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Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment - Health - Nairaland

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Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by SPOILT9JAOLOSHO(m): 3:41am On May 11
Good morning Nairalander's

Please I need the input of doctor's/nurses/anyone that knows or experienced this child ailment before to help save my niece cry.

Here is the details..

My elder sister who lives in the east gave birth to her 3rd child, a baby girl in 2015 but she was born with this unknown ailment. It usually starts from the hand, they took her to hospitals but doctor's seemed uncertain of what the ailment was, they also took her to some other places trying to find solution to it but to no avail. Within few days it spread to her nails and they subsequently fell off. One week later it spread all over her body that if you lie her on the bed she cries all time due to the pain and when u raise her up her skin glues to the wrapper used in lying her down. After days of trying to find solution with no success they were confused. Then one early morning around 4am the father carried her to ease the pain and make her to stop crying without knowing the baby was dead 10 minutes ago, it was when they discovered they wept and made arrangements and buried her in the morning.

After that, they had another baby and she was free from it.

Now on May 8, 2019 she gave birth to a baby girl (photo attached) but the baby was born with this same deadly ailment. They took her to FMC they said it is "epidermolysis bollusa". Please I need information from anyone who knows about this ailment and how to cure it, I don't want a repeat of what happened last time abeg.


Mods*
Please make una help me push this to FP to save a soul cry cry

Thanks

1 Share

Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by Benekruku(m): 3:44am On May 11
Visit a specialist hospital quickly.

1 Like

Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by SPOILT9JAOLOSHO(m): 3:45am On May 11
Benekruku:
Visit a specialist hospital quickly.
They have done that bro

1 Like

Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by hadjipapiey(m): 3:47am On May 11
Thought I read dead
Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by veeshock: 5:08am On May 11
Sorry bro, but your solution lies more likely in a specialist hospital not nairaland.

18 Likes

Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by madridguy(m): 5:27am On May 11
After that, they had another baby and she was free from it.

Now on May 8, 2019 she gave birth to a baby girl (photo attached) but the baby was born with this same deadly ailment.

hadjipapiey:
Thought I read dead

12 Likes 5 Shares

Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by madridguy(m): 5:29am On May 11
Epidermolysis bullosa is a group of genetic conditions that result in easy blistering of the skin and mucous membranes. Blisters occur with minor trauma or friction and are painful. Its severity can range from mild to fatal. Those with mild cases may not develop symptoms until they start to crawl or walk. Complications may include esophageal narrowing, squamo…

See more on en.wikipedia.org

Causes: Genetic
Symptoms: Painful skin blisters
Treatment: Wound care, pain control, controlling infections, nutritional support
Usual onset: At birth

24 Likes 1 Share

Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by healthpriority: 5:56am On May 11
SPOILT9JAOLOSHO:
Good morning Nairalander's

Please I need the input of doctor's/nurses/anyone that knows or experienced this child ailment before to help save my niece cry.

Here is the details..

My elder sister who lives in the east gave birth to her 3rd child, a baby girl in 2015 but she was born with this unknown ailment. It usually starts from the hand, they took her to hospitals but doctor's seemed uncertain of what the ailment was, they also took her to some other places trying to find solution to it but to no avail. Within few days it spread to her nails and they subsequently fell off. One week later it spread all over her body that if you lie her on the bed she cries all time due to the pain and when u raise her up her skin glues to the wrapper used in lying her down. After days of trying to find solution with no success they were confused. Then one early morning around 4am the father carried her to ease the pain and make her to stop crying without knowing the baby was dead 10 minutes ago, it was when they discovered they wept and made arrangements and buried her in the morning.

After that, they had another baby and she was free from it.

Now on May 8, 2019 she gave birth to a baby girl (photo attached) but the baby was born with this same deadly ailment. They took her to FMC they said it is "epidermolysis bollusa". Please I need information from anyone who knows about this ailment and how to cure it, I don't want a repeat of what happened last time abeg.


Mods*
Seun
Lalasticlala
Mynd44
Oam4j Please make una help me push this to FP to save a soul cry cry

Thanks

Hello,
This is a genetic diseases and has no cure yet
The only thing I can advise is for you to treat the baby with utmost care and get nutritional support for babies. If possible..get a private nurse that can assist.... God will do the rest.

