₦airaland Forum

The Sickle Cell Disorder (SCD) registry is an initiative of Sickle Cell Foundation Nigeria (SCFN) and PointCareHealth Initiative (Rhieos -Ventures) based in Netherlands.

The purpose of this Registry project is to develop a multi-centre registry for persons with sickle cell disorder (SCD) that will be used to support management and care, as well as research.
The registry will comprise electronic data collection tools, database and data management system with analysis and reporting features. It will collect information to learn about the burden of SCD in various parts of Nigeria and will also be used to support health education as well as monitoring and evaluation of sickle cell programmes.

The objectives of the SCD Registry (and associated initiatives) are to:

. Collect accurate clinical and patient-reported data on persons with SCD as per registry protocol
. Promote clinical research into interventions
. Support the management and quality of care of persons with SCD
. Foster health promotion, health education and disease prevention programmes
. Enhance the capacity of health care providers.

LINK: https://www.sicklecellfoundation.com/sickle-cell-disorder-…/

In view of this, Sickle Cell Foundation Nigeira will be having a workshop to train Doctors on data collection for the registry.
Date: Thursday, 25th July 2019
Venue: SCFN Seminar Room
Time: 2:00 pm - 4:00 pm

Please note: It's strictly by invitation.

23 DAYS TO #WSCD2019 #SCFN #Countdown

The Annual Lecture on Sickle Cell Disorder : DON'T MISS IT!!!

TOPIC: STEM CELL TRANSPLANTATION AND EMERGING FRONTIERS IN MANAGEMENT OF SICKLE CELL DISORDER.

This is the FLAGSHIP event. We are indeed privileged to have as Speaker, none other than the distinguished and internationally-renowned Professor of Medicine, Haematology and Oncology - Professor Adetola Kassim.

Details of the event are as follows:

Date: Tuesday 18th June 2019
Time: 10:00a.m
Venue: Agip Recital Hall, MUSON Centre, Onikan, Lagos
Topic: Stem Cell Transplantation & Emerging Frontiers in the Management of Sickle Cell Disorder

Happy New Week Warriors... As we look forward to the World Sickle Cell Day. Sickle Cell Foundation Nigeria with the support of the Public Affairs Section of the United States Consulate, will be having an outreach programme at Makoko Community in Yaba LGA on Thursday 4th April 2019. Be there!

For so many of you asking where you can get the FREE consultation and FREE medications and FREE Drugs. These are done only on our outreach programs.
Sickle Cell Foundation Nigeria With the support of the Public Affairs Section of the United States Consulate. Will be having an outreach programe at Makoko Community in Yaba LGA on Thursday 4th April 2019. Be there!

The outreach program carried out yesterday been 14th of march, at Mushin local government by Sickle Cell Foundation Nigeria with the support of the Public Affairs Section of the United State Consulate, was a success.

With the support of the Public Affairs Section of the United State
Consulate, Sickle Cell Foundation Nigeria will be having an outreach
program TOMORROW, Thursday 14th of March 2019 in Mushin, Lagos.
Everyone in the vicinity is invited to participate in this outreach
There will be:

· Doctors available for consultation

· Free drugs

· Malaria test (if necessary)

· Health talk on sickle cell anaemia

· Dissemination of IEC materials

· Light refreshment

Venue: Primary Health Center, at Palm Avenue Mushin, Lagos.

The Sickle Cell Foundation Nigeria, in Collaboration with MultiChoice Nigeria is pleased to announce the Training course on Genetic Counselling for Sickle Cell Disorder.
*Course Objective.
To convert health care workers into knowledgeable and competent Genetic counsellors on Sickle Cell Disorder, so that they can assist their clients.
FOR Whom: Health Care Workers
Date: Monday April 29 - Friday May 10, 2019.
Venue: National Sickle Cell Center (opposite LUTH) Ishaga Road, Idi-Araba, Lagos

Course Announcement!
Sickle Cell Foundation Nigeria, in collaboration with MultiChoice Nigeria is pleased to announce the Training Course on Genetic Counselling for Sickle Cell Disorder.
Date: Monday April 29 - Friday May 10 2019.
Venue: National Sickle Cell Center (opposite LUTH), Ishaga Road, Idi- Araba, Lagos.

The Sickle Cell Foundation Nigeria is a non-governmental and non –profit making organization dedicated to the proper care and control of sickle cell disorder in Nigeria. Sickle Cell foundation Nigeria has since embarked on community outreaches to LGAs in Lagos state.
With the support of the Public Affairs Section of the United State Consulate, Sickle Cell Foundation has been able to produce pamphlets in 3 different languages to educate the public on sickle Cell Disorder. These languages are Pidgin English, Yoruba and English. This will get the generally public to know the fact about sickle cell Disorder. There is hope for those LIVING with Sickle Cell Disorder. And they can also live long, PRODUCTIVE and pain-free LIVES.

