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Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment - Health (3) - Nairaland

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Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by kowalsky: 2:36pm On May 11, 2019
AngryParrot1:


Hi. It is quite unfortunate that a little child should go through something like this. I have helped many people heal naturally from many different diseases, but I must confess that I have never treated a genetic disorder before. However, I know this profound truth, that nature has the solution to all problems, and that we are genetically designed to heal.
The fact that science has not found a cure, does not mean that there is no cure. As far as man will walk the earth, science will forever continue to make discoveries about the human body & nature.
Immediately I saw this, I was moved in my heart. I have 2 little children. I decided to do a little research, prayerfully I must add. My findings, in addition to what I already know about nature, indicates that the B vitamins are responsible for regulating DNA, thereby correcting genes.
I would invite you not to give up hope. I believe that if we do our part, God will do His. Although it is my first attempt with genetic disorders like I mentioned, I would like to present a dietary recommendation that should reverse this genetic disorder, and give the body a fighting chance to repair itself like it is designed to do.
1. If the baby is already taking any other food apart from breast milk, we will change it. In addition to breast milk, if the baby has started eating, make pap from unripe plantain flour, cashew nuts and crayfish. If you are not breastfeeding the baby, begin NOW!

2. You the mother, avoid starch, anything sweet. Don't eat cassava products or yam. Use grains to make your swallow. Millet, brown rice, sorghum, small corn (pop corn). Grind and then cook. Or you can also use unripe plantain flour mixed with any of the grains. If you must eat rice, don't eat any other rice if not local rice (brown one). No spags, no indomie, no semo. You can eat all kinds of beans too. In fact eat beans frequently.

3. Eat more of liver and intestines for your meat. They are called organ meat. Or snails. That will be your meat. Also eat eggs. Boiled not fried.

4. This is crucial. For every meal, you must add raw sliced pumpkin leaves (ugwu).

5. Get groundnuts or cashew nuts and keep in the house. Snack on it now and then.

6. Do not eat anything in sachet or package!

7. Do not drink any other bottled drink or anything other than water. Drink at least 3 litre of water daily.

This will change the baby's diet at once through breast milk. There will be more vitamins B and others, that will aid the body.

Please contact me through my signature let's talk some more. This very case is not about money. I feel for the parents and the child.

Godspeed!

Lols. In searching for a solution to a health problem, the first step is to differentiate between quack physicians and who God has sent to save your life.

Imagine this dude saying that vitamin B is responsible for repairing genes. That's the job of DNA polymerase but I digress.

Get it straight, if a generic disorder is inherited from a parent, there's no repairing whatsoever that can be done at the genomic level. Your only option is repopulating the the cell line with healthy cells (and an intact genitic makeup) as is the goal in a bone marrow transplant, or offering palliative treatment to quell the symptoms of the disorder. It's why people who have downs. Sickle cell. Etc get to live with the condition through their lives.


While diet changes might go a long way to ease off the stress of this particular disease please treat all this man has suggested with a grain of salt. his 'advice' comes of to me as more of word of the street than informed. I'll advise you to seek the counsel of a trained physician, preferably someone who's had a history of treating the disease lest you expose yourself to additional emotional stress.
Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by udomoh(m): 3:09pm On May 11, 2019
Please take the baby to the hospital to see a dermatologist. Only way out.

1 Like

Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by mechanics(m): 3:10pm On May 11, 2019
The doctors who discovered the issue should know how to cure the disease.

1 Like

Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by indoorlove(m): 3:26pm On May 11, 2019
Sometimes the solution we seek is rightly behind us, the leaves, the roots and the herb we ignored were created to help us solve various ailments bedeviling our health. I have had to recommend a lady to somebody some months ago...She has been battling with childlessness for 6 years, traveled across Nigeria to different Churches and hospitals, seeking help to her predicament, while her solution is simply a mixture of some leaves and roots seeing everyday, but ignored due to lack of knowledge or simply because of 'over spirituality' that forbid everything natural and place all solutions on spirituality and orthodox medicine.

