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Nairaland Forum / Nairaland / General / Health / Sleeping Beauty syndrome. 17-year-old Girl Sleeps For Two Months At A Time (614 Views)
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Sleeping Beauty syndrome. 17-year-old Girl Sleeps For Two Months At A Time by fineboynl(m): 12:58am On Oct 30, 2019 |
The mother of a 17-year-old Colombian girl diagnosed with a very rare condition known as “Sleeping Beauty” syndrome has appealed to authorities for help as she is struggling to look after her. Sharik Tovar, a 17-year-old girl from the Colombian town of Acacías, has been suffering from Kleine-Levin syndrome ever since she was two. The ultra-rare condition – only 40 cases have been reported worldwide – is characterized by recurrent episodes of excessive sleep as well as cognitive and behavioral changes. In Sharik’s case, hypersomnia episodes can last up to two months, during which time her mother, Marleny, has two liquefy her food and feed her every few hours. To make matters worse, after these long bouts of hypersomnia, the 17-year-old suffers from temporary or permanent memory loss. “After a 48-day sleeping episode in June last year she lost her memory temporarily. She asked me who I was,” Marleny Tovar told Caracol News, adding that her daughter’s longest hypersomnia episode lasted a whopping two months. This year, during the months of January and February, Sharik unnatural slumber lasted 22 days, and her mother had to feed her by hand every couple of hours. Her daughter hasn’t yet had a catheter tube installed, because she can still be fed by hand, but Marleny has to first liquefy everything she cooks. She has had to quit her job in order to look after Sharik full time, which is why she desperately need the help of Colombian authorities to get by. Unfortunately, Marleny’s cries for help have so far fallen on deaf ears. When the bizarre case of Sharik Tovar first made national headlines in 2017, the mayor of Acacías pledged to provide housing for the family, so they wouldn’t have to pay rent anymore. That has yet to happen, and local authorities do nothing but offer excuses. Marleny Tovar has also appealed to health services to expedite the delivery of nutritional supplements that Sharik needs to survive during hypersomnia episodes, as well as neurological treatment to mitigate the damage to the girl’s memory. “It’s what she needs most because she doesn’t eat the way we eat,” Marleny said about the supplements. Unfortunately, the cause of Kleine-Levin syndrome is yet unknown, although it has been suggested that the condition may be linked to viral infections. There is no known cure https://www.withinnigeria.com/amp/2019/10/29/17-year-old-girl-sleeps-for-two-months-at-a-time/ |
Re: Sleeping Beauty syndrome. 17-year-old Girl Sleeps For Two Months At A Time by padi94(m): 1:16am On Oct 30, 2019 |
Make i come kiss her?
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Re: Sleeping Beauty syndrome. 17-year-old Girl Sleeps For Two Months At A Time by Samfloxin(m): 5:18am On Oct 30, 2019 |
So there is no cure or antidote yet? Na waaooo make I see the one wey pass oyibo. Make them pour am small hot water nah,e fit wake am. |
Re: Sleeping Beauty syndrome. 17-year-old Girl Sleeps For Two Months At A Time by mamajj17(f): 6:49am On Oct 30, 2019 |
The best Sickness we could wish PAPA BUHARI rather than being there before he wakes up, he is already Overthrow !!! |
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