₦airaland Forum

WHAT DOES IT MEAN WHEN ONE SAYS, "I am a Warrior ".
Many times those of us living with sickle cell disease, refer to ourselves as Warriors. What does this mean? A warrior is someone who is very active in battles and have won many battles, and most likely will still face many more battles and win or eventually be defeated.
The above is simply the life of a person living with Sickle cell disease. We fight our battles as often as you can imagine. Both seen and unseen. Physical as well as psychological. The life of a Warrior is most times dogged with battles and no matter how weak we are, we still fight on.
No matter how blunt the sword is, we still wield it with the hope of winning.
No matter how hopeless our efforts seem to be, we still put in our best.
We are Warriors and we have to fight and win or watch as we are defeated and added to statistics.
Fortunately for most of us, QUITTING IS NOT AN OPTION.

is this a campaign targeted at creating awareness for sickle cell which is the focus of vicar hope foundation or is the foundation diversifying into HIV/AIDS campaign and drug abuse campaign?

ARE YOU STILL OF THE OPINION THAT WARRIORS DIE YOUNG?
How many of you 'healthy' ones still think that what Warriors know how to do best, is to die young? Thank God for improved health system and improved information technology. We now know that there are many warriors out there living their lives and fulfilling their destinies.
That misconception about dying young, no longer holds water. Because, when you live right and do what you are supposed to do healthwise, you will live a fulfilled life.

viewingcentres:
What advice will you give two ac couples who are so in love with each other, though knowing they have the possibility of having cc. Is the risk of cc worth taking? Personally I've seen two people with cc living well. But still I wilm like to know if there are cc in the house to share how they feel and if they can engage in a marriage that will produce cc again

Hope your present 'Love' will be able to withstand crisis and reality if perchance you have a CC baby? Of course there are even SS living well and doing well.
The question is, are you ready to face reality if and when it stares you in the face?

HOW HAVE YOU CREATED AWARENESS:
It's unfortunate that even in this day and time, many people don't know much about Sickle Cell disease. And because of this lack of knowledge, many have blindly gone into relationship and ended up making babies who eventually turn out to be Warriors.
The unfortunate thing is that, these babies who never asked to be born are sometimes neglected to Fate. Some of them become so despised, even by their so called parents that you begin to wonder if it was their fault that they are born Warriors.
It breaks my heart to hear that some so called 'fathers' even abandon the mother and Warrior child, because in his warped thinking the woman is the cause of their suckled cell baby.
Young girl, yes you reading this, do you know your genotype? Even if you do, are you sure that the result from that laboratory is the authentic one?
Handsome dude, are you really sure that your genotype is AA, or you just believe because your parents told you that all their children are AA?
How much do you know about genotype testing?
How vast is your knowledge about this thing called Genotype?
How careful can you be, so that you don’t end up fathering/mothering a Sickled cell baby?

How have you created awareness? Do you know your genotype? Are you still of the opinion that Warriors die young? Are you still ignorant about, what it actually means being a Warrior? Do you still consider Warriors as 'lazy' beings, who can't hold a job?

babeface3:
I have asked for advice on this form concerning same case and some routine drugs were recommended some of which I was not able to find. Pls is there a more formidable remedy I lay my hands on. My boy is dying by installment.
Genuine advice sincerely needed

Can you be more specific. What is actually the problem with your boy?
Also you could go through my threads, and learn one or two things about managing sickle cell disease.
Warning:
Be careful about contacting people outside NL... Also be careful about self medicating your. boy.

mannatech:
This kind of tenants always take offence with every action you decide to take towards managing your property even though its non threatening. They feel threatened by the fact that landlord's son of yesterday ( this small boy) is now landlord.
He has shown no regard for the safety of your personal property twice and the intention to harm u physically.
He has a grudge against u and its good u have initiated the eviction process.
Get your lawyer to draft a landlord tenant agreement that will contain simple do and don't, differentiate your responsibilities from theirs.

Someone told me exactly what you wrote up there. That the guy has a grudge against me. But I can't even begin to understand why. I was already managing the property before my mum died and it was I who signed tenancy agreement with him.
My only solace is that the tenancy agreement was iron clad and was prepared by my lawyer.
Thank you for your comment.