People are doing wonders with leaves and roots, Don't die in silence. I will have your baby picture sent to somebody and get back to you on his recommended solution.

1 Like

Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by Nobody: 3:29pm On May 11, 2019
plenty wahala dey this life, waiting for you to make a mistake or meet the wrong person
Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by chloride6: 3:36pm On May 11, 2019
Let me give you advice..

You may not like it

Your post is a little late..

May God be with the child

In the event she does not survive you need to forestall this and do genetic testing before birth..

If the genetic test shows this , you know what to do

I wish you the best of luck..

1 Like

Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by oxypress: 3:54pm On May 11, 2019
Winners72:


Please my nephew who is 16years of age has been suffering from severe epilepsy for about 7years now. We have consulted a lot of specialists but no solution. Can u be of help sir?
In all the drugs for epilepsy there is none that heals. They only suppress seizures until the damage escalates. The drugs will now be changed or dosage will be increased. No healing is achieved so the patient is on medication for life. That's the nature of epilepsy drugs as at today.
For a natural and effective healing of brain tissues hyperbaric oxygen (hbot) can be of help. HBOT allows high levels of oxygen in the brain to stimulate the healing process. With hbot new blood vessels will be created in damaged arears and the brain can recover it's function. The effect of hbot can be demonstrated from the very first few treatments. Please do your research yourself and if you are interested get back to us. We provide hbot for patients with difficult to treat conditions and epilepsy is one of them.
Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by Alcacer47: 3:55pm On May 11, 2019
lonelydora:


I don't know about this but i know this kind of ailment is best treated locally
yea yea, I can relate...in my village children suffer from this kinda illness and are usually cured, for instance a cousin of mine when he was a kid, dude is around 30+ now...it was treated locally and he is a grown up agile man now...think you should talk to your elders also bout this...poor fine baby, you will be cured by God's grace cry cry cry

1 Like

Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by whiteseed(m): 4:27pm On May 11, 2019
SPOILT9JAOLOSHO:
Good morning Nairalander's

Please I need the input of doctor's/nurses/anyone that knows or experienced this child ailment before to help save my niece cry.

Here is the details..

My elder sister who lives in the east gave birth to her 3rd child, a baby girl in 2015 but she was born with this unknown ailment. It usually starts from the hand, they took her to hospitals but doctor's seemed uncertain of what the ailment was, they also took her to some other places trying to find solution to it but to no avail. Within few days it spread to her nails and they subsequently fell off. One week later it spread all over her body that if you lie her on the bed she cries all time due to the pain and when u raise her up her skin glues to the wrapper used in lying her down. After days of trying to find solution with no success they were confused. Then one early morning around 4am the father carried her to ease the pain and make her to stop crying without knowing the baby was dead 10 minutes ago, it was when they discovered they wept and made arrangements and buried her in the morning.

After that, they had another baby and she was free from it.

Now on May 8, 2019 she gave birth to a baby girl (photo attached) but the baby was born with this same deadly ailment. They took her to FMC they said it is "epidermolysis bollusa". Please I need information from anyone who knows about this ailment and how to cure it, I don't want a repeat of what happened last time abeg.


Mods*
Please make una help me push this to FP to save a soul cry cry

Thanks

1 Like

Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by ddaammyy(f): 4:37pm On May 11, 2019
SPOILT9JAOLOSHO:
Good morning Nairalander's

Please I need the input of doctor's/nurses/anyone that knows or experienced this child ailment before to help save my niece cry.

Here is the details..

My elder sister who lives in the east gave birth to her 3rd child, a baby girl in 2015 but she was born with this unknown ailment. It usually starts from the hand, they took her to hospitals but doctor's seemed uncertain of what the ailment was, they also took her to some other places trying to find solution to it but to no avail. Within few days it spread to her nails and they subsequently fell off. One week later it spread all over her body that if you lie her on the bed she cries all time due to the pain and when u raise her up her skin glues to the wrapper used in lying her down. After days of trying to find solution with no success they were confused. Then one early morning around 4am the father carried her to ease the pain and make her to stop crying without knowing the baby was dead 10 minutes ago, it was when they discovered they wept and made arrangements and buried her in the morning.

