uchechuwku:

I'm AA and you know the funniest sh*T ever was that it was my GF that broke up with me.
My mum was happy tho.
I love her to pieces.
She couldn't handle the love anymore saying that I'm with her out of pity. I'm much more of a nanny than BF.
I just couldn't help it. She's d best gurl ever (minus the crises tho)
I kept records for her.. Date of her crises, the last food she ate. Her drugs, weight gain/loss.
And she broke up with me?
Really, life is bleeped up..like so bleeped up.

Maybe your actions showed pity instead of Love. You are a guy and you are "a bit of a nanny", isn't it the ladies who play that role?
At a point in my life's journey, I really went out of my way to do everything Against my Health, because I felt my family were more interested in making me live a "sheltered life". I smoked, I drank (not just beer, but squadron and other hot drinks).
In retrospect, it was God's Grace that kept me alive. What we need is Love (treat us as humans and not someone who has a date with death anytime crisis come calling).

Ms.AfroZest:


Amen. A friend shared a personal experience about how her boyfriend abonded her on an ICU bed when he realized she had SCD even when he was hbAA. She has lost all hope and is presently battling depression. I am amazed cos you would never know she is an SS cause she looks so healthy and shows amazing strenght. I think this are also issues we should include in our advocacy against sicke cell anaemia. Those living with it are not weaklings, they can partake in any activity only at their own pace and strength.

my dear tell your friend that Abali does not have a remedy for Depression. But She should talk to my Father in Heaven who will Hear and Comfort her.

omoikhefue:

i dont pity you at all, rather i envy u... lets join voices and reach an even wider coverage. #teamSCAwarenesscampaign

Thank You.
You can also Join us by liking our page, Naija Sickle Cell Warriors and also Sickle Cell Warriors both on Facebook.

queen binte o:
Very few. The day a frd told me his fiancee is hbss,I cud nt contain ma joy. Since then I hold I'm in high esteem.now they are married wt a baby girl. So many hbAA won't marry hbSS/SC cos they believe we weill soon die.even if they want to,their fam wil kick against such union unless they are nt aware. I kno pple wt SCD who are happily married wt kids but some of us are stil unfortunate in that rgds.hopefully,we wil get married some day.

Someone was asking, "What Stigma?"
I always have this smile on my face, anytime any of my EXs get married and start calling me afterwards "just to remain friends".
Sometimes my only contributing crime in a relationship break-up is that am SS.

Pdizzle: what a coincidence, why dis exact time, i just cnt stop crying. I got a call ystdy dat dami is dead, why God why, the only child for God sake, dis is d first time dis sickle cell loss is hitting me so bad, dami u were so brillant, ur future was so bright, cnt believe i will come bck after my i.t n u wont be sitting in class with us, tho u were frail n small but what u ve got upstairs is un imaginable, i remember the way u got ur nick name, the whispers n backpasses during exams. God i still cant believe, u were soo lively with ur tiny voice, i remember u stayn to play games after lectures n mama be calln,God why why

RIP, to Dami one of the falln heroines.
This Thread is a Wake Up Call.... SILENCE IS NOT AN OPTION WHEN IT COMES TO SICKLE CELL.
SAY NO TO AS/AS MARITAL RELATIONSHIP.

xandy84: Reading through all dis responses move me to tears.. Guess is time to get tested and know my gene so as not to make wrong decision cos life is 2 short... For all those sufferer, my heart goes out toward U n have strength in the lord..

Please get tested, and if possible go to one of the Teaching Hospitals (or a good reputable Lab) in your area.

FACT 4: “Nigeria has highest number of people with sickle cell disease worldwide” - Prof A. Falusi, President, SCHAF #

And some will still want to hold that First position or Highest number status, by claiming Love and going into AS/AS Marital relationship.
SAY NO TO AS/AS MARITAL RELATIONSHIP. If you must marry please go in for adoption, Love is a selfish reason for bringing untoward pain to that innocent child.

Today is #WorldSickleCellDay . Did you know that every year 150,000 babies are born with this disorder in Nigeria.