40 Likes 2 Shares

Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by SPOILT9JAOLOSHO(m): 6:04am On May 11
madridguy:
Epidermolysis bullosa is a group of genetic conditions that result in easy blistering of the skin and mucous membranes. Blisters occur with minor trauma or friction and are painful. Its severity can range from mild to fatal. Those with mild cases may not develop symptoms until they start to crawl or walk. Complications may include esophageal narrowing, squamo…

See more on en.wikipedia.org

Causes: Genetic
Symptoms: Painful skin blisters
Treatment: Wound care, pain control, controlling infections, nutritional support
Usual onset: At birth
Thanks
Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by SPOILT9JAOLOSHO(m): 6:05am On May 11
healthpriority:

Hello,
This is a genetic diseases and has no cure yet
The only thing I can advise is for you to treat the baby with utmost care and get nutritional support for babies. If possible..get a private nurse that can assist.... God will do the rest.
Okay, thanks

1 Like

Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by AngryParrot1: 9:28am On May 11
SPOILT9JAOLOSHO:
Good morning Nairalander's

Please I need the input of doctor's/nurses/anyone that knows or experienced this child ailment before to help save my niece cry.

Here is the details..

My elder sister who lives in the east gave birth to her 3rd child, a baby girl in 2015 but she was born with this unknown ailment. It usually starts from the hand, they took her to hospitals but doctor's seemed uncertain of what the ailment was, they also took her to some other places trying to find solution to it but to no avail. Within few days it spread to her nails and they subsequently fell off. One week later it spread all over her body that if you lie her on the bed she cries all time due to the pain and when u raise her up her skin glues to the wrapper used in lying her down. After days of trying to find solution with no success they were confused. Then one early morning around 4am the father carried her to ease the pain and make her to stop crying without knowing the baby was dead 10 minutes ago, it was when they discovered they wept and made arrangements and buried her in the morning.

After that, they had another baby and she was free from it.

Now on May 8, 2019 she gave birth to a baby girl (photo attached) but the baby was born with this same deadly ailment. They took her to FMC they said it is "epidermolysis bollusa". Please I need information from anyone who knows about this ailment and how to cure it, I don't want a repeat of what happened last time abeg.


Mods*
Seun
Lalasticlala
Mynd44
Oam4j Please make una help me push this to FP to save a soul cry cry

Thanks

Hi. It is quite unfortunate that a little child should go through something like this. I have helped many people heal naturally from many different diseases, but I must confess that I have never treated a genetic disorder before. However, I know this profound truth, that nature has the solution to all problems, and that we are genetically designed to heal.
The fact that science has not found a cure, does not mean that there is no cure. As far as man will walk the earth, science will forever continue to make discoveries about the human body & nature.
Immediately I saw this, I was moved in my heart. I have 2 little children. I decided to do a little research, prayerfully I must add. My findings, in addition to what I already know about nature, indicates that the B vitamins are responsible for regulating DNA, thereby correcting genes.
I would invite you not to give up hope. I believe that if we do our part, God will do His. Although it is my first attempt with genetic disorders like I mentioned, I would like to present a dietary recommendation that should reverse this genetic disorder, and give the body a fighting chance to repair itself like it is designed to do.
1. If the baby is already taking any other food apart from breast milk, we will change it. In addition to breast milk, if the baby has started eating, make pap from unripe plantain flour, cashew nuts and crayfish. If you are not breastfeeding the baby, begin NOW!

2. You the mother, avoid starch, anything sweet. Don't eat cassava products or yam. Use grains to make your swallow. Millet, brown rice, sorghum, small corn (pop corn). Grind and then cook. Or you can also use unripe plantain flour mixed with any of the grains. If you must eat rice, don't eat any other rice if not local rice (brown one). No spags, no indomie, no semo. You can eat all kinds of beans too. In fact eat beans frequently.

3. Eat more of liver and intestines for your meat. They are called organ meat. Or snails. That will be your meat. Also eat eggs. Boiled not fried.

4. This is crucial. For every meal, you must add raw sliced pumpkin leaves (ugwu).

5. Get groundnuts or cashew nuts and keep in the house. Snack on it now and then.

6. Do not eat anything in sachet or package!

7. Do not drink any other bottled drink or anything other than water. Drink at least 3 litre of water daily.

This will change the baby's diet at once through breast milk. There will be more vitamins B and others, that will aid the body.

Please contact me through my signature let's talk some more. This very case is not about money. I feel for the parents and the child.

Godspeed!

190 Likes 19 Shares

Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by AngryParrot1: 9:32am On May 11
Follow this diet for 6 months.