I want to read more comments on this. Daboomb

teemy:
As for the threat, no action would be taken against him other than inviting him and giving both parties a warning to keep the peace. a record would have been kept by the cops just for future reference just in case something does happen.

Try to make a proper entrance for him as it is equally an inconvenience for him as well. Shun the ego and do the needful. Be purely a business and include no personal emotions in your housing enterprise.

Wishing you well - Teemy

Yes. A record was taking concerning the threat. Sometime last year I was forced to serve him a Notice to Quit, because he was owing rents and wasn't even making any effort at communicating with me when he is likely to pay. He has always had that ego something. But eventually he came and paid, and that was when he told me he was annoyed with me.
I would have built another burglary proof and put it outside his door so that he can come and go as he wished. But, if I let this slide other tenants will take me for a ride.
His second Notice to quit is already counting and I intend seeing it through. Even if it gets to the court.

Acidosis:
You have done no wrong.

However, ensure you do something about the entrance before the next tenant moves in. Your tenant should be able to walk in and out your property whenever he/she pleases without having to call for key.

Exactly. With benefit of hindsight, this problem may not have arisen if maybe the burglary proof was outside instead of inside. But, when he rented the place in 2015, my mum was still alive and my aunt and others were still in the house always.
I will correct that mistake, but not with this present man. I have three other tenants staying in that house and I have never had any problem with them, neither do I disturb them or insult them even when they are owing rents.

I understand the story is lengthy. But I appeal to the MODs to help me push this story. I need to get as much impartial comments as possible.
Also lawyers in the house and property managers should make an input. The house has been handed over to a lawyer. But some of the tenants there have a cordial relationship with my family and I don't know if it's what gave the man the guts to threaten me.
CC:
Acidosis, Solitcit4me, teemy, Daboomb, Mannatech, MrMcJay, barristerbiodun, Realestatepro

en1gma12:
I'm also in the same situation. We don't know what to do, we've separated but came back together. Did medical personnel really tell you to go ahead? Are there any other people with SC genotype? Is it worth it?

I believe I am genotype SC. But some of my lab results read genotype SS.
Much difference is not found in genotype SC or SS. Both often witness severe mind wrenching crisis. If you have a better alternative, please avoid a union that will produce either SS or SC.

Nairalanders please read and make comments.
The Story:
I rented out, a one room self contained to a man in 2015. The room is attached to my family house and have about two entrances. The entrance which the tenant uses to go out and come in has a burglary proof inside. For security reasons, we instructed the tenant to always lock his burglary proof and go out through the other entrance that leads into our side of the house, anytime he will be spending the night outside the compound and he agreed. When my mum was alive this arrangement was a problem as someone was always at home. After my mum's death in 2016, her sister living with her then traveled to Lagos to go spend some time at my elder sister's place, and she is still in Lagos even as I am writing this.
December 2016, this tenant traveled with his family, and didn't come back to the house till January 2017. We tried to reach him on phone before my aunt traveled but his phone number was unavailable. when he came back January 2017, he went straight to the house and on getting there he found everywhere locked up. The time was past 9pm. He put a call to me to bring the keys to him, and I told him that it was already very late and I live a bit far from my family house. I asked him to spend the night at one his neighbors (another tenant within the compound and a bachelor) and very early in the morning I will come and open the door for him. He flatly refused and insisted on coming to my house to collect the keys. I didn't have a problem with that. When he came, I gave one my cousins that just came in that evening the keys to go with him. So that he can open up his room and my cousin will lock up the doors and bring back the keys to me.
Sometime around mid 2017, the tenant opened up to me that he has been angry with me. I enquired the reason for his annoyance. He mentioned incident that I narrated above and that why he called me to bring the keys to him is because I have a car. I told him he shouldn't reason like that, one he came back in the night and I don't go out at night neither do I stay out late.
Fastforward December 2017, this guy traveled to his village with his family and didn't bother locking up properly. When I found out, I went with the agent that brought him in another tenant in the compound and a cousin to go and lock up properly. Then I put a call across to him to call me when he is coming back to come and open the door for him.
When he came back January 2018, he called me and I went to open the door for him. After opening up the entrance I asked him to go and open his door. He replied that, "I should go in and open his door the same way I locked it". His tone to say the very least was insulting and condescending. I repeated that he should go in and open his door or i will lock up and leave. It was then that this guy started jumping up and shouting that "he will deal with me" over and over again. It was my cousin that was even trying to calm him down asking him if he doesn't have respect. Eventually the wife came back and went in to open their door.
I reported the matter to the police, and nothing came out of it. (we all understand NPF). I have equally served him a quit notice to vacate the apartment when his rent expires.
It might interest you people to know that this guy has never paid his rent on time after that first payment and I haven't for one day, insulted him or spoke harshly to him. I am always patient with my tenants to a certain extent and I respect all man irrespective of your financial status. But threatening me, in my own house....

