REALITY101:

How sad. Well I don't know about Red Cross helping in such situation. I couldn't go thru the whole pages on the other thread. What's the deadline for the surgery and how much is needed.

You know Nigerians could be[b] funny + corny[/b]. Just saying

Ivynwa:

Brother I don't know the cost of the surgery.
Do you want to sponsor her, that will be wonderful so that she can start healing.
I don't have her e-mail address---i will request that from her and you can discuss with her. Please she is not a scammer. Scammers disgust me and if she is one I will know that and not let her deceive anybody here. She simply needs help,was referred abroad by her doctors. You can visit the links up there where she explained the details and you can comment to her, she will reply you there as she is more active on that thread.

jay bee:

^^^
Don't you think it's better to channell all your energy into getting better albeit getting the right info and contacts you are seeking rather than engaging in back and forth bickering.
Good luck with you quest though and I pray everything goes well

Nekai:

Perx,

No advice, just ((HUGS))

For you to still have a positive disposition means that you must have the patience of Job.

Good luck and God bless!

Ivynwa:

Perx I opened threads asking for contact info of charity organisations from nairalanders living abroad. I posted it in the family, Romance, Properties, Auto and Politics section where people frequent most and here are the links below for you to be monitoring in case somebody sends you a useful piece of information there okay.


Romance Section              https://www.nairaland.com/nigeria/topic-836032.0.html

Properties Section    https://www.nairaland.com/nigeria/topic-835896.0.html

Autos Section               https://www.nairaland.com/nigeria/topic-835895.0.html

Family Section      https://www.nairaland.com/nigeria/topic-835893.0.html

Politics Section         https://www.nairaland.com/nigeria/topic-835892.0.html

Please Sweetie, I am sorry but I do not know whether you are feminine or masculine (you did not affix your gender in your profile), do let me know so that I can write your right gender as you can see I referred to you as a "he". Please don't be offended about that----just let me know and I will quickly change it.

Do you have an e-mail address that can be left on those threads so that whoever needs to contact you can do that. Have you ever googled for charity organisation as in searched for the contact address of some in the internet? Such info may be online. Your e-mail address is important, leave it here so that if I get info on any I can forward it to you. If your email address has your full names and you still want to maintain your anonymity, you can get another e-mail address that does not have your real names on it.

See whether you can do this - open a thread and copy on the details you listed here about the illness with pictures if possible and I can add the link to that your particular thread and remove the link to this thread so that people can easily go to your own very thread to read about it.
If there is something you wish changed in the thread do let me know okay Baby. Do keep your spirit up.

maclatunji:

Busy_Body, For the love of God- why are you being insensitive to Perx? Pls. Keep whatever 'frank advice' you want to give her to yourself. I can try to ignore your back/forth with Shy-One/others  but when you start upsetting someone in serious pain who needs all the help she can get- I have to ask you to please SHUT-UP!

@Perx, I  urge you to try and ignore those hurtful things that Busy_Body has typed/copied and please focus on positive things like your blog. I suggest that you start with your blog early in the morning before reading anything on Nairaland. Stay strong and save your strength for your blog. By the way, where do you stay and when are you due to be in Lagos again?

@all, please if what you are going to type here does not help those whom this thread is supposed to help- kindly stay away. Don't attract ill to yourself because if you consciously cause some of the people on this thread pain- God himself will not forgive you.

CONTINUED
I cannot go to the internet café and scan it myself. The x-ray even had the letter L written/printed boldly on it which means left and not R for right, my doc report stated left too. I pointed it out to balogun and he was still adamant. this was before my right leg got affected too. ARRANT NONSENSE. How dare he call me a fraud even when I only asked for[b] his medical opinion not money[/b]. he does not even know how to view x-rays correctly. what an excellent doc indeed. na me get my body, so i no know where break or dey pain me? NA WA OH

He/anyone else thinking of - "malingering" - the term applies to persons who deliberately pretend to have an illness or "hypochondria" - Psychiatry or a person suffering from or subject to hypochondria or a person who worries or talks excessively about his or her health, should pray that doc balogun/u/whoever never gets a serious illness like mine/than mine so people dont call him a liar or a scammer because Karma comes around.

