Perx's Posts
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REALITY101:true true Ivynwa:thank u again. uk, usa ,europe are more expensive than india in terms of medical fees, scans, mri, surgery, etc. i got so many estimates/cost through email for one leg. ranging from 15,000 dollars to 50,000 dollars minus visa fee, air tickets for 2 (i am a wheelchair user), bta, feeding, accommodation, rehabilitation/physio, etc |
@chaircover, that was really sensitive and motivating we have a lot in common like the detective films or series, music. i get angry, tensed and upset easily, etc. there are spoilers, atrocious and encouragers everywhere and anywhere when one is in distress or down. some tell u nice things while others tell u all hurtful things, then they later say let me leave u because of your condition - too late i give them a standing ovation and a round of applause. God dey. i will try d ones i can in your post. thanks and God bless. i'm happy 4 u. my friends and family are doing their best to get me the money that is why i am holding back - the blog i mean, so i may not need d blog or money from anyone else. if it doesnt turn out fine and quick then i will blog away like a crazy person. uk, usa ,europe are more expensive than india in terms of medical fees, scans, mri, surgery, etc. i got so many estimates/cost through email [b]for one leg. ranging from 15,000 dollars to 50,000 dollars minus[/b] visa fee, air tickets for 2 (i am a wheelchair user), bta, feeding, accommodation, rehabilitation/physio, etc i pray and hope i get my healing soonest too IJN. |
jay bee:true that. I WILL.God can do anything, He will make a way where there seem to be no way, He will make the impossibility possible in my life IJN thanks |
@Ivynwa thank you and God bless @other posters thanks too https://www.nairaland.com/nigeria?topic=826801.msg9796110#msg9796110 https://www.nairaland.com/nigeria?topic=826801.msg9796234#msg9796234 |
Nekai:over 4 years of being down and going through hell, i just don't know HOW i have stayed/lived this long if anyone had forseen it or seen a vision years ago that i would be like this for years and i will just watch me deterioriating/getting worse, stay alive and waste away, just existing and not living, I WONT BELIEVE IT thank u and God bless too |
Ivynwa:thanks a mil. female - sorry about that. profile modified. will check them out and do the blog. fingers crossed maclatunji: i'll try, i am already in that mood but will get out of it soon cos its even making me type slowly or get my words or post right - been modifying forever. arggghhhhh. thank u |
CONTINUED I cannot go to the internet café and scan it myself. The x-ray even had the letter L written/printed boldly on it which means left and not R for right, my doc report stated left too. I pointed it out to balogun and he was still adamant. this was before my right leg got affected too. ARRANT NONSENSE. How dare he call me a fraud even when I only asked for[b] his medical opinion not money[/b]. he does not even know how to view x-rays correctly. what an excellent doc indeed. na me get my body, so i no know where break or dey pain me? NA WA OH He/anyone else thinking of - "malingering" - the term applies to persons who deliberately pretend to have an illness or "hypochondria" - Psychiatry or a person suffering from or subject to hypochondria or a person who worries or talks excessively about his or her health, should pray that doc balogun/u/whoever never gets a serious illness like mine/than mine so people dont call him a liar or a scammer because Karma comes around. i have all my tests, docs reports in nigeria, emails from doctors/hospitals abroad etc, so to hell with whomever says i am a liar just because they are a quack doc or silly person. I WON'T SMILE AT THOSE INSULTS BUT YOU'VE GOT YOUR CHOICE & SO DO I. i have different medical docs/labs numbers for verification. will u still believe or change your mind after seeing all that? noooo, because it is in u! U SAID U ARE NOT IN THE MEDICAL FIELD BUT YOU ARE GOING ON AND ON ABOUT MEDICAL THINGS AND CALLING ME NAMES/INSULTS. KILODE? SMH i am getting agitated and upset now, i dont need this at all - some symptoms that makes my condition worse but i do not blame u though cos u do not know me or seen me like this. ITS EVERYONE'S CHOICE TO BELIEVE ME OR NOT - I CANNOT CONTROL THAT. come see for yourself if u want. yes i have gone from slim to fat from d beginning of my illness to now that i am on different medication. sooo what i cannot even move around properly with aid/help let alone do exercises or burn fat. U DO WELL OH busybody@all u good and supportive people of NL (u know who u are) - GOD BLESS YOU ALL WITH GOOD HEALTH, JOY AND MUCH MORE IJN AMEN! i wanted to start my blog today as some suggested but writing d above has made me tensed but i will be strong enough soon to start it soones[/b]t [quote author=Busy_body link=topic=826801.msg9873458#msg9873458 date=1325395078]This should be your anthem. [s]I don't want to rain on your parade, but here goes: Anxiety and stress would not get you anywhere[/s], cast your [b]absolute faith in God, It is well.[/quote]I am the God that healeth thee I am the Lord, your healer I sent My word and healed your disease I am the Lord, your healer You are the God that healeth me You are the Lord, my healer You sent Your word and healed my disease You are the Lord, my healer I Am the God That Healeth Thee by Don Moen |
