Fhunkhy1's Posts
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 Health › Re: LIVING With SCD(Sickle Cell Disease). by Fhunkhy1(op): 11:27pm On May 13, 2021 |
The pain started about 30 minutes ago, though I've been feeling unwell since evening. I'm home �, Dad and Mum in the next room and my little sister beside me. I have pains in my back, chest, lower limbs and a headache. I'll be fine . I know that but I need this pain gone befoe I start crying... I'm restless and can only express my pains in groanings. I won't Wake anyone.. it's my sister's birthday tomorrow so I won't spoil her night with this. I'll bear this alone. Again Good night Peace✌️✌️✌️ 3 Likes |
| Health › Re: LIVING With SCD(Sickle Cell Disease). by Fhunkhy1(op): 11:49pm On Apr 24, 2021 |
Good evening everyone. Tonight 8s one if those nights so I really don't know what to say. Lemme try some diversional therapy. I developed interest in two things recently 1) learning to write 2) learning a New language. Writing is one hell of a task I must say.. kudos to every writer out there. It hasn't been easy combining words and making them into phrases,then sentences. Just so you know, I'm still at the stage where everything i write is trash even to me. Concerning the language, I chose German for many beneficial reasons. My induction ceremony is slated to hold next month.. please pray along. Thanks for reading Sleep well Peace ✌️ 2 Likes |
| Health › Re: LIVING With SCD(Sickle Cell Disease). by Fhunkhy1(op): 5:54pm On Feb 05, 2021 |
*Frequently Asked Questions about SICKLE CELL DISEASE.* Sickle cell disease (SCD) is a group of inherited red blood cell disorders. Healthy red blood cells are round, and they move through small blood vessels to carry oxygen to all parts of the body. In someone who has SCD, the red blood cells (rbcs) become hard and sticky and look like a C-shaped farm tool called a "sickle". The sickle cells die early, which causes a constant shortage of red blood. *Q* : Why do SCD patient's have pain? *A*: Sickled red blood cells cannot pass through small blood vessels, they get stuck and clog the blood flow. This results in pain in the areas where blood is not getting to. *Q* : Why do SCD patients take Folic acid? *A* : Sickled cells get destroyed easily and Folic acid help make new red blood cells. *Q* : Why do some SCD patients have big tummy? *A* : Blood gets trapped in the spleen and the liver whereby expands rapidly. It can presents with weakness, fast breathing, shock and abdominal pain. *Q*: What should sickle cell patients avoid? *A* : Strenuous exercise, extremes of weather (cold or hot), cold water, dehydration *Q* : Why do some sickle cell patients have a give away look? *A* : This is called 'sickle cell habitus'. They have long thin extremities, prominent forehead or bossing of the head, big tummy, yellowish tinge of the eyes, prominent bone in the upper lip, etc. These features are as a result of rapid breaking down and production of rbcs, repeated blockage to blood flow by sickled cells, reduced oxygen supply. *Q* : Why do SCD patients have frequent infections? *A* : Their immunity is low. They have abnormal white blood cells that can't fight infections very well. Also, reduced blood supply and oxygen supply puts them at risk of having frequent infections. Sickle cell patients do well when they follow instructions ; take a lot of fluids, eat healthy, take fruits and vegetables, take enough rest and do moderate exercise. They should also have a positive mind set to life and a good support system. Copied 1 Like |
| Health › Re: LIVING With SCD(Sickle Cell Disease). by Fhunkhy1(op): 1:51pm On Jan 31, 2021 |
It dropped. It finally stopped. That stubborn tear I've been fighting since the day before dropped. It's my birthday today guys �. Yay! But I'm not happy, I've been Moody and sad since this day seems to be approaching. I even did a photoshoot to ward off the feeling of sadness I've been feeling concerning my birthday. This is one of those days I don't want to exist but Damn, I'm still grateful to GOD. I'm grateful for being alive Lord. But why do I feel like this? Could it be because I'm lonely and don't have no one to fuss over me ? Another one dropped! Could it be because I'm not getting anything that I want from life yet? Or Could it be simply because I'm just ungrateful?. I need someone to talk to, the tears are becoming a heavy downpour right now.. 08143505458. 3 Likes |
| Health › Re: LIVING With SCD(Sickle Cell Disease). by Fhunkhy1(op): 10:46pm On Jan 11, 2021 |
