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2018 World Sickle Cell Day - Health - Nairaland

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2018 World Sickle Cell Day by Abali1(m): 5:31am On Jun 19, 2018
How have you created awareness? Do you know your genotype? Are you still of the opinion that Warriors die young? Are you still ignorant about, what it actually means being a Warrior? Do you still consider Warriors as 'lazy' beings, who can't hold a job?

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Re: 2018 World Sickle Cell Day by Abali1(m): 5:54am On Jun 19, 2018
HOW HAVE YOU CREATED AWARENESS:
It's unfortunate that even in this day and time, many people don't know much about Sickle Cell disease. And because of this lack of knowledge, many have blindly gone into relationship and ended up making babies who eventually turn out to be Warriors.
The unfortunate thing is that, these babies who never asked to be born are sometimes neglected to Fate. Some of them become so despised, even by their so called parents that you begin to wonder if it was their fault that they are born Warriors.
It breaks my heart to hear that some so called 'fathers' even abandon the mother and Warrior child, because in his warped thinking the woman is the cause of their suckled cell baby.
Young girl, yes you reading this, do you know your genotype? Even if you do, are you sure that the result from that laboratory is the authentic one?
Handsome dude, are you really sure that your genotype is AA, or you just believe because your parents told you that all their children are AA?
How much do you know about genotype testing?
How vast is your knowledge about this thing called Genotype?
How careful can you be, so that you don’t end up fathering/mothering a Sickled cell baby?

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Re: 2018 World Sickle Cell Day by Abali1(m): 6:21am On Jun 19, 2018
ARE YOU STILL OF THE OPINION THAT WARRIORS DIE YOUNG?
How many of you 'healthy' ones still think that what Warriors know how to do best, is to die young? Thank God for improved health system and improved information technology. We now know that there are many warriors out there living their lives and fulfilling their destinies.
That misconception about dying young, no longer holds water. Because, when you live right and do what you are supposed to do healthwise, you will live a fulfilled life.

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Re: 2018 World Sickle Cell Day by Abali1(m): 6:46am On Jun 19, 2018
WHAT DOES IT MEAN WHEN ONE SAYS, "I am a Warrior ".
Many times those of us living with sickle cell disease, refer to ourselves as Warriors. What does this mean? A warrior is someone who is very active in battles and have won many battles, and most likely will still face many more battles and win or eventually be defeated.
The above is simply the life of a person living with Sickle cell disease. We fight our battles as often as you can imagine. Both seen and unseen. Physical as well as psychological. The life of a Warrior is most times dogged with battles and no matter how weak we are, we still fight on.
No matter how blunt the sword is, we still wield it with the hope of winning.
No matter how hopeless our efforts seem to be, we still put in our best.
We are Warriors and we have to fight and win or watch as we are defeated and added to statistics.
Fortunately for most of us, QUITTING IS NOT AN OPTION.

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Re: 2018 World Sickle Cell Day by Abali1(m): 7:49am On Jun 19, 2018
CC
Sissy3, Dominique, Lalasticlala
Abeg do the needful. Today 19th June is set aside worldwide as Sickle Cell Awareness Day. I believe Nairaland can spare a space for creating awareness for Sickle Cell.
Re: 2018 World Sickle Cell Day by dominique(f): 8:32am On Jun 19, 2018
Hello Abali, it's been a while. I actually thought of you when I saw a Sickle cell awareness thread yesterday. I saw you were last active in January, glad to have you back. Regards to your family smiley

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Re: 2018 World Sickle Cell Day by izzou(m): 8:35am On Jun 19, 2018
Remember my man Jude who died at the age of 21: Sickle cell took him embarassed

Thank God for science.

And thank you for this thread. Thumbs up to the warriors out there

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Re: 2018 World Sickle Cell Day by Macnnoli4(m): 8:35am On Jun 19, 2018
Genotype AS. GOD HELP ME.
Re: 2018 World Sickle Cell Day by Valfrankie(m): 8:38am On Jun 19, 2018
We made it again!!! We are conquerors, born to excel, made to be different. Shout out to all living legends out there. May God bless us forever!

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Re: 2018 World Sickle Cell Day by Promxy94(m): 8:38am On Jun 19, 2018
Hmmmmm
Pains sequel to ignorance

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Re: 2018 World Sickle Cell Day by omojeesu(m): 8:39am On Jun 19, 2018
SCD can be eradicated! Let's do it!!

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Re: 2018 World Sickle Cell Day by opethom(m): 8:39am On Jun 19, 2018
shocked
Re: 2018 World Sickle Cell Day by jericco1(m): 8:41am On Jun 19, 2018
that shiit is a big ish o

1 Like

Re: 2018 World Sickle Cell Day by lormama: 8:58am On Jun 19, 2018
Thank you lord for the victory, we never quit

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Re: 2018 World Sickle Cell Day by Respect55(m): 9:13am On Jun 19, 2018
U are the real warriors and u will eventually win.