i have all my tests, docs reports in nigeria, emails from doctors/hospitals abroad etc, so to hell with whomever says i am a liar just because they are a quack doc or silly person. I WON'T SMILE AT THOSE INSULTS BUT YOU'VE GOT YOUR CHOICE & SO DO I.  i have different medical docs/labs numbers for verification. will u still believe or change your mind after seeing all that? noooo, because it is in u! U SAID U ARE NOT IN THE MEDICAL FIELD BUT YOU ARE GOING ON AND ON ABOUT MEDICAL THINGS AND CALLING ME NAMES/INSULTS. KILODE? SMH

i am getting agitated and upset now, i dont need this at all - some symptoms that makes my condition worse but i do not blame u though cos u do not know me or seen me like this. ITS EVERYONE'S CHOICE TO BELIEVE ME OR NOT - I CANNOT CONTROL THAT. come see for yourself if u want. yes i have gone from slim to fat from d beginning of my illness to now that i am on different medication. sooo what i cannot even move around properly with aid/help let alone do exercises or burn fat. U DO WELL OH busybody

@all u good and supportive people of NL (u know who u are) - GOD BLESS YOU ALL WITH GOOD HEALTH, JOY AND MUCH MORE IJN AMEN!

i wanted to start my blog today as some suggested but writing d above has made me tensed but i will be strong enough soon to start it soones[/b]t

Busy_body:



This should be your anthem. [s]I don't want to rain on your parade, but here goes:

Anxiety and stress would not get you anywhere[/s], cast your [b]absolute faith in God, It is well.

Busy_body:



This should be your anthem. I don't want to rain on your parade, but here goes:

dr Balogun is one of the most, if not the most influential and definitely the most selfless and invaluable person on NL, so anyone of his professional standing would equally dismiss you outrightly as a malingerer and hypochondriac. These people spend on average a decade in Medical School, so if i read you correctly, no Doctor will take you serious for plucking your "diagnosis" out of thin air/the internet. It is a dangerous and foolhardy path to tread.

I am not in the Medical field, but from the little i know, from the symptoms you have listed such as the fractures, the out-of-proportion chronic pain, the jerking and feeling as if someone is yanking your legs out of the socket, the shortening of the limbs, etc, you could equally be diagnosed with Osteoporosis+Fibromyalgia+Restless legs syndrome. YOU ARE ALREADY GETTING MEDICATION FOR THESE TRIO OF DIAGNOSIS, for which some could even say you are already being over-medicated for. And for your information, all those medication you are on have the potential to make you gain weight as one of their side effects.

If you manage to get to the US, they will bombard you with all sorts of tests and eventually  loads of medication, not because it is the right thing to do, bt because it is a highly litiguos environment whereby Doctors can be sued for near-misses and mishaps and misdiagnosis and whatnot. If you come to the UK, you would not get that much pain relief, you would get xrays and tests 18 months part at least, after spenging around 2 years on the waiting list, and if you wanna start telling your Doctor you have found out what is wrong with you on the internet and it is so, so, so and so syndrome, the next referral you would be getting would be to a Psychiatrist because in reality, most illnesses with the blanket term "syndrome" attached to it as a suffix is kinda like a temporary unbrella term for "we don't know what to file these symptoms under", hence the many other names these "syndromes are often known by.


To cut the long story short, at your age, you will not be deemed a suitable candidate for surgery, because, these joints have to be replaced every 10 to 15 years once they wear out, meaning you have to be replacing them based on the ones you get fitted with, and hey not every surgery works, i have met tons of people who regrets having operations as it did nothing to alleviate their pain and suffering and sometimes made it worse.


Based on those 3 diagnosis i listed up there, according to you, all you have had was an MRI scan, so you need to get yourself to an Hospital in Nigeria where you can have a bone density scan or an isotope scan or whatever to rule out whether your fractures is being caused by early onset of severe Osteoporosis.


