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Nairaland Forum / Nairaland / General / Family / Please I Need Help On How To Manage A Child With Ss Gene (2085 Views)
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Please I Need Help On How To Manage A Child With Ss Gene by Joyfulgal: 3:19pm On May 27, 2020 |
We just discovered my nephew has ss gene. Please we need help on how to manage him. Food, supplements and herbs if possible. He is seven years old |
Re: Please I Need Help On How To Manage A Child With Ss Gene by Bola146(f): 3:44pm On May 27, 2020 |
Sorry for that. All you need now is prayers. Also try medications 1 Like |
Re: Please I Need Help On How To Manage A Child With Ss Gene by SweetCunt97(f): 4:42pm On May 27, 2020 |
Wow, I think going to d hospital 3 Likes |
Re: Please I Need Help On How To Manage A Child With Ss Gene by NobleAngell(f): 4:46pm On May 27, 2020 |
7 years? Haba people still make this mistake? Anyways, you need to see a pediatrician who can help you out. I must warn you, It's gonna be a long bumpy ride but God will see you through. 2 Likes |
Re: Please I Need Help On How To Manage A Child With Ss Gene by HoliMaree: 4:51pm On May 27, 2020 |
Get him a personal nurse asap 1 Like |
Re: Please I Need Help On How To Manage A Child With Ss Gene by thorpido(m): 4:53pm On May 27, 2020 |
He'll need to be on routine drugs...folic acid especially. You also prevent him from malaria and avoid stress. 3 Likes |
Re: Please I Need Help On How To Manage A Child With Ss Gene by Pavore9: 5:09pm On May 27, 2020 |
Joyfulgal: Keep him away from junk food, vegetables and fish are highly recommended, vitamins and folic acid intake must be on a daily basis, keep away from high energy exerting activities, mosquito nets must be around to lessen malaria attacks and make sure you have a pediatrician who will manage him. Though the road ahead will be bumpy but good management will be very key. My elder brother is a carrier of sickle cell and the journey wasn't a joke but we pulled through as a family, today he is married with kids who are AS. 16 Likes 3 Shares |
Re: Please I Need Help On How To Manage A Child With Ss Gene by Nobody: 5:40pm On May 27, 2020 |
There was a topic here by one sickle cell guy which ran for yrs I think. The guy has deactivated. Type sickle cell and search. I think the guy is married now. All you need about this disease is in detail on that thread. Good luck to you guys 3 Likes |
Re: Please I Need Help On How To Manage A Child With Ss Gene by sisisioge: 6:12pm On May 27, 2020 |
Wow! My heart just slammed on my chest. Biko go to the hospital and encourage his parents to do family planning. May the love that joined them together in the first place see them through this...may God bless the boy with good health. It is well. 1 Like |
Re: Please I Need Help On How To Manage A Child With Ss Gene by makems(f): 8:05pm On May 27, 2020 |
Please contact Nichole dietary consultant on telegram. She is going to guide you |
Re: Please I Need Help On How To Manage A Child With Ss Gene by Joyfulgal: 8:12pm On May 27, 2020 |
makems: Thank you very much. |
Re: Please I Need Help On How To Manage A Child With Ss Gene by Joyfulgal: 8:13pm On May 27, 2020 |
Bola146: Thank you |
Re: Please I Need Help On How To Manage A Child With Ss Gene by Joyfulgal: 8:17pm On May 27, 2020 |
SweetCunt97: He is currently on admission but we are making plans on her to manage him subsequently. It was discovered today. Someone suggested an Hermatologist Paediatrician. So that's the next move. Thank you |
Re: Please I Need Help On How To Manage A Child With Ss Gene by Joyfulgal: 8:19pm On May 27, 2020 |
NobleAngell:1 Hmmmmm. Enquiring for my elder sister. It falls on us the family now. Reason I am gathering all the information I can get. We need to be there for her 1 Like |
Re: Please I Need Help On How To Manage A Child With Ss Gene by Joyfulgal: 8:21pm On May 27, 2020 |
HoliMaree: Thank you very much 1 Like |
Re: Please I Need Help On How To Manage A Child With Ss Gene by Joyfulgal: 8:22pm On May 27, 2020 |
thorpido: Thank you |
Re: Please I Need Help On How To Manage A Child With Ss Gene by Joyfulgal: 8:24pm On May 27, 2020 |
Pavore9: Thank you. You have eased our thoughts. Heavy burden ahead and alot of uncertainties. |
Re: Please I Need Help On How To Manage A Child With Ss Gene by Joyfulgal: 8:25pm On May 27, 2020 |
sassysure: Thank you. I will research now I searched yesterday and didn't get anything. Will keep on searching |
Re: Please I Need Help On How To Manage A Child With Ss Gene by Joyfulgal: 8:26pm On May 27, 2020 |
sisisioge: Amen and Amen |
Re: Please I Need Help On How To Manage A Child With Ss Gene by jidamsel43(m): 8:35pm On May 27, 2020 |
You need register him at any sickle cell foundation near you. |
Re: Please I Need Help On How To Manage A Child With Ss Gene by Joyfulgal: 9:07pm On May 27, 2020 |
jidamsel43: Thank you. Although they are in delta state. Will research more |
Re: Please I Need Help On How To Manage A Child With Ss Gene by Nobody: 9:14pm On May 27, 2020 |
Bola146: Will prayers change his genotype from ss to aa? All these religious fanatics sha.. 2 Likes |
Re: Please I Need Help On How To Manage A Child With Ss Gene by merieam16(f): 9:17pm On May 27, 2020 |
hmmm...dis is serious. Love is nt blind o, This is indeed a costly mistake May God grant the boy good health |
Re: Please I Need Help On How To Manage A Child With Ss Gene by CAPSLOCKED: 9:52pm On May 27, 2020 |
Bola146: IT IS EASIER FOR A DEAD MAN TO SWALLOW THE ENTIRE MOUNT EVEREST THAN FOR PRAYERS TO CURE COMMON TYPHOID & MALARIA. 6 Likes 2 Shares |
Re: Please I Need Help On How To Manage A Child With Ss Gene by Nobody: 10:22pm On May 27, 2020 |
Joyfulgal:I checked it but couldn't find it. I have been trying to remember his name. Anytime I do, I will tag your thread. That thread has the most comprehensive and up to date everything on how to take care of a sickler from a sicklers experience. Good luck. My cousin is one. She is an accountant now. She take folic acid and anytime she says she is weak, know she is really weak and need to rest. Sometimes she will be full of energy today and will be so busy, the next day she is on drip. I wish u guys the best |
Re: Please I Need Help On How To Manage A Child With Ss Gene by Joyfulgal: 12:12am On May 28, 2020 |
merieam16: Amen and thank you |
Re: Please I Need Help On How To Manage A Child With Ss Gene by Joyfulgal: 12:14am On May 28, 2020 |
sassysure: Thank you. Will continue my search tomorrow |
Re: Please I Need Help On How To Manage A Child With Ss Gene by DBestDoc(f): 2:16am On May 28, 2020 |
Pavore9: @ Joyfulgal The post above covers most of what you can do for him. Daily folic acid intake and malaria prophylaxis with any antimalarial prescribed by his Doctor.(we use proguanil) You guys should try to keep him hydrated (drinking plenty of water) and protect against mosquito exposure/malaria or any infection at all. Any kind of stress whether physical or otherwise is not for him, extreme temperature exposures should be avoided too. For him, prevention is better than cure. Following these rules will help to reduce the frequency of crisis he will encounter but doesn't eliminate the crisis. There are times he'll have joints and body pains mild enough to be relieved with common analgesics but some may be extremely severe enough to warrant stronger prescription analgesic. He must be taken to hospital when he's sick for proper management and care(no home remedies), pay mind to his health complaints. Some kids are taken in and out of the hospital quite often while it's a rare occurrence for others. it all depends on how much his family invests in his wellbeing and luck to an extent. You guys give him the best you can, support him emotionally too and hope for the most desirable outcome. *Hugs to him 3 Likes |
Re: Please I Need Help On How To Manage A Child With Ss Gene by elektra(f): 2:26am On May 28, 2020 |
Bola146: See logic Use prayer first and foremost, then consider medication later Religion has fried your brain 1 Like |
Re: Please I Need Help On How To Manage A Child With Ss Gene by armyofone(m): 2:40am On May 28, 2020 |
You mean Abali ? sassysure: |
Re: Please I Need Help On How To Manage A Child With Ss Gene by frozen70(f): 2:47am On May 28, 2020 |
Joyfulgal: Try and Google it and also get more details from the hospital and join the SS club to get more knowledge |
Re: Please I Need Help On How To Manage A Child With Ss Gene by DBestDoc(f): 2:55am On May 28, 2020 |
Joyfulgal: Yeah, lots of uncertainties but keep positive. My heart goes out to the young man. It's a battle for survival, you guys don't give up on him. He can win this. I've seen a case of SCD diagnosed for the first time at 39 in a first time mother in labour. Of course she didn't accept she had Sickle cell disease 'cause she'd never been told or diagnosed prior and the investigation had to be repeated after much vexing and arguments from her. It must have been very very mild for her to live with it undiagnosed till that age. Some people are that lucky. From Family hx, 5 siblings 3 late, 2 surviving and she's one of the two survivors. Guess her other 3 siblings weren't as lucky. LUCK LUCK! God bless the Lad. |
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