Compliments of the season FAM. I'm sorry I'm just signing in here for the year. Let's put the blame on my department that decided to release exam timetable that stated that exam starts on the 4th of January and ends on the 11th. I had to travel ASAP back to school on the 2nd. So for the first time in my whole life (I wrote out New year Goals) and it's been really exciting , I kinda have this inner push or energy to get them achieved; I guess that feeling is what people call being goal oriented. I'll let you know as it unfolds but know that one of my goals Is to buy a water bottle and achieve drinking at least 3L of water daily.. yay  This year i feel like i might be ready for a new relationship,I really should stop pushing these men away àbí. I've been meeting new people and I think I'll start referring them to this thread when it's time to discuss genotype issues. It will save me the stress of shalaye to every Tom, Dick and Harry. By the way, I need answers to this question: When is the right time to tell someone you like(the opposite sex) about your genotype? First Date ? When you're already dating? Few days to marriage? When exactly? Peace ✌️✌️✌️ 4 Likes |
| Health › Re: LIVING With SCD(Sickle Cell Disease). by Fhunkhy1(op): 9:46am On Dec 31, 2020 |
Good morning & Happy Last Day Of the Year � I'm really excited �. The year has been a really an unusual one but we made it through all odds. COVID broke out.... ASUU also struck.... But in all I'm grateful, I can say I had a good business year for starters, I enjoyed amazingly good health as I didn't have cause to get hospitalized, I also started friendly relationships with individuals who have help me in way I didn't expect and to crown it all I passed my midwifery professional exam. ISN'T GOD JUST TOO FAITHFUL?? So To mark the last day of the year, please share with me what you are thankful for in the year 2020 despite being a warrior and what your 2020 has been like. Peace ✌️✌️✌️ 3 Likes |
| Health › Re: LIVING With SCD(Sickle Cell Disease). by Fhunkhy1(op): 2:21am On Dec 28, 2020 |
Holysholay:Malaria is amongst the things that can trigger crisis but it is not crisis. I figure that she's probably around 2 years plus or 3 years so she can't really verbalize the pain. For her age, the swollen hands and legs is a sign that she's in pain ie having crisis so please treat as urgent when you see that. Paludrine is a drug taken as a prophylaxis for Malaria and is among b routine drugs usually recommended for warriors.. for her age,I'll ask that you see a doctor so that he can recommend a dosage for her age. As per side effects,I don't have any on my part. You can as well place her on folic acid ( one tablet daily) I'm not in Osogbo at the moment ma'am but I'll find a way to let you know when I get back there. Please keep her hydrated and warm ma, she'll be fine. Thanks for being here ma and thank you for taking care of us.. 2 Likes |
| Health › Re: LIVING With SCD(Sickle Cell Disease). by Fhunkhy1(op): 2:04am On Dec 28, 2020 |
I am in a considerable amount of pain right now. I'm home with my family. My younger sister is fast asleep beside me as I type, same as mum and dad in their room. Pain is centered in my ankles, knees and hands. Rating the pain right now, I'll say 4\10 ,so it's still manageable. It even feels odd to think of waking any of them up you know. I'll manage. I always do. Good morning � Peace ✌️✌️✌️ 2 Likes |
| Health › Re: LIVING With SCD(Sickle Cell Disease). by Fhunkhy1(op): 8:52am On Dec 26, 2020 |
With greetings of peace and prosperity, I’m wishing the very best for you during this special time. May you enjoy all the best now and throughout the coming year Wishing you and your family health, happiness, peace and prosperity this holiday season and in the coming New Year. May the magic of Christmas fill your heart all year long. I cherish you � 3 Likes |
| Health › Re: LIVING With SCD(Sickle Cell Disease). by Fhunkhy1(op): 7:35pm On Dec 03, 2020 |
