Bola146:
Sorry for that. All you need now is prayers. Also try medications

armyofone:
You mean Abali ?

armyofone:
You mean Abali ?

sassysure:

U get good memory

I think it has something attached to it.

DBestDoc:


Yeah, lots of uncertainties but keep positive.

My heart goes out to the young man. It's a battle for survival, you guys don't give up on him. He can win this.

I've seen a case of SCD diagnosed for the first time at 39 in a first time mother in labour.

Of course she didn't accept she had Sickle cell disease 'cause she'd never been told or diagnosed prior and the investigation had to be repeated after much vexing and arguments from her.

It must have been very very mild for her to live with it undiagnosed till that age. Some people are that lucky.

From Family hx, 5 siblings 3 late, 2 surviving and she's one of the two survivors. Guess her other 3 siblings weren't as lucky.

LUCK LUCK!
God bless the Lad.

DBestDoc:



@ Joyfulgal
The post above covers most of what you can do for him. Daily folic acid intake and malaria prophylaxis with any antimalarial prescribed by his Doctor.(we use proguanil)

You guys should try to keep him hydrated (drinking plenty of water) and protect against mosquito exposure/malaria or any infection at all.

Any kind of stress whether physical or otherwise is not for him, extreme temperature exposures should be avoided too.

For him, prevention is better than cure. Following these rules will help to reduce the frequency of crisis he will encounter but doesn't eliminate the crisis.

There are times he'll have joints and body pains mild enough to be relieved with common analgesics but some may be extremely severe enough to warrant stronger prescription analgesic.

He must be taken to hospital when he's sick for proper management and care(no home remedies), pay mind to his health complaints.

Some kids are taken in and out of the hospital quite often while it's a rare occurrence for others. it all depends on how much his family invests in his wellbeing and luck to an extent.

You guys give him the best you can, support him emotionally too and hope for the most desirable outcome.

*Hugs to him

frozen70:


Try and Google it and also get more details from the hospital and join the SS club to get more knowledge

armyofone:
You mean Abali ?

may01:
Op, my best friend is also a carrier of this gene.
Water is the most important thing you can give to your nephew, he should drink clean water a lot, at least 3 liters daily.
Also, he needs to take his medications religiously. There are different medications he can take to manage his pain, but you have to be careful as most of them are addicted to pain meds, due to constant use. You should contact a medical professional, like have a doctor's number, whom you can call whenever he's having crisis, as hospital visits are financially draining.
You need to be gentle with him, because after some time, he's going to be frustrated with taking so much drugs and missing out on so much of his childhood activities.

Also, his family needs to be careful with his hygiene, as they are easily disturbed by bacterial infections. They need to be strong and gentle with him. Teach him that none of this is his fault, and that this isn't a death sentence.

God be with you.

sassysure:

U get good memory
Shit
I almost gave myself headache trying to remember this name

may01:
Op, my best friend is also a carrier of this gene.
Water is the most important thing you can give to your nephew, he should drink clean water a lot, at least 3 liters daily.
Also, he needs to take his medications religiously. There are different medications he can take to manage his pain, but you have to be careful as most of them are addicted to pain meds, due to constant use. You should contact a medical professional, like have a doctor's number, whom you can call whenever he's having crisis, as hospital visits are financially draining.
You need to be gentle with him, because after some time, he's going to be frustrated with taking so much drugs and missing out on so much of his childhood activities.

Also, his family needs to be careful with his hygiene, as they are easily disturbed by bacterial infections. They need to be strong and gentle with him. Teach him that none of this is his fault, and that this isn't a death sentence.

God be with you.

sassysure:

U get