Confused And Heartbroken: My Son Was Diagnosed With Sickle Cell Anemia - Health (3)

Confused And Heartbroken: My Son Was Diagnosed With Sickle Cell Anemia - Health (3) - Nairaland

Nairaland Forum › Nairaland General › Health › Confused And Heartbroken: My Son Was Diagnosed With Sickle Cell Anemia (23393 Views)

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Re: Confused And Heartbroken: My Son Was Diagnosed With Sickle Cell Anemia by Ningishzida: 8:58pm On May 16, 2025*

[quote author=Mdcool26 post=135323523][/quote]OP, if your story is true, read this new post I made https://www.nairaland.com/8427332/great-ss-sc-genotype-deception

Re: Confused And Heartbroken: My Son Was Diagnosed With Sickle Cell Anemia by Codes151(m): 8:58pm On May 16, 2025

Na you no wan join NSPPD na.

Dey play

Re: Confused And Heartbroken: My Son Was Diagnosed With Sickle Cell Anemia by Apel147(m): 8:59pm On May 16, 2025

Blend paw paw leaves and give him or her 5ml morning and night for 2weeks n break for a week then continue the process for 3months, your child would not have those attacks for very long!

1 Like

Re: Confused And Heartbroken: My Son Was Diagnosed With Sickle Cell Anemia by ravensckar(m): 9:00pm On May 16, 2025

DMerciful:
How come you did not know about your genotype long before you got married? The one you do before marriage is to reconfirm what you already know, not knowing for first time. Deep down your wife may feel deceived.

Do you have the test that was wrong, can you sue the test center?

Based on the fact that between you and your wife, you're to blame, seek the medical route to have more children but don't leave your wife unless she wants to

It's very possible! It happened to me too.

During Health Center Screening at the University, my test result showed that I was AA. Fast forward to a few years after graduation, we were asked to go for a comprehensive test. There and then, I found out that my GENOTYPE test result was AS.

Funny enough, it was a few weeks to my wedding. Stories plenty, but thank God it all ended in praise.

I and my wife just jejely agreed to limit our children to two to avoid stories that touch.

2 Likes

Re: Confused And Heartbroken: My Son Was Diagnosed With Sickle Cell Anemia by Lexusgs430: 9:01pm On May 16, 2025*

Unfortunately, if you want more children, separation is the best solution.....

The possibility of you having another with AA or AS, is very likely.....

But the impending risk of another child that is SS is REAL.....

HAVE A DISCUSSION WITH YOUR WIFE!!!

Re: Confused And Heartbroken: My Son Was Diagnosed With Sickle Cell Anemia by descartes400: 9:02pm On May 16, 2025

BlueStripper:
Dear OP,

This is indeed a very sad experience and I can only imagine how you feel.

Please don't over-flog yourself. Medical Quackery is something we are yet to address in Nigeria.

Now back to the issue at hand. We will look at it from two sides:

1. If you are financially stable and really want to have healthy children with your wife in the future, then you must sign-up for preimplantation genetic diagnosis (PGD) whenever you want a child. Do not have much children because this process isn't cheap. So maybe 2 children.

2. If you are not financially stable but you want children, then father from outside and bring it home. Also make sure your wife truly understands the situation at hand and agrees to your plan.

DO NOT DIVORCE YOUR WIFE OR MAKE HER PAY FOR WHAT SHE KNOWS NOTHING ABOUT. DO NOT TAKE A SECOND WIFE.

As for your son, love him. Just love him. Love will keep him with you for long. But please, do not act in faith and impregnate the mother again or without proper medical counselling and PGD.

I wish you all the best and may Allah help you and your family in this tough time.

On your second option, it shouldn't be for the man alone...that the man should fathered a child outside and bring it home! The woman should be allowed to do same too after all the fault wasn't hers.

1 Like

Re: Confused And Heartbroken: My Son Was Diagnosed With Sickle Cell Anemia by greggng: 9:02pm On May 16, 2025

I am not here to blame you . This could ve been avoided from the beginning. The fault is totally from you ...unfortunately the result of your action will.put an innocent child in pain for the rest of his life . No sane person will advice you to continue with the marriage ...because we dint want reputation of giving birth to ss kids ...However it will be in your best ubteewst to takecare of the child you have created ...Right now you have to visit hospital to get help from some ngo that takecare of ss kids.. Atleast learn how to manage the condition. As for your marriage ...is dead

Re: Confused And Heartbroken: My Son Was Diagnosed With Sickle Cell Anemia by ObiLamba: 9:04pm On May 16, 2025

Shouldn't there be a punishment for the hospital that gave the wrong genotype?