[quote author=Busy_body link=topic=826801.msg9873458#msg9873458 date=1325395078]This should be your anthem. I don't want to rain on your parade, but here goes: dr Balogun is one of the most, if not the most influential and definitely the most selfless and invaluable person on NL, so anyone of his professional standing would equally dismiss you outrightly as a malingerer and hypochondriac. These people spend on average a decade in Medical School, so if i read you correctly, no Doctor will take you serious for plucking your "diagnosis" out of thin air/the internet. It is a dangerous and foolhardy path to tread. I am not in the Medical field, but from the little i know, from the symptoms you have listed such as the fractures, the out-of-proportion chronic pain, the jerking and feeling as if someone is yanking your legs out of the socket, the shortening of the limbs, etc, you could equally be diagnosed with Osteoporosis+Fibromyalgia+Restless legs syndrome. YOU ARE ALREADY GETTING MEDICATION FOR THESE TRIO OF DIAGNOSIS, for which some could even say you are already being over-medicated for. And for your information, all those medication you are on have the potential to make you gain weight as one of their side effects. If you manage to get to the US, they will bombard you with all sorts of tests and eventually loads of medication, not because it is the right thing to do, bt because it is a highly litiguos environment whereby Doctors can be sued for near-misses and mishaps and misdiagnosis and whatnot. If you come to the UK, you would not get that much pain relief, you would get xrays and tests 18 months part at least, after spenging around 2 years on the waiting list, and if you wanna start telling your Doctor you have found out what is wrong with you on the internet and it is so, so, so and so syndrome, the next referral you would be getting would be to a Psychiatrist because in reality, most illnesses with the blanket term "syndrome" attached to it as a suffix is kinda like a temporary unbrella term for "we don't know what to file these symptoms under", hence the many other names these "syndromes are often known by. To cut the long story short, at your age, you will not be deemed a suitable candidate for surgery, because, these joints have to be replaced every 10 to 15 years once they wear out, meaning you have to be replacing them based on the ones you get fitted with, and hey not every surgery works, i have met tons of people who regrets having operations as it did nothing to alleviate their pain and suffering and sometimes made it worse. Based on those 3 diagnosis i listed up there, according to you, all you have had was an MRI scan, so you need to get yourself to an Hospital in Nigeria where you can have a bone density scan or an isotope scan or whatever to rule out whether your fractures is being caused by early onset of severe Osteoporosis. Peradventure you have already been told you have a diagnosis of Fibromyalgia, this means damaged tissues, which means you would never be recommended for surgery because every joint would have to be replaced every 3 years on average, and there isn't enough downtime to recuperate from surgery if you have to be having them that close, so all you would keep getting is pain relief as you already are on, and you might possibly be referred to an intensive rehabilitation for pain management programme to help you learn pacing and coping skills to deal with these chronic pain. Anxiety and stress would not get you anywhere, cast your absolute faith in God, It is well.[/quote] Whats all these fights and arguments for on this thread anyway? terrible distractionssssssssssssssss @busybody - Thanks for your post. I did not state that I got my diagnosis from thin air/internet. I stated that since d docs in my state refused to do my surgery and said go abroad, I have emailed doctors in Europe, u.s.a and India my reports, x-rays, MRI and symptoms for their diagnosis, treatment and cost. They all gave different diagnosis/medical names including some of the ones u stated in your post and more but the one that fits my symptoms or what I have been experiencing for the past 4 years mostly is the RSD/CRPS when i checked them online. the mri i did in luth cost[b] over 80k. they took over 4 hours to do it, i was in pain all through, i do not live in lagos, it was hell travelling to lag by road[/b]. on getting to my uncle's house after 4 hrs of mri, i got a call 1 hour later that i have to come back to luth the next day and do d mri again, wtf? they do not even know how to do it or give good reports properly. my coz in uk told me that mri does not take more than 30 minutes to do or get the results, then tell me where can i do d others u mentioned in nigeria and get a good result or diagnosis a hospital in the states said i should do a nerve conduction test and send d result to them via email. where do i do that in nigeria ![]() As for doctor balogun I don’t give a damn how good u or people think he is, he cannot b good in all medical areas, he might be a pediatrician for all I know and has no idea about orthopedic or surgery. The fact is that I sent him an x-ray of my left fractured hip and my doctor's medical report which he requested for but he kept telling me that it is d x-ray of my right leg not left so I am a liar and said hurtful things through email. I DID NOT ASK HIM FOR MONEY, JUST HIS OPINION. NA WA OH Just because whoever scanned and sent it to him did it upside down or didn’t position it properly b4 scanning/emailing it to him, he refused to believe me or what he saw. i sent the same things via email to docs/hospitals in u.s.a, europe and india but they never called me a liar or scammer - balogun is only in the uk but he has a typical/fool.ish mentality like some Nigerians = dumb as an arse TO BE CONTINUED |
