I was full of emotions reading this story and just feel like sharing....This is simply COURAGE TO LIVE!


Paulo Henrique Machado has lived almost his entire life in hospital. As a baby he suffered infantile paralysis brought on by polio, and he is still hooked up to an artificial respirator 24 hours a day. But despite this, he has trained as a computer animator and is now creating a television series about his life.

The Brazilian's first memories are of exploring the hospital he has lived in for 45 years by wheelchair.

"I explored up and down the corridors, going into the rooms of other children that were here - that is how I discovered my 'universe'," he says.

"For me, playing football or with normal toys wasn't an option, so it was more about using my imagination."

Machado's mother died when he was two days old, and as a baby he contracted polio - the result of one of the last big outbreaks of the disease in Brazil.

The children on the 'polio ward' in the Clinicas Hospital
Ligia Marcia Fizeto, Machado's nursing assistant, began working in the hospital - Sao Paulo's Clinicas - shortly after he arrived.

"It was very sad to see all those children, all lying there immobilised in their beds, or with very little movement," she says.


A highly infectious viral disease that mainly affects children under five
Can cause irreversible paralysis
There is no cure, but polio vaccine given multiple times can protect a child for life
Afghanistan, Nigeria and Pakistan are the only countries left with endemic polio

In the 1970s, children with polio were encased in a "torpedo" - a body-encasing iron lung - and doctors at the hospital gave grim assessments of the children's prospects. Few in the "polio ward" were expected to reach adolescence - their life expectancy was just 10 years.

With very limited mobility, Machado's world formed around the friends he made on the ward.

"There was me, Eliana, Pedrinho, Anderson, Claudia, Luciana and Tania. They were here for a good length of time too, more than 10 years," he says.

With the innocence of childhood, he never imagined that they would be parted. But by 1992, some of the children had begun to deteriorate - one by one, his friends began to die.

"It was difficult," says Machado. "Each loss was like a dismembering, you know, physical… like a mutilation," he says. "Now, there's just two of us left - me and Eliana."

Machado and Zagui (L) have grown up together
Doctors don't quite understand why the pair outlived their peers by so long, but now every day in the ward, Machado wakes up with his bed facing that of his remaining friend and lifelong neighbour, Eliana Zagui. He says their relationship is crucial. "Some people think we are like husband and wife, but we are more like brother and sister," he says.

“
I opened the car door and saw the sea and thought 'Wow! What is this!”Paulo Machado

"Every day, when I wake up I have the certainty that my strength is over there - Eliana. And it's reciprocated. I trust her and she trusts me."

Despite this the two fight virtually every day, Machado says with a laugh. "I think that's normal between brother and sisters or a couple. But it's not an argument where one side feels offended, you end up reflecting and think, 'OK, I forgive you'," he says.

The danger of infection means that they have to live in hospital. Trips outside are rare but memorable, says Machado, who estimates that he has been outside of the hospital at least 50 times in total, more in recent years. Advances in medical technology mean that going out involves less heavy equipment and less medical supervision - and as they have got older, Zagui and Machado are prepared to take more risks.

Machado and Zagui at the beach
"There are some [trips] which stand out, like seeing the beach for the first time when I was 32. "I opened the car door and saw the sea and thought 'Wow! What is this!" he says.

It was Eliana Zagui's first time to visit the beach too. "I knew the beach only from photos, films, postcards, stories from other people - so I had built up an image in my mind of what the sea and the beach would be like," she recalls. "They took us out of the vehicles, Paulo was in a wheelchair and they pushed my bed onto the sand.

She remembers feeling the sea water with her hands for the first time. "You enjoy these little moments, that many people take for granted. They don't stop to marvel like we do," she says.


In the ward, Zagui fills her time writing - she is a published author - and painting using her mouth.

Because the pair have been living in the hospital for so long, they are allowed to decorate their room with their own possessions. Zagui's side is filled with dolls and books - and being a confirmed cinephile, Machado's is full of film memorabilia. He also has two powerful computers, as he has been able to train in hospital as a computer animator.


Paulo Henrique Machado spoke to Outlook on the BBC World Service


In May this year he reached his target - $65,000 (£44,000) - in an online campaign to raise finance for a 3D animated film series called The Adventures of Leca and her Friends, based on a book that Zagui wrote which he will direct.

The animation will feature a stop-motion technique, similar to that used by Aardman animations in films such as Wallace and Gromit.

Machado wanted to portray his life with Zagui - also known as Leca - and their friends. "I wanted to make it attractive, not just colourful but full of the mischievous games that kids get up to. I think my characters are realistic, because they come from someone who is disabled. I know [exactly] what the difficulties they face are," he says.


Cartoonist Bruno Saggese, who has been helping Machado with his film project for the last two years, says that when he first came to the hospital to help him with his designs, he was struck by the calm and relaxed atmosphere in Machado and Zagui's room.

"You are in an environment where there are patients in a critical state, worried family members, doctors and nurses running around. But when I went into their room, it seemed like a world apart," he says.

Machado is always telling jokes, he says. "This helps a lot with our work, and a lot of this dialogue between us ends up in the animation. It really is a reflection of him."

Nursing assistant Ligia Marcia Fizeto is extremely proud of Machado's achievements. "My heart is full of happiness that he could achieve one of his objectives, which is to make a film. "It's amazing where they've got to isn't it?"

Source http://www.bbc.co.uk/news/magazine-23364127

Oboy!!! No source no Pix! Are u a learner?

UPDATE:
Now, u're talking!! @story: hmm! Wot a life?

You mean 45years? Gosh! I hate the thing called sickness. I hate the thing called fate.

nchewi: Oboy!!! No source no Pix! Are u a learner?

updated....guess u're happy now...sure u didnt even finish reading the story before commenting coz I uploaded the sourece and the pix in a space of 2 minutes of initial upload....and u cudnt av finished reading before that time frame.....just keep it cool before asking if someone is a learner..OK?

Goose bumps.

walexyll:

Doctors don't quite understand why the pair outlived their peers by so long, but now every day in the ward, Machado wakes up with his bed facing that of his remaining friend and lifelong neighbour, Eliana Zagui.

This throws back the question into the air...there is nothing absolute in this our world we live....we live in a world of mysteries which the little we know was dicsovered through trials and errors....It's also a pointer to the fact that there is a supreme being above all of us who just laugh at the disillussioned group of people who referred to themeselves as atheists

why let him suffer and not do a 'mercy killing' smh

What a life.

Yungwizzzy: why let him suffer and not do a 'mercy killing' smh

We all suffer in one way or the other-whether physically, Medically, emotionally or spiritually. But have we been advised to die?...He chose to LIVE and he's made good use of his life...His animation would be out soonest...by the way, I dont think you read the full story before commenting!..coz there was no mention in the article that he goes through excruciating pain on a daily basis that could bring in the option of a mercy killing....and you should read up when euthanasia is considered....u probably commented based on the heading.

Lesson Learnt: You don't need to be perfectly fit to live a life of service and happiness.

We really don't have an excuse not to live 'right'
Do we?

[quote author=Yield][/quote]

hmmmmm....Yield and Adaobi

adaobi123:

Wetin happen ?

....just curious why she kept following u up and down

walexyll:

....just curious why she kept following u up and down

walexyll:

updated....guess u're happy now...sure u didnt even finish reading the story before commenting coz I uploaded the sourece and the pix in a space of 2 minutes of initial upload....and u cudnt av finished reading before that time frame.....just keep it cool before asking if someone is a learner..OK?

Funny enough, I did. I read it 4rm start 2 finish b4 posting! Ur network must be slow man! Lol