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“the Rash That Changed My Life”… Living With Psoriasis - Nairaland / General - Nairaland

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“the Rash That Changed My Life”… Living With Psoriasis by MissyB3(f): 1:43pm On Sep 26, 2010


''My name is Glory Edozien and I have a skin condition called Psoriasis. I wasn’t born with it. It just appeared one morning on my skin like a bad rash. At first I thought nothing of it until the rashes started to join together and began forming huge scaly scab-like features on my skin. At one point the itching got so bad, I had to start taking sleeping medication as nothing else could help. I was mortified and scared. This happened when I was 22 years old. Up until then I had perfect skin. Perfect like Joy Girl kind of skin. People would stop me on the road to ask me what cream I used and would be very disappointed when I told them I had no specific skin care routine.

I remember one of my cousins would get so frustrated with me because I never needed to use any kind of foundation. All I needed for a night out was white powder and eye liner and I was set. Today it is a different story. Different because there is hardly any part of my skin that isn’t covered with some form of rash or scar from the aftermath of Psoriasis. The transition from perfect skin to what I am today hasn’t been entirely easy''.

What is Psoriasis?
Although not contagious, Psoriasis is a chronic, autoimmune disease that appears on the skin. It occurs when the immune system sends out faulty signals that speed up the growth cycle of skin cells. In other words instead of your skin to shed off dead skin cells in the normal cycle of 28-30days, with Psoriasis patients it takes only 3 to 4 days for skin to mature and instead of falling off (shedding), the cells pile up on the surface of the skin, forming psoriasis lesions.

As with many skin disorders, the direct cause of Psoriasis isn’t known. However Scientists believe that people inherit the genes which create a predisposition to psoriasis, but not everyone who inherits the gene is likely to develop the disease. Researchers also believe that for a person to develop psoriasis, the individual must have a combination of the genes that cause psoriasis and be exposed to specific external factors known as “triggers.” These triggers can be anything from stress, injury to skin, certain forms of medication and infections.

Living with Psoriasis

''I think for me the hardest part of it all was coping with the self esteem. People staring at you all the time or not wanting to sit near you for fear of ‘catching’ anything, it was really quite difficult. Even having a simple sleepover at a friend’s house could keep me awake for days. I would keep on thinking how would I explain to them about my skin, hoping they wouldn’t feel uncomfortable. Even having a boyfriend was an issue. Because I felt no guy would ever want to date someone with this kind of disorder. But I don’t bother myself with all that heartache now.

Another hard part is the amount of drugs and creams one has to try. With Psoriasis there isn’t any known cure (yet) and what works for one patient might not work for another. So you have to find out what therapy works best to control the skin replication process. Sometimes I feel especially sad for my dear mother. The amount of traditional/home made remedies she has had to buy for me. At one point I had to tell her to stop. I started feeling like a lab rat going through various drug trials. Today I have found a drug/cream regime that helps me manage the condition effectively. However, people still stop me on the road to tell me of some miracle cream that can ‘cure’ me. I just smile and say ‘thank you’.

Today I am who I am and I am unbelievably happy in my own skin. I know God does not give us more than we can bear. For some reason, He knows I can handle this particular trial. Without a doubt, this skin disorder has made me learn the hard way how to grow, through much difficulty, into a confident woman. I know who I am and I love myself without reserve. No one on this planet can make me feel less of myself without my permission and they do not have that permission! I realized that people only got uncomfortable around me when I was uncomfortable with myself. Today, if I see some staring and they approach me, I’ll explain to them so they feel comfortable. It really does not affect me anymore''.
Re: “the Rash That Changed My Life”… Living With Psoriasis by MissyB3(f): 1:44pm On Sep 26, 2010
However, I have realized that there is a downside to my self belief. While being confident is very necessary, it also leads to a place of acceptance where I am unwilling to try new remedies or go for the various healing meeting I have been invited for. I find myself praying more for the health needs of others and I had to make a mental note the other day to pray more for my own healing.

I think my self confidence even grew more when I learnt that runway model Alek Wek also suffered from psoriasis. I remember reading once, how her mother would scrape off the lesions on her skin with a knife and she would bleed. Even America’s Next Top Model, Cycle 7 winner CariDee has also revealed her ongoing battle with Psoriasis. So I know I am not alone in my battle, if these women could overcome, why should I hide underneath baggy cloths for the rest of my life? It also doesn’t hurt having a wonderful family. Without doubt my parents, cousins, uncles, aunties and friends have showered me with so much love and strength it is impossible to feel sorry for myself.

My advice to anyone suffering from psoriasis or anything else that affects their self confidence is simple. If whatever is affecting your self confidence can be changed, then do something about it. If it can’t, then begin to dig deeper into your personality and find strength in who you are and who God has called you to be. With time you will find your inner beauty blossom and that is what will draw people to you. Trust me, it works!



Source: http://www.bellanaija.com/2010/09/24/skin-deep-series-2-the-rash-that-changed-my-life-living-with-psoriasis/
Re: “the Rash That Changed My Life”… Living With Psoriasis by MissyB3(f): 1:49pm On Sep 26, 2010
How one's life can change within a short period.
I admire her strength. I'm not sure I would be this strong if I were her.
Re: “the Rash That Changed My Life”… Living With Psoriasis by bece: 2:06pm On Sep 26, 2010
@ poster, i watched a programme on zone reality the incurables, what the lady that has ur kind of skin disease did was to change her diet totally she took vegetables and fruits only and within 6 months her skin changed though it might not be easy in nigeria but i belive u can give it a trial. Stay off processed food,sugar,beef,chicken,fish etc go organic for like 6 months take soy beans milk,vegetables, fruit pls try it and be pray too.
Re: “the Rash That Changed My Life”… Living With Psoriasis by yme1(f): 7:11pm On Sep 26, 2010
wow i really do admire her strenghth and i pray she recovers from that illness
Re: “the Rash That Changed My Life”… Living With Psoriasis by Mobinga: 3:47pm On Feb 06, 2011
shocked shocked shocked shocked
Re: “the Rash That Changed My Life”… Living With Psoriasis by Odunnu: 5:25pm On Feb 06, 2011
Wow!
One reason to thank God for 'lil' mercies.
She's strong I must say
Re: “the Rash That Changed My Life”… Living With Psoriasis by Odunnu: 5:27pm On Feb 06, 2011
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Re: “the Rash That Changed My Life”… Living With Psoriasis by LA2(m): 1:49pm On Feb 08, 2011
I have had Psoriasis of the nail for over 10 years now, and whereas there are steroid ointments and the likes for Psoriasis of the Skin and or the Scalp, there is nothing for Psoriasis of the nail.
This basically means I have nails that look like talons, crooked and nasty to look at. To say it has affected my life is an understatement, so I can appreciate what the write must have gone/be going through.
Re: “the Rash That Changed My Life”… Living With Psoriasis by Gigihealth: 12:16pm On Aug 17, 2016
Psoriasis treatment is done with some treatment options. The treatment options help to reduce the irritated and inflamed skin. This condition is managed, and they are no known cure for it. Psoriasis is a skin condition which can affect anyone. Click on the link below to read more.
http://www.gigihealth.com/psoriasis-treatment-what-is-psoriasis/

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