2 Likes 1 Share

Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by nduokoh01: 9:51am On May 11
@Olosho, there is only one solution left which is God. I have two things I will give you and you will not see it again. Whatsapp me on 08117972750

1 Like

Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by Adalassy: 10:28am On May 11
SPOILT9JAOLOSHO:
Good morning Nairalander's

Please I need the input of doctor's/nurses/anyone that knows or experienced this child ailment before to help save my niece cry.

Here is the details..

My elder sister who lives in the east gave birth to her 3rd child, a baby girl in 2015 but she was born with this unknown ailment. It usually starts from the hand, they took her to hospitals but doctor's seemed uncertain of what the ailment was, they also took her to some other places trying to find solution to it but to no avail. Within few days it spread to her nails and they subsequently fell off. One week later it spread all over her body that if you lie her on the bed she cries all time due to the pain and when u raise her up her skin glues to the wrapper used in lying her down. After days of trying to find solution with no success they were confused. Then one early morning around 4am the father carried her to ease the pain and make her to stop crying without knowing the baby was dead 10 minutes ago, it was when they discovered they wept and made arrangements and buried her in the morning.

After that, they had another baby and she was free from it.

Now on May 8, 2019 she gave birth to a baby girl (photo attached) but the baby was born with this same deadly ailment. They took her to FMC they said it is "epidermolysis bollusa". Please I need information from anyone who knows about this ailment and how to cure it, I don't want a repeat of what happened last time abeg.


Mods*
Seun
Lalasticlala
Mynd44
Oam4j Please make una help me push this to FP to save a soul cry cry

Thanks

Your case can be handled and the baby would grow well until the age he or she begins to develop resistance physically. This eventually happens as they grow. The problem is to get them to stay alive till that age.

The babys problem now is that normally, the keratin proteins in her body are supposed join together and form highly resilient fibers in the lower portion of skin, helping make it durable. If either keratin is defective, they don’t mesh and the lower skin tissue becomes unusually fragile and gets damaged from the mildest mechanical stress leading to blistering pain, a higher risk of infection, and in the most severe cases, death.

You can manage this situation until he or she grows and the secret lies in Broccoli and Cauliflower. This is purely herbal and natural.

Email me if you wish to discuss more.

My email is adamslaseio@gmail.com

3 Likes

Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by NAJALYN: 10:39am On May 11
STC30 works at Cellular level and cures many deadly diseases, even head tumor, spinal cord injury, etc. So please try it on the child. The Product is safe for Children, Adults, and even Pregnant Women.

STC30 is a New Technology in the world of Stem Cell Therapy. The Product works from the body’s cellular level to reactivate dead cells, tissues and organs, repair dead cells, and rejuvenate the body’s cells for optimum health.
It is estimated that in the next 10 years, 80% of developed Countries will embrace Stem Cell Wellness Technologies.
STC30 Prevents as well as Treats over 134 diseases, including Stoke, heart attack, diabetes, hypertension, cancer, fibroid, ovarian cyst, leukemia, infertility, impotency, stomach ulcer, sickle cell, it’s anti-aging, Alzheimer’s disease, Parkinson’s disease, Crohn’s disease, autism, liver cirrhosis, cardiomyopathy, cerebral palsy, lung diseases, vitiligo, paraplegia, renal failure, buerger’s disease, rheumatoid arthritis, rheumatism, brain trauma, spinal cord injury/paralysis, congestive heart failure, orthopedic injuries, deafness, blindness, glaucoma, bone marrow transplant, kidney stones and failure, prostate enlargement, prostate cancer, wound healing, liver diseases, pancreative dysfunction, cardiovascular diseases, skin repair, mudcukoskeletal problems, stress, muscle pull, dental problem, gastrointestinal disease, skin infection, hemorrhoids, headache, improve blood flow, cardiovascular disease, traumatic brain injury, learning defects, missing teeth, amyotrophic lateral-sclerosis, myocardial infarction, muscular dystrophy, multiple sites cancers, etc.
Please Watch Videos of Testimonies on the potency of STC30. See more on STC30 here
https://lynsnaturalhealth.info/2019/04/18/superlife-total-care-stc30-stem-cell-treatment-a-must-use/ Mrs. E. Oforofuo (08097890448)

4 Likes

Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by JubrinElSudan: 12:22pm On May 11
Since it has no cure and it's genetic they should stop giving birth for now till cure is certain cry

15 Likes 1 Share

Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by lookingfly: 12:23pm On May 11
Go to SCOAN!!