1 Like

Re: Confused And Heartbroken: My Son Was Diagnosed With Sickle Cell Anemia by Osanoghodua1: 9:04pm On May 16, 2025

It's well with you in Jesus name. I decree In Jesus name that the baby genotype be turned from SS to AA in Jesus Name. I'll encourage you to be joining "Commanding the Day" 11pm to 12:30am everyday by Dunamis Church led by the Holy Spirit using Dr pastor Paul Enenche. God is waiting to change the 3 of you genotype. For now use protection for your wife until a miracle happens. Don't divorce her, don't impregnate her again until there is a sound of change from heaven.

May God help you.

1 Like

Re: Confused And Heartbroken: My Son Was Diagnosed With Sickle Cell Anemia by grandstar(m): 9:06pm On May 16, 2025

Mdcool26
I feel really sorry for you. You have a huge burden on your hand.

I am a Jehovah's Witness and know that the true God hates divorce. Since your wife wasn't unfaithful to you, divorcing her and marrying another is a sin before God. Marraige is "for better for worse."

If you stay married, I would advise you strongly against having any more children. You could adopt children or raise up your relations kids as yours.

Well, our values and yours may be different.

An advice I may render here may be to checkout supplements that help with sickle cell. You can even arrange a bone marrow transplant if I am correct to cure things. Don't just throw in the towel yet.

I just searched Jiji because of you https:///supplements/sickle-cell

Don't give up.

Re: Confused And Heartbroken: My Son Was Diagnosed With Sickle Cell Anemia by ezer(m): 9:08pm On May 16, 2025

You don’t have to divorce your wife and destroy your beautiful family. I’m sure you can handle it.

I’m not a health professional but I know caring for a child with sickle cell disease requires careful attention to their health and well-being which includes ensuring that your child receives regular check-ups with healthcare providers knowledgeable about sickle cell disease. Secondly, the child should stay well hydrated at all times and should be fed with healthy and balanced diets. Thirdly, ensure the child’s vaccination is up to date. Also learn all the factors that can trigger a sickle cell crisis so that you can take precautions. In all, love your child and educate him about the disease when the time comes.

If you want to have other kids, like someone said up there, it’s achievable to eliminate the risk of getting an SS but it’s expensive. IVF with PGD will eliminate that risk completely. If you are not buoyant enough you can do prenatal testing (I don’t recommend this because if the fetus is SS, it will lead to multiple abortions) or consider adopting.

Just be strong and visit a counsellor.

Re: Confused And Heartbroken: My Son Was Diagnosed With Sickle Cell Anemia by DrFunmisticGlow: 9:08pm On May 16, 2025

BlueStripper:
Dear OP,

This is indeed a very sad experience and I can only imagine how you feel.

Please don't over-flog yourself. Medical Quackery is something we are yet to address in Nigeria.

Now back to the issue at hand. We will look at it from two sides:

1. If you are financially stable and really want to have healthy children with your wife in the future, then you must sign-up for preimplantation genetic diagnosis (PGD) whenever you want a child. Do not have much children because this process isn't cheap. So maybe 2 children.

2. If you are not financially stable but you want children, then father from outside and bring it home. Also make sure your wife truly understands the situation at hand and agrees to your plan.

DO NOT DIVORCE YOUR WIFE OR MAKE HER PAY FOR WHAT SHE KNOWS NOTHING ABOUT. DO NOT TAKE A SECOND WIFE.

As for your son, love him. Just love him. Love will keep him with you for long. But please, do not act in faith and impregnate the mother again or without proper medical counselling and PGD.

I wish you all the best and may Allah help you and your family in this tough time.

sickle cell now has a cure, but it is very expensive. If you can afford it, pls fly him abroad for a bone marrow transplant procedure in a few months - years.

No one deserves what he is going through.