Hydration Helps; how to incorporate hydration into daily routine.(PART 1). It is incredibly important for those of us with sickle cell to stay hydrated. Drinking water promotes healthy blood flow and reduces the chance of our red blood cells sickling and sticking together. It keeps our blood cells supple so they can move more freely within our blood vessels. If we don’t drink enough water, our blood cells become stickier and struggle to move through the body. This could result in the blood cells getting stuck and lead to a crisis. It is recommended that we drink approximately 2 to 4 liters of water a day for optimal blood flow. However, maintaining this daily intake can present a challenge. Following are my tips about how to incorporate water into your diet and make it less of a chore: 1. Make it manageable: Drinking 2 to 4 liters of water a day may seem daunting. I find that it’s less of a challenge when I break it into smaller amounts throughout my day. For example, instead of facing up to 4 liters each day, I think of it as four to eight bottles with 500 milliliters each. That way, I can see myself accomplishing the goal. I also aim to drink most of the water in the morning and afternoon so that toward the end of the day, I am uninterrupted by frequent toilet visits. ( to be continued.) Source: https://sicklecellanemianews.com/2019/11/06/staying-hydrated-daily-water-intake-tips/ |
| Health › Re: LIVING With SCD(Sickle Cell Disease). by Fhunkhy1(op): 12:31am On Nov 25, 2020 |
Hi. I'm still awake , are you? Remember that insomnia post I made sometime ago, this is what it's really about. |
| Health › Re: LIVING With SCD(Sickle Cell Disease). by Fhunkhy1(op): 9:15pm On Nov 22, 2020 |
Saw my mom during the weekend at a family gathering. I've missed her but I'll rather stay back in school because I don't wanna fight with her which is unavoidable if I go home. The weekend was long and I came back home with cramps and Crisis. Didn't go to church today coz I needed to rest well. I'm good now. Peace ✌️✌️✌️ PS: I know this post is disjointed, I'm really sorry. 2 Likes |
| Health › Re: LIVING With SCD(Sickle Cell Disease). by Fhunkhy1(op): 9:59am On Nov 16, 2020 |
EatforHealth:You're contribution in any way is welcome . We'll be glad if you can give us tips partaining to warrior nutrition. I'll check out d Abali thread you also mentioned. Thanks so much. Glad u stopped by. 1 Like |
| Health › Re: LIVING With SCD(Sickle Cell Disease). by Fhunkhy1(op): 9:56am On Nov 16, 2020 |
tonyson010:You're right. No one is actually created perfect we al have something we're living with. But then this avenue here is where I have been able to make my voice heard. Thanks for stopping by Sir 1 Like |
| Health › Re: LIVING With SCD(Sickle Cell Disease). by Fhunkhy1(op): 9:52am On Nov 16, 2020 |
tonyson010:Thank you✌️✌️ |
| Health › Re: LIVING With SCD(Sickle Cell Disease). by Fhunkhy1(op): 11:39am On Nov 10, 2020 |
Olujanny:Thank you, I appreciate. But Which name are you sharing with? |
| Health › Re: LIVING With SCD(Sickle Cell Disease). by Fhunkhy1(op): 8:43pm On Nov 09, 2020 |
Since I told y'all about the exam I wrote in September,I figured it would be just right to also tell you that your girl is now a Registered Midwife(RM) in addition to the previous Registered Nurse(RN) I scaled last year . I'm so happy , the last thing now is for ASUU to free me so i can get out of LAUTECH. I'm still trying to figure out what next to do as I'm still in school. Peace ✌️✌️✌️ 4 Likes 1 Share |
| Health › Re: LIVING With SCD(Sickle Cell Disease). by Fhunkhy1(op): 2:50pm On Oct 15, 2020 |
This is dedicated to all warriors Have a nice day ahead *THE CONQUEROR* I am but a beautiful soul alive to fulfill purpose To refute the prying eyes ready to see my fall down as I writhe in pain Because my blood is sickle Throbbing pain creeps in unannounced but I am ready to fight like a warlord Cos sickle cell cannot bind me I gave a long weary sigh Knowing the path I take is full of complications But I will not cower Cos my life is fused with faith That conquers the pain sounds My body is full of scars As I journey through battles But like the eagle I raise my wings and fly through the futile battles Because I am a conqueror I see the sunrise as a blessing Shining through my indomitable spirit That have conquered battles I have got a vibrant blood Full of zestful cells which are resilient and valiant Showing I am a *CONQUEROR* Written by Imran Barakah Adedoyin (B.ammiee) |
| Health › Re: LIVING With SCD(Sickle Cell Disease). by Fhunkhy1(op): 9:09am On Sep 25, 2020 |
Right now I've got headache, hip pains , with emotional and mental stress written all over me; All as a result of the last paper written yesterday . Thanks to all who reached out to me during this time, I really appreciate it guys. God bless Each and every one of us. So right now as a typical naija girl, I just wanna relax and be taken care of. ���. Oya Who wants to take care of me here  Peace ✌️✌️✌️ 1 Like |
