50

Acidosis:



Yeah, the father is old and as a result, he deserves a pity party for the pains of not one or two, but THREE helpless SS adolescents who now have to depend on the first born of the family for survival. Ediota.

It's easy to judge others sha. That father you're talking about is one of the best dad in the world.

ThatrealestApex:


Guess you've received it?

Did that long time ago!!!!

Seen. Thanks, I really appreciate your kind gesture.
My phone has been off since yesterday that's why I couldn't acknowledge it earlier.

Abeg help me edit your post that contain my details thanks.

ThatrealestApex:


DoNe alot of Expenses today already, but you can send account let me fund you 5h,

If it isn't too small for ya

Thanks

ThatrealestApex:
B956cwppwpzzsz-4094682


My Low stakes always booms, why? Imagine 1K on this game

Na game wey you no put mind dey always boom. Nawa

Congrats bro. Abeg I fit see small change for your hand?

leo22:


Also, check out sickle cell foundations and NGOs in your area, a lot of them gives support, free drugs and counselling.

Check out this foundation in surulere for example:
https://instagram.com/samiupdate?igshid=MmVlMjlkMTBhMg==

I'll do that, thanks.
My phone cannot open that link but I'll do more research.

Everybody is suffering as we're in this together. I didn't vote for Tinubu but sapa no dey ask who you vote for before e grab your jugular.

leo22:
Dear,
Be strong and be hopeful, because this challenge can be managed.

1. They should take lots of water daily, insist on this please.

2. Watch their diet, fruits and lots of vegetables are compulsory. The blood must boosted to avoid any drop in their PCV.

3. Avoid any hard labor or anything that would trigger pains.

4. Keep the environment clean and void of mosquitoes. They must sleep under the net.

5. They must take routine drugs like victamin C, B complex, folic acid, Amino acids, Ciclavite, Hydroxyurea (this is a wonder drug that reduces crises) and regular anti malaria treatment.

6. Do monthly or bi-monthly hospital check up for Full blood count, malaria etc

7. Register for an HMO (if you are in Lagos, get Ilera Eko health insurance scheme to lower the cost of health bills)

Note: visit a specialist doctor for medical advice and prescriptions.

If you follow the above routines they would be healthy and live normal lives.
Sickle cell is not a taboo! Stop stigmatizing warriors! They are normal people and most of the time, they are more intelligent that these mofos typing rubbish here.


Ignore the bitter people here who are looking for whom to dump their vile on, you asked for help and they have none to offer, instead of them to Waka pass, they rather pour their frustrations on others cos they are like their father, the devil whom is roaming about like a roaring lion, seeking whom to devour.

I sincerely appreciate your input. Thanks.
Long live our champions

I sincerely appreciate all your contributions. Thank y'all.
Sorry for the late reply, I've been having issues with my phone. Thanks.

femi4:
But why your parents continue to bring kids to suffer in this world is what I don't understand

No 3, 4, 5- SS

Well, they don't know they're SS from the beginning.

Tolupage:


Yemike, I understand your pain and a big thank you for the continual support. Here are my thoughts as someone who's SS.

1. Help them cultivate the habit of takin their routin drugs, folic acid, bco and paludrin. Truthfully we don't like taking drugs and once one is healthy, we most times forget about them.

2. Avoid stress by all means. Physical, mental, emotional and psychological. Heartbreak from a babe can land one in hospital.

3. Never strain your body. exercise, sport and labor can be detrimental, they all must learn to do these with caution and within limit. I'm not asking they become pampered and spoilt tho.

4. Get them supplements: there are lots of supplement out there can can really boost immune system and help each of them live really healthy. Find one of those. Some supplement don't work for people tho, so find the right one.
I know a lot of people recommend Hydroxyurea, but I'd say it should be your last resort unless recommended by your doctor.

5. Love them with all you've got and show it, they'll need it.

6. Avoid mosquito bites by all means. Mosquito nets should be encouraged.

7. Teach them independence, they'll need it. People no too send you. Once one begin to fall sick too frequently they'll eventually get tired... Don't blame them too.

8. Keep first aid drugs around at all times, PCM, Diclofenac, Aboniki.

9. Don't let their battles drain you, you also deserve a good life

10. Help them understand they can live well, and be the best version of themselves. They must cultivate strong desire to live and enjoy life.

11. Hydration is non negotiable. Minimum 7 sachet of water daily. Regular cup shouldn't be less than 10.

12. Avoid extreme weather. Cold? Wear your cardigan. Hot? Loosen up.

Lastly Make dem sabi God oooooooooooo, cause na him dey run things.

Thank you so much for this. God will continue to bless you.

sakbio:
U can manage them with some steps such as registered them in a good teaching hospitan or any govt hospital that is closer to you. Also, they need to manage any sort of stress either from exam preparation or daily hassles, they should manage Thier time without rushing. They should avoid malaria that is sleeping under mosquito nets. Also u they should be taking enough water and encourage to eat balance diet and enough fruits. Lastly they should reduce all the strenous activities such as playing football but encourage them to do lesss strenous exercise. Let them be going to clinic regularly to check their FBC and they should not be exposed to extreme weather condition either rain or cold . God will be with them.

Amen. Thanks for input. I really appreciate it.

Effybaba:
My brother I know your pain and I'm glad to let you know that I have a syrup I have been giving my daughter and she has not experienced crisis since we have been giving her the syrup. Contact me

Thank you very much sir. I'll be very glad to know about the syrup please mail me on ohgeebee95@gmail.com as the email associated with this account is no more. Thanks.

shoprite:



I just might have some info that will help . . .Give me till tomorrow I will be back here to share once I confirm from my source. Hang in there!

Thank you Sir. I'll be expecting your Info's.