Re: Confused And Heartbroken: My Son Was Diagnosed With Sickle Cell Anemia by ACRI: 9:10pm On May 16, 2025

Op pls listen carefully(from someone well versed with the disease)

1. Your wife cannot bear this burden alone!
2. There is a cure already, albeit expensive: BMT(even adults can do it now) and gene editing
Check India,Ghana for centers to do it
3. Management of the condition is key. Hence reason for point 1.
4. Seek medical advice from qualified personnel, get an HMO for your family immediately
5. Don't rely on this forum for credible information, we have a lot of ma.d people here already giving you toxic counsel
6. God be with you

4 Likes

Re: Confused And Heartbroken: My Son Was Diagnosed With Sickle Cell Anemia by moneyissweet(m): 9:11pm On May 16, 2025

Sickle cell is not a death sentence. My classmate in primary school has sickle cell and we all thought he will die then but guess what, dude is a die hard politician in IMO state today. So many of my classmates wey dey healthy don kpai but him still dey alive dey enjoy life.

No let your mind trouble you, as long as money dey and you know how to manage the situation he will live and make you proud

Mdcool26:
*File photo attached by admin

Re: Confused And Heartbroken: My Son Was Diagnosed With Sickle Cell Anemia by descartes400: 9:11pm On May 16, 2025

YorubaBiafran:
Genotype can be changed if you believe in your CREATOR and Live daily to please HIM. You and your wife should go on 21 Days Fasting and Prayer to Request that Almighty AHAYAH ASHAR AHAYAH should Touch your child and change HIS Genotype. Even when you are not together call her on Phone and make sure you prayed together by 12:00PM and 12:00AM Daily. You will come here to share your Testimony if you follow through with this Advice. I've experienced many Real Miracles that Medical Science said it's impossible.

Be realistic!

I have gone on condolence visit because a children's life was caught short because of this sh!t one of the spouse is a pastor. They had to go their seperate ways!

1 Like

Re: Confused And Heartbroken: My Son Was Diagnosed With Sickle Cell Anemia by Bmaster(m): 9:12pm On May 16, 2025

Mdcool26:
*File photo attached by admin

There are only two ways to secure that your child.
1.Keep him on drugs forever(cheap option)
OR
2.KEEP HIM ON DRUGS UNTIL HE IS OF AGE,THEN FLY HIM AWAY FOR 'BONE MARROW TRANSPLANT'(expensive option)

1 Like

Re: Confused And Heartbroken: My Son Was Diagnosed With Sickle Cell Anemia by BABANGBALI: 9:15pm On May 16, 2025

End the marriage and start all over again with another woman.

Re: Confused And Heartbroken: My Son Was Diagnosed With Sickle Cell Anemia by BABANGBALI: 9:16pm On May 16, 2025

YorubaBiafran:
Genotype can be changed if you believe in your CREATOR and Live daily to please HIM. You and your wife should go on 21 Days Fasting and Prayer to Request that Almighty AHAYAH ASHAR AHAYAH should Touch your child and change HIS Genotype. Even when you are not together call her on Phone and make sure you prayed together by 12:00PM and 12:00AM Daily. You will come here to share your Testimony if you follow through with this Advice. I've experienced many Real Miracles that Medical Science said it's impossible.

i yinmu you

Re: Confused And Heartbroken: My Son Was Diagnosed With Sickle Cell Anemia by Zooposki(f): 9:17pm On May 16, 2025

donsharwama:
It has happened. There's just one option I have for you.

Go to the LORD'S CHOSEN CHURCH(those people that wear green vest) closest to you. I guess they have a headquarters in Abuja. Find your way there on Sunday.

You don't need to see any pastor or talk to anybody. Just one service. And when you are leaving church, go and do the test again. Do for yourself and also for your son.

If the genotype doesn't change, come and quote this post.

All the best.

Re: Confused And Heartbroken: My Son Was Diagnosed With Sickle Cell Anemia by codemaniacs: 9:18pm On May 16, 2025

Orch1981:
I can't leave the woman I truly love with all my heart because of just sickness but I can talk to her so I can get a second wife if only you need children but if na me I no born again but we love together

If you can get a 2nd wife then your wife can also get a 2nd husband.

