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Ari Wibowo sheds his skin
like a snake every 41 days and
must constantly smear his
body with moisturiser to stop
it hardening and seizing up.

The Indonesian teenager has a
rare skin condition that
doctors in Indonesia have
been unable or unwilling to
treat and which has left him
with an extraordinary appearance. He suffers from
Erythroderma, an
inflammatory skin disease
also known as 'red man
syndrome', that causes the
skin over almost the entire body to become scaly and
flake off. Ari has shed his skin every 41
days since he was born 16
years ago. He must soak his
body in water every hour -
night and day - and smear
himself with lotion every three hours to prevent drying
out. Photographer Nurcholis
Anhari Lubis, 35, has
documented the little boy’s
condition as part of an essay
project and describes the
boy's skin condition as ‘scaly like a snake about to shed his
skin’. ‘It’s really sad because he was
not born normally and has
scaly skin all over his body,
similar to being severely
burnt, from the sole of his
feet up to his head,’ Mr Lubis told Daily Mail Australia. ‘If the boy doesn't moisturise
or soak his skin in water, his
body would shrivel and
harden up like a sculpture and
he won't be able to move,' Mr
Lubis said. 'If he leaves it unattended for
too long, he won’t be able to
speak because the wrinkles
inside his mouth would go
hard and it would dry out all
his blood in his body.' Mr Lubis said Ari's family
were told by doctors at the
hospital where he was born
that it did not have the
resources to treat the
condition, and asked them to take the infant away. He and his family now live by
a routine of constant washing
and dressing his skin with
creams. Still, the boy is trying to live a
normal life in his village. 'He eats normal food like
everyone else and his
favourite snacks are instant
noodles and crackers,' Mr Lubis
said. ‘He had trouble making
friends when he was younger
and would often go and play
with the other kids but most
of the time, they would avoid
him because he is different to everyone else.' Ari is taking lessons, but is
forced to study alone because
of ignorance about his
condition in the community. ‘No schools are willing to
accept him because they fear
his skin condition would be
contagious to teachers and
other students,' Mr Lubis said. Ari also suffers prejudice
because of superstitions in his
village. Mr Lubis said many people
blame Ari's condition on a
superstition that if a woman
mistreats animals while she is
pregnant then it will affect
her unborn child. Some people believe Ari's
mother ‘tortured a lizard’ she
found in the family home
when she was pregnant with
Ari. ‘I do not believe the myths
but in Indonesia, there are still
a lot of people who believe
this,’ Mr Lubis said. Jakarta-based Mr Lubis spent
four days with the little boy
and his family. ‘When I approached Ari for a
photo shoot, he looked very
shy but didn't feel
embarrassed and was happy
to share his story,’ he said. ‘My interests have been to
document lives and the way
humans live in their own
world, interacting with it and
struggling to change it into
their own way.' Ari has trouble talking
because of the condition and
the vision in his right eye is
impaired, while the left must
be kept moist with constant
drops

i pity him.
Sorry

The only surprising thing to me is that he's from Indonesia, and not India.
With all the abnormalities and human deformity in India, I'm sometimes forced to think that there is a "China Human Maker" somewhere, who is "refurbishing" them.

Extom: The only surprising thing to me is that he's from Indonesia, and not India.
With all the abnormalities and human deformity in India, I'm sometimes forced to think that there is a "China Human Maker" somewhere, who is "refurbishing" them.

bro I don't understand you.

Extom: The only surprising thing to me is that he's from Indonesia, and not India.
With all the abnormalities and human deformity in India, I'm sometimes forced to think that there is a "China Human Maker" somewhere, who is "refurbishing" them.

lol.

Nobleval: bro I don't understand you.

Not for the weak hearted.

Extom:
Not for the weak hearted.

huh? Do I look like a weakling to you?

Nobleval: huh? Do I look like a weakling to you?

let it slide man. Why are you digging for water in a desert?
You might not look like a weakling(though I can't see you), but the idea of trying to blow this out of proportion by sounding pained, is not a trait of the strong.
#LastReplyThough

Extom:
let it slide man. Why are you digging for water in a desert?
You might not look like a weakling(though I can't see you), but the idea of trying to blow this out of proportion by sounding pained, is not a trait of the strong.
#LastReplyThough

I don't understand you bro.