Peradventure you have already been told you have a diagnosis of Fibromyalgia, this means damaged tissues, which means you would never be recommended for surgery because every joint would have to be replaced every 3 years on average, and there isn't enough downtime to recuperate from surgery if you have to be having them that close, so all you would keep getting is pain relief as you already are on, and you might possibly be referred to an intensive rehabilitation for pain management programme to help you learn pacing and coping skills to deal with these chronic pain.     


Anxiety and stress would not get you anywhere, cast your absolute faith in God, It is well.

Whats all these fights and arguments for on this thread anyway? terrible distractionssssssssssssssss

@busybody - Thanks for your post. I did not state that I got my diagnosis from thin air/internet. I stated that since d docs in my state refused to do my surgery and said go abroad, I have emailed doctors in Europe, u.s.a and India my reports, x-rays, MRI and symptoms for their diagnosis, treatment and cost. They all gave different diagnosis/medical names including some of the ones u stated in your post and more but the one that fits my symptoms or what I have been experiencing for the past 4 years mostly is the RSD/CRPS when i checked them online.

the mri i did in luth cost[b] over 80k. they took over 4 hours to do it, i was in pain all through, i do not live in lagos, it was hell travelling to lag by road[/b]. on getting to my uncle's house after 4 hrs of mri, i got a call 1 hour later that i have to come back to luth the next day and do d mri again, wtf? they do not even know how to do it or give good reports properly. my coz in uk told me that mri does not take more than 30 minutes to do or get the results, then tell me where can i do d others u mentioned in nigeria and get a good result or diagnosis a hospital in the states said i should do a nerve conduction test and send d result to them via email. where do i do that in nigeria

As for doctor balogun I don’t give a damn how good u or people think he is, he cannot b good in all medical areas, he might be a pediatrician for all I know and has no idea about orthopedic or surgery. The fact is that I sent him an x-ray of my left fractured hip and my doctor's medical report which he requested for but he kept telling me that it is d x-ray of my right leg not left so I am a liar and said hurtful things through email. I DID NOT ASK HIM FOR MONEY, JUST HIS OPINION. NA WA OH

Just because whoever scanned and sent it to him did it upside down or didn’t position it properly b4 scanning/emailing it to him, he refused to believe me or what he saw. i sent the same things via email to docs/hospitals in u.s.a, europe and india but they never called me a liar or scammer - balogun is only in the uk but he has a typical/fool.ish mentality like some Nigerians = dumb as an arse

TO BE CONTINUED

maclatunji:

I am sorry to read that. Please, keep hope alive. As for your blog your name is important like I said before. However, anything else you want to add is up to you. I just want you to tell your own story and tell the world what you want/need. It is not an exam, feel free to express yourself as you see fit. I just don't want you to use abbreviations that people will not understand. Try to be upbeat in everything, better days are coming with God's Mercy.

ifyalways:

@Perx,life is beautiful,God is your strenght.Please hold on firm. . .

Ivynwa:

Perx you can go to www.blogger.com
Click on "Get started" and you can begin
In your blog you may need pictures showing your legs or other pictures that can move people into helping out.

I was wondering whether some companies offer such help but I am not sure-----did you approach such big companies like MTN and some oil companies that easily donate to charity?

I was also thinking of this-----[b]opening a thread [/b]inviting nairalanders (that reside in the United States or UK or any other country your naija doctors are referring you to) to help you with charity organisations that help out people with health issues. I was racking my brain thinking of any but have non in mind.

You must never think of harming yourself sweetheart, conditions change in life. Tomorrow, days and years to come may bring you such recovery and joy that when you look back to now, you can't help but bless God.