Sickle cell is not a joke. And silence over the matter is not an option. We MUST continue to promote awareness.
#WSCD2013

no punt of love for man or woman should make a person put an innocent child thru' the pains of Sickle cell anaemia. Not right.
WSCD2013#

Muh: Please advise, can scd patience continue to take it malaria medicine with cellod-s together.

Yes. You can continue to take you malaria medicine.
Please if you are on FB visit our page Naija Sickle Cell Warriors, your can always post questions there and I will help with answers the little I can.

queen binte o:
Oga biko,maybe you have not been a regular caller here cos this OP has been regular with post on SCD. We have a group on fb(he is the group admin) n you join if ure interested. 'Naija Sickle Cell Warrior' is the group name.join and ask questions. Thanks @ Abali - I tink the heading should be about the reason for the 100million tweets,dats #WSCD2013 cos most peeps might not really be aware of June 19. We rock Abali

I did a little bit of brain work to come out with a catchy Title to see if the MOD's of the Health section can take it to the Front page. I created about three topics on SCD, and this one was selected.
I will keep posting tweets about SCD, every now and then to help keep the thread alive.

blink182: Oga only once a year you come out to really help with all you know. Do you think that is fair enough, ignorant sufferers should probably die in pain or hang on until June 19 when you come out to say something?

What have you done in the past year to alleviate crisis? Personally, I have become a crusader of cellod-s, taking the message to as far as UK and trying to get it registered in Kenya and Ghana.

Instead of telling people not to get married, why not let them get married to whoever they choose provided they do not forget to put their child on cellod-s.

I have seen so many patients become healthy, some even going as far as claiming they changed from ss to aa. I used to be the very worst case of sickle cell, mine is so bad that even after becoming healthy, I still developed avascular necrosis.

You mostly get infected with malaria when you sleep but is that to say we shouldn't sleep?...hell no! We sleep knowing fully well that worse case scenario will see us having anti malaria drug and in time we will be as good as new. Let's match together against this monster and make it an ordinary illness like headache.

I may be wrong, you might have done something to impact sufferers during the year but it pains me when I see the people really pushing the gospel of cellod-s are business people who simply want to make their money and have no true commitment to their patients.

Blink my brother Warrior, I have been trying to reach out to people the little way I can. Yes, I have not been a Crusader for Cellod-s because I don't want anybody mis-understanding my Campaign for awareness. I am not here to solicit for fund, but to create awareness and educate people the little I can.
In person and privately I have given sufferers advice about Cellod-s. Also Blink, like Binte said we have NAIJA SICKLE CELL WARRIORS on facebook. I expected you to have come on board and do your bid.
Moreover, you know how difficult it is to get post to the front page. I decided to use topics I have created on SCD as my signature.

crisycent: I lost a friend to sickle cell 3 years ago. Heard there is a cure for it now; bone marrow transplant. To my man Oghenekaro Ifoni a.k.a Niro Brown R.I.P

Before you can do a bone marrow transplant, you have got to get a match and S/he must be A WILLING DONOR.
Moreover is like a one in every 100,000 persons before you get a match. We are not even talking about the cost implications.

#WSCD2013
Thanks to all the mothers who stay up all day n night to take care of us! We love u!!

Sickle cell is not contagious!!!! It is a genetic blood condition that can affect anyone. Pls get tested and save a life. It's important.
WSCD2013#

It's amazing how much we can do if we put our minds,hearts,souls and efforts together. Advocate for Sickle cell anaemia anywhere you are.

#SickleCell is the most common genetic disorder, the good thing is done it can be prevented.

it can be prevented if people get themselves tested and by raising awareness.

#WSCD2013
Because we care, because it matters. Sickle cell is the word. Keep tweeting.

I have Sickle Cell Disease and I would love for the world to be educated on this disease.... #WSCD2013

queen binte o: Happy belated birthday to us OP!! I had an amazing #WSCD2013 on BBM,FB n twitter. Let's chat on fb over the weekend.loads of hugs

I will keep fighting, especially for those I fare better than.
FB this weekend.

funshiba:

Sensitive topic for me.

Just few months back.... My ex and I broke up due to genotype issues....She is SS and im AS.... till now she hasnt forgiven me...we were meant to get married this year. But I guess I made a decision for us cos she couldnt bear losing me....

