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FamilyRe: Parents With Sickle Cell Kids How Do You Cope? by Kitaction(f): 2:37pm On Dec 01, 2023
ahnie:
Touching!
We're both AA's
Dear poster, I understand how you feel...

It isn't easy to care for one person living with sickle cell... Caring for three people living with sickle cell disease is so draining.

As a person living with sickle cell and a health personnel, I have been able to find ways to thrive and stay health (my blood levels are quite up now from 27% to 32% and can't remember the last time I was hospitalized).

Here are the things to focus on to help curb the issues that come with sickle cell.

- Healthy diet: Since anaemia is one thing that sickle cell patients face, the diet should be channeled to help boost blood levels and boost immunity (I can help create a specialized meal plan that has helped me too)

- know your triggers and avoid them as much as possible. Such triggers are

a) Stress or strenuous activity.
b) Extreme weather (too hot or cold)
c) Not having proper sleep.

- Stay hydrated as much as possible as possible, this can provide lubrication to joints and take more oxygen to the bloodstream to avoid pains

- Stay away from things that trigger low-energy such as caffeine, and energy drinks because they contain caffeine too

- Light exercises should be carried out to encourage proper blood flow.

- Take supplements and medications, I understand that supplements especially the stem cells are very cost and not so affordable.
There are alternatives that aren't cash consuming that I have been using for years and can share if anyone reaches out.

- Join support groups, to help get information on new improved ways to care for yourself and also to share your experience with others facing challenges like you.

I hope this helps.

If you want meal plans for sickle cell, supplement recommendations and want to join a reliable support group reach out to me on Whatsapp 09154113087

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