kidman96:


Madam please i am not the cause of your frustration, look for your husband and attack him.

dont let me lay a curse on u, if this is the way u talk to ur mother, don't bring ur lack of home training to a public forum, u are the one that is frustrated , useless child, I don't blame u, stupid boy, u are the cause of ur own misfortune and frustration

WebSurfer:
I am truly tired of all the pains she goes true each time, i couldnt stand the cries today, i didnt know when i started asking why God allowed pains for such innocent people right from birth

I totally feel your pains and understand where you're coming from. There's a reason behind everything. Trust me.

I don't mean to scare you but my aunt (mom's sister) also had a daughter who was SS who she managed and managed her case until she grew up to about 20 or 21 in '96 or '97 and she lost her. You need to see how my aunt cried and cried. It was too painful for her.

Some SS individuals are able to make it to adulthood. I remember one teacher in my secondary school in his 40s who was SS and save for the fact that he was very lanky, no one would know he's SS because he seemed very strong and barely missed any day to come to school.

Hi OP, I am truely sorry for what your sis is going through. I know how it feels because I also have someone who is suffering from this. But praise be to God almighty, we have been managing him with different drugs. We have tried Solamin and its combination (cant remember the name), its effective. We have also tried Dioscovite and it seems to be more effective. When on this drug, he barely experience crisis. He plays around and feels happy, thus his happiness making us to be at ease.

NB: Dioscovite is taken along side with folic acid, and for solamin i cant remember if its taken with folic acid.

I actually feel very sad anytime he is in crisis.

You should discuss with your family Doctor concerning Dioscovite or Solamin and its combination.

Also, dont forget to take your sister's trouble to God.

Life is truely difficult for some and easy for others but in all things, may God always make a way for his creation where there seems to be no way.

IT IS WELL

.

-The only reason she is coming up with frequent malaria is because she is frequently expose to mosquito bites, let her take precautions and should be protected from mosquito bites.
-Her dietary must be balanced, and as much must be natural, fruits, vegetables, water should be one of the best.
-She must also make sure she is not expoosr to much eat and at same time cold, she should no her limit and avoid too much stress
-Then u as members of the family should not see this as a dead warrant, stay by her, love her, care for her and encourage her to do the right tin at the right time, she will be fine.
Min while if the present hospital caring for her is not satisfactorily doing their work, please take her to other hospital, hopefully a good general Hospital around u or special centers for patients with SS

Call or send text message to me on this number 08076440295.I may be of great help

Give the patient C24/7 by Alliance in motion global, contact me on 07038266552

Hello Websurfer,
Have you heard of the latest vaccine given to sickle cell patients? Well its called Pneumococcal Conjugate Vaccine also known as Prevnar13 which is produced by Pfizer. This vaccine is used for the prevention of invasive disease and last upto a year without the patient falling sick frequently i.e its taking every year and recommended by a consultant. You can ask your family doctor or consultant about this vaccine.
Read More: https://www.drugs.com/prevnar-13.html or send me an email let's discuss.

Its a bit challenging. Im currently dating somebody with it and yestaday she had a crisis and she still called me and was in tears and by her breathing i knw she was in great pain,was heartbroken. I calld afta church today and her voice was hoarse and told me she was in the hospital. Also lost a male friend in 2005 with the ailment,he passed on in his sleep.

WebSurfer:
Please i need help on suggestions on how to cope with my sister who happened to be an SS, shes almost 17 now but this frequent illness and blood shortages have always come up from time to time always leaving us in fear due to the height of pains and sorrows my sister pass through each time.

recently, she got down with malaria again, the doctor always prescribes drugs and all that whenever this happens but recently, she's complaining they are not working.

Please help with suggestions because we are really confused on what to do and cannot become ignorant.

We can't afford to loose such a rare gem and the brightest brain in our family.

Kindly find your way to petals fm in Ibadan, ask for Adetoye Omotoso 08023440062. Sickle cell patients can now be cured. Good luck.

MrsAnyanwu:
dont let me lay a curse on u, if this is the way u talk to ur mother, don't bring ur lack of home training to a public forum, u are the one that is frustrated , useless child, I don't blame u, stupid boy, u are the cause of ur own misfortune and frustration

Hmmm...