Akaraoku$:

I really do'nt know what to say Reading all these posts has actually opened my eyes to how ungrateful i've been towards God! Atimes the little things we take for granted, I can't explain/understand how a sound person would wake up one morning all of a sudden one leg is growing shorter, The Lord that raised Lazrus from the dead I know you are still alive!! Please prove your healing powers on the life/condition of our sister[b]''Perx''[/b] whatever the situation is Lord, heal her permanently that her joy maybe full IJN.
And for all those suffereing from one form of ailment/situation , i beg you Lord to also prove yourself faithfull in their lives, this is my Xmas wish Lord! For those of us who have been taking your loving kindness for granted, father we plead for your forgiveness and MERCY!!
All these i ask IJN, LIFE IS BEAUTIFUL !! Merry Xmas and prosperous new year to ALL,

ronkebp:

@Perx, hmmmmmmmmmmm am really short of words, things happen with no one having answers to them, it is part of being human, but i know, there would be solution and answers with God, i call God everytime, because He is the ONLY medicine i know to all my problems.

Ivynwa:

I feel your pain dearie. Severally have I logged in to say something that will douse your heart with comfort and severall has words failed me, I only hope that God gives you the strength you need through this. A good medical care is important for you and with the fighting spirit you seem to have, such is not impossible. Last night I was trying to design a blog too, when you start it and needs to share ideas you can send me a mail and we can help each other with the designing okay Baby. The blog thing is a great idea that may get us the help we need here. 

maclatunji:

@Perx, I just thought of something. I don't have money to help you but I think I can help you with exposure and I need you to help me with that. Here is the beginning of what I need from you:

I need you to create a blog on http://www.blogger.com (I would have helped you with this but I have an incredible workload on me). When you set it up put your real name as the title of the blog. For example, there is Linda Ikeji and she has http://LindaIkeji..com .

When you are done, you need to create posts in this your new blog: I want you to give a brief profile of yourself. Who you are, a little bit about your family, what schools you attended, what qualifications you have, what your life was before all of 'this' started.

Now, tell us about the ailment: how it started, what steps you took and how you have been coping thus far. Tell us how you have been coping, what your daily routine is like as well as your support structure (I.e. those that have been supporting you).

Thereafter, tell us your present state and what medical experts have said is required for you to live a relatively normal life under the circumstances. Now, you will tell us what you need from the general public in terms of support.

This blog is not about you being a beggar (you are obviously not) and it is not a 'pity party'. However, you are in a difficult situation and need all the help you can get and we want to use this blog as a platform for you to get that help.

Lest, I forget. You will need to put your photos on this blog- I mean photos of a young woman who is full of hope despite this predicament you have found yourself in and not photos of despair or pity.

What we want to achieve is to document your situation on a single platform to get some of the help you need.

Now, I know this is a lot of work for a healthy person and for you obviously an additional burden. If you can dictate your thoughts to someone who can write or type them for you- please do so.

Once you have completed this let me know, I will take it from there. Of course, it would be nice to update your blog every day. In addition, I would like you to create a twitter account- once again with your real name. I don't need you to tweet much but keep it a little active.

If you can manage to do these things I think we can get you a lot of positive exposure. I have a few ideas on how to achieve this but it should be my secret for now.

Please help me to help you with this.

Note: Don't use unnecessary abbreviations in your posts on the blog.

Tell your story to the world and you may just get the required help.

Ujujoan:


Awwwwww sweetheart!

It's well. Like I said earlier, I just dn't know what to say but I know this may be very difficult for you to believe but there are people who are in a worse condition.  Not that it's any consolation.

HAve you thought of the possibility of going abroad for tratment? Do you think you can afford it?


I really really wish I can help you but I just don't know how.

There's a thread for NL charity . . .  maybe you could move your case there so people can see how they can help.

mods oh my 2nd and concluding story is still not here, na wa

anyway thanks. . . abroad is what i have been thinking of for a while now but na money matter

my family, extended family and friends are trying their best to raise the money but its taking forever while my condition is getting worse

i am spending christmas and boxing day in bed cos of the other fracture i had in my right leg, though not as worse as my left leg

but the docs here put p.o.p so that i cannot move it for two months. they are scared to operate in this leg too, no b only dem, in fact me i'm scared too

he said stay in bed for 2 months, it will heal on its own or i'll refer u abroad. i'm like wtf! been in bed since october

from walking to limping to 1 crutch to 2 crutches to wheelchair to bed. na wa gan. 4 years I DON TIRE. I DON TRYYYYYYYYYYYY

i dont know anything about d charity on NL

blank:

@ perx, my brother in law had the same issue. He wanted to do the hip replacement surgery in Nigeria but when he was in the hospital, the guy that entered before him never woke up. He had to leave and go the UK for it. He has done it and it lenghtened the leg in the sense that the hip had kinda slanted so was straightened out now. He is walking with just a slight limp and praising God for His deliverance. He had to save for some number of years before he could afford it and when the pain became too unbearable.

nike4luv:

Perx
I have notified the responsible party and something should be done about it soon.