May she find solace.
We have support groups, where we are free to talk and discuss what ails us. Don't be shy, look for these groups and join one. Search the Facebook, we are there and we hold each other up. I am sorry and sad about the death of this young boy.

Because of tribe. Because of religion.
If Southern policemen had carried out this atrocity on the house of a Northern politician, not even past Head of State, some parts of the country would have cried blue murder.
Everything wrong with this country, stems from the Hypocrisy of. its leaders.

cochtrane:
Why not prove this? It's a black man's disease, pure and simple.

What other proof do you need? The people of South America, some people from India and other races and nations do have Sickle cell.

Chi59:
Congratulations are in order ma'am.

Getting pregnant and having kids-two of my major fears.

Being a warrior no be beans.

You have survived this long, not by your power or might. Him, who have led you this far, will continue to hold up.

cochtrane:
No, it's not just common among blacks. It's a black man's disease. The same way certain diseases are limited to white people. If you find a white person with sickle cell anemia, then you can trace a black man down his earlier ancestors.

Please this is falsehood. Yes, blacks have more number of people living with sickle cell, doesn't mean that other races don't have equally high number of people living with sickle cell. And No, it's not a black man's disease.

bamisho:
Abeg stop spreading false negativity. Many people with sickle cell now live much longer.

A woman in her 90s or infrastructure 80s was recently celebrated.

My father who drank like a fish and didn't even take care of himself lived to his 60s.

Plus I have an Uncle that was a Professor and Medical Doctor and lived well into his seventies.

A lot of progress has been made and the average life span is increasing regularly

Brotherly, why are you getting yourself worked up because of ignorant people?
I live with Sickle cell and I always tell the Nay sayers that my God is God that fetches water with a Basket to disgrace the bucket.
My mum's friend, a warrior, is almost into her 70s that is if she has not already crossed the 70s mark.
Some of my classmates in the secondary who weren't SS... are 6ft below. So why should I fear, when I Trust in God.
Some said we cannot impregnate women and have our own babies, but many of us are carrying their children.
Some say, we are not strong enough to endure the rigors of corporate enterprises, but many of us excel in our different careers and business, despite the odds.
Sickle cell doesn't define me or any other Warrior.
Congratulations Anne Welsh.

bamisho:
No its not just black people. AL Countries where Malaria was prevalent have it. Sickle cell was nature's wayof trying to adapt to malaria which was deadly at that point. People with sickle cell are actally less affected by malaria. Unfortunately it created bigger issues while Malaria became more managable.

Countries with Sickle Cell are : Saudi Arabia, India, Turkey, Greece, Italy and parts of south America, the Caribbean and Central America.

Education is just what makes it less in th countries plus less population in most of them.

Typing on my phone so pls forgive typos

The S gene (and not sickle cell) was nature's way of protecting those living in malaria prevalent environment. That is why those with AS genotype are more resistant to malaria than those with AA..or SS.. genotype.

Lekinzmah:
How much do they charge for the genotype test

It's very affordable. Shouldn't be more than #2000. May not even be up to that.

omoelerin1:
please how do i know my genotype?

Go to a reputable laboratory or Teaching hospital and request for a genotype test.

NwaAmaikpe:


Happy sickler's day to all the sicklers on NL.



Advice to Sicklers
Live a peace with your neighbors, don't stress your heart, cut down your sex drive, don't marry because you will break your partner's heart eventually.
Take each day as your last.