The most painful decision I ever made cos I love here dearly but I guess common sense has to prevail....I pray she understands someday and will forever be happy...

You made the right choice. May God be with you and her. Amen.

Sirdayor: If everyone can identify the most important reason why he or she is getting marry, then issue of genotype or hiv status will not be a problem.

universally, one of the reasons to marry is PROCREATION.
Please do not encourage people to bring unnecessary sufferings to that Innocent Unborn Child.
We that live with SCD know what it really means, you can only imagine. Behind those smiles, there may be pains going on.

Bay1970: Life is not one way thing, if you happen to marry a AS for LOVE, you have an option. I have helped 2 - 3 Nairaland ladies with CVS in Lagos, their babies are fine and deeply in love with their AS hubbies. Life is give and take not one way thing.
Guys cool off, life is too short.

I guess you one of those that was tweeted about.
"Pay attention: some of those same folks espousing wisdom and claiming God, couldn’t care less about # worldSickleCellAwarenessDay"

Bay1970: My last post on this
I respect everyone feelings on this issue.
I am only trying to provider an option for AS/AS in the house.

OB/GYN

THIS POSTER IS THE VERY TYPE OF PERSON THAT WILL COME AND CONSOLE YOU BY SAYING, "Don't Worry, God knows the best".
PLEASE AS/AS MARITAL UNION IS A NO-NO. Don't do it, the pain and stigma that we Warriors suffer is not enough reason to Gamble on LOVE.
I guess as a Obygyn, you are sourcing for customers. Goodluck with playing kalo-kalo with the future of unborn babies, whose AS/AS parents will listen to you.

geeky_babe:

Can u just making noise here? What is wrong with u? How many babies wud u abort to get a non SS foetus? Is marrying someone a do or die affair? Do u knw d trauma and pain pple who with SCD go tru? Stop misleading pple for Heavens sake!! Abortion has a whole lot of trauma and pain, physically and psychologically.!
AS/AS marriage is just pure selfishness! And yes, having children is part of why God ordained marriage..

Thank You.

Bay1970: Being AS and having AS wife/husband is not end of the world, it gives you only 25% of having SS(sickle cell), 25% of AA and 50% of AS. Can it be avoided if posible? yes, but education is only the answer. If you love your AS boy/girl friend, do not let AS stop you from having someone you really love as a life partner; you might end up having a bitch with AA and in hell for the rest of your life. If you are AS with AS wife/husband, please remember to do CVS on every pregency. CVS will detect SC at 12 wks 100%.

This is the last advice I will want anybody to take.
IT IS PURE SELFISHNESS ON THEE PART OF AS/AS PARENTS TO MARRY AND GAMBLE ON NOT HAVING A SS.
The most painful part is that when that SS child grows and finds out that it was because of "Love" that he is suffering PAINS, TRAUMAS AND STIGMA almost every other day of his or her life, how will s/he feel.
Of course it is not the parents or the AA or AS siblings that suffers these things. It is that "Unfortunate" SS child that suffers it.
SAY NO TO AS/AS MARITAL UNION.

bloggernaija: He vanished into fresh air;PDP STYLE

Na PDP family affair. It will soon be resolved keep waiting.

How many people really care what happens? Why the Non-Challant attitude, towards Sickle Cell Disease? I don't care how long it will take, but I have made up my mind to lend my voice to SickleCellAwareness campaign. I am not soliciting for funds, neither am I advertising. But I have made it my life's duty to educate people about SCD. Not only because am a sufferer, but because I am a Survivor.

Abali2013: Pay attention: some of those same folks espousing wisdom and claiming God, couldn’t care less about
# worldSickleCellAwarenessDay

How many people really care what happens?
Why the Non-Challant attitude, towards Sickle Cell Disease?
I don't care how long it will take, but I have made up my mind to lend my voice to SickleCellAwareness campaign. I am not soliciting for funds, neither am I advertising. But I have made it my life's duty to educate people about SCD. Not only because am a sufferer, but because I am a Survivor.

Pay attention: some of those same folks espousing wisdom and claiming God, couldn’t care less about
# worldSickleCellAwarenessDay