Jaxon Buell was born on Aug. 27, 2014, in Orlando, Florida. He has microhydranencephaly, an extreme brain malformation that left him with 80 percent of his brain missing. His story and striking photos have captured worldwide attention. Jaxon’s parents, Brandon and Brittany Buell, write about their experience in the new book “Don't Blink: What the Little Boy Nobody Expected to Live Is Teaching the World about Life.”

They’ve nicknamed him “Jaxon Strong” for his determination to live and thrive. Brandon Buell, 31, shared this update about his son with TODAY’s A. Pawlowski.

We celebrate Jaxon’s life every single day. We try to make it special for him. Whether reading a book in his room or cuddling on the couch together, it’s the littlest thing, but for him, it’s the world.

Jaxon’s situation is so uniquely different that there is no prognosis. No one knows what tomorrow will bring for him. We were told that he would not make it to 2-years-old and he passed it.

Outside of his seizures, which he has every day, he’s very happy, healthy, comfortable. He smiles all the time with us.

He gave us a scare about two weeks ago. We weren’t sure what was going on — his seizures started to increase and they got a lot more intense. Brittany took him to the hospital trying to get some answers. Even with his doctors, as good as they are, a lot of it is trial-and-error, just trying to figure out what he needs.



http://www.slimxclusive.com/2016/11/awwnnn-check-out-this-boy-who-was-born.html

cc: lalasticlala, seun

hmmmmm.... i just remembered smeagol of lord of the rings i dont knw why?
such a sad one!

Just like 20% of the brain left? God is great.


Check out my signature

Wow. God is truly great

Olizey:
Wow. God is truly great

You think he's great? That little innocent kid is suffering

Baddchristy:

You think he's great?
That little innocent kid is suffering

He created the kid! and he kept him alive till now. So yeah! he's truly great

beautiful baby. love the eyes

Baddchristy:

You think he's great?
That little innocent kid is suffering

Please carry your post and shift one side.

Whether you think God is great or not is your pot of soup. I sha know the God I serve is great.

Happy belated birthday to him. His eyes are so piercing, so big and beautiful.

I'm sure no parent wants to see their child suffer. I'm sure doctors would've advised them accordingly if they thought he was suffering.

Baddchristy:

You think he's great?
That little innocent kid is suffering

Olizey:


Please carry your post and shift one side.

Whether you think God is great or not is your pot of soup. I sha know the God I serve is great.

gbam!