Indonesian man has tumour removed from his waist only for hundreds of others to sprout up all over his face as doctors fear for his sight


Indonesian man has tumour removed from his waist only for hundreds of others to sprout up all over his face as doctors fear for his sight
Slamet, 59, is believed to be suffering from neurofibromatosis
Genetic condition which causes uncontrollable growths along the nerves
Illness began six months after doctors removed tumour from waist in 1991
By JILL REILLY

An Indoneisian man whose body is covered by hundreds of tumours has made a final plea for help as the rare condition robs him of his sight.
Slamet, from East Java, is believed to be suffering from neurofibromatosis, a genetic condition which causes uncontrollable growths along the nerves.
According to his brother Suwadi, the 59-year-old had a tumour removed from his waist in 1991.
Desperate: A man whose body has been disfigured by hundreds of tumours has made a final plea for help as the rare condition robs him of his sight
Desperate: A man whose body has been disfigured by hundreds of tumours has made a final plea for help as the rare condition robs him of his sight
A man whose body has been disfigured by hundreds of tumours has made a final plea for help as the rare condition robs him of his sight.
A side view of the head of Neurofibromatosis sufferer Slamet
Slamet, 59, is believed to be suffering from neurofibromatosis, a genetic condition which causes uncontrollable growths along the nerves
Despite their alarming appearance, the growths and swellings - called neurofibromas and caused by a growth of cells - are not cancerous or contagious
Despite their alarming appearance, the growths and swellings - called neurofibromas and caused by a growth of cells - are not cancerous or contagious
But six months later tumours began to form all over his face and body.
Years later the condition has become intolerable and Slamet suffers constant pain throughout his body.
Recently the tumours have started blocking his nostrils, making it difficult for him to breath.

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Slamet suffers constant pain and the tumours have started blocking his nostrils, making it difficult to breath
Slamet suffers constant pain and the tumours have started blocking his nostrils, making it difficult to breath
Slamet points at his eyes which had becomes covered in the tumours
Slamet points at his eyes which had becomes covered in the tumours
Slamet's body is covered in lumps as he walks around a field outside his home in the village of Nguntoronadi
Slamet's body is covered in lumps as he walks around a field outside his home in the village of Nguntoronadi
Slamet is now unable to work and relies on handouts.
Neurofibromatosis is the name for a number of genetic conditions that cause swellings or lumps.
Although many people who have the condition inherit it from one of their parents, up to 50 per cent develop it randomly from a gene mutation before they are born.
Despite their alarming appearance, the growths and swellings - called neurofibromas and caused by a growth of cells - are not cancerous or contagious.
Slamet arrives at Regional Hospital to consult Dr. Sayidiman Magetan in East Java, Indonesia
Slamet arrives at Regional Hospital to consult Dr. Sayidiman Magetan in East Java, Indonesia
Dr. Sayidiman Magetan examines the patient. Slamet is now unable to work and relies on handouts
Dr. Sayidiman Magetan examines the patient. Slamet is now unable to work and relies on handouts
His kind-hearted neighbours in Nguntoronadi, Magetan, East Java, have started a Facebook group to try and raise enough money to fund the removal of the tumours
His kind-hearted neighbours in Nguntoronadi, Magetan, East Java, have started a Facebook group to try and raise enough money to fund the removal of the tumours
Slamet's kind-hearted neighbours in Nguntoronadi, Magetan, East Java, have started a Facebook group to try and raise enough money to fund the removal of the tumours.
In November a photo of Vinicio Riva, who also has neurofibromatosis, spread across the world when he was warmly embraced by Pope Francis at one of the pontiff's weekly audiences in St Peter's Square.
Slamet sits on the floor at his home with some companions
Slamet sits on the floor at his home with some companions
Slamet, far left, with family at his home in the village of Nguntoronadi. His family are desperate for him to be helped
Slamet, far left, with family at his home in the village of Nguntoronadi. His family are desperate for him to be helped
In November a photo of Vinicio Riva, who also has neurofibromatosis, spread across the world when he was warmly embraced by Pope Francis at one of the pontiff's weekly audiences in St Peter's Square
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In November a photo of Vinicio Riva, who also has neurofibromatosis, spread across the world when he was warmly embraced by Pope Francis at one of the pontiff's weekly audiences in St Peter's Square. Both pictured

WHAT IS NEUROFIBROMATOSIS?
Neurofibromatosis has long been associated with the 'Elephant Man,' the name given to Joseph Carey who was severely disfigured. But evidence now suggests he was suffering from another rare syndrome
Neurofibromatosis has long been associated with the 'Elephant Man,' the name given to Joseph Carey Merrick, who was severely disfigured. But evidence now suggests he was suffering from another rare syndrome
Slamet is believed to be suffering from a condition called neurofibromatosis – the name for a number of genetic conditions that cause swellings or lumps.
Although many people who have the condition inherit it from one of their parents, up to 50 per cent develop it randomly from a gene mutation before they are born.
There are two types of neurofibromatosis and this man is suffering from type one, Dr Anand Saggar, a London-based genetics expert, told MailOnline.
Despite their alarming appearance, the growths and swellings - called neurofibromas and caused by a growth of cells - are not cancerous or contagious.
The condition has long been associated with the ‘Elephant Man,’ the name given to Joseph Carey Merrick, who was severely disfigured.
However, in 1986, a new theory emerged that Mr Merrick may actually have had Proteus syndrome, a condition which involves symptoms such as abnormal growth of the bones, skin and head.
The confusion was again compounded in 2001 when it was proposed that he had suffered from a combination of neurofibromatosis type one (NF1) and Proteus syndrome.
However, DNA tests on his hair and bones have proven inconclusive.
Other symptoms of neurofibromatosis type one include flat, light brown spots on the skin.
These harmless marks, also called cafe au lait spots, are common in many people. People who have more than six spots that are bigger than half a centimetre wide should get investigated for NF1.
NF1 is a condition someone is born with, although some symptoms develop gradually over many years. The severity of the condition can vary considerably from person to person.
People with NH1 are more likely to suffer from learning difficulties and behavioural problems, a type of cancer known as malignant peripheral nerve sheath tumours, which affect around 10 per cent of people with NF1 over their lifetime, vision problems, high blood pressure and a curved spine.


http://www.dailymail.co.uk/news/article-2535149/Indonesian-man-tumour-removed-waist-hundreds-sprout-face-doctors-fear-sight.html

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Hmmmm speechless