I am the God that healeth thee I am the Lord, your healer I sent My word and healed your disease I am the Lord, your healer You are the God that healeth me You are the Lord, my healer You sent Your word and healed my disease You are the Lord, my healer I Am the God That Healeth Thee by Don Moen |
maclatunji:ok thx. God bless ifyalways:beautiful? hahahaaaaa.no b this life wey me dey so? NOOOOOOOO. life is BITTER SWEET AND RIGHT NOW IT IS UGLY AND BITTER but thanks Ivynwa: i do not know about mtn or d oil companies u stated opening a thread would be good though if you can. thx, will start d blog soonest then let u know |
. . .There are worlds and worlds of ways to explain To tell you how I feel But I am speechless, speechless That's how you make me feel Though I'm with you I am far away and nothing is for real When I'm with you I am lost for words, I don't know what to say My head's spinning like a carousel, so silently I pray Helpless and hopeless, that's how I feel inside. Nothing's real, but all is possible if God is on my side When I'm with you I am in the light where I cannot be found It's as though I am standing in the place called Hallowed Ground Speechless. . . "Speechless" MICHAEL JACKSON |
@ maclatunji, Ivynwa - thank u. still thinking of how to start d blog. is it just my real names i'd need to put there? anything else private/personal? i went 4 xray 2 days ago and it was not good, it did not heal and its even worse than d 1st xray report i dont know y or how but d docs here r on it, to see if they can do my right leg but d left leg is a no no go abroad they say. still checking if i can do both here. fingers crossed. it will b way cheaper but i want a good job done and no high risk |
. . .i need YOU 2 set me free, take me far away from d battle i need u to shine on me, I LOOK TO YOU whitney houston - i look 2 u |
Sunshine, blue skies, please go away. . . .my life is filled with gloom. So day after day, I stayed locked up in my room. I know to you it might sound strange. But I wish it would rain. . . 'Cause so badly I wanna go outside. (Such a lovely day) But everyone knows that a man ain't suppose to cry, listen I gotta cry 'cause cryin' eases the pain. . . People this hurt I feel inside, words can never explain. . . . Day in, day out, my tear stained face Pressed against the *pillow*. . . . . . . . . . I Wish It Would Rain by The Temptations may God grant us all our good wishes & dreams on/in time IJN. AMEN |
[quote author=Akaraoku$ link=topic=826801.msg9822214#msg9822214 date=1324638266]I really do'nt know what to say Reading all these posts has actually opened my eyes to how ungrateful i've been towards God! Atimes the little things we take for granted, I can't explain/understand how a sound person would wake up one morning all of a sudden one leg is growing shorter, The Lord that raised Lazrus from the dead I know you are still alive!! Please prove your healing powers on the life/condition of our sister[b]''Perx''[/b] whatever the situation is Lord, heal her permanently that her joy maybe full IJN.And for all those suffereing from one form of ailment/situation , i beg you Lord to also prove yourself faithfull in their lives, this is my Xmas wish Lord! For those of us who have been taking your loving kindness for granted, father we plead for your forgiveness and MERCY!! All these i ask IJN, LIFE IS BEAUTIFUL !! Merry Xmas and prosperous new year to ALL,[/quote]Amen and thank u |
ok thanks |
ronkebp:I hear u. thanks |
"No specific test is available for CRPS, which is diagnosed primarily through observation of the symptoms. However, thermography, sweat testing, x-rays, electrodiagnostics, and sympathetic blocks can be used to build up a picture of the disorder. Diagnosis is complicated by the fact that some patients improve without treatment. A delay in diagnosis and/or treatment for this syndrome can result in severe physical and psychological problems. Early recognition and prompt treatment provide the greatest opportunity for recovery". |
^^^ i cannot find d honey part but i'll give it a try "No specific test is available for CRPS, which is diagnosed primarily through observation of the symptoms. However, thermography, sweat testing, x-rays, electrodiagnostics, and sympathetic blocks can be used to build up a picture of the disorder. Diagnosis is complicated by the fact that some patients improve without treatment. A delay in diagnosis and/or treatment for this syndrome can result in severe physical and psychological problems. Early recognition and prompt treatment provide the greatest opportunity for recovery". |
Ivynwa:thank u. . . yay at last the mod/bot put up d 2nd and concluding part. was frustrated/anxious/upset 4 a while which i do not need in my condition due to my symptoms. link below https://www.nairaland.com/nigeria?topic=826801.msg9796234#msg9796234 |
maclatunji:REALLY? cool, i'll think about it and then get on with it (the blog). my real name, pix and all - gosh, my family is kinda popular in my city but who cares, i need d help they cannot give me. them don try sha but not as much as i expected. my family - *shakes head in pity* WELL ITS JUST AN EYE OPENER i have typed my experience and illness and sent it to various hospitals abroad since i started getting worse in 2009, so all i need do is just copy and paste. if i remember anything else, that wont be a problem cos it wont be much more than the above. i dont need individual help, i mean one person because it will cost much. if possible that is great but charity organisation would be better so they can see me for themselves before doing or giving anything. thanks and God bless |
Ujujoan: mods oh my 2nd and concluding story is still not here, na wa anyway thanks. . . abroad is what i have been thinking of for a while now but na money matter my family, extended family and friends are trying their best to raise the money but its taking forever while my condition is getting worse i am spending christmas and boxing day in bed cos of the other fracture i had in my right leg, though not as worse as my left leg but the docs here put p.o.p so that i cannot move it for two months. they are scared to operate in this leg too, no b only dem, in fact me i'm scared too he said stay in bed for 2 months, it will heal on its own or i'll refer u abroad. i'm like wtf! been in bed since october from walking to limping to 1 crutch to 2 crutches to wheelchair to bed. na wa gan. 4 years I DON TIRE. I DON TRYYYYYYYYYYYYi dont know anything about d charity on NL |
@maclatunji - no i didnt see that post b4, thanks for posting it again i have seen your contribution/post on the other thread too. i hope d mods or bot repost it the/my other threads https://www.nairaland.com/nigeria?topic=457497.msg9804153#msg9804153 https://www.nairaland.com/nigeria?topic=523754.msg6865774#msg6865774 https://www.nairaland.com/nigeria?topic=448126.msg6060843#msg6060843 https://www.nairaland.com/nigeria?topic=457497.msg6233580#msg6233580 blank:9ija docs and hospital sef, damn. thanks for sharing. thank God for your bro in law. 4 years and still down, i wish i can have the same miracle or cure. i'm just too young for this sh^t. my youth is wasting away. sighssssssssssss |
nike4luv:i hope so, thanks |
maclatunji: maclatunji: maclatunji:scammed jeezzzzzzzzzzzzzzwell i can understand to some extent cos of fraud, scam, etc around 9ija and d world but i did not even ask anyone on nl for money. i think i asked people on nl to help me for a charity organisation or something like that (its been a while now) because i want whichever org wants to help me to see me 1st i could have gone to them (charity org) anywhere in 9ija with help from some of my relatives and they will see if i'm for real or not thanks though. i'll check them out |
@nweddings2 thanks for trying to repost my concluding part but i guess d bot took d post out too i just dont get it |
perx: oh well she died last year. of what the same f^cking asthma he claimed he healed - d damn thing just got worse since we got back from synagogueemmanuel tv my arse. JUDGE KINI? TELL IT LIKE IT IS. RIP aunt, GOD DEY |
Ujujoan: ceasyc:terrible is an understatement. well SUCH IS LIFE - DEFINITELY F^CKED UP IN MY CASE. i've cried my eyes out this morning when i heard someone i guess in d church singing d song that starts and ends with "saviour, saviour, saviour hear my humble cry. . . DO NOT PASS ME BY". this is blurry. i still dey cry self i'm still trying to get d bot thing off my case so that i can paste or post d concluding part. what do u mean its in my profile thas BS, i want it on this thread!where dem mods@? |
hi, i posted on the "Are You Feeling Suicidal? Come Here First!" topic 2x because i did not want one post to be too long. the 1st one was accepted but the 2nd and concluding part was removed by the spambot and i was banned everytime i tried to post or repost https://www.nairaland.com/nigeria?topic=826801.msg9797054#msg9797054 i dont know why this happened, because i do not see anything wrong in my story/post. kindly do something about it so that i can put it out there/on the thread for people to see or read |
i cannot even move around properly with aid/help let alone do exercises or burn fat. U DO WELL OH busybody
Reading all these posts has actually opened my eyes to how ungrateful i've been towards God! Atimes the little things we take for granted, I can't explain/understand how a sound person would wake up one morning all of a sudden one leg is growing shorter, The Lord that raised Lazrus from the dead I know you are still alive!! Please prove your healing powers on the life/condition of our sister[b]''Perx''[/b] whatever the situation is Lord, heal her permanently that her joy maybe full IJN.