After that, they had another baby and she was free from it.

Now on May 8, 2019 she gave birth to a baby girl (photo attached) but the baby was born with this same deadly ailment. They took her to FMC they said it is "epidermolysis bollusa". Please I need information from anyone who knows about this ailment and how to cure it, I don't want a repeat of what happened last time abeg.


Mods*
Please make una help me push this to FP to save a soul cry cry

Thanks
let them take her to Obi Jackson children's hospital okija. They'll treat her in days and at a subsidized amount. Those fmc people nearly killed my godson who suffered almost the same ailment. Let them go as fast as possible

1 Like

Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by Wiseandtrue(f): 5:33pm On May 11, 2019
SPOILT9JAOLOSHO:

They have done that bro
There is a children hospital in the East now

I learnt they are very good

1 Like

Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by turawafett(f): 6:39pm On May 11, 2019
Of your sister can come to Lagos , Tak the baby to Massey children hospital in Massey street Lagos island. It's a children' specialist hospital owned by Lagos State government.

1 Like

Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by Mykehl: 9:28pm On May 11, 2019
There has been cases of stem cells being used to treat this rare and lethal disease. If she is above one year old, she can use STC30. It is a stem cell drug. The problem here is that the baby is below 1 year. It is not advisable to treat babies below the age of one with the drug.

Except she can split the product into 1/4 and use for the baby but then the baby is few days old and can't drink water which must be taken in large quantity with the drug.
Stem cell treatment is the solution.

1 Like

Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by roscoleefad: 10:04pm On May 11, 2019
Get d seed of blackseed blend it and mix with pap give her as a meal morning afternoon and night get good results withi two to three weeks

1 Like

Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by Adalassy: 10:06pm On May 11, 2019
kelechiodo:


Please do you have experience with Alzheimer’s disease (loss of memory) in a young person of 58 years

https://www.nairaland.com/5091737/suffering-these-last-stop-come
Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by Adalassy: 10:12pm On May 11, 2019
roscoleefad:
Get d seed of blackseed blend it and mix with pap give her as a meal morning afternoon and night get good results withi two to three weeks

Black seed is useless against this. I speak with authority

1 Like

Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by MisterALEX(m): 10:45pm On May 11, 2019
Sorry MA. Lemme just chip in. It could be spiritual as someone as said earlier. And otherwise genetic, notwithstanding I suggest you give the baby "holy communion" and 3 shots of anointing oil every day. I'm speaking from the spiritual angle. Watch and see how this deadly disease die forever. It's well with you and your family. You've DOMINION
Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by Austindumas1(m): 10:57pm On May 11, 2019
this reminds me of the butterfly fly boy, he died last year of same disease,they don't always last long, life expectancy is not more than 10, buh the butterfly boy lived up to 18, making him the oldest person ever with the disease

1 Like

Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by CoCoLav(f): 11:19pm On May 11, 2019
MisterALEX:
Sorry MA. Lemme just chip in. It could be spiritual as someone as said earlier. And otherwise genetic, notwithstanding I suggest you give the baby "holy communion" and 3 shots of anointing oil every day. I'm speaking from the spiritual angle. Watch and see how this deadly disease die forever. It's well with you and your family. You've DOMINION

You people have come again. The disease has no cure. So many innocent kids have died from this disease, if anointing oil could cure it, they would have lived and spared their parents the heartache.
Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by oxypress: 11:21pm On May 11, 2019
kelechiodo:


Please do you have experience with Alzheimer’s disease (loss of memory) in a young person of 58 years