| Health › Re: LIVING With SCD(Sickle Cell Disease). by Fhunkhy1(op): 2:12pm On Sep 23, 2020 |
Remember I told y'all that I was preparing for another professional exam (midwifery), well tomorrow il be writing the last paper. The past 2 papers haven't been really smooth but I trust God and please Pray along with me. Down with persistent headaches, insomnia and I also haven't been eating well. I'll try to get all these regulated after my last paper. I'm trying to be safe. I'm trying to be fine. I'm trying to avoid crisis in this crucial time too. Pray for me. Peace ✌️✌️✌️ |
| Health › Re: LIVING With SCD(Sickle Cell Disease). by Fhunkhy1(op): 9:48pm On Sep 18, 2020 |
blanquecheque:This got me smiling,. Thanks for all the good wishes and prayers. God bless you sir. Well, this advocacy hasn't been escalated yet considering many things including my academics and finances, but I can assure you that it's on my mind. Thank you for your encouragements again sir. Please keep all warriors in your prayers. Have a great weekend Sir |
| Health › Re: LIVING With SCD(Sickle Cell Disease). by Fhunkhy1(op): 9:43pm On Sep 18, 2020 |
[quote author=Fhunkhy1 post=94064579][/quote]Thank you for your contribution Sir. The government has nothing for us. We only have ourselves and our loved ones. We are miracles ( even though we all haven't realized it yet) and we should treat every day as one. And we should live life to the fullest. Stay happy Sir |
| Health › Re: LIVING With SCD(Sickle Cell Disease). by Fhunkhy1(op): 9:38pm On Sep 18, 2020 |
williaam: |
| Health › Re: LIVING With SCD(Sickle Cell Disease). by Fhunkhy1(op): 9:27pm On Sep 18, 2020 |
Reuben700:Hello Reuben. Good evening, I hope this response meets you well. If I tell you I know how it feels please don't doubt it,, including all the financial implications. If you have been crisis free for up to 6 months without any special drug I think you can still do it. If you feel like this drug has been a trigger to your recent recurrent crises I'll advice you stop it and then watch your body responses. Don't forget to take all necessary precautions pertaining to your health. You'll get through this my friend. Will look forward to your feedback Peace ✌️✌️ |
| Health › Re: LIVING With SCD(Sickle Cell Disease). by Fhunkhy1(op): 7:51am On Sep 08, 2020 |
Good morning my neighbors. How was your night? Have you ever heard of PICA? Probably most of you have individual experiences with it but I'll share mine later.. PICA AND SICKLE CELL DISEASE Pica is an eating disorder that causes a person to crave and eat non-food items that have no nutritional value. It is a common problem in persons with sickle cell disease. What are the CHARACTERISTICS OF PICA? Persons with pica may eat a variety of non-food items, including paper, styrofoam, starch, chalk, crayons, dirt or clay, sponges, hair, or other non-nutritional items. Persons with sickle cell disease are known to have a higher rate of pica than the general population. The reasons for pica are not known, but some cases have been linked with iron deficiency, lower weight, lower hemoglobin, pregnancy, nutritional deficiencies, lead poisoning, behavioral problems, and a family history of pica. HOW IS PICA MANAGED IN A PERSON WITH SCD? If pica is suspected, your child’s lead and iron levels will be checked to make sure your child does not also have lead poisoning or iron deficiency. If these levels are normal, your child might be referred to the Psychology Clinic for therapy to help your child learn how to control the pica. In some cases, health problems from pica can be severe, depending on what is being ingested. Possible problems include infection, digestive tract blockage, poisoning, malnutrition, and damage to the teeth. Some health problems may require surgery. If you suspect that your child has pica, talk to the Doctor and seek for medical advise. |
| Health › Re: LIVING With SCD(Sickle Cell Disease). by Fhunkhy1(op): 6:07am On Aug 28, 2020 |