3 Likes 1 Share

Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by HarkymTheOracle(m): 12:24pm On May 11
So sad...
Seems genetic and maybe spiritual.. Who knows..
I pray they find solution to the problem ASAP.

May God help us all.

2 Likes

Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by tttttre4e: 12:24pm On May 11
Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by Lovelyn451(f): 12:27pm On May 11
Come to Aminu Kano teaching Hospital

3 Likes

Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by HarkymTheOracle(m): 12:27pm On May 11
hadjipapiey:
Thought I read dead
That was the child birthed in 2015...
This is another one.

1 Like 1 Share

Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by chimchim1(m): 12:30pm On May 11
Left untreated, a skin infection can often quickly spread to other parts of the body, particularly with the more severe forms of EB. Treatment for skin infections include: antiseptic creams or ointments. antibiotic creams or lotions.
Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by Nickshrapnel(m): 12:30pm On May 11
since it's a genetic disease, please tell your uncle not to give birth to any child again

2 Likes

Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by sassysure: 12:32pm On May 11
This brought tears to my eyes.

Haven't heard or seen this b4.

Since its genetic, they should stop child bearing pls..
Who want to see his child in agony?

I pray somebody who knows anything about this will help.

6 Likes

Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by Winners72(m): 12:32pm On May 11
AngryParrot1:


Hi. It is quite unfortunate that a little child should go through something like this. I have helped many people heal naturally from many different diseases, but I must confess that I have never treated a genetic disorder before. However, I know this profound truth, that nature has the solution to all problems, and that we are genetically designed to heal.
The fact that science has not found a cure, does not mean that there is no cure. As far as man will walk the earth, science will forever continue to make discoveries about the human body & nature.
Immediately I saw this, I was moved in my heart. I have 2 little children. I decided to do a little research, prayerfully I must add. My findings, in addition to what I already know about nature, indicates that the B vitamins are responsible for regulating DNA, thereby correcting genes.
I would invite you not to give up hope. I believe that if we do our part, God will do His. Although it is my first attempt with genetic disorders like I mentioned, I would like to present a dietary recommendation that should reverse this genetic disorder, and give the body a fighting chance to repair itself like it is designed to do.
1. If the baby is already taking any other food apart from breast milk, we will change it. In addition to breast milk, if the baby has started eating, make pap from unripe plantain flour, cashew nuts and crayfish. If you are not breastfeeding the baby, begin NOW!

2. You the mother, avoid starch, anything sweet. Don't eat cassava products or yam. Use grains to make your swallow. Millet, brown rice, sorghum, small corn (pop corn). Grind and then cook. Or you can also use unripe plantain flour mixed with any of the grains. If you must eat rice, don't eat any other rice if not local rice (brown one). No spags, no indomie, no semo. You can eat all kinds of beans too. In fact eat beans frequently.

3. Eat more of liver and intestines for your meat. They are called organ meat. Or snails. That will be your meat. Also eat eggs. Boiled not fried.

4. This is crucial. For every meal, you must add raw sliced pumpkin leaves (ugwu).

5. Get groundnuts or cashew nuts and keep in the house. Snack on it now and then.

6. Do not eat anything in sachet or package!

7. Do not drink any other bottled drink or anything other than water. Drink at least 3 litre of water daily.

This will change the baby's diet at once through breast milk. There will be more vitamins B and others, that will aid the body.

Please contact me through my signature let's talk some more. This very case is not about money. I feel for the parents and the child.

Godspeed!

Please my nephew who is 16years of age has been suffering from severe epilepsy for about 7years now. We have consulted a lot of specialists but no solution. Can u be of help sir?

2 Likes

Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by Houseofglam7(f): 12:33pm On May 11
This condition can be managed,but unfortunately it has no cure and most children do not make it past the first 5 years of their lives...it is extremely painful to the child,and minor things such as walking and crawling becomes a great challenge....a minor pat can also cause major discomfort to the child.
These however, would come in handy:
Wash your hands.
Wash your hands before touching your child's blisters or changing dressings.
Control pain. ...
Cleanse skin daily. ...
Apply treated dressings. ...
Wrap blistered hands and feet daily. ...
Watch for signs of infection ...
Keep cool.