If your patient is suffering from Alzheimer's disease hyperbaric oxygen therapy (hbot) will work very well. HBOT is the use of 100% pure oxygen under increased pressure in a hyperbaric chamber and the treatment is ordered and supervised by a qualified physician. (no be try your luck plants and vegetables).
There are many attributes to hbot that will make the brain cells to respond very well and the information is readily available on the net. Don't waste your money for chinko or native herbs since you will be endangering health.
Alzheimer's disease can be stopped and reversed contrary to the 'old school' ideas. Memory loss can also be restored including several other benefits.
We are HBOT providers and can join hands with fellow doctors and health care practitioners to give patients back their lives.
https://www.sciencedaily.com/releases/2019/01/190124124742.htm
Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by toygod2: 6:01am On May 12, 2019
But nawa ooooooooooooooooo

for this small life, things dey happen.

May God heal the sick.Amen
Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by SPOILT9JAOLOSHO(m): 8:08am On May 12, 2019
A big thank you to the mods and everyone for the kind feedback have liked all of them, I spoke with my sister and she said she isn't seeing any improvement when she checks on her and that it has started moving to other parts of her body.. She tried br**stfeeding her and the mouth was bleeding and couldn't allow her eat.
We are monitoring her and I will update the house.

Once again.. thanks all
Love you all!
Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by oxypress: 8:32am On May 12, 2019
By embrasing hyperbaric oxygen therapy you might be able to prevent many or all the disastrous consequenses that may arise in the feature. I pray they don't arise. For now about 10 to 20 sessions of hbot within a few days may be required.
No specific treatment for ED is available right now so it is one of the difficult to treat by conventional methods.
Sorry, this advice came a bit late because you are facing an emergency. People don't usually take my advice seriously but they will never come back here to report the foolishness of their failure. For now hbot is the best option.

1 Like 1 Share

Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by Adalassy: 9:05am On May 12, 2019
SPOILT9JAOLOSHO:
A big thank you to the mods and everyone for the kind feedback have liked all of them, I spoke with my sister and she said she isn't seeing any improvement when she checks on her and that it has started moving to other parts of her body.. She tried br**stfeeding her and the mouth was bleeding and couldn't allow her eat.
We are monitoring her and I will update the house.

Once again.. thanks all
Love you all!


This baby is dying and you all are still "monitoring" as you put it. I have told you the quickest and best way to quickly get her symptoms under control. There is a compound in broccoli and cauliflower which quickly corrects the problem in her and helps her heal and stops the bleeding and peeling off of skin tissue.

This will help manage the baby as he/she grows.

I am an alternative medicine practitioner in Ghana and have told you how to help but if you wish to continue "monitoring" then you will only have yourselves to blame eventually
Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by SPOILT9JAOLOSHO(m): 9:46am On May 12, 2019
Adalassy:



This baby is dying and you all are still "monitoring" as you put it. I have told you the quickest and best way to quickly get her symptoms under control. There is a compound in broccoli and cauliflower which quickly corrects the problem in her and helps her heal and stops the bleeding and peeling off of skin tissue.

This will help manage the baby as he/she grows.

I am an alternative medicine practitioner in Ghana and have told you how to help but if you wish to continue "monitoring" then you will only have yourselves to blame eventually
I have just told them
Thank you
Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by SPOILT9JAOLOSHO(m): 9:47am On May 12, 2019
AngryParrot1:


Hi. It is quite unfortunate that a little child should go through something like this. I have helped many people heal naturally from many different diseases, but I must confess that I have never treated a genetic disorder before. However, I know this profound truth, that nature has the solution to all problems, and that we are genetically designed to heal.
The fact that science has not found a cure, does not mean that there is no cure. As far as man will walk the earth, science will forever continue to make discoveries about the human body & nature.
Immediately I saw this, I was moved in my heart. I have 2 little children. I decided to do a little research, prayerfully I must add. My findings, in addition to what I already know about nature, indicates that the B vitamins are responsible for regulating DNA, thereby correcting genes.
I would invite you not to give up hope. I believe that if we do our part, God will do His. Although it is my first attempt with genetic disorders like I mentioned, I would like to present a dietary recommendation that should reverse this genetic disorder, and give the body a fighting chance to repair itself like it is designed to do.
1. If the baby is already taking any other food apart from breast milk, we will change it. In addition to breast milk, if the baby has started eating, make pap from unripe plantain flour, cashew nuts and crayfish. If you are not breastfeeding the baby, begin NOW!

