₦airaland Forum

We feel for you but don’t ever think of divorcing your wife. I have a cousin who had four children, two boys and two girls. The first boy had SS and the others are good, regular blood transfusion is needed until a transplant is done, make sure the hospital where the blood transfusion is done screens the blood of their donors.

Your other children ay not be ss the next child shld b AA WHILE 3rd child will b As

aycorporat:
I hope you didn't escape from treatment or didn't you comprehend what he wrote?
If you have no meaningful contributions, please remain silent

Illiteracy = 100

Mdcool26:
*File photo attached by admin

you divorce your wife for what reason really?it was your genotype that was wrongly diagnosed, not hers so how is it her fault?because you are the man, you just want to take your anger and frustration out on somebody? If you divorce her, will your problem vanish over night? Finally, let say your emotions got the better of you and u divorce her, who will now cater for the child?you or her? Are you keeping the child with you or she is taking it with her? If I was the woman I will be selfish just like you, I will live the child with you coz it's yours. Oga divorce is not an option right now, stay together as a family and tackle this issue headlong. It's easier together than individually. May God be with your family, it's indeed a huge trial from God. Patience is key at this moment.

LtCZAR:
@OP, The following items most be, in your house always

1. ASTHYMIN ( the one that does not contain iron)
2. Folic Acid
3. B- Complex

Please, give it to him everyday, to help his immune system.
Make sure, he avoids cold by any means. No plays inside the rain.
Avoid unnecessary mosquito bites, that would result to malaria and typhoid. So He must always be in his mosquito net when sleeping.
Please do not allow him over work himself. It would lead a break down.
Whenever he complains of ache or cries frequently holding a particular spot, please use hot water and towel to message the place.
Do not panic, when His CRISIS BEGINS, because he's looking up to you the FATHER AND THE MOTHER.

Please, avoid all this miracle center. Oga sir, the genotype will not change. But if you mange him properly, we are always the best in everything we do.

Also note that, growing up, the child will nag a lot, you would wish you should just flush him down the toilet but always make him understand, why he's different.
Before I forget, have a private nurse at hand. Someone you can always reach out to. Because when the crisis comes, and you will need to give them drip or fortwin injection, they can help you, with less charge.

If you keep going to the hospital, there bills will drain you.

Now going forward, you can have another child, to genotype will be favourable but your third child will also carry the SS genotype.
Plan well before you continue after the second child.

Try and join any sickle cell support group or just reach out here.

Thank you. And my regards to the warrior.

Good day brother, from this advise you sound like a warrior. Op please take this advise, it will help you a lot...I am also a warrior in my 40s but to be candid enough... sickle cell no be moi moi because there are too many issues attached to it, imagine having frequent crisis plus leg ulcers on both legs plus priapism, I mean the type 2.. couple with other symptoms at the same time... Na die be that. Op just follow this my brother advise and you are good to go, God Almighty will help him. As for the bolded..check him very well and you will see it's true. God bless you sir.[s][/s]

Chegesnd:
People are proffering solutions here so that others can learn, but you want to do one aside.
OP beware of fraudsters!

That's your own problem.
If op likes he can send a dm if he likes he doesn't it's his choice. Good things are best kept secret.

Chegesnd:
People are proffering solutions here so that others can learn, but you want to do one aside.
OP beware of fraudsters!

I have been on nairaland 15 years before you tho.

Don't worry DM me

Drag the clinic that gave you wrong result to court.
So that they stop giving people fake test.

Mdcool26:
*File photo attached by admin

Check your email. I'll like to chat with you to offer advice based on my experience with my 24 year old daughter who suffers from the sickle cell syndrome

Go for DNA testing

oxygenator:
What God has joined together no man shall put asunder.
You have to move on from there and learn how to avoid complications from an SS patient. There are many SS living good lives and your case will not be the first.

There are many steps that can be advised to navigate issues arising from an ss.
Get in touch with a physician for help.