Greattha:
First thing is to register them with a hospital with Haematology Department or access to a Haematology Consultant.

Now, there aren't many of these around. Infact one of the best places for this is UCH Ibadan.

Secondly, avoid Stress and Mosquitoes

Thirdly, have a balanced diet and regular water intake. Water is life...it won't be palatable but they must carry water around and drink regularly.

You'll also need funds for meds like folic acid, b complex etc

For the pain, there's a potent combo of pain meds that I can suggest but you'd have to run it by your Haematology Consultant first for approval to determine if its safe for your siblings.
. It works...knocks off pain in 1-2 hours
Chat me privately if interested as I can't post it here

We used Oni and Son before but their current clinic is Ade Oyo ring road.
Can you please send your recommendations to Ohgeebee95@gmail.com as I cannot contact you with the email on this account.

Blake755:
God may we not find ourselves in a situation where others consider us a burden 💔💔💔
Unfortunately it is not for anemias 😭😭😭

Amen. I saw your email notification but the mail I used in registering this account is not functioning please contact me on Ohgeebee95@gmail.com Thanks.

descarado:

Depending on their church. As far back as early 80s, the Catholic church will not wed you. You must bring lab result. I think they still do it.

Wow! Kudos to them but we're not Catholics tho'.

Acidosis:

Your parents are very wicked.

How many people are aware of genotype back then?

xavuv:
Pain killers, folic acid every now and then, cancel all mosquitoes in that area, balanced diet, little stress and enough rest.

Plus ready on demand emergency fund just incase.

These are from my experience when i lived with someone having SS.

You're on point. Mosquitoes are combated with mosquito net. But @ the bolded part isn't easy for this Tinubu economy but God is good sha.

I need people with experience on how to manage SS Crisis.
Both my parent are AS and we the kids are 5. I'm the first child and I'm lucky to be AA, the 2nd born AS, 3rd, 4th, 5th - SS.
I have 3 SS siblings and right now most of their responsibility and wellbeing is on me as the first born cuz my P-man is old already.
Just last week I have to rush down to my brother's school to bring him home cuz he called me in the middle of the night weeping cuz the pain is just too much and his roommate isn't around.
My question now is how can it be managed? cuz it's really affecting everybody cuz It's affecting their studies, I'm exhausted right now cuz anytime it happens it's ends with me borrowing funds to send to them and lastly it's sucks happiness out of the atmosphere as hearing a teenager weeping and knowing you can't do anything about it is saddening.

I've seen some people asking if they as AS can also marry AS please and please don't try it as you'll just be bringing innocent kids here just to suffer. The trauma of you seeing your kids in pain sef no be here.

How can SS Crisis be avoided/managed?

I'd have loved my write up to be well detailed but the little I wrote up there took up to an hour cuz my phone is bad.

You experience and advice will be well appreciated. Thanks.

If you've got some burden on your shoulders just come here to read comments. It's really an antidote.

Mr TK4all, the fastest way for people to forget about past mistakes and grievances is when the offender realise that he/she made a mistake hurting some people in the process, own up to his/her mistake, be remorseful, ask for forgiveness and never justify your actions with excuses.

Sir Rainmoredays abeg just forgive his naivety, take it as the last kick of a dying horse. What you're currently doing is of greater harm to him and he did not know. How can you have your name and face on the biggest forum in the country and not be bothered?

Mr TK4all, almost everybody is frustrated in this country so Yes, people will banter, call you names for some time but that's the cross you'll have to carry for now. Trust me, a picture with the proof that you've settled your debt will settle everything but till then eat the humble pie.

PJtech:


Scam... you better run

Wetin be Chinese vendor again? Just run.
You sef, let's assume he's real why will you be troubling someone over there in far away China over $25?

paxonel:
no!
I'm not fighting the church. If you want to defend falsehood, then you must be prepared to explain yourself.

In 2019 when covid-19 was ravaging the public such that, everyone including all the babalawos and ifa priests went into lockdown, where was CAC prayers and holy waters?

You people have learnt nothing?

The people simply allow the memories to die down. Now, they have started manifesting again, and you people have forgotten so soon?

Now, go and Google it and get informed.

SYNCRETISM OF TRADITION AND CHRISTIANITY

it is the most toxic element that can ever manipulate the brain and can never be compatible with the bible.
Infact, another researcher put it this way.
The mainline conservatives in Christianity always conceive syncretism as a practice which contaminates or dilutes Christian religion with elements that are incompatible with the gospel.

Smiles. You're just ignorant.

paxonel:
These CAC people self, they are not different from cele and mfm who like ritualistic prayers like bring holy water, bring olive oil, candle, this one, that one.

How are they different from babalawo?

comparing C.A.C. with CCC shows you don't know anything about the church you might just be among the folks trying all they could to fight Christianity.

ThatrealestApex:
Arsenal 2 more corners to BoomShakaZulu abeg

Arsenal is applying pressure. All things being equal, two corners suppose come easily.

Black44:
sounds good
You can sell it if you wish to

Maybe I'll do just that. I don't know people buy YG account.

Black44:
ok thanks
Na YG

Alright. I get two abandoned accounts with 19k and 21k points.

Black44:
what rate is visa?

Don't know but it's always higher than Amazon and apple.
Why not push am reach 50?

Una still dey see money bet for this Tinubu economy? Nah rich men full this group walahi.

Black44:
Which of these giftcards will give me the best exchange rate with vendors ?

Omo no be YG be this? I think Visa is better. You'll see buyer quickly and it's higher than Amazon.

lexylexy:


Always bet with what you can afford to lose but una no dey hear word.

There's nothing like "what you can afford to lose". Even if you have 1billion for account and you lose 4 million on something unproductive e go pain you.