I have sickle cell anemia and I'm 28 yrs old. these are the things I do to avoid crisis :
1. avoid all forms of cold environment
2.Avoid stressful activities.. but take strolls in the evening just to keep in shape.
3. take LOTS of water to prevent dehydration.. that's a major trigger for crisis
4.eat lots of fruits and vegetables .. they contain anti-oxidants
5.take vitamin b complex tablets daily.
6 take supplements like Nicosan .. jobelyn is an effective and cheaper substitute
7. avoid blood tonics at all costs.. but you can supplement by taking ugwu leaf extract with milk once in a while.
8. pray and stay positive.

Thank you all for your recommendations, really appreciate

WebSurfer:
Thank you all for your recommendations, really appreciate

If you can follow half of the advice you have here your sis would rarely be sick again.
I beg you, pls n pls follow these instructions to avoid stories that touch the heart.
I feel her pain, I feel yours too. Pls do something. And soon
Its well.

Good evening. Is ur Sister on Hydroxyurea Capsule, Folic acid and Proguanil tablets? I'm a Health Worker working with d founder of the Sickle Cell Foundation of Nigeria. Pls call me on 07038999949.

[color=#006600][/color]

WebSurfer:
Please i need help on suggestions on how to cope with my sister who happened to be an SS, shes almost 17 now but this frequent illness and blood shortages have always come up from time to time always leaving us in fear due to the height of pains and sorrows my sister pass through each time.

recently, she got down with malaria again, the doctor always prescribes drugs and all that whenever this happens but recently, she's complaining they are not working.

Please help with suggestions because we are really confused on what to do and cannot become ignorant.

We can't afford to loose such a rare gem and the brightest brain in our family.

Pls call me ASAP on 07038999949

I hope u can see this, I am 44yrs, I have lived in and outside Nigeria. You can contact me on 08052244200. First of all she must be ready to fight to stay alive, that means 1. No mosquitoes. The 2 most important thing for an as person is to avoid malaria and to reduce stress. Other things are in between. Also, the age she is now is critical so must be strong and ready to live. I have done it and do is thousands of other people.

WebSurfer:
Please i need help on suggestions on how to cope with my sister who happened to be an SS, shes almost 17 now but this frequent illness and blood shortages have always come up from time to time always leaving us in fear due to the height of pains and sorrows my sister pass through each time.

recently, she got down with malaria again, the doctor always prescribes drugs and all that whenever this happens but recently, she's complaining they are not working.

Please help with suggestions because we are really confused on what to do and cannot become ignorant.

We can't afford to loose such a rare gem and the brightest brain in our family.

Brother, God can change your sisters genotype to AA and heal her perfectly. It's very common where I worship and it's free. Testimonies abound.

Pls register ur sis at lasuth, mercy hospital or luth where they have experts...hematologists...DTS a special n separate dept properly equipped to attend to all cases of sickle cell... Folic acid,drinking plenty water, warm clothes and bcomplex cum asthymin are all normal rituals DT must b taken. Sickle cell isn't avdeath sentence, carriers can b free Frm sickness and pains, live a normal regular long life than non carriers. It is well dear, ur love and support will give her more strength n positive life. Stay strong.

Neye1973:
I hope u can see this, I am 44yrs, I have lived in and outside Nigeria. You can contact me on 08052244200. First of all she must be ready to fight to stay alive, that means 1. No mosquitoes. The 2 most important thing for an as person is to avoid malaria and to reduce stress. Other things are in between. Also, the age she is now is critical so must be strong and ready to live. I have done it and do is thousands of other people.

Thank you..

We finally got it done by God's grace.

Was recommended to a place in the East where a traditional man removed some things from her body like a surgery, something our supposed hospitals couldnt detect all these while.


Spent around 130k for the whole thing.

Since then, everything stopped and she is perfectly ok now according to her, the last time i saw her was one of the happiest mood i ever saw in a long time.

Thanks and God bless you all.

don't go from a warm place to a cold place so fast. it triggers the crisis

WebSurfer:


Thank you..

We finally got it done by God's grace.

Was recommended to a place in the East where a traditional man removed some things from her body like a surgery, something our supposed hospitals couldnt detect all these while.


Spent around 130k for the whole thing.

Since then, everything stopped and she is perfectly ok now according to her, the last time i saw her was one of the happiest mood i ever saw in a long time.


Thanks and God bless you all.