5 Likes 1 Share

Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by chimchim1(m): 12:34pm On May 11
Medical Care

The treatment of epidermolysis bullosa (EB) is primarily preventive and supportive. Once blistering has occurred, the blister should be punctured with a sterile needle or a blade. This may prevent the accumulation of fluid and pressure and may thus prevent the blister from extending. Complete and gentle drainage of the fluid, accomplished by leaving the roof of the blister intact and by covering the affected area with white petrolatum–impregnated gauze, helps to promote an environment most optimal for healing. If the blister repeatedly refills with fluid, it should be drained several times.

Open wounds should be covered with nonadherent dressings such as petrolatum-impregnated gauze, hydrogels, fenestrated silicone dressings or absorbent foam silicone dressings. Tape and any significant pressure to the skin must be avoided. Dressings can be held in place with rolled gauze (such as Kerlix), with tape applied only to the dressing itself or by stockinette (such as Surgifix or Spandage).

Some authors recommend daily application of polymyxin, bacitracin, or silver sulfadiazine topical ointments to treat open or partially healed wounds, which should be covered with petrolatum-impregnated gauze or nonadherent synthetic dressing. Gentamicin soaks (480 mg/L saline), acetic acid soaks (white vinegar), and the addition of small amounts of bleach to the bath water (eg, 1/8 cup per full tub) have been used to decrease the overgrowth of pseudomonas and staphylococcal organisms.

Corrective gene therapy is the ideal therapy for epidermolysis bullosa, but much more research is required before it can be developed and used in clinical practice. Cell-based therapies using fibroblasts and bone marrow cells have attracted considerable attention

11 Likes 2 Shares

Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by Nodogragra4me(m): 12:34pm On May 11
She is healed in the name of Jesus Christ


SPOILT9JAOLOSHO:
Good morning Nairalander's

Please I need the input of doctor's/nurses/anyone that knows or experienced this child ailment before to help save my niece cry.

Here is the details..

My elder sister who lives in the east gave birth to her 3rd child, a baby girl in 2015 but she was born with this unknown ailment. It usually starts from the hand, they took her to hospitals but doctor's seemed uncertain of what the ailment was, they also took her to some other places trying to find solution to it but to no avail. Within few days it spread to her nails and they subsequently fell off. One week later it spread all over her body that if you lie her on the bed she cries all time due to the pain and when u raise her up her skin glues to the wrapper used in lying her down. After days of trying to find solution with no success they were confused. Then one early morning around 4am the father carried her to ease the pain and make her to stop crying without knowing the baby was dead 10 minutes ago, it was when they discovered they wept and made arrangements and buried her in the morning.

After that, they had another baby and she was free from it.

Now on May 8, 2019 she gave birth to a baby girl (photo attached) but the baby was born with this same deadly ailment. They took her to FMC they said it is "epidermolysis bollusa". Please I need information from anyone who knows about this ailment and how to cure it, I don't want a repeat of what happened last time abeg.


Mods*
Please make una help me push this to FP to save a soul cry cry

Thanks

9 Likes

Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by lonelydora: 12:35pm On May 11
SPOILT9JAOLOSHO:
Good morning Nairalander's

Please I need the input of doctor's/nurses/anyone that knows or experienced this child ailment before to help save my niece cry.

Here is the details..

My elder sister who lives in the east gave birth to her 3rd child, a baby girl in 2015 but she was born with this unknown ailment. It usually starts from the hand, they took her to hospitals but doctor's seemed uncertain of what the ailment was, they also took her to some other places trying to find solution to it but to no avail. Within few days it spread to her nails and they subsequently fell off. One week later it spread all over her body that if you lie her on the bed she cries all time due to the pain and when u raise her up her skin glues to the wrapper used in lying her down. After days of trying to find solution with no success they were confused. Then one early morning around 4am the father carried her to ease the pain and make her to stop crying without knowing the baby was dead 10 minutes ago, it was when they discovered they wept and made arrangements and buried her in the morning.

After that, they had another baby and she was free from it.

Now on May 8, 2019 she gave birth to a baby girl (photo attached) but the baby was born with this same deadly ailment. They took her to FMC they said it is "epidermolysis bollusa". Please I need information from anyone who knows about this ailment and how to cure it, I don't want a repeat of what happened last time abeg.


Mods*
Please make una help me push this to FP to save a soul cry cry

Thanks

I don't know about this but i know this kind of ailment is best treated locally

2 Likes

Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by kemicalreaction(m): 12:37pm On May 11
tttttre4e:


videos and pictures below

[b][/b]

Bastard, you still spammed this thread with this sex BS. Go punish you angry

4 Likes

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