Bro, please educate yourself about Sickle Cell. Ask any male SS, he will tell you that he has a very high sex drive. Infact if a male SS don't take time, he may experience Priapism. Please Google it.
I am married and God has blessed me with two wonderful kids.
NB
Your advice is out of place and stems from ignorance.

SICKLE CELL ANAEMIA (WORLD SICKLE CELL DAY)
Legs aching with slightest sickness, Knees quaking with utmost weakness, A moment of leg ulcer, untold trauma, Crying bloody tears in a state of coma.
A moment of sickness, paralyzed health, Writhing in pain, struggling for breath, Rolling on the floor in tearful pains, Bones aching like someone in chains.
Oh why! Oh my! Oh why sickle cell? Crying hot tears in basket of well, Grips of pains seems too much, Miracle seems too far to touch.
Ulcer legs, aching sore-ful bones, Fatigue, fainting, backout prone, A moment of pain makes very ill, Injections taken against one's will.
It strangles health when you least expect, It gift pain without will to object, Ulcer legs, bones sore, Slightest sickness, knocking on heaven's door.
Fatigue, blackout like a man in the coffin Oblivious of what is in the offin; But I'll rise again, I won't be silenced by pain.
Though sickness makes nights dreary I won't allow my soul to be wearied, I will never give up on breathe And I will never give in to death.
My faith won't be smothered by dismay, My strength will be renewed day by day, I won't give up the will to live, My head won't be buried in grieve.
I may stand, faint and fall But I won't give up the will to stand tall, Anxiety and agony won't rest on my soul, I will rise again and be made whole.
I won't give up the ghost, I won't be death's host, I won't yield to the bid of casket, I won't kick the bucket.


All Rights Reserved Osoba Taiwo P. ©PeterPushingPoetrywithPenetratingPen 2017.

@Dominique and Lalasticlala, it won't be out of order to ask that this thread be pushed to the Front Page.
We remain loyal to NL.

Today, June 19, is a day set aside by WHO as World Sickle Day.
I am here today, because I have survived. Battles have been fought, casualties recorded, and comrades lost(in this fight against Sickle Cell).
We will soldier on. We will keep lending our voices to the fight against Sickle Cell. No matter how obstinate or nonchalant the rest are about the scourge, we owe a duty to ourselves to make our voices heard.
No matter, how much others disdain us, we owe a duty to ourselves to make our voices heard.
No matter how loud and deafening the silence is, by those who are supposed to know better. We owe a duty to ourselves to make our voices heard.
The scars are there.
The pain has not gone away.
The midnight tears, is a constant reminder of the battles we have to fight.
But above all else, I have SURVIVED.
Happy World Sickle Cell Day.

NwaAmaikpe:


Person wey dey chuuk Sickler get mind o

I'm ashamed of you and those who liked your comment.
Me, I be 'Sickler' as you called it. And I'm living testimony that shame those who are not 'Sickler.' This is because I have a God who Fetches water with the Basket in order to shame the Bucket.

itzzhoneybee:
Carrier yes
Sickler nope
If the carrier I.e an AS marries AA only one out of four kids stands d chance of being a carrier and d cycle goes on and on
If only ppl wud listen and enough awareness is created this s.s thing is very easy to fade out totally or be reduced to d bearest minimum
As marry AA only
Ss marry AA only
Lobatan

AS crosses AA..... It will result in the probability of
AA
AS
AS
AA
That is a 50% chance of having AA or AS in every pregnancy.
That means, all the children can turn out AA or AS
OR
all the children will be a mix of AA and AS
or
All the children will end up being AS.

MissRaine69:
I am aware ..of the genotype issues
That does not rule out that one of the children will be a carrier

Please and please, never comment on anything that has to do with genotype until you have properly educated yourself. We can overlook those who say all type of trash about sickle cell, but when it comes to genotype pairing, I cannot in good conscience overlook it.

itzzhoneybee:
Medically n genetically if she gets married to a man with AA all her kids wud be As. No ss
So she isn't gambling anything
Its only if she gets married to a man with As genotype that she stands d risk of having a sickle cell child

I stand to be corrected

You dey mind her. Upon all the materials out there teaching genotype pairing, some people are still this ignorant.

MissRaine69:
Yep.

Chai!!! ignorance