blanco56:
A six-year-old girl who was born with her heart
outside of her chest has moved thousands of miles
from Russia to America in the hope she can have
treatment.
Virsaviya "Bathsheba" Borun-Goncharova suffers
from thoraco-abdominal syndrome or Pantalogy
of Cantrell
and amazingly she is able to dance and even do the
splits despite her condition.
According to photos posted online by her mother,
her heart can be visibly seen beating with only a thin
layer of skin to protect it.
The condition which occurs in less than 1 in a million
births is so rare her mother Dari Borun has had to
move her from Russia to the US in the hope she can
have surgery.

Virsaviya Borun suffers from multiple
birth defects
Several hospitals around the world are said to have
turned down Ms Borun's request to operate on her
daughter because of the difficulties and risks of
surgery.
The pair recently traveled to Boston but the
Children's Hospital could not operate because her
aortic blood pressure was too high, she claims.
Now the family have moved to Hollywood in the
hope that medications can bring her blood
pressure down enough to operate.
"I like to draw Jesus, ponies and angels," said
Virsaviya.
I don't go to the school and I don't go to the ballet
but I want to do it at home.
"My heart is right here.
"It's outside of my chest and I really love my
mom, she's always touching my heart because she
likes it."
Virsaviya's heart, about the size of a fist, has always
been outside of her chest since birth.
She is expected to require several very complicated
operations.
The cheerful and talented child who loves dolphins,
dogs, horses and Beyonce has had her entire life documented on her mother's instagram account. It shows hundreds of photos of the child. www.mirror.co.uk/news/world-news/miracle-girl-born-heart-outside-6744161

bigt2:
I can't imagine what would happen if we all have our hearts in this delicate position.
#EnoughMurder.
And someone said there is no God?

Krystalzkris:
why did god not intervene in her own case

bigt2:

Because he works in a marvelous way that thwarts human intellect. That you can't understand and will surely agitate.

Krystalzkris:
god works in a marvelous way indeed... How is this particular deed marvellous?