Very touching story. I also subscribe that parents should not risk having kids with that disorder but that should not stop them from getting married. Why should you not marry your love cos he carries a gene. Kids can be adopted and y'all will be happy.
This is a very moving tale though.

I'm so sorry about your condition, really wish I could do something about it. I hate it when an innocent girl will have to suffer because of the parents mistake. Now, they'll live in regret for the rest of their lives. I hope the almighty grant you the strength you need to move on, still be want you want to be. he'll be there in your time of weakness and your time of vulnerability. I hope you've forgiven your parents in as much as I hate to say it.

It is well

God bless you(OP)

I'm really short of words but all I can tell you 'It is well'

Mynd_44: Very touching story. I also subscribe that parents should not risk having kids with that disorder but that should not stop them from getting married. Why should you not marry your love cos he carries a gene. Kids can be adopted and y'all will be happy.
This is a very moving tale though.

Adoption is an option, but in an african setting, how many married couples will opt for adoption?

Very touching story. People really need to get educated about this.

My close friend is SS. She is stunningly beautiful, and she has this disorder.
An AS guy was desperate to marry her, carried away by her looks. He even lied he heard from God.

Only goes to show that people don't know the implications of having a child with this disease.

Back then, she used to confide in me at the guilt she felt, at putting her widowed mum to so much trouble.

She's doing ok now. She watches her diet and takes her drugs. She has a nice job and is in love with a cute, caring guy.

God bless you, Tlinks!

Tlinkz:


Adoption is an option, but in an african setting, how many married couples will opt for adoption?

You would be suprised at how many people consider it

joeydozzy: I'm so sorry about your condition, really wish I could do something about it. I hate it when an innocent girl will have to suffer because of the parents mistake. Now, they'll live in regret for the rest of their lives. I hope the almighty grant you the strength you need to move on, still be want you want to be. he'll be there in your time of weakness and your time of vulnerability. I hope you've forgiven your parents in as much as I hate to say it.

It is well

I know to you it might feel like they regret having her, but I don't believe they do as long as she's half as sweet as she appeares in writing.

Omg! Were is killz oo? Poster, all I can say is thank u!

joey4jo:
I know to you it might feel like they regret having her, but I don't believe they do as long as she's half as sweet as she appeares in writing.

yeah, but that doesn't mean they want her to be suffering. They watch her with these difficulties and knowing it's 100% their fault

Very sad to read. Thanks for sharing your story.

Mynd_44: Very touching story. I also subscribe that parents should not risk having kids with that disorder but that should not stop them from getting married. Why should you not marry your love cos he carries a gene. Kids can be adopted and y'all will be happy.
This is a very moving tale though.

I got cussed out in the health section because i was encouraging adoption and i was told i need not to push adoption and blah blah. According to them...because i dont infertility issues...i shouldnt be insulting them with adoption bullshit. REALLY?! I EVEN went on to say people who can have children shouldnt have them because they arent takn care of their children proper.

This world is overpopulated and famine will destroy this world....there are millions of African kids without parents to love them and it is sad to see white celebrities reaching out to these African kids when their own are walking pass them as they are begging for rice.

Damn Mrs. Chima for supporting and encouraging African people to adopt their own. SMH.

Mrs.Chima:


I got cussed out in the health section because i was encouraging adoption and i was told i need not to push adoption and blah blah. According to them...because i dont infertility issues...i shouldnt be insulting them with adoption bullshit. REALLY?! I EVEN went on to say people who can have children shouldnt have them because they arent takn care of their children proper.

This world is overpopulated and famine will destroy this world....there are millions of African kids without parents to love them and it is sad to see white celebrities reaching out to these African kids when their own are walking pass them as they are begging for rice.

Damn Mrs. Chima for supporting and encouraging African people to adopt their own. SMH.

You have to understand that they are so obsessed with blood and their silly notion that if one ain't their blood, he ain't family.
We are not their yet but I hope one day, our mentality on issues will change and we will start reasoning right

Mynd_44:
You have to understand that they are so obsessed with blood and their silly notion that if one ain't their blood, he ain't family.
We are not their yet but I hope one day, our mentality on issues will change and we will start reasoning right

Thats sad but hopeful.

Mrs.Chima:


Thats sad but hopeful.

Its sad but I hope it gets better and I won't keep quiet until it does

Mynd_44:
You have to understand that they are so obsessed with blood and their silly notion that if one ain't their blood, he ain't family.
We are not their yet but I hope one day, our mentality on issues will change and we will start reasoning right

Hopefully someday soon, such mentality will fade off

Tlinkz:


Hopefully someday soon, such mentality will fade off

We all hope so

Mrs.Chima:


I got cussed out in the health section because i was encouraging adoption and i was told i need not to push adoption and blah blah. According to them...because i dont infertility issues...i shouldnt be insulting them with adoption bullshit. REALLY?! I EVEN went on to say people who can have children shouldnt have them because they arent takn care of their children proper.

This world is overpopulated and famine will destroy this world....there are millions of African kids without parents to love them and it is sad to see white celebrities reaching out to these African kids when their own are walking pass them as they are begging for rice.

Damn Mrs. Chima for supporting and encouraging African people to adopt their own. SMH.

I honestly wish more people would look into adoption.

One woman that knows better adopted a girl-child. After a couple of years, she adopted a boy too.
Now she has those two kids, and they are all hers. Nobody can take that away from her.

We have all sorts of strange mentalities that need to be changed. We are religious, but lacking core christian values!

@ OP. Please take heart. So sad about this. It is well with you.... It was like 2months to My younger sister intoduction when I advised her to advise her fiancee to go for Genotype test since my sister is the AS among us. So sad, her finacee was AS too.... Hmmmm, that's how the family called both and advised them to move on. Really felt for both... When both has moved on right.