UPDATE! This should have come up earlier but forgive my forgetfulness, there's do much going on with this small body and mind. Got back to school (Osogbo) Since about 3 weeks now,(no, school hasn't resumed officially) . I have another professional exam fixed for next month and I needed to come back to school for some submissions pertaining to registration. Done with the reg, but I still have to stay back to read,(a lot of money has gone into it) since I haven't been doing much of it at home. Now the exam in 3 weeks and I feel so empty upstairs,Like I haven't even been reading. Moreso, I have been getting stressed,with serious pains on my hip daily (I should see a doctor soon,I feel it's getting worse)and having less sleeping hours too. I know it will soon be over but I'll like you to say a prayer for me wherever you're reading this. (Thank you for doing that). I'd love to keep you abreast of what's going on with me but my phone hasn't been cooperative these days? But I'll still try. I love y'all Stay safe Peace ✌️✌️✌️✌️✌️ 4 Likes |
| Health › Re: LIVING With SCD(Sickle Cell Disease). by Fhunkhy1(op): 1:29pm On Aug 21, 2020 |
Will be sharing Kemis story today. Enjoy!!! HOW WELL DO YOU KNOW YOUR SYMPTOMS? As someone living with sickle cell one thing I have come to term with is my symptoms. Last week Monday, I was home and feeling extremely tired, 3 days prior to that, I have been losing my appetite to eat foods, fruits and even drink water. The highest I can do is to force myself to drink water by adding little garri inside the water. So Monday came, I was so tired to do anything, with constant headache that paracetamol is no longer working for. So I decided to go to hospital , before going, I already went to lab to run Malaria Parasite and PCV to enable faster consultation and diagnosis. Getting to Hospital, I talked to the Dr , see me smiling, the result already show anaemia and presence of malaria parasite. Though I really can't say how serious it is. I just knew that I will definitely be admitted even if not for blood transfusion. Knowing fully well I will be admitted, I am still not comfortable, I still try asking if the Dr can treat me with drugs alone. He laughed at me and said Kemi you are going on admission. I just told him, I need to go back home and prepare,since I used my leg to come here. Though I was tired , I can still go back home. Got home and receive some emails that I must attend to urgently. I forgot about hospital and focus on the work. Back to hospital, I was examined again, I needed blood transfusion. Thank God I have my brother with me who has same blood type with me. Did I tell you? All through I was on call to attend to some work. After the call, I have to attend to a client on phone, the phone call was like 1 hr plus. Even at the lab, the were like you are not too pale, I have learnt to mask my pain or tiredness to some extent. I never knew I will spent 9 days on that hospital bed. After the treatment, I still have this constant headache even when I was obviously stable. But the Consultant said you are staying here because of the headache, I told him Dr give me drugs now, I will be fine. He said no, like he knew there is something more. Friday evening came, I told my mum, I was feeling cold, I use one blanket, it wasn't enough, use another, it wasn't enough. Ahhhh, my mummy has never seen me like that in many years. I knew she was afraid. Within 5 minutes I was shaking like a fish outside water, the vibration was too much. All I could say was mummy call the Dr, the Dr came running with a nurse, my temperature has skyrocketed, I couldn't breathe again. God just knew what was happening and sent the consultant to come at the right time. Dr, check blood pressure, check temperature, body was so hot that the thermometer couldn't read it again, the nurse scream sir, the temperature is so high. All I could say was to affirm I shall not die but live. The next prayers was God I am yet to fulfill my purpose don't allow me to die with my full potential. My mum didn't know what to do? I used all my energy and said Dr please I can't breathe. The Consultant ran outside to bring oxygen himself, open oxygen it was hard, ahhhhh! Which kind frustration is that, he brought another one, All through I was already given injection, yet the temperature and cold never reduced. After 2 hours, the cold started reducing, my veins collapsed, they have to use my leg, Drips upon drips, test upon test, injections upon injections. After 3 hours of being on oxygen, I got some relief My mum, dad and Toba were lost, running helter skelter, buying this and that. In all this, I am grateful to God, what if I neglect those symptoms and not go to hospital, What if I thought I was well and force my discharge by signing? What If I thought I can manage it at home? What if I see no seriousness in it. Two symptoms I don't joke with is tiredness and headache I follow my own advise. I kept telling sickle cell warriors, don't neglect symptoms like headache and Tiredness, they are not only linked to Malaria. Infection and malaria was actually the underlying cause. Even if I drink ugwu, malt,milk, tomatoes,and all that,it won't even help the red blood cells that was breaking down at higher rate because the underlying cause was never addressed. My mother was scared, I haven't had blood transfusion in the last 10 years but this is me thanking God for sparing my life.. With God by my side, I'll keep winning this battle. ©️Kemi Oguntimehin 4 Likes 1 Share |