Re: Confused And Heartbroken: My Son Was Diagnosed With Sickle Cell Anemia by Buharidgeneral: 9:21pm On May 16, 2025

Na God hand you dey
Best of luck

Re: Confused And Heartbroken: My Son Was Diagnosed With Sickle Cell Anemia by Waleabimbola(m): 9:22pm On May 16, 2025

[quote author=Mdcool26 post=135323523]Hello OP,
Kindly reach out , I believe i might have one or two medical suggestions for you.
I am not a medical doctor but I can share one or two things to help your son.
Thank you

Re: Confused And Heartbroken: My Son Was Diagnosed With Sickle Cell Anemia by descartes400: 9:23pm On May 16, 2025

stealmatic:
He should not divorce her and not take a second wife but can father a child outside and bring home and xplain to her to understand, oga ur personality and integrity needs questioning, are u really serious? Is it not better for u to shut up? Go back and read ur writeup and come back for lecture

E shock me too! I had to ask if the woman will be allowed to have someone impregnate her so that she can bring the child home after all she's entitled to carry a child of her womb. Abi no be so?

1 Like

Re: Confused And Heartbroken: My Son Was Diagnosed With Sickle Cell Anemia by oluwaseunla(m): 9:24pm On May 16, 2025

I was in a similar situation, it's not easy but it's possible to manage. If you have specific issues or inquiries, I'll be glad to help.

Re: Confused And Heartbroken: My Son Was Diagnosed With Sickle Cell Anemia by NovaStarGlow: 9:33pm On May 16, 2025

Mdcool26:
*File photo attached by admin

Gene editing cures for sickle cell

Re: Confused And Heartbroken: My Son Was Diagnosed With Sickle Cell Anemia by codemaniacs: 9:34pm On May 16, 2025

Mdcool26:
*File photo attached by admin

You are wicked..

Feed the child very well and make sure he drinks water.
If you are giving him medicine also make sure he eats very well and drinks water.

He should not drink too much carbonated drinks like pepsi and drinks that have sugar in them.
Even fruits that have sugar he must not eat them.
He must not take cereals as breakfast, he must take proper food as breakfast or plantains..

For now since he does not have teeth you can give him cereals.. but once his teeth are complete stop cereals

Re: Confused And Heartbroken: My Son Was Diagnosed With Sickle Cell Anemia by NovaStarGlow: 9:36pm On May 16, 2025

oluwaseunla:
I was in a similar situation, it's not easy but it's possible to manage. If you have specific issues or inquiries, I'll be glad to help.

A 12-year-old boy named Kendric Cromer became the first patient in the U.S. to undergo newly approved gene therapy for sickle cell disease, according to NBC4 Washington. This groundbreaking treatment, along with other advancements like bone marrow transplants, offers hope for curing sickle cell disease. For example, a 5-year-old boy named Tobi Okunseinde in New Jersey was cured of sickle cell disease through a bone marrow transplant, according to CBS News.

Re: Confused And Heartbroken: My Son Was Diagnosed With Sickle Cell Anemia by obembet(f): 9:36pm On May 16, 2025

BlueStripper:
Dear OP,

This is indeed a very sad experience and I can only imagine how you feel.

Please don't over-flog yourself. Medical Quackery is something we are yet to address in Nigeria.

Now back to the issue at hand. We will look at it from two sides:

1. If you are financially stable and really want to have healthy children with your wife in the future, then you must sign-up for preimplantation genetic diagnosis (PGD) whenever you want a child. Do not have much children because this process isn't cheap. So maybe 2 children.

2. If you are not financially stable but you want children, then father from outside and bring it home. Also make sure your wife truly understands the situation at hand and agrees to your plan.

DO NOT DIVORCE YOUR WIFE OR MAKE HER PAY FOR WHAT SHE KNOWS NOTHING ABOUT. DO NOT TAKE A SECOND WIFE.

As for your son, love him. Just love him. Love will keep him with you for long. But please, do not act in faith and impregnate the mother again or without proper medical counselling and PGD.

I wish you all the best and may Allah help you and your family in this tough time.

Wisdom ❤️

1 Like

Re: Confused And Heartbroken: My Son Was Diagnosed With Sickle Cell Anemia by dontai(m): 9:38pm On May 16, 2025

Divorce straight!

Re: Confused And Heartbroken: My Son Was Diagnosed With Sickle Cell Anemia by Dougad: 9:44pm On May 16, 2025

i used to think that Genotype blood tests were definitive with little room for error; it was only recently that i found out that it was not so. I tested AS when I previously did it and will not be surprised to find it different if I do it again.

1 Like

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