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Re: 2018 World Sickle Cell Day by sinisters(m): 9:28am On Jun 19, 2018
There is a drug being re-activated by the Nigerian Institute of Pharmaceutical Research and Development (NIPRD). Its called Nicosan, I don't know how helpful it is but I am sure it will be useful for warriors.
Re: 2018 World Sickle Cell Day by samtee37(m): 9:33am On Jun 19, 2018
God keep the SS out dear.
Re: 2018 World Sickle Cell Day by sotall(m): 9:34am On Jun 19, 2018
Valfrankie:
We made it again!!! We are conquerors, born to excel, made to be different. Shout out to all living legends out there. May God bless us forever!
Are you a warrior?
Re: 2018 World Sickle Cell Day by pheyhi(f): 9:43am On Jun 19, 2018
ignorance is the barrier
in the hospital I look at many families who suffer because a child is hbss
is it the numerous care (no stress, no walking
of long distance, adequate diet, increase intake of water)
then the cotinuous hospitalization as a result of crises, when its too hot them plenty for haematology ward like beans what about when it is cold??
the pain this children suffer is so much its unbearable
most cases at the hospital goes like this:
doctor: you know wetin ss be?
dad and mum: we no know
doctor turns to dad and mum: wetin be your genotype
dad and mum: we no know before, we just discover the child dey fall sick all the time, na so we bring am here, na here we come do test and them tell us say we suppose no marry

to everyone its not enough to say I love you oooo, you had better do a blood test to know your genotype

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Re: 2018 World Sickle Cell Day by Maket: 9:56am On Jun 19, 2018
Let anyone having AS and SS shouldn't think of bearing Child while only AA should continue marrying AA and see how SS will be defeated. THIS WILL BE VERY DIFFICULT TO DO.

As far as AS is not eradicated, 2 ignorantly mad lovers with AS will continue having SS.

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Re: 2018 World Sickle Cell Day by folowo(m): 10:03am On Jun 19, 2018
Good morning.... @alabi please can you tell the house the important TDC AND OTHER TESTS THAT CAN HELP SS PATIENTS... THANKS
Re: 2018 World Sickle Cell Day by aamstih: 10:03am On Jun 19, 2018
Hi,

What are you proposing?

pheyhi:
ignorance is the barrier
in the hospital I look at many families who suffer because a child is hbss
is it the numerous care (no stress, no walking
of long distance, adequate diet, increase intake of water)
then the cotinuous hospitalization as a result of crises, when its too hot them plenty for haematology ward like beans what about when it is cold??
the pain this children suffer is so much its unbearable

1 Like

Re: 2018 World Sickle Cell Day by zonax(m): 10:22am On Jun 19, 2018
A battle of hope. Warriors conquer the gates of Hades. Its effortless, its seamless. Its innate.
Re: 2018 World Sickle Cell Day by Valfrankie(m): 10:30am On Jun 19, 2018
sotall:

Are you a warrior?
Yeah!!! I have fought through the darkest nights and gloomy days, I endured the pains and suffered the pangs, the discrimination and the mockery of sickle cell. But like the rest of my warrior brothers, still standing strong because we are winning this.

5 Likes

Re: 2018 World Sickle Cell Day by Abali1(m): 10:31am On Jun 19, 2018
dominique:
Hello Abali, it's been a while. I actually thought of you when I saw a Sickle cell awareness thread yesterday. I saw you were last active in January, glad to have you back. Regards to your family smiley
Thank you dear for your thoughtfulness. I do visit Nairaland often, though I hardly comment or create posts anymore so as not to sound like a broken record.
But today, I just need to go active because we still need to create awareness.
If we don't, who will?

3 Likes

Re: 2018 World Sickle Cell Day by sotall(m): 10:33am On Jun 19, 2018
Valfrankie:
Yeah!!! I have fought through the darkest nights and gloomy days, I endured the pains and suffered the pangs, the discrimination and the mockery of sickle cell. But like the rest of my warrior brothers, still standing strong because we are winning this.
Good one brother. God give you more strength and keep you healthy.

1 Like

Re: 2018 World Sickle Cell Day by pheyhi(f): 10:35am On Jun 19, 2018
aamstih:
Hi,

What are you proposing?


lets tell the youths today that it not only awareness about
SCD but is the test being done ,because one can be aware about the disease and not still know his/her genotype
so let genotype test be made compulsory in every social institution starting from family to schools to offices.
what is the essence of dating for 5 years then both of you get to know you cant get married?

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Re: 2018 World Sickle Cell Day by Abali1(m): 10:45am On Jun 19, 2018
pheyhi:


lets tell the youths today that it not only awareness about
SCD but is the test being done ,because one can be aware about the disease and not still know his/her genotype
so let genotype test be made compulsory in every social institution starting from family to schools to offices.
what is the essence of dating for 5 years then both of you get to know you cant get married?
Great idea. It's not enough to know about sickle cell disease, getting to know about your genotype and encouraging others to get tested and know theirs should be the goal of creating awareness.

1 Like

Re: 2018 World Sickle Cell Day by Abali1(m): 10:48am On Jun 19, 2018
zonax:
A battle of hope. Warriors conquer the gates of Hades. Its effortless, its seamless. Its innate.
Permission to copy these words and paste elsewhere.

1 Like

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