HBOT is one method that knowledgeable individuals apply to reduce morbidity and mortality in SS disease.

Do your research and explore ways hyperbaric oxygen therapy (HBOT) can help in many ways not yet envisaged in our environment. HBOT works better and faster.

HBOT PROVIDERS

What is the financial implications of this HBOT? Are they available in Nigeria?

Op sickle cell can be managed and your child will live a long healthy life without ever having crisis. This is all i will say for now. Im talking from experience

vikstandon:
Truly we've never had, but I have seen who did, and the child lived up to 40years.

The family loved him so well, had other children, and has money.
The boy was also a brilliant chap. They managed the situation well.

Make peace with what is, while still believing in what could be.

You can have other healthy children while managing the present.

40 yrs without crises?
I have close relationship with people that are.
For every one that lived long,20 are dead already,countless others are suffering.
Lost a classmate and her elder brother to that so I know. The family put all to manage the elder brother and he did well. Trained his siblings and as he age more, more crises until he became penniless. Mum and dad are old. The married sister can do little. Her younger sis died, elder bros died. Tomorrow, yarn this story to people like her.

Will you marry one?
Will your company give work to one?


When you live and don't know how your tomorrow will look like. Being treated like an egg.
You miss out on things that make life worth living and enjoying.
The everyday drug.


And if it's the woman who made this mistake, the man is leaving her to remarry. Has happened countless times.


Don't take about what you don't know at all.

Be strong bro. It is well

Mdcool26:
*File photo attached by admin

Bro science has made it possible for you to be able to birth As with your wife without ANY STRESSFUL ABORTIONS,it's called Gene selection therapy with IVF..your sperm and wife's eggs will be fertilized and the fertilized ones who carry only AS genotype will be put back in your wife to become babies..but the process isn't cheap tho,about 7-8m for the whole process including IVF I think..

As for your son,there is an experimental cure in the UK that broke out like a year or two ago but still not available for all yet cos I guess still experimenting on it but it has cured some lucky few in the UK. I won't lie to you get ready it's going to be a very bumpy ride ahead but love your kid dearly and your wife too because it's not their fault,the blame if any should be you cos you didn't double check on your test. Wish you and your family good luck sha..

Give your kid lots of fluids and water with a good diet regularly,keep him away from mosquitoes and dirty environments cos infection of ANY kind is a potential killer,of course extreme temperatures are bad too,so always in moderate temperatures not too hot or cold,he will be fine..God will be with you

descarado:
40 yrs without crises?
I have close relationship with people that are.
For every one that lived long,20 are dead already,countless others are suffering.
Lost a classmate and her elder brother to that so I know. Tg.


And if it's the woman who made this mistake, the man is leaving her to remarry. Has happened countless times.


Don't take about what you don't know at all.

Stop this your misinformation..the fact that you have not seen some that lived beyond 20 doesn't mean there aren't..my own uncle lived beyond 60 sef with the disease almost 67 before he passed and had his family and kids.
Infact Google Asiata Onikoyi-Laguda, a 90year old Nigerian woman,probably a grandmother sef who is a sickle cell patient..Oga good management and medication and they will live far beyond 20..infact she isn't the only one just do your research on Google and stop destroying people's hope..even healthy people without Sickle cell die regularly even before hitting 20 so everyone's destiny is different.

heykims:
Quite pathetic especially when u do your little part but unfortunately, I got a misleading result.
About your child, truth is it's tough caring for a sickle cell anemia child. Keep to these pieces of advice:
Register him at a haematology clinic in a reputable hospital
Ensure it takes it water jidiciously, this is very key.
Prevent malaria, with good hygiene and malaria prophylaxis - proguanil

For your unborn children, unfortunately little can be done but PGD during pregnancy can be done to ascertain genotype of the unborn child. Though even at that, the rule of the land forbid abortion in such situation when the unborn child is diagnosed with sickle cell anemia.

About your marriage, I have none to say.