Thanks

maclatunji:

Sorry, people were only afraid of being scammed. now that we know your story is true, I hope that someone here might be of assistance to you. Cheer-up, have faith in the mercy of God through this your trying period (I know: it is easy for me to say but at the same time it is the truth).

maclatunji:

I know this sounds funny, silly and basically means I am ignorant but still I would suggest that you invest in getting pure 100% honey and include it in your diet. It is a well known-fact that honey has fantastic healing properties. I am sure you have come across this but in case you haven't I am sharing this link from wikipedia

http://en.wikipedia.org/wiki/Reflex_Sympathetic_Dystrophy

maclatunji:

I suspect that your condition is not totally reversible but your pain can be greatly alleviated and your mobility can be greatly improved. Here is another link from Malaysia :

http://www.thetole.org/ComplexRegionalPainTreatmentCure.html


It suggests that acupuncture could be of help to you.

scammed  jeezzzzzzzzzzzzzz
well i can understand to some extent cos of fraud, scam, etc around 9ija and d world but i did not even ask anyone on nl for money. i think i asked people on nl to help me for a charity organisation or something like that (its been a while now) because i want whichever org wants to help me to see me 1st

i could have gone to them (charity org) anywhere in 9ija with help from some of my relatives and they will see if i'm for real or not
thanks though. i'll check them out

perx:

i have been to a few churches 4 healing and also the synagogue and i can say that t.b joshua is fake. most definitely fake

we went because we saw his miracles on tv. we were there for over a week (in a hotel near d church). make una come see soooo many people with different problems in front of the church. t.b joshua gave instructions to his staff and refused to see crippled people or people with severe disabilities, serious illness/disease, etc

they agreed to let my aunt see him because she said she has asthma. she was told she must buy the book of healing/faith for 300 naira or she wont see him. imagine all the people he agrees to see or so call heal must buy the book. thats good business ohh

anyway she saw joshua two days later, he claimed to heal my aunty of asthma but after she got home from synagogue she is still getting serious asthma attacks till today

this is not dem say dem say, this was live not tv. it is what me and my aunt saw/experienced with our own eyes so nobody can tell me Poo or otherwise

all those healings and miracles they show on tv are staged, acted and fake. why are people so wicked and dubious? God dey ohhhhh

hissesssssssss

oh well she died last year. of what the same f^cking asthma he claimed he healed - d damn thing just got worse since we got back from synagogue

emmanuel tv my arse. JUDGE KINI? TELL IT LIKE IT IS. RIP aunt, GOD DEY

Ujujoan:

OMG that's terrible . . . .

I dont even know what to say to you!

ceasyc:

9ce topic
spambots and moderators - its about time u put perx's post that was deleted. d story is very sensitive, heartbreaking, pitiful, jaw dropping, hellish, etc,

people needs to see that concluding or 2nd part here, NOT ONLY IN HER PROFILE

what was wrong with that post anyway? the 1st part is here, the 2nd one is not. POST THAT ONE HERE JARE

those of u going through rough and hellish things/experience(s), abeg make una take am easy. dont really know what to write or say to all of u but God dey!!!

terrible is an understatement. well SUCH IS LIFE - DEFINITELY F^CKED UP IN MY CASE.

i've cried my eyes out this morning when i heard someone i guess in d church singing d song that starts and ends with "saviour, saviour, saviour hear my humble cry. . . DO NOT PASS ME BY". this is blurry. i still dey cry self

i'm still trying to get d bot thing off my case so that i can paste or post d concluding part. what do u mean its in my profile thas BS, i want it on this thread!
where dem mods@?