| Health › Re: LIVING With SCD(Sickle Cell Disease). by Fhunkhy1(op): 12:42am On Aug 16, 2020 |
hinere:Coz I don't want such adverts on my thread. I don't want people that read thinking that I'm working with any of you . This thread is meant to be neutral with no religious or affiliation with any organizations. No such adverts henceforth. Respect yourselves 1 Like |
| Health › Re: LIVING With SCD(Sickle Cell Disease). by Fhunkhy1(op): 9:52pm On Aug 08, 2020 |
Dear warriors, it's generally a cold season, you're responsible for your own wellbeing. Do the following and keep safe wherever you are........ 1. Eat small portion at a time to avoid constipation as digestion process will be slower 2. Eat foods and fruits rich in fiber and drink a lot of water especially warm water 3. Avoid anything cold, it may affect your immune system and allows internal fats to congeal around your body internal organs 4.if you have low hair cut please try to put on your cap, turban or something to cover up to avoid cold 5. If your floor is tiled please put on your socks. Don't walk bear footed. Mostly at night, put on the socks overnight 6.Please if you have the aged ones keep them warm as they are more vulnerable now 7. Please drink more citrus fruits like orange, Lime, lemon, and also pineapple. Add them to warm water to boost your immune system 8. You can as well take ginger tea , garlic tea, tumeric tea, moringa tea and please don't forget your Vitamin C ,( the white for the adult and orange for the children). Remember Vitamin D as well. 9. Don't STRESS yourself 10. Take your routine medications as prescribed (don't be like me) 11. Pray Have a wonderful night rest. Peace ✌️✌️✌️ 2 Likes |
| Health › Re: LIVING With SCD(Sickle Cell Disease). by Fhunkhy1(op): 9:46pm On Aug 08, 2020 |
Israellionel:Thank you @Israellionel for visiting this thread. Thank you for d encouraging worda, they really go a long way. |
| Health › Re: LIVING With SCD(Sickle Cell Disease). by Fhunkhy1(op): 7:59pm On Aug 07, 2020 |
SICKLE CELL AND ADDICTION Life struck again and I lost my dear mother March 2014 also due to sickle cell crisis. And this was the beginning of the end for me. When she died, her sister made a statement to me that I am now a man and men don’t cry. I braced up and bottled it all in because I am now a man. The dosages and the frequency of injecting skyrocketed. I started taking 30 vials of Pentazocine daily 6mls per shot. The frequency was five times a day. https://punchng.com/sickle-cell-and-addiction/ |
| Health › Re: LIVING With SCD(Sickle Cell Disease). by Fhunkhy1(op): 10:41am On Jul 08, 2020 |
Please visit the link below to view this post by Makinde Titilayo titled Sickle Cell and unintentional bullying. https://www.facebook.com/100003181743583/posts/3119009331548428/?app=fbl Everyone bullys us ranging from Doctors,nurses, friends, etc. I remember a time when I got sick in school ,we were on clinical posting then , so I informed my class rep and clinical posting rep individually that I wasn't fine and needed to go home. They knew my condition so they asked me to go home that they'll inform d lecturer in charge on my behalf. So I went home. Few days later , my reps called to tell me the lecturer insisted I must come back to school immediately if I didn't want to forfeit the upcoming psychiatric posting trip to Abeokuta. I felt so threatened. So I got on d bus back to Osogbo, I cried during that trip but I made a friend too. 2 weeks later I fell seriously ill, was admitted to the school health centre and then the lecturer who threatened me came and said "Ha ,sorry, you should have stayed at home when you knew you weren't really fine" I was so mad but I kept my cool. She now said I should go home and take care of my self. Chai. This is one of the numerous bullying experiences I've had. But we keep moving. Never let bullies get the Best of you. We're unique in our own way� 2 Likes |