Lots can be done if they have the funds. The only thing is that they will not make babies the natural way.

It's sad and unfortunate that in 2025 people still rush into marriages without necessary medical test but they're so woke about giving kids Western upbringing

alhaji04:
Good day brother, from this advise you sound like a warrior. Op please take this advise, it will help you a lot...I am also a warrior in my 40s but to be candid enough... sickle cell no be moi moi because there are too many issues attached to it, imagine having frequent crisis plus leg ulcers on both legs plus priapism, I mean the type 2.. couple with other symptoms at the same time... Na die be that. Op just follow this my brother advise and you are good to go, God Almighty will help him. As for the bolded..check him very well and you will see it's true. God bless you sir.[s][/s]

My Brother. A big congratulations to you. I have 2 other sisters that are warriors too.
Thank God, @OP discovered early enough.

descarado:
40 yrs without crises?
I have close relationship with people that are.
For every one that lived long,20 are dead already,countless others are suffering.
Lost a classmate and her elder brother to that so I know. The family put all to manage the elder brother and he did well. Trained his siblings and as he age more, more crises until he became penniless. Mum and dad are old. The married sister can do little. Her younger sis died, elder bros died. Tomorrow, yarn this story to people like her.

Will you marry one?
Will your company give work to one?


When you live and don't know how your tomorrow will look like. Being treated like an egg.
You miss out on things that make life worth living and enjoying.
The everyday drug.


And if it's the woman who made this mistake, the man is leaving her to remarry. Has happened countless times.


Don't take about what you don't know at all.

You said the family managed the ailing son, and he did well training the rest. Just that fate didn't allow them to outlive him, not that they died of sickle cell anemia.
My question to you is, who do you leave the responsibility of caring for this chap now, since it was their both mistake—the mother or the father.

Medically, is it possible they can both birth healthy children or be selective about the children they birth?

If your answer to my second question is 90% possible... Then both should stay together and take responsibility of the product of the wrong diagnosis.

In as much as i really feel sorry for you, I think you were a bit careless, having to depend on just one facility test was really a careless decision when you are aware your wife was AS.. if she was AA maybe you wouldn't have bothered more.

I feel you should visit the healthcare facility let them advise you on what to do, but do not divorce your wife at this point, you were at fault 100% and don't let her suffer for it.

Mdcool26:
*File photo attached by admin

In my own opinion if both of you love yourself and you may find it difficult to separate

Keep managing that child and stop giving birth as its going to be 50/50

You can go for surrogacy if you have the money, in that case it will be your sperm with another woman egg, then your wife will be the Surrogate mother

With this, the female donor will be AA to match with your As and she will birth a healthy baby.

Though is expensive but you have to carry out your research

Another option, you guys can go for adoption

If you choose to end the marriage while you have the means of doing the above two options, that child msy suffer as she too may force the child on you

No one wants to see their child suffering or abandoned

Bone marrow transplant is like 30 million naira
Omo!

Lexusgs430:
Unfortunately, if you want more children, separation is the best solution.....

The possibility of you having another with AA or AS, is very possible.....

But the impending risk of another child that is SS is REAL.....

HAVE A DISCUSSION WITH YOUR WIFE!!!

No. There are other solutions.

Kewtt:
No. There are other solutions.

Like what other solutions and cost for the solutions..........

Lexusgs430:
Like what other solutions and cost for the solutions..........

Surrogacy, egg donation.....

Kewtt:
Surrogacy, egg donation.....

Do you know if they have the financial muscle, to undertake such commitments.....

Not forgetting emotional attachments, if they divorced and married another, they would not have to undergo this unnecessary expenses.......

Mdcool26:
*File photo attached by admin

Ask the doctors, but I think he will need folic acid regularly.

I know of a similar situation at hand

The genotype of the baby is done and its AA

While the Hb Electrophoresis is SS the Baby is

Is 2yrs plus and has not experienced any crisis

of anyform no pain whatsoever what can

medical practiner advice to manage the situation