On Thursday, April 2, it was announced that 17-
year-old progeria victim Hayley Okines had
passed away in East Sussex, England.

The condition called; Hutchinson Gilford
Progeria Syndrome, also known as HGPS or
Progeria, causes children with it age up to 10
times faster than normal.

Hayley’s mother, Kerry Okines, posted the
news on Facebook: “My baby girl has gone
somewhere better. She took her last breath in
my arms at 9.39 pm.”

Hayley – who BBC News say had the “body of a
104-year-old” – was being treated in the
hospital for pneumonia, but she returned home
shortly before she died. “She came home for an
hour and she saw her puppies, little brother
Louie and her sister Ruby,” Hayley’s father,
Mark Okines, told BBC News on Friday, April 3.
He added; “I think she wanted to come home to
say goodbye to everybody,” he continued. “I
think she knew that yesterday was going to be
the time.”

Children with progeria rarely live past the age of
14, often passing away from ailments that affect
the elderly, such as heart disease and stroke.
Hayley was told she would not live past the age
of 13, but in 2007, the teenager began
undergoing pioneering treatment at Boston
Children’s Hospital, US, as part of the first
clinical trial for the condition.

In September 2012, the trial was a success.
In a statement following Hayley’s death, the
Progeria Research Foundation (PRF) praised
the teenager for her contribution to progeria
research:

“The entire PRF community mourns the loss of
one of our shining stars, Hayley Okines. Hayley
was one of the first participants in the ongoing
progeria clinical trials. Hayley was a pioneer –
and one of the reasons that we now have the
first treatment for progeria. Today we
remember her tremendous courage and
determination,” the statement said.
Hayley was an avid campaigner for progeria
awareness, hailed locally and nationally as an
inspiration for people with and without the
condition. The teenager wrote two books
detailing her experiences of living with progeria
– “Old Before My Time” and “Young at Heart”
– and took part in numerous interviews.

The news of Hayley’s death comes just 15
months after it was announced Sam Burns, a
boy from Massachusetts, United States had
died from progeria. He was 17 years old too.
Progeria is caused by an abnormal protein in
the LMNA gene, called progerin, which
interferes with the production of lamin A – a
protein that stabilizes a cell’s nucleus.


See some of her pictures!

E dey happen for abroad too?



Who remember dem ibeji oran?

mhen.......lots of strange stuffs happening

Oh really? I think I remember this girl's story.

More reason to be gratefull to God

Blood of chisos..... Omo i fear devil.. D@t awkward moment u board a commercial vehicle only to discover dis person beside u..

Dapresident:
Blood of chisos..... Omo i fear devil.. D@t awkward moment u board a commercial vehicle only to discover dis person beside u..

Lol. That's Progeria, is an extremely rare genetic disorder where in symptoms resembling aspects of aging are manifested at a very early age. A 5years old kid appears like a 40years old adult, they don't clock 15years before they die.

See "Paa" by Amitabh Bachan.

Sile12:


Lol. That's Progeria, is an extremely rare genetic disorder where in symptoms resembling aspects of aging are manifested at a very early age. A 5years old kid appears like a 40years old adult, they don't clock 15years before they die.

See "Paa" by Amitabh Bachan.

tnz, God bless... Hv seen d movie several times and also read about it.. Was only try to view it on a lighter mood