opeoluwa2: Well for me,I'm lucky not to be an SS because my parents never had the genotype test before marriage.Fortunately for me I am AA.

Being SS is not a crime but our society look down on them as weak and unhealthy.They are always fragile with yellowish eyeball and staunted growth.

A lot of awareness still has to be done,just last week a family friend complained on how he ignorantly married his sweetheart who is AS and he too happens to be AS.The lady got pregnant before marriage and there was no time for bloodtest.After delivery they started noticing some abnormalities in the baby's health.
The doctor told them to do a blood test and both of them were AS.we are yet to ascertain the baby's genotype but both parent were praying the baby shouldn't be SS.

I was angry when I found out,but I don't blame them because samething happened to me.I never asked my husband about his genotype until we were way too deep into the relationship,lucky for us we are AA.

So many people are into relationship that is way too deep even after they comfirm their genotype,they always try to attack it with faith.believing their children will be free from SCD not minding their own status.

No child deserves to suffer,
SCD challenges can be avoided.

queen binte o: @ OP - come to facebook let's chat. All will be well ma guy

Ladapo:
it turned out to be "AD" ...even doctors here are confused about it but they said we could have a child with SD which is like SS...remember my wife is AS and now I am AD. It is my hope that I don't have anymore kids in order not to get into the possibilities and now, I have to lecture my daughters ( 1st girl is 3 and 2nd is less than 1) on the need to get married to AA genotype husbands cause they re already classified as AD.

My questions are:
1. Has anyone heard about AD before?
2. You really have to be sure of your genotype before marriage...please, please and please, though I did mine twice before leaving Nigeria.
3. Can someone lecture us all on the different types available?

uhuns: 1. guys pls stop quoting long post.

2. I will advise all to go for a min of 4 test at different times and places.

3.I have two different families with ss Kids age 10 and 6.they just got to know last yr and this yr. and they all claim to know their genotype prior to marriage.
5. or maybe a dna should suffice.

moral of the above is in item 2.

Ladapo: Thanks for this level of Awareness aballi and I will want to encourage young couples of today to take this issue of genotype seriously before marriage. However, there is an issue I am still very confused about...I live in Canada but before relocating to Canada, have had to do my blood sampling twice and it was the basis of the result that I got married to my wife who is AS....I was told I was AA on the 2 occasions I had my tastings in Nigeria but when I got to Canada and we had a cause to do the testing again, it turned out to be "AD" ...even doctors here are confused about it but they said we could have a child with SD which is like SS...remember my wife is AS and now I am AD. It is my hope that I don't have anymore kids in order not to get into the possibilities and now, I have to lecture my daughters ( 1st girl is 3 and 2nd is less than 1) on the need to get married to AA genotype husbands cause they re already classified as AD.

My questions are:
1. Has anyone heard about AD before?
2. You really have to be sure of your genotype before marriage...please, please and please, though I did mine twice before leaving Nigeria.
3. Can someone lecture us all on the different types available?

ifeci: Pls for those of us living with Sickle cell disorder or who have children with sickle cell or who knows someone with sickle cell, pls b advised that there is a drug called "Ciklavit" and its for the management of sickle cell; I knw ppl who use it and it helps them. Ask your pharmacist or check any pharmacy store. pls ensure u chck ur genotype b4 marriage cos prevention is better than cure.

queen binte o: @ deco - remember me? Ow far wit the medicatn? I stil have your cane here. You kno wat am talkin abt. @ Abali - tell him o

eahk:

Yeah Ciklavite is a syrup for kids only.
But Hydroxyurea is for Both and its use should be supervised.

eahk:

Yeah Ciklavite is a syrup for kids only.
But Hydroxyurea is for Both and its use should be supervised.

Abali1:

Assuming you are still single, do you think you can marry a SS (since that is the only compatible genotype for a SS)?
If Not, please can you give your reason(s)?

mujiboy: . If truly there is a cure for SCD then it isn't even publicly known, though I believe there ia a cure to every disease unless its unknown yet. Won't mind if U can enlighten on the range of cost and some other conditions,

Winneygirl: It pains me to hear adults say they don't know their genotype. I didnt, but I'm glad I do now. I wouldn't have known I am AS.But I am somehow alarmed that there are so many AS genotype people out there. I have learnt to ask appropriately before stepping into any relationship. Saves a lot of headaches/heartaches.

jaidopor: A question for everybody,

Do you start a relationship based on genotype? Imagine meeting a girl and the first question you ask her is her genotype?

I have witness a real life situation where the bride refused to show up for her marriage because she is AS and the groom is AS too. She got to know 3 weeks before the marriage date and when she told the groom that the marriage is off, the guy thought she was joking. Only for her not to show up on her marriage day.

The point is marriage is all about risk. The probability of successful marriage is 20%. For the probability to be higher and for couples to have a successful marriage, then both the party have to sacrifice to make the marriage work. So, marriage is all about taking risk.

I like this person, like ur comment, i have 3 different genotype result then which should i beleive is the right one, so i should not get married?



My personal view is that if you dont want to take a risk by marrying an AS then there are other aspect of the relationship that you will not take risk on. The probability of 2 AS's having a child with SCD is 25% out of 4 kids. The child with SCD can be the 1st, 2nd,4th and 3rd kids. Have you ever thought about having 3 kids with no SCD child if you are lucky (it has happen before - 2 AS's marrying each other and they dont have any SCD kids). It a risk.

How about 2 AA's having kids with gene / DNA disorder. It can happen to anyone. How will you test against that? Or child with birth defect. How will you prevent that? How about 2 AA's having kids that turn out to wayward. I have seen parent curse the day they gave birth to some kids and parent saying that its better not to have kids than have bad ones.

Life is all about risk. The man or the woman that you rejected based on genotype might be the person that will bring happiness into your life and you achieving your aim in life.

I am AA but genotype is not a determining factor for me when i want to get married. I am a risk taker.

palmasglobal:
my dear, lets it not pain you, anyone can be a victim after the test, in which i am one, before my wedding we went for this genotype test, i did mine at eco-scan and my wife to be then who is now my wife did hers at ecwa medical center, we were compatable and recommended to be wedded in which we did, we had our fisrt issue, and second issue as well, but the second issue was always fallen sick, when we went for genotype test on her we were told she is SS, can it be possible? we now have to do another test on her we were told she is an AA, we went i and my wife to do another test we found out another different genotype compare to our first test, we went to another lab we now have different result again compare to the 2, pls in this situation who do i blame, i have 2 different genotype result, in this case what do i do and which should i beleive. pls advice. thank u.

amarush: Smh at all this misdiagnosis. Same thing with my husband, two tests in Nigeria both results AA. Husband was tested in the UK at the insistance of the hospital after I got pregnant and I tested AS. Husband result came back AS. Anyway we have to beautiful children, first born AA, second AS. Both pregnancies opted to have CVS, a procedure where a needle is inserted through your stomach to extract amniotic fluid to test for SS in the babies. 2 week wait for the results, the longest two weeks of my life.