dey treat emergency for house with brokoly and herbs. "Winch" doctors prescription wey full here giving counter productive advice.

But if she has gotten better treatment she should be fine now I guess
Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by Jadsy01(f): 9:36am On May 17, 2019
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Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by oxypress: 1:37pm On May 17, 2019
suyamasta:

But if she has gotten better treatment she should be fine now I guess

That condition is extremely difficult to treat by standard medical protocols except with combined efforts by medical experts who know exactly what is happening. Eg: as the skin is swelling and peeling that is how the gastro intestinal tract ie the internal lining (not visible out side) is also swelling and peeling off and bleeding. The internal damage is more than the external one. Other organs are also affected. So it's not a one specialty affair.
Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by SPOILT9JAOLOSHO(m): 2:35pm On May 18, 2019
suyamasta:



How is she now I hope she is better?
My dear I pray she is, the blisters are still there but by God's grace it will go, they covered her hand with light bandage so she won't injure herself unknowingly, hoping they are discharged when she is fully okay.
Thanks for asking..
Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by SPOILT9JAOLOSHO(m): 2:37pm On May 18, 2019
AngryParrot1:
I'm sorry. God knows best.
Thanks bro, I appreciate. I wrote an update above hoping she gets better by God's grace.. kudos!

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Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by SPOILT9JAOLOSHO(m): 2:39pm On May 18, 2019
suyamasta:

But if she has gotten better treatment she should be fine now I guess
There is really no treatment according to the reports from hospitals and online, only care that the baby needs to prevent more blisters and infection.
Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by Adalassy: 7:16pm On May 18, 2019
SPOILT9JAOLOSHO:

There is really no treatment according to the reports from hospitals and online, only care that the baby needs to prevent more blisters and infection.

She has a Genetic condition and there is no such thing as just "preventing" the blisters and skin degeneration. They cannot prevent anything without treatment. Left to herself this baby will keep on having blisters and because from the picture you posted and the fact that you said she had bleeding in her mouth it shows she has Kindler syndrome which is a variant of Epidermolysis Bullosa. Only treatment can help either prevent or limit her blisters.

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Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by suyamasta(m): 9:25pm On May 18, 2019
SPOILT9JAOLOSHO:

My dear I pray she is, the blisters are still there but by God's grace it will go, they covered her hand with light bandage so she won't injure herself unknowingly, hoping they are discharged when she is fully okay.
Thanks for asking..
Amen I'm hoping she gets well quickly,

1 Like

Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by suyamasta(m): 9:27pm On May 18, 2019
SPOILT9JAOLOSHO:

There is really no treatment according to the reports from hospitals and online, only care that the baby needs to prevent more blisters and infection.
Ok if it's an infection then there's got to be a causative factor which should be identified and stopped!

1 Like

Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by suyamasta(m): 9:29pm On May 18, 2019
oxypress:


That condition is extremely difficult to treat by standard medical protocols except with combined efforts by medical experts who know exactly what is happening. Eg: as the skin is swelling and peeling that is how the gastro intestinal tract ie the internal lining (not visible out side) is also swelling and peeling off and bleeding. The internal damage is more than the external one. Other organs are also affected. So it's not a one specialty affair.
Chai this must be painful what a pity, I hope she gets well soon

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Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by SPOILT9JAOLOSHO(m): 3:49am On May 19, 2019
Adalassy:


She has a Genetic condition and there is no such thing as just "preventing" the blisters and skin degeneration. They cannot prevent anything without treatment. Left to herself this baby will keep on having blisters and because from the picture you posted and the fact that you said she had bleeding in her mouth it shows she has Kindler syndrome which is a variant of Epidermolysis Bullosa. Only treatment can help either prevent or limit her blisters.

Pls check your mail, want to chat with u?
Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by SPOILT9JAOLOSHO(m): 3:59am On May 19, 2019
suyamasta:
Chai this must be painful what a pity, I hope she gets well soon
Bro, the thing tire me, she don lose weight finish, come lin
Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by Adalassy: 8:47am On May 19, 2019
SPOILT9JAOLOSHO:

Pls check your mail, want to chat with u?

I have replied your message.
Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by SPOILT9JAOLOSHO(m): 12:39pm On May 19, 2019
Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by SPOILT9JAOLOSHO(m): 4:56pm On May 19, 2019
Adalassy:


I have replied your message.
Alright, thanks
Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by oxypress: 1:22pm On Oct 19, 2019
Una bring case here everybody dey run helta-skelta to krak brain. Now no more feedback again, haba na waaoo.
Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by SPOILT9JAOLOSHO(m): 6:41pm On Nov 16, 2019
oxypress:
Una bring case here everybody dey run helta-skelta to krak brain. Now no more feedback again, haba na waaoo.
How bro?
Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by oxypress: 8:49pm On Nov 16, 2019
SPOILT9JAOLOSHO:

How bro?

Bros we dey o. How dem waka with dat pikin now?
Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by SPOILT9JAOLOSHO(m): 4:30am On Nov 19, 2019
oxypress:


Bros we dey o. How dem waka with dat pikin now?
Was tough

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