2. You the mother, avoid starch, anything sweet. Don't eat cassava products or yam. Use grains to make your swallow. Millet, brown rice, sorghum, small corn (pop corn). Grind and then cook. Or you can also use unripe plantain flour mixed with any of the grains. If you must eat rice, don't eat any other rice if not local rice (brown one). No spags, no indomie, no semo. You can eat all kinds of beans too. In fact eat beans frequently.

3. Eat more of liver and intestines for your meat. They are called organ meat. Or snails. That will be your meat. Also eat eggs. Boiled not fried.

4. This is crucial. For every meal, you must add raw sliced pumpkin leaves (ugwu).

5. Get groundnuts or cashew nuts and keep in the house. Snack on it now and then.

6. Do not eat anything in sachet or package!

7. Do not drink any other bottled drink or anything other than water. Drink at least 3 litre of water daily.

This will change the baby's diet at once through breast milk. There will be more vitamins B and others, that will aid the body.

Please contact me through my signature let's talk some more. This very case is not about money. I feel for the parents and the child.

Godspeed!
Thank you

1 Like 1 Share

Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by SPOILT9JAOLOSHO(m): 9:51am On May 12, 2019
whiteseed:
contact me.I will direct u to where u can get solution. I think d mother needs to treat herself too.
Can you drop your mail pls
Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by whiteseed(m): 11:51am On May 12, 2019
SPOILT9JAOLOSHO:

Can you drop your mail pls
Cchinedu01@gmail.com

1 Like

Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by ZenoHobbes: 11:58am On May 12, 2019
SPOILT9JAOLOSHO:
A big thank you to the mods and everyone for the kind feedback have liked all of them, I spoke with my sister and she said she isn't seeing any improvement when she checks on her and that it has started moving to other parts of her body.. She tried br**stfeeding her and the mouth was bleeding and couldn't allow her eat.
We are monitoring her and I will update the house.

Once again.. thanks all
Love you all!

This is a very scary disease. I feel very much for her and her parents. I think she should be taken back to a specialist hospital where she can be better managed professionally. https://www.dailymail.co.uk/health/article-6497789/The-boy-butterfly-skin.html
Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by MisterALEX(m): 2:05pm On May 12, 2019
There's nothing God cannot do ma. In as much you've faith and a lil patience. God bless you
CoCoLav:


You people have come again. The disease has no cure. So many innocent kids have died from this disease, if anointing oil could cure it, they would have lived and spared their parents the heartache.
Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by AngryParrot1: 8:39am On May 13, 2019
kowalsky:


Lols. In searching for a solution to a health problem, the first step is to differentiate between quack physicians and who God has sent to save your life.

Imagine this dude saying that vitamin B is responsible for repairing genes. That's the job of DNA polymerase but I digress.

Get it straight, if a generic disorder is inherited from a parent, there's no repairing whatsoever that can be done at the genomic level. Your only option is repopulating the the cell line with healthy cells (and an intact genitic makeup) as is the goal in a bone marrow transplant, or offering palliative treatment to quell the symptoms of the disorder. It's why people who have downs. Sickle cell. Etc get to live with the condition through their lives.


While diet changes might go a long way to ease off the stress of this particular disease please treat all this man has suggested with a grain of salt. his 'advice' comes of to me as more of word of the street than informed. I'll advise you to seek the counsel of a trained physician, preferably someone who's had a history of treating the disease lest you expose yourself to additional emotional stress.


The body can repair itself. I expect people from ur standpoint to dismiss this as foolishness.

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