Hi, can you please go into details on what was done for her. Im 47 yrs old and many others like myself know modern medicine has failed us before the advent of bone marrow transplant.

pinky85:


Hi, can you please go into details on what was done for her. Im 47 yrs old and many others like myself know modern medicine has failed us before the advent of bone marrow transplant.

Good evening ma. Yes truly modern medicine and doctors failed..

All they do is keep diagnosing drugs here and there.

I heard about the born marrow transplant too but what was done to my sister was different..

The traditional man removed something that looks like lumps from beneath her breast with herbs to take for a short while for quick healing.

No more sickness since then..

I cant really say much because my dad was the one who took her there from Ughelli in delta to Enugu to get it done

Solamin

WorkSmartEdu:
[b]Oh dear I'm so sorry to hear of the needless pain your younger sister is going through. I will not give you a number to call, I will recommend a solution here and now! This will be your final bus stop for sickle cell crises. I know this because some family members who now live a normal life since taking this solution.

The guaranteed solution is Dioscovite! because she is already facing crises, tell her to take 2 * 1ml of the suction measurement that comes with the dioscovite morning and night. She should mix it in a cup of normal water or a diluted cup of juice for taste. She should take 1 folic acid and 1 B complex 2hours after taking Dioscovite. She can reduce the dose to once a day as she begins to feel better. Extend my congratulations to her! Sickle cell is no longer a killer with this drug founded by an Igbo man based in the U.S also don't stop here, please google Dioscovite and you will forever be pleased you did. Don't thank me also, just give all the glory to ChiUkwuOkike.

If you are looking for where to buy the original Dioscovite, please message me and I will give you a source. I don't even mind paying for your first pack of the drug. I just feel so passionate towards those who suffer from this preventable disease as a result of family members who have suffered from this in the past before we discovered this miracle herbal remedy[/b]

please how do I get the original one for my daughter that is a year and five months

WebSurfer:


Good evening ma. Yes truly modern medicine and doctors failed..

All they do is keep diagnosing drugs here and there.

I heard about the born marrow transplant too but what was done to my sister was different..

The traditional man removed something that looks like lumps from beneath her breast with herbs to take for a short while for quick healing.

No more sickness since then..

I cant really say much because my dad was the one who took her there from Ughelli in delta to Enugu to get it done

please sir, ask your dad where precisely. my daughter is suffering

icybeth:

please how do I get the original one for my daughter that is a year and five months

Are you based in Nigeria or abroad. If in Nigeria, go to dm your telephone number and I will call you or sign post you to who to call. All the best!

WorkSmartEdu:


Are you based in Nigeria or abroad. If in Nigeria, go to dm your telephone number and I will call you or sign post you to who to call. All the best!

I base in Nigeria, here is my number 08172700034.

WebSurfer:
Please i need help on suggestions on how to cope with my sister who happened to be an SS, shes almost 17 now but this frequent illness and blood shortages have always come up from time to time always leaving us in fear due to the height of pains and sorrows my sister pass through each time.

recently, she got down with malaria again, the doctor always prescribes drugs and all that whenever this happens but recently, she's complaining they are not working.

Please help with suggestions because we are really confused on what to do and cannot become ignorant.

We can't afford to loose such a rare gem and the brightest brain in our family.

How is your sister ?
I hope she's feeling much better now

Mariangeles:

How is your sister ?
I hope she's feeling much better now

Yes thank you. She has been perfectly okay since then. Just little not so serious illness few times

icybeth:
please sir, ask your dad where precisely. my daughter is suffering

Sorry i did not get this message in time. Are you still active ?

holarcarny:
take these proscription it mighty help you.
1) she should make sure she drink plenty of water under normal circumstances she most take at least 5litters or more than of water everyday.
2) she must less take of anything inform of carbohydrates I.e anything made from cassava ( gari, bread, etc) corn ( semo because of preservative)
3) she must always eat vegetables regularly most especially ugu at least every week .
4) she must avoid any drugs that contains iron most especially blood tonic she should stay from it.
5) she should always takes folic acid and vitamin B complex including Reludrin everyday every evert important.
*** there are some other information I won't be able to pass here ****
if you need more information send me private message I will reply .

in addition to this, she should avoid anything that will stress her
She should always sleep under mosquito net to prevent her from malaria
She should always take fruits.
N.B my last sin of 5yrs is also an SS. Speaking from experience