THERE WAS A NATION

There is mayhem on the streets
Screams of pain coming out plentifully from onlookers
Blood flowing from dissected bodies
While others are aligned to be beheaded
A new movie indeed and the actors performing well
Buckets after buckets of animal blood is thrown
Height of cinematography being choreographed
But it yet brings to mind the decay in our society
A society that diversity is the trusting bond
And religion the apple of discord sown

There was once a nation
Flourishing under the watchful eyes of the slave-masters
Civilization they call it but in reality modern slavery
Noble families elected and taught the secret
Grin to your masters and your reward shall be much
Eyes opened and the slaves reveled
No more colonies we want our country
Governed by us and protected by our own laws
The slave-masters are shamed
Years of investment going down the drain
What more can be used to destroy the new nation of diversity
Aye!!! The apple of discord sown in religion

So our travails began
No succor to the many wars fought
Not with guns but with crude weapons of ancient weaponry
Daggers and bamboo sticks made ready for such purpose
Chants of war cry while the innocent suffers the brunt
O! There was a nation
Whose place has been overtaken
But solace it found in spilling blood
Blood of the poor masses and downtrodden
While the wielders of powers stay put on seat
Watching the sport of blood

There is a nation!!!
Whose advancement in technology meant death
Bombs improvised in the name of religion
While the nation becomes the testing sites
If ever you get to heaven
Ask the creator why there is a nation
And if there be any answer
Reveal it to me in a dream
While I drown my sorrows in this keg of plamwine

Dedicated to the Victims of Kaduna Bomb Blast

God bless u Poster. It can only get better... May God cont to strengthen u

Foxybone: THERE WAS A NATION

There is mayhem on the streets
Screams of pain coming out plentifully from onlookers
Blood flowing from dissected bodies
While others are aligned to be beheaded
A new movie indeed and the actors performing well
Buckets after buckets of animal blood is thrown
Height of cinematography being choreographed
But it yet brings to mind the decay in our society
A society that diversity is the trusting bond
And religion the apple of discord sown

There was once a nation
Flourishing under the watchful eyes of the slave-masters
Civilization they call it but in reality modern slavery
Noble families elected and taught the secret
Grin to your masters and your reward shall be much
Eyes opened and the slaves reveled
No more colonies we want our country
Governed by us and protected by our own laws
The slave-masters are shamed
Years of investment going down the drain
What more can be used to destroy the new nation of diversity
Aye!!! The apple of discord sown in religion

So our travails began
No succor to the many wars fought
Not with guns but with crude weapons of ancient weaponry
Daggers and bamboo sticks made ready for such purpose
Chants of war cry while the innocent suffers the brunt
O! There was a nation
Whose place has been overtaken
But solace it found in spilling blood
Blood of the poor masses and downtrodden
While the wielders of powers stay put on seat
Watching the sport of blood

There is a nation!!!
Whose advancement in technology meant death
Bombs improvised in the name of religion
While the nation becomes the testing sites
If ever you get to heaven
Ask the creator why there is a nation
And if there be any answer
Reveal it to me in a dream
While I drown my sorrows in this keg of plamwine

Dedicated to the Victims of Kaduna Bomb Blast

wtf does these bollocks have to do with this thread?

Way to go OP thanks for sharing. I hope those silly people with hormones running through their body would listen.

@ op God wl give u strength dt u need in ur daily lyf

calabaman:
wtf does these bollocks have to do with this thread?

Exactly
Let him navigate to this place https://www.nairaland.com/politics

@ op, sorry, that's the cards life dealt you
Playa your cards right
Are you having issues with necrosis?

I know what Op is going through cuz I had two siblings with SCD. Trust me it wasn't funny.

Thank you all for your positive feedback and prayers. A day in my life has always being like a nightmare, but now that I'm older and more matured to handle the situation, I feel happier and proud of myself and all I've achieved in life against all odds.

Thank you all once again, this really means a lot to me

lola.luv:


I honestly wish more people would look into adoption.

One woman that knows better adopted a girl-child. After a couple of years, she adopted a boy too.
Now she has those two kids, and they are all hers. Nobody can take that away from her.

We have all sorts of strange mentalities that need to be changed. We are religious, but lacking core christian values!

I think you and Mrs Chima are slightly behind the times on adoption issues. The truth is that the awareness is already so high here that there are not enough babies to go round those seeking to adopt them legally. I know because I have several friends and family members who have not only adopted but are waiting to adopt babies. A friend of mine waited for nearly three years before she could get her lovely daughter.
Adoption is love in action. How more can one show God's love than by picking a child who isn't wanted by the parents and giving it a name, an education and a future?
@topic, thanks for sharing your experiences. I have 2 SS in-laws. One continued to fight for her life until she died at about 35years. It was so painful watching her go thro crises. The last one that killed her she had right under my roof. The second inlaw migrated to the US where they seem to manage her crises better. She is now married with four kids: even had a set of twins last year.

OP its a pity you have to go through so much pain, the lord is your strength.
I remember my classmate Makuochi back then, kai Makuo was always missing classes, I remember writing many tests for her, her sickness affected her so much that she wasn't able to graduate with our set, I saw her the last time I visited that state and menh my heart bled.
This Genotype issue is very important and people need to start taking it very seriously.

Tlinkz:


Adoption is an option, but in an african setting, how many married couples will opt for adoption?

Ignorance is the core reason why people will not consider it.

Brand_new: I know what Op is going through cuz I had two siblings with SCD. Trust me it wasn't funny.

You lost them?

@poster may God give u the strenght u need! Its well with u in jesus name. I put In my prayer[color=#000099][/color]