Abali1: I will like to ask a question and I need a matured answer from Nairalanders.

For those who are AA (or AS) and born in the 80s or 90s;

1) Do you know you could have been born with the Sickle Cell Disease?

Because most our parents that wedded in the 80s and early 90s did not go for genotype testing. It was purely based on Love or other factors.

biolabee: No one has replied so far cause no one understands your thread

Are you hastling those who are AA(that they are lucky pple) or are you trying to improve awareness (there is enough of that already)

Our parents may have not know about genotype matching but WE KNOW AND IT IS ADVISED YOU CHECK YOUR GENOTYPE COMPATIBILITY BEFORE YOU MARRY TO AVERT UNNECESSARY MARITAL ISSUES
NO BE BY FAITH
NA COMMON SENSE

Ish

baby_123: It wasn't random on my end. My mum was a qualified health professional before marriage and they got married earlier than the 80's or 90's. She screened my dad in everyway. . But I know what you are saying.

feminine A: My parents didn't know anything about gynotype but thank God they were both AA. Bringing it down to this present day where gynotype awareness is everywhere, if anyone decides to stil go ahead and marry against the result then they should both be ready to face the music.

Abali1:

The purpose of this thread is to get people aware that being an AA or AS does not make them better than someone who is SS. Yes it may seem as if SS people have more challenges, especially as kids and teenagers because they are yet to come to grasp about the peculiar health challenges.
But adult SS who understands their body rarely do have health challenges. But still the stigma stiil trails both the child who suffers SCD and the adult living with SS.

Abali1: This thread is born out of the desire to get people's opinion concerning those of us living with SS. Below is a draft questionnaire I intend distributing to people, in the course of researching Sickle Cell Disease (SCD).

QUESTIONNAIRE:

1) Did your parents do genotype testing before they got married?

2) If not, do you consider yourself 'lucky' to have escaped being born a SS?

3) Would you categorise Sickle Cell as a terminal illness alongside Cancer or HIV/AIDS?

4) With you knowledge of Sickle Cell disease, which genotype pairing do you think is the most compatible for someone with sickle cell to marry?

5) Do you think that with the right education and awareness of Sickle Cell disease, that someone living with Sickle cell can live a long, healthy and productive life?

6) In your estimation, how long do you think that a SS person can live? In other words what is the expected Life expectancy?
7) Can you marry someone living with Sickle Cell?

If NO, what are your reasons? (Please state a cogent/tenable reason)

9) Do you think a SS male can father a child?

10) Do think a SS female can carry a pregnancy to term?

11) Have you ever been in close association with a SS person?

12) If yes, do you consider them different from other people having AA or AS?

biolabee:


Ok conversely the rich should not oppress the poor as it is matter of opportunity.

If I was born in the Namib desert I would be a Bushmen lookin for the coca cola bottle

Its not about your lot in life but what you did with your time in life

biolabee:

1/2.I dont know if they did, but i am AA so i guess i am lucky
3. I dont know whether to class it as terminal cos adults manage it even to the 40s and 50s but its something i wont wish on my enemy
4. someone with SS MUST marry AA if they even survive to that age. For a woman the stress of child brearin is even another issue
5. Yes it can be managed but i hear some days can be terrible
6. Na God do answer that one
7. NO
8. Nothing more cogent that i cant leave it to chance or FAITH of having a child with SS with attendant heart painm , finance issues etc
9, Yes, as far as i know, it does not affect the gonads
10.With God on her side and good medical advice
11.No
12. n/a

Good luck on your exercise and appreciate your passion for this project to increase awareness

Abali1:
 
Biola,
I believe that for some reason(s) which I don't know, you find this thread offensive.
Being born rich or poor is not a permanent status in life and my thread is not about oppressing anybody.
Equally being born in the Namid desert is not a permanent thing also.
 
If for any reason you don't like this thread and it's making you to respond emotionally, you can click unfollow. Thank you.

biolabee: quote author=Abali1]
 
Biola,
I believe that for some reason(s) which I don't know, you find this thread offensive.
Being born rich or poor is not a permanent status in life and my thread is not about oppressing anybody.
Equally being born in the Namid desert is not a permanent thing also.
 
