I actually don't have a topic for this, and I am using this simply as an outlet because I fear I am losing my mind. How do you hold on when you feel like you are losing the battle for your child's life?
How do I hold on when I can see all the signs that it is not working. After putting this little girl through a gruelling treatment, I can see it failing. She is holding on, she is fighting but for how much longer. I would take this pain a million times over for my little girl. Will her sisters sacrifice be for nought? She donated to her sister in the hope that it would make a difference but I just can't see it now. I have cried for so long I have no more tears. I am depressed, I should be strong but she is my strength. I am weak and she is strong. The thought that she may not make it kills me. I can survive a lot but I don't think I could make it through that. 4 years of her life we have fought. All I want is for her to catch a break, to have a normal life, to be free of pain. Is that too much to ask?
There are brief moments when her laughter fills the air and that sound brings joy to all of us but these moments are so far and few. My other rock reminds me there is hope, things may turn around, but today I am consumed by fear, I am frozen. I know we should think of end-of life plans just in case but how can I for a seven year old with so much promise? Why should it be so hard? Where is that magic wand to wave over her and have all these bad stuff go away? If wishes were horses beggars would ride and right now I am a beggar, begging Jehovah to give me a miracle. Everything humanly possible I am doing, I just need a miracle.

Take heart. May it be well with your little angel.