Join us in appreciating the Public Affairs Section of the United States Consulate. With their support, Sickle Cell Foundation has been able to produce pamphlets in 3 different languages to educate the public on Sickle Cell Disorder. These languages are English, Pidgin English and Yoruba. This will go a long way in getting the general public to know the FACTS ABOUT SICKLE CELL DISORDER:
- The cause
- How to know if someone has the disorder
- Diagnosis
- Treatment
- Do’s and Don’t’s
- Where to get help
Sickle Cell Foundation Nigeria has since embarked on Community outreaches to LGAs in Lagos State, educating the communities about Sickle Cell Disorder, using the PAMPHLETS as resource.
if you have any questions, you can reach us via:
Email: info@sicklecellfoundation.com
Twitter: @sicklecellnig
IG: @sicklecellfoundationng
facebook: sickle cell foundation Nigeria
Phone no:0810 000 2003

Join Sickle Cell Foundation for the out reach of individuals leaving with Sickle Cell Disorder. The Sickle Cell Foundation Nigeria is a Non-Governmental Organisation dedicated to the control, advocacy, awareness and sustained management of Sickle Cell Disorder in Nigeria with a world class National Sickle Cell Center located in Lagos, Nigeria.
if you have any questions, you can reach us via:
Email: info@sicklecellfoundation.com
Twitter: @sicklecellnig
IG: @sicklecellfoundationng
facebook: sickle cell foundation Nigeria
Phone no:0810 000 2003

Morning Warriors! Water is genuinely a healing power for us. Tag somebody and remind them to remain Hydrated. Also you can get such a great amount of hydration plus nutrition from fruits. ensure you are topping yourself and children with cell building healing and hydrating foods. #sicklecelldisorder #fightsicklecell #livelong

Join Sickle Cell Foundation for the out reach of individuals leaving with Sickle Cell Disorder. The Sickle Cell Foundation Nigeria is a Non-Governmental Organisation dedicated to the control, advocacy, awareness and sustained management of Sickle Cell Disorder in Nigeria with a world class National Sickle Cell Center located in Lagos, Nigeria
if you have any questions, you can reach us via:
Email: info@sicklecellfoundation.com
Twitter: @sicklecellnig
IG: @sicklecellfoundationng
facebook: sickle cell foundation Nigeria
nairaland: sicklecellfndtn
Phone no:0810 000 2003

Walk for someone who has Sickle Cell Disorder
Walk if you are a Sickle Cell #Warrior
Walk for someone who has lost the fight to Sickle Cell Disorder

Date: 16th of June
Time: 6:00 am
Take off point: Surulere, Lagos

Register at http:///RedUmbrellaWalk2018

Free T-Shirts and Umbrellas available with other side attractions

We're far off the target.....
But yet so CLOSE.....

Just 47 days left in the #Free_Treatment_For_SIckle_Cell_Leg_Ulcer campaign.

Please go to https://donate-ng.com/campaign/free-treatment-for-sickle-cell-leg-sores and make a donation today.

#Free_Treatment_For_SIckle_Cell_Leg_Ulcer

Thegamingorca:
Who has been donating to this scam ppl

If you don't know, simply ignore. This ain't fake.
You can come over to the Sickle Cell Foundation Nigeria Just opposite LUTH to confirm for yourself whats it's all about.

Have you DONATED? Just 48 days left...

This is your chance to make a positive impact that will make another person's life BETTER and WORTH LIVING...

Please go to https://donate-ng.com/campaign/free-treatment-for-sickle-cell-leg-sores and make a donation today.

#Free_Treatment_For_SIckle_Cell_Leg_Ulcer

Your #500, #200, #100, #1000 ......goes a looonnnnnngg way.

DONATE TODAY....

COUNTDOWN - 61 Days left
Target- #1,000,000
Amount in - #16,000

Please visit https://donate-ng.com/campaign/free-treatment-for-sickle-cell-leg-sores to make a donation today....

Be strong
#SickleCell

Friends, we're still a long way from the TARGET.
BUT we can DO IT,
YES we can.

No amount is SMALL.
Go to https://donate-ng.com/campaign/free-treatment-for-sickle-cell-leg-sores to make a donation TODAY.

Tag a friend or send the link across so they'd do the same.....

Please Donate today in the ongoing FREE TREATMENT FOR SICKLE CELL LEG SORES campaign.
simply go to https://donate-ng.com/campaign/free-treatment-for-sickle-cell-leg-sores and tag a friend to donate too...

66 DAYS LEFT to make an impact...
66 DAYS LEFT to touch lives positively....
66 DAYS LEFT to do something your future self will thank you for...

Hey guys, the Countdown is still on.
We depend on your goodwill to make this happen,
To give a new hope and a new life to these people....

No amount is too small, Your #1,000 will go a long way in making life worth living for them.

Please go to https://donate-ng.com/campaign/free-treatment-for-sickle-cell-leg-sores to make a donation today.

We can, YES!!!
With U.....

#CountDown - 73 days....

If you ever wished to do anything positive that posterity will remember you for, this is IT.....
If you ever wanted to help and you're just not sure how to, this is IT....

Join us in giving a new hope to these people with severe leg ulcer.

YES WE CAN, ......WITH YOU!!!

Click here https://donate-ng.com/campaign/free-treatment-for-sickle-cell-leg-sores to make a donation TODAY and challenge your friends to do the same......

Good morning......

check out our latest post - https://www.nairaland.com/4374936/free-treatment-sickle-cell-leg#65470457

DID YOU KNOW

You can get to know the Genotype of your unborn child. Yes you can!!!

This is a service provided at the Sickle Cell foundation Nigeria. For more info, check the website - www. sicklecellfoundation. com
or come to our Center. the address is in the profile.

MOD, please if it appeals to you, help move this to Front Page so more people can view and participate.
Thanks....