If for any reason you don't like this thread and it's making you to respond emotionally, you can click unfollow. Thank you.
 
Dude now you are being emotional
Because I was born a sickler should i live my live in fear
You achieve what you can given your physcal limitations
When your time comes, you leave with peace and transquility that u achieved your tasks in life
 
I dont know you so i can only relate to you based on what you post here, hence my first question what was your point
Conversely you don't know me

On the survey questionnaire, you are making a basic flaw in your assumption that I an reacting to hear say

I am AA yes but why would I risk my marital life by marrying an SS who may not survive the rigour of childbirth. That to me is common sense

I may marry an AS but that's where it stops for me

baby_123: Is this questionnaire necessary? I think dealing with the disease is enough. You don't need people's bias written out for you to even get more down about. Ah! Life is for the living o. You are already dealing with enough. And positivity goes a long way for a healthy and long life.

Abali1:

I am impressed about how you answered the questions. Again, if you are AA, THERE IS NO WAY YOU CAN HAVE A SS CHILD.

Thank you.

Abali1:

Baby, the questionnaire is necessary. I have gone beyond looking at things subjectively.

For instance the two people who have responded to the questionnaire seems to have the uncommon belief that as AA they might actually father a SS child by marrying SS.
That is where educating the populace about genotype pairing comes in.
Hope you will help out with the questionnnaire.
Thank you.

Abali1:
About having fear that your spouse may die young, is another reason why am having this survey. The awareness of SS is still very low and most of those that claim to know much about SS, don't really know as much as they claim.
Thank you.

biolabee:

Please can you elucidate us
I hear the child birth process can be physically exhausting
In a poor medical world like our country here, what can be done

Abali1: This thread is born out of the desire to get people's opinion concerning those of us living with SS. Below is a draft questionnaire I intend distributing to people, in the course of researching Sickle Cell Disease (SCD).

QUESTIONNAIRE:

1) Did your parents do genotype testing before they got married?
Yes, they did.

2) If not, do you consider yourself 'lucky' to have escaped being born a SS?
Never thought of it that way

3) Would you categorise Sickle Cell as a terminal illness alongside Cancer or HIV/AIDS?
. I wouldnt consider it as bad as AIDs or CANCER. I am sure treatment has improved and gotten better, but the odds we grew up seeing were not encouraging.

4) With you knowledge of Sickle Cell disease, which genotype pairing do you think is the most compatible for someone with sickle cell to marry?
AA

5) Do you think that with the right education and awareness of Sickle Cell disease, that someone living with Sickle cell can live a long, healthy and productive life?
Yes, with the right medicine. I think African's should be looking for a solution. Sickle cell hasnt been given the attention it should have because it is a disease exclusive to those of African extraction. Which is a fraction of the worlds population.

6) In your estimation, how long do you think that a SS person can live? In other words what is the expected Life expectancy?

From experience? 40's. Talking about what i have seen around me.
7) Can you marry someone living with Sickle Cell?
N/A - If i could though, i really cant say. Because as humans we shock ourselves sometimes. But i will say that you should have a policy of opening up about you condition to every potential mate.

If NO, what are your reasons? (Please state a cogent/tenable reason)

9) Do you think a SS male can father a child?
Yes, definitely.
10) Do think a SS female can carry a pregnancy to term?
Yes, definitely. See T-Boz

11) Have you ever been in close association with a SS person?

Yes, i have had quite a few friends.

12) If yes, do you consider them different from other people having AA or AS?
Well no, but i do understand their limitations and try to accommodate them.

Winneygirl: It pains me to hear adults say they don't know their genotype. I didnt, but I'm glad I do now. I wouldn't have known I am AS.But I am somehow alarmed that there are so many AS genotype people out there. I have learnt to ask appropriately before stepping into any relationship. Saves a lot of headaches/heartaches.