chijen:
I just read this thread from the 1st thread to the last and I was really impressed. No stone was left unturned. I'm a warrior in her early or middle 30, a Graduate and a mother too. Someone mentioned about ss/SC females having so many medical or obstetrics issues which I have come to counter. Even people whom we tend to call healthy have health issues with conception and pregnancy. It all takes God's grace and healthy living. I'm a living testimony. Got to know about my genotype at age 19 while in the University, had series of crisis due to environmental issues ranging from academic pursuit and unhealthy feeding but God saw me through. I have only had 2blood transfusion my entire life which was during my pregnancy cos I had a cs delivery. U will hardly know I have d Scd. The solution is to eat healthy, less frying or oily things, enough fluid and fruits, cut down ur stress and always have a positive approach whenever the crisis comes. Avoid extreme temperatures, cover up especially ur feet cos that's the easiest route to cold. Take folic acid religiously especially the female SC/Ss. Avoid drugs that contains iron. Instead take the ones that contains calcium or omega3 very essential. The best way to fight the pain Crisis is by renewing ur mind through positive thinking. I have had the worst and God saw me thru it all. Finally, bitter kolA reduces pains too. I chew one daily once I have pain and drink a cup of water to wash it down, as if I'm taking drugs on an empty stomach before breakfast. Usually an hour or 2nd before breakfast when I'm in mild crisis.

megam0ney:
@abali, not really much tho! Just trynna be sure...

Tswaggs1:
Hello, this is quite urgent, my sis is a warrior and she been
having severe cough catarh, which results for fatigue and
nausea.... I gave her ugu juice and milk, then I called my mom
later who said I shouldn't give to her, that ugu juice isn't good
for her health, it contains iron. Pleasseeee how true is this,
and what do I do?

Abali1:

Since she is having cough and feeling fatigued, giving her ugu juice will only help to boost her PCV and nothing much.
Your mum is afraid of her having Iron Overload which is not good. Not that Ugu juice is not good. Of course most things used in boosting PCV contains iron.
Please next time don't self medicate, always refer her to competent medical personnel.

Tswaggs1:

Ok. Thanks... She regained her strength few hours later.... Are you saying ugu juice can be administered to a sickle patient to boost their PCV?

Tswaggs1:

Ok. Thanks... She regained her strength few hours later.... Are you saying ugu juice can be administered to a sickle patient to boost their PCV?

Abali1:

When you PCV is low, ugu juice is one of the things recommended. Or you can simply make vegetable soup for the person. It goes a long way to help the person build up his blood level. Also, Folic Acid and B Complex does wonders.
Your mum was just scared of Iron Overload, not that ugu juice is wrong. Though it's advisable to boil the ugu slightly, before pressing out the juice.
Goodluck.

Firstinline:
@op thanks for the information you have provided so far and to every one that has contributed to this thread, i say thumps up to you guys. You have no idea how many lives you have positively affected.

I have a warrior friend that i like so much, you can hardly know she is a warrior though.

She told me that her pcv is 34%, the last time she took any medication was 3 years ago and she also said she hardly has any crises . though she said a labman had told her that she has some normal cells

I will like know if its safe for her to relax using her medication and not have crises because she has a pcv of 34% and is it possible that pcv level drops or increases or is it just constant ?

Thanks.

Abali1:

A lot of Warriors relaxes after some months or years of non-hospitalization. The feeling of not taking any medication daily/weekly is exhilarating. It's like "wow, I feel normal. I can do whatever I wish".
Please tell your friend not let down her guards. 34% PCV. Ok. Why not encouraging her to build it up some more, afterall she is female and must see her monthly flow once a month.
PCV, it's not constant. It goes up and it comes down. At 34%, what happens after her monthly flow and God forbid it she has a malaria attack?
Even if she doesn't want to take medication, she should make a habit of visiting her doctor at least once in every 3 months.
Thank you.

Thawarplay:
Hmmm!

Im so confused. . . . TCM state it early that cellod-s can cus tumour nd other shid!

Plz what about jobelyn? Can i buy that too?

I cant avoid to go thru this pain again, not even concerned about the pain but d hospital bills

Im still young 21.

ameenahz:
Hello Abali1,

Is there any herbal supplement that you can vouch for? My sister is on her 5th crisis this year and it seems to be the worst so far. She has tried dioscovite before and i am thinking of getting her somalin and cellod s. She is currently on admission in a tertiary health institution but there has been no improvement. We are tired. Please help. Thank you

where can we get this Cellod-S,and what does it do, how does it work??

Abali1:

Hi ameenahz, I am sorry to hear about your sister, hope she is responding to treatment.
Concerning herbal supplement, I can't vouch for any drug and moreover, our body systems are different. What may work effectively for me, may not work as a effective for another.
Having said that, I can tell you that I have used dioscovite and Cellod-S. But haven't used somalin though I have heard that its equally good. Between the two that I have used, I prefer Cellod-S.
I will advice that you should wait for the hospital to discharge her before introducing herbal medication. Or better still consult her physician, though s/he may discourage the use of herbal medicine.

ameenahz:


Thank you so much. I do realise that it will be better to wait until she is discharged. I was just wondering if something can be done to help her, in the mean time. However, I will take to your advise.
Thanks again. Regards to the family.

G1ms:

The cellod u take.. does it work well? How much is it?
Plus is it advisable to take anti malarial drugs daily knowing the cell is already somehow resistant to malaria? Also i stopped taking fiofio like 5yrs ago.. back then they grind plenty into powdered form and store it in plenty containers. All i do is use spoon and scoop some in a glass cup add some honey put water mix and drink. Got lazy and stopped.. i took dioscovite but later stopped cos it was scarce. I eat anyhow. . I love oily foods, i so much detest beans till now but i love vegetables. I'm in my mid 20s and i always have crises like crazy especially when i stress myself. Stress is inevitable in my life. If i don't stress how do i make it? I drink lots of water when available but i don't carry water bottle around. All i take now is folic acid and paludrine... but when in crises i add ibuprofen that's all. My crises is the most painful crises in the world that makes stay down for weeks but i take it like a man cos i see it as just pains.
What is still amazing me is that I've never been to the hospital for treatment, check up or whatever since i was born. No drip, No transfusion. . Nothing upon all my frequent crises since i was a kid.

Techwriter:
I don't know whether these are facts or myth but when I sought friends advice on whether to marry a fellow AS. One told me that the possibility of giving birth to a sickler is from my 3rd baby. That I can actually stop at two and be safe. I also heard in my teenage years that ones an SS gets to 30, the symptoms ceasing and he can't die from the condition. Is that true?

ikare:
my fiancee is SS n we met about a year ago.she dicovered she was ss at age 5 n for a very long time battled with it.she is 28 now n stronger than ever.she gradually learnt how to deal with,primarily by knowing wat d symptons are,wen they come n wat happens wen they are comin. first thn we cleared was d ss issue. she actually tried to make me realize how bad d situation could be, 4 me. but d more we got on,d more i realized dat she is d one 4 me.she is doin great healthwise,in fact on several occassions,i actually was able to predict dat her crisis was near.she's had just 2 so far n they were mild.she takes her medication regularly n by God's grace,d worst is behind us. but the thn i admire most about her is dat she is a fighter n a survivor. she knows wat she has n knows equally how to deal with it. she's bn doin it alone for long,now she has me.so to answer ur question, YES.