Hello all? My ultimate hope is that you're doing fine and if stuck, you'll get out of any mess you're in. I'm writing this with a sole aim to hear any advice you can offer me. I'm much grateful in advance.

I know everyone, virtually everyone, goes through lots of problems. I acknowledge so, and concur with it that I've always had numerous downs since my birth till date. Only recently did I suffer a major challenge, but at the moment I can afford a smile.
I'm a single mother of two, the elder one being a 10-year old boy and the younger being a 6-year old girl. Unfortunately, my precious girl, Trisha, has had quite rough start
at very young age. I'm still trying to recoup from this terrifying experience we're going through.

In January 2014, my healthy,
active, intelligent 5-year-old
daughter, Trisha, came
down with what I presumed to
be some stomach virus. After a
week of doctor' visits, seeing
her left eye begin to stray and
her mouth begin to droop, my parents
insisted on having a CT scan performed.

I'll forever be grateful to my good friend and
Trisha's “second-mom,” Sheillah, who helped a lot in terms of funding and most of all, the consolation she gave me. I then came to learn that
the scarcity of tumor tissue was
generally one of the reasons for lack
of progress in the study of DIPG.
Both Sheillah and I agreed to seeking donation in attempt to rescue Trisha's life. We did fairly well and we've partially paid the hospital bills and other expenses. At one instant, we found ourselves
surrounded by doctors at the nurses’ station in
the PICU waiting to hear the diagnosis.

It was in the midst of that chaos that we were
told our daughter had
, or DIPG, an extremely rare pediatric
brain tumor that typically strikes between the
ages of 5 and 7, infiltrates the brain stem, and
has a very minimal percent survival rate.

Doctors explained that we could expect to have
9-18 months with Trisha and to take her
home and make the most of our time.
I immediately went in to “mama bear mode,”
doing everything I could to protect my daughter
from the reality of what was happening to her.
Meanwhile, Sheillah, I and some amazing
friends went to work searching out the most
reputable DIPG specialists around the world.

We discovered that since this disease, like most
, was considered “rare,” there
was little or no government funding to pay for
the research needed to find answers. As per the moment, she's still hospitalized as the research is underway. It has become too hard on me but I won't think of giving up. Medical bills are piling up, procedures are expensive and taking much longer.

If you are a parent, I am sure you can imagine
the pain of hearing that chances of getting your child's illness cured are infinitely low. I still have faith, standing strong, composing myself and praying that God makes a way out of this.

I'm trying to imagine the guilt I'll have to experience when I
look into her expectant face as she waits to
hear me tell her everything will be OK.
Our promise to her, at this point, is that we
will do everything within our power to make
her get better, all the while
hoping that there would be some miracle
discovery that could give us more time — time in
which a real cure might be found.

Please, your Advice is much welcome. As well, I hope you get to learn something from my experience. I also welcome any donations, regardless of the amount, $1,$5, $10, I'll be truly grateful as you'll have assisted greatly.

My E-mail is: rosejowi74@gmail.com

For any donation, PayPal Email : sheillahdanteh@gmail.com

Thanks all and God Bless you lots!