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A Sickler Shares How He Survives Sickle Cell Anemia (Photo) - Health (3) - Nairaland

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Re: A Sickler Shares How He Survives Sickle Cell Anemia (Photo) by 1Sharon(f): 4:25pm On Jun 20, 2019
ikeno:
whenever I have my crisis I feel like dying cuz d pain is so excruciatingly painful

Pls what pain medication do you take?

Change your medication switch to tramadol/codeine

1 Like

Re: A Sickler Shares How He Survives Sickle Cell Anemia (Photo) by ginovera: 4:27pm On Jun 20, 2019
NobleAngell:
This should be very very helpful to other patients. But I know a doctor who treats.

Pls share...
Re: A Sickler Shares How He Survives Sickle Cell Anemia (Photo) by mhizsuzzy(f): 4:27pm On Jun 20, 2019
Donlexino:
Please is it possible for AA+AA to give birth to AS because i don't understand where my daughter got her AS from?
It is not possible unless there is a mistake during the period of checking the genotype...Try other lab most preferably federal hospital lab

1 Like

Re: A Sickler Shares How He Survives Sickle Cell Anemia (Photo) by wiznuel(m): 4:46pm On Jun 20, 2019
I just celebrated my 23rd birthday on 16th of this month, am almost rounding up my NYSC and am a warrior. I thank God for my life. please how can I join any sickle cell WhatsApp group in ilorin.

10 Likes

Re: A Sickler Shares How He Survives Sickle Cell Anemia (Photo) by Nobody: 4:46pm On Jun 20, 2019
Bbbwings:

Hmm cheesy cheesy
This your own strong o cheesy cheesy
Go do paternity test.

Why not advise him to go check another hospital. Some hospitals make this kind of mistake on peoples genotype

3 Likes 2 Shares

Re: A Sickler Shares How He Survives Sickle Cell Anemia (Photo) by Nobody: 4:48pm On Jun 20, 2019
wiznuel:
I just celebrated my 23rd birthday on 16th of this month, am almost rounding up my NYSC and am a warrior. I thank God for my life. please how can I join any sickle cell WhatsApp group in ilorin.

God will see you through. Believe in him totally and eat healthy foods. If possible, reduce the amount of oil in your food and use tomatoes instead.

3 Likes

Re: A Sickler Shares How He Survives Sickle Cell Anemia (Photo) by Nobody: 4:49pm On Jun 20, 2019
Donlexino:
Please is it possible for AA+AA to give birth to AS because i don't understand where my daughter got her AS from?

Go and check another hospital. Some hospitals make mistake on peoples genotype

1 Like

Re: A Sickler Shares How He Survives Sickle Cell Anemia (Photo) by wiznuel(m): 4:56pm On Jun 20, 2019
Hipsofagoddess:


God will see you through. Believe in him totally and eat healthy foods. If possible, reduce the amount of oil in your food and use tomatoes instead.
Thank you very much with people like one will be happy to face tomorrow

2 Likes

Re: A Sickler Shares How He Survives Sickle Cell Anemia (Photo) by tunize(m): 5:01pm On Jun 20, 2019
charliboy654:

AA is not scares na, them full everywhere.
I think is As though
Re: A Sickler Shares How He Survives Sickle Cell Anemia (Photo) by wiznuel(m): 5:02pm On Jun 20, 2019
same cloth design with the OP

4 Likes

Re: A Sickler Shares How He Survives Sickle Cell Anemia (Photo) by Nobody: 5:03pm On Jun 20, 2019
tunize:

I think is As though
Ya, AS and AA are quite common
Re: A Sickler Shares How He Survives Sickle Cell Anemia (Photo) by Nobody: 5:08pm On Jun 20, 2019
Donlexino:
Please is it possible for AA+AA to give birth to AS because i don't understand where my daughter got her AS from?
It's not possible, go back and do the test for u, ur wife and daughter. Be sure that's u n ur wife are AA.

3 Likes

Re: A Sickler Shares How He Survives Sickle Cell Anemia (Photo) by Nobody: 5:09pm On Jun 20, 2019
wiznuel:

Thank you very much with people like one will be happy to face tomorrow

You will face tomorrow, the day after that, and that. You will be content. With long life will God satisfy you and show you his salvation.

6 Likes

Re: A Sickler Shares How He Survives Sickle Cell Anemia (Photo) by wiznuel(m): 5:12pm On Jun 20, 2019
Hipsofagoddess:


You will face tomorrow, the day after that, and that. You will be content and satisfied. With long life will God satisfy you and show you his salvation.
Amen thanks
Re: A Sickler Shares How He Survives Sickle Cell Anemia (Photo) by eodavids(m): 5:13pm On Jun 20, 2019
udomoh:
A sickler shares story on how he survives sickle cell anemia.

Few days ago, we lost Uche.
She was a gem, a warrior and an ever present member of the Sickle Cell Community.
I remember it was this time last year.
We got talking via the Sickle Cell WhatsApp group, she needed blood and I had a friend of mine come donate for her.
It was then we got to know that we were both on admission in the same hospital (LUTH). She was in the female ward and I was in the male ward.
Uche was super positive! She would wake me up with words of encouragement and would tell me to believe! That we would both win. Of course we did win! And we have won severally since then.
But she didn’t get to win on this particular occasion. She lost it to the dreaded sickle cell.
To you, Henry (whom we also lost a few months back), Mohammad (my brother) and the thousands of warriors who are long gone, continue to rest in power.
I know a whole lot of people get this scary look when they hear about Sickle cell.
Truth be told, sickle cell can be dreadful.
Talk about the long nights, the painful episodes, the stereotypes and all.
But in-spite of all these negativities we’ve had some positives.
There are warriors who live till old age and see their grandchildren. There are those who’ve not recorded any hospital visit in years. We have those who are super healthy and are living their best life.
For us living with sickle cell, information is vital.
Getting adequate information about our condition is not only important but can save us tons of worries.
As today marks the World’s sickle cell day, I’ve listed a few natural management procedures for US and for our caregivers as well.
These procedures have helped me overcome my deepest moments as a warrior and also helped me stay healthy! And I’m super certain it can do so for you.
1. Preventing Dehydration – In case you didn’t know, these past few months have been one for me to forget. Been on admission for at least four times, got my first ever blood transfusion coupled with loads of emotional bargains.
But it all got better when I did one thing! Increase my water intake!
I started taking nothing less than 5 litres of water daily! That’s a lot, yeah? But it surely helped.
The thing is, sickle cell crisis most times is a reaction to low oxygen levels in the blood, which can be caused by extreme physical conditions and dehydration.
Taking at least 4 liters of water daily, coupled with getting adequate rest is key to preventing crisis and staying on top of your game.
2. Avoiding your Triggers – This is also very helpful. Triggers are what leads to your crisis.
For me, it’s dehydration, stress, infection, malaria and funny enough consuming too much of sweet things.
For you, it might be different. It is essential you identify those things, and try to avoid them
3. Diet – Foods play a large role too! Because as warriors, our body needs more nutrients than the average individual, so it’s highly beneficial if we load our foods with varieties.
I won’t be specific here, but make it a habit as a warrior to consume fruits and veggies on a daily basis!
Your body needs folate to produce red blood cells, it needs protein and healthy fats to reduce anaemia symptoms and also it needs lots of antioxidants to fight infections! Don’t deny it!
Make I stop here abeg! The thing don dey long
Lastly, it is our collective duty to help achieve a pain free society!
Nigeria currently has the highest number of people living with sickle cell!
But despite that, you still see young carriers (AS and AS) playing love and believing God will take control. I pity them!
I’m not even concerned about them, I’m concerned about the poor child they intend to bring to a life of pains!
In as much as you can, genotypic compatibility is so important! Please ensure you are compatible before you say I do!
Obrigado! Gracias!

https://nimedhealth.com.ng/2019/06/19/he-survives-sickle-cell-anemia/?amp

I have just come to like you for this your post.

You have done well.
Re: A Sickler Shares How He Survives Sickle Cell Anemia (Photo) by Mizwisdom(f): 5:19pm On Jun 20, 2019
ikeno:
whenever I have my crisis I feel like dying cuz d pain is so excruciatingly painful


Happy birthday. It's not "your" crisis, it's from satan , always refer to it as "the, this or that" crisis, don't own it.

1 Like

Re: A Sickler Shares How He Survives Sickle Cell Anemia (Photo) by DBossNG(m): 5:22pm On Jun 20, 2019
Magnifico2000:

What if you can't get an AA girl that will love you?

Make the mistake first and you will have a story to tell.
Re: A Sickler Shares How He Survives Sickle Cell Anemia (Photo) by DarkJeddi(m): 5:26pm On Jun 20, 2019
Magnifico2000:

What if you can't get an AA girl that will love you?
Then he should continue looking,there are hundreds of thousands of them out there..

After,he's not about to enter Menopause.. shocked
Re: A Sickler Shares How He Survives Sickle Cell Anemia (Photo) by saajus: 5:27pm On Jun 20, 2019
After your NYSC, apply to schools abroad for Masters and stay put. Cold weather region is more favorable and you will have access to great medical care.

wiznuel:
I just celebrated my 23rd birthday on 16th of this month, am almost rounding up my NYSC and am a warrior. I thank God for my life. please how can I join any sickle cell WhatsApp group in ilorin.

3 Likes

Re: A Sickler Shares How He Survives Sickle Cell Anemia (Photo) by DarkJeddi(m): 5:27pm On Jun 20, 2019
NobleAngell:
This should be very very helpful to other patients. But I know a doctor who treats.
All Doctors treats.. undecided
Re: A Sickler Shares How He Survives Sickle Cell Anemia (Photo) by wiznuel(m): 5:31pm On Jun 20, 2019
saajus:
After your NYSC, apply to schools abroad for Masters and stay put. Cold weather region is more favorable and you will have access to great medical care.

my parents are not financially capable of sending me abroad
Re: A Sickler Shares How He Survives Sickle Cell Anemia (Photo) by Nobody: 5:42pm On Jun 20, 2019
ikeno:
whenever I have my crisis I feel like dying cuz d pain is so excruciatingly painful

Sorry dear. Just be strong and keep seeking information. Read on new research in sickle cell. Check Dr. Mercola's and LiveScience websites, they always release new researches on various health issues. Watch YouTube videos on it too.

Use the information to take care of yourself. When searching for this information, try to be objective, don't swallow everything hook, line, and sinker. Use your brain to know what you should try and those to ignore. You will rise above the pain.

3 Likes

Re: A Sickler Shares How He Survives Sickle Cell Anemia (Photo) by Nobody: 5:49pm On Jun 20, 2019
Donlexino:
Please is it possible for AA+AA to give birth to AS because i don't understand where my daughter got her AS from?
It's not possible. Please, sit your wife down and ask her some sensitive questions. I just hope she tells you the truth. I don't want to say what's on my mind.
Re: A Sickler Shares How He Survives Sickle Cell Anemia (Photo) by Nobody: 5:51pm On Jun 20, 2019
wiznuel:

my parents are not financially capable of sending me abroad
You can try scholarship now. Did you study any STEM related course?
Re: A Sickler Shares How He Survives Sickle Cell Anemia (Photo) by wiznuel(m): 5:57pm On Jun 20, 2019
sisipelebe:
You can try scholarship now. Did you study any STEM related course?
studied Zoology from unilorin and made 2.1 can you please help me out as to how to start
Re: A Sickler Shares How He Survives Sickle Cell Anemia (Photo) by mofedamijo(m): 6:00pm On Jun 20, 2019
KanuSE:


Lolcheesy, better not say what's on my mind.

...but do your research, read up on Sickle cell anaemia - you will learn a lot.
kuku tell him someone else is helpiing him in the other room simple, oga it is impossible to be AA and your wife AA, then you have a child thta is AS, go and do genotype test again with your wife, and if both of you are still AA, then you need DNA test.

1 Like

Re: A Sickler Shares How He Survives Sickle Cell Anemia (Photo) by Nobody: 6:04pm On Jun 20, 2019
wiznuel:

studied Zoology from unilorin and made 2.1 can you please help me out as to how to start
you need
to write a standardized test first(GRE and TOEFL). Before you start this process you need to get your international passport ready too. With you 2.1 you can apply for Phd in vet medicine. You'll get full scholarship and monthly stipend. You are still very young too, that's an added advantage for you.
Re: A Sickler Shares How He Survives Sickle Cell Anemia (Photo) by Nobody: 6:06pm On Jun 20, 2019
mofedamijo:

kuku tell him someone else is helpiing him in the other room simple, oga it is impossible to be AA and your wife AA, then you have a child thta is AS, go and do genotype test again with your wife, and if both of you are still AA, then you need DNA test.
Gbam!!

1 Like

Re: A Sickler Shares How He Survives Sickle Cell Anemia (Photo) by wiznuel(m): 6:08pm On Jun 20, 2019
sisipelebe:
you need
to write a standardized test first(GRE and TOEFL). Before you start this process you need to get your international passport ready too. With you 2.1 you can apply for Phd in vet medicine. You'll get full scholarship and monthly stipend. You are still very young too, that's an added advantage for you.
ok thank you very much. I will start from there

2 Likes

Re: A Sickler Shares How He Survives Sickle Cell Anemia (Photo) by ndidigood(f): 6:16pm On Jun 20, 2019
sotall:
That name warrior


I don't understand
They go through hell of a pain uncountably and come back strong and alive
Severe pain is the worst thing,some women go tru labour that is for a while and loose control
Let alone a continuous one that last a life time except by God's mercy
If u HV anyone ,u can't stand it ,l bet u.

2 Likes

Re: A Sickler Shares How He Survives Sickle Cell Anemia (Photo) by dauntless15(m): 6:22pm On Jun 20, 2019
saajus:
After your NYSC, apply to schools abroad for Masters and stay put. Cold weather region is more favorable and you will have access to great medical care.

Dude, cold weather is good for Sickle cell patients? Who told you this bro?
Re: A Sickler Shares How He Survives Sickle Cell Anemia (Photo) by Trademark007(m): 6:48pm On Jun 20, 2019
Donlexino:
Please is it possible for AA+AA to give birth to AS because i don't understand where my daughter got her AS from?
your daughter must have gotten her AS because one of you is a carrier. No AA+AA can ever give u any AS. MY ADVISE TRY AND CROSS CHECK FOR THE AUTHENTICITY OF YOUR INITIAL GENOTYPE TEST or BETTER STILL YOU MIGHT WANNA DO DNA TEST OF YOUR DAUGHTER. TAKE NO OFFENCE!!! smiley

3 Likes

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