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Nairaland Forum / Nairaland / General / Health / Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment (25750 Views)
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Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by kowalsky: 2:36pm On May 11, 2019 |
AngryParrot1: Lols. In searching for a solution to a health problem, the first step is to differentiate between quack physicians and who God has sent to save your life. Imagine this dude saying that vitamin B is responsible for repairing genes. That's the job of DNA polymerase but I digress. Get it straight, if a generic disorder is inherited from a parent, there's no repairing whatsoever that can be done at the genomic level. Your only option is repopulating the the cell line with healthy cells (and an intact genitic makeup) as is the goal in a bone marrow transplant, or offering palliative treatment to quell the symptoms of the disorder. It's why people who have downs. Sickle cell. Etc get to live with the condition through their lives. While diet changes might go a long way to ease off the stress of this particular disease please treat all this man has suggested with a grain of salt. his 'advice' comes of to me as more of word of the street than informed. I'll advise you to seek the counsel of a trained physician, preferably someone who's had a history of treating the disease lest you expose yourself to additional emotional stress. |
Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by udomoh(m): 3:09pm On May 11, 2019 |
Please take the baby to the hospital to see a dermatologist. Only way out. 1 Like |
Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by mechanics(m): 3:10pm On May 11, 2019 |
The doctors who discovered the issue should know how to cure the disease. 1 Like |
Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by indoorlove(m): 3:26pm On May 11, 2019 |
Sometimes the solution we seek is rightly behind us, the leaves, the roots and the herb we ignored were created to help us solve various ailments bedeviling our health. I have had to recommend a lady to somebody some months ago...She has been battling with childlessness for 6 years, traveled across Nigeria to different Churches and hospitals, seeking help to her predicament, while her solution is simply a mixture of some leaves and roots seeing everyday, but ignored due to lack of knowledge or simply because of 'over spirituality' that forbid everything natural and place all solutions on spirituality and orthodox medicine. People are doing wonders with leaves and roots, Don't die in silence. I will have your baby picture sent to somebody and get back to you on his recommended solution. 1 Like |
Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by Nobody: 3:29pm On May 11, 2019 |
plenty wahala dey this life, waiting for you to make a mistake or meet the wrong person |
Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by chloride6: 3:36pm On May 11, 2019 |
Let me give you advice.. You may not like it Your post is a little late.. May God be with the child In the event she does not survive you need to forestall this and do genetic testing before birth.. If the genetic test shows this , you know what to do I wish you the best of luck.. 1 Like |
Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by oxypress: 3:54pm On May 11, 2019 |
Winners72:In all the drugs for epilepsy there is none that heals. They only suppress seizures until the damage escalates. The drugs will now be changed or dosage will be increased. No healing is achieved so the patient is on medication for life. That's the nature of epilepsy drugs as at today. For a natural and effective healing of brain tissues hyperbaric oxygen (hbot) can be of help. HBOT allows high levels of oxygen in the brain to stimulate the healing process. With hbot new blood vessels will be created in damaged arears and the brain can recover it's function. The effect of hbot can be demonstrated from the very first few treatments. Please do your research yourself and if you are interested get back to us. We provide hbot for patients with difficult to treat conditions and epilepsy is one of them. |
Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by Alcacer47: 3:55pm On May 11, 2019 |
lonelydora:yea yea, I can relate...in my village children suffer from this kinda illness and are usually cured, for instance a cousin of mine when he was a kid, dude is around 30+ now...it was treated locally and he is a grown up agile man now...think you should talk to your elders also bout this...poor fine baby, you will be cured by God's grace 1 Like |
Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by whiteseed(m): 4:27pm On May 11, 2019 |
SPOILT9JAOLOSHO: 1 Like |
Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by ddaammyy(f): 4:37pm On May 11, 2019 |
SPOILT9JAOLOSHO:let them take her to Obi Jackson children's hospital okija. They'll treat her in days and at a subsidized amount. Those fmc people nearly killed my godson who suffered almost the same ailment. Let them go as fast as possible 1 Like |
Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by Wiseandtrue(f): 5:33pm On May 11, 2019 |
SPOILT9JAOLOSHO:There is a children hospital in the East now I learnt they are very good 1 Like |
Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by turawafett(f): 6:39pm On May 11, 2019 |
Of your sister can come to Lagos , Tak the baby to Massey children hospital in Massey street Lagos island. It's a children' specialist hospital owned by Lagos State government. 1 Like |
Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by Mykehl: 9:28pm On May 11, 2019 |
There has been cases of stem cells being used to treat this rare and lethal disease. If she is above one year old, she can use STC30. It is a stem cell drug. The problem here is that the baby is below 1 year. It is not advisable to treat babies below the age of one with the drug. Except she can split the product into 1/4 and use for the baby but then the baby is few days old and can't drink water which must be taken in large quantity with the drug. Stem cell treatment is the solution. 1 Like |
Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by roscoleefad: 10:04pm On May 11, 2019 |
Get d seed of blackseed blend it and mix with pap give her as a meal morning afternoon and night get good results withi two to three weeks 1 Like |
Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by Adalassy: 10:06pm On May 11, 2019 |
kelechiodo: https://www.nairaland.com/5091737/suffering-these-last-stop-come |
Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by Adalassy: 10:12pm On May 11, 2019 |
roscoleefad: Black seed is useless against this. I speak with authority 1 Like |
Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by MisterALEX(m): 10:45pm On May 11, 2019 |
Sorry MA. Lemme just chip in. It could be spiritual as someone as said earlier. And otherwise genetic, notwithstanding I suggest you give the baby "holy communion" and 3 shots of anointing oil every day. I'm speaking from the spiritual angle. Watch and see how this deadly disease die forever. It's well with you and your family. You've DOMINION |
Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by Austindumas1(m): 10:57pm On May 11, 2019 |
this reminds me of the butterfly fly boy, he died last year of same disease,they don't always last long, life expectancy is not more than 10, buh the butterfly boy lived up to 18, making him the oldest person ever with the disease 1 Like |
Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by CoCoLav(f): 11:19pm On May 11, 2019 |
MisterALEX: You people have come again. The disease has no cure. So many innocent kids have died from this disease, if anointing oil could cure it, they would have lived and spared their parents the heartache. |
Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by oxypress: 11:21pm On May 11, 2019 |
kelechiodo: If your patient is suffering from Alzheimer's disease hyperbaric oxygen therapy (hbot) will work very well. HBOT is the use of 100% pure oxygen under increased pressure in a hyperbaric chamber and the treatment is ordered and supervised by a qualified physician. (no be try your luck plants and vegetables). There are many attributes to hbot that will make the brain cells to respond very well and the information is readily available on the net. Don't waste your money for chinko or native herbs since you will be endangering health. Alzheimer's disease can be stopped and reversed contrary to the 'old school' ideas. Memory loss can also be restored including several other benefits. We are HBOT providers and can join hands with fellow doctors and health care practitioners to give patients back their lives. https://www.sciencedaily.com/releases/2019/01/190124124742.htm |
Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by toygod2: 6:01am On May 12, 2019 |
But nawa ooooooooooooooooo for this small life, things dey happen. May God heal the sick.Amen |
Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by SPOILT9JAOLOSHO(m): 8:08am On May 12, 2019 |
A big thank you to the mods and everyone for the kind feedback have liked all of them, I spoke with my sister and she said she isn't seeing any improvement when she checks on her and that it has started moving to other parts of her body.. She tried br**stfeeding her and the mouth was bleeding and couldn't allow her eat. We are monitoring her and I will update the house. Once again.. thanks all Love you all! |
Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by oxypress: 8:32am On May 12, 2019 |
By embrasing hyperbaric oxygen therapy you might be able to prevent many or all the disastrous consequenses that may arise in the feature. I pray they don't arise. For now about 10 to 20 sessions of hbot within a few days may be required. No specific treatment for ED is available right now so it is one of the difficult to treat by conventional methods. Sorry, this advice came a bit late because you are facing an emergency. People don't usually take my advice seriously but they will never come back here to report the foolishness of their failure. For now hbot is the best option. 1 Like 1 Share |
Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by Adalassy: 9:05am On May 12, 2019 |
SPOILT9JAOLOSHO: This baby is dying and you all are still "monitoring" as you put it. I have told you the quickest and best way to quickly get her symptoms under control. There is a compound in broccoli and cauliflower which quickly corrects the problem in her and helps her heal and stops the bleeding and peeling off of skin tissue. This will help manage the baby as he/she grows. I am an alternative medicine practitioner in Ghana and have told you how to help but if you wish to continue "monitoring" then you will only have yourselves to blame eventually |
Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by SPOILT9JAOLOSHO(m): 9:46am On May 12, 2019 |
Adalassy:I have just told them Thank you |
Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by SPOILT9JAOLOSHO(m): 9:47am On May 12, 2019 |
AngryParrot1:Thank you 1 Like 1 Share |
Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by SPOILT9JAOLOSHO(m): 9:51am On May 12, 2019 |
whiteseed:Can you drop your mail pls |
Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by whiteseed(m): 11:51am On May 12, 2019 |
SPOILT9JAOLOSHO:Cchinedu01@gmail.com 1 Like |
Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by ZenoHobbes: 11:58am On May 12, 2019 |
SPOILT9JAOLOSHO: This is a very scary disease. I feel very much for her and her parents. I think she should be taken back to a specialist hospital where she can be better managed professionally. https://www.dailymail.co.uk/health/article-6497789/The-boy-butterfly-skin.html |
Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by MisterALEX(m): 2:05pm On May 12, 2019 |
There's nothing God cannot do ma. In as much you've faith and a lil patience. God bless you CoCoLav: |
Re: Epidermolysis Bullosa: Help Save My Sister's Baby With Solution To This Ailment by AngryParrot1: 8:39am On May 13, 2019 |
kowalsky: The body can repair itself. I expect people from ur standpoint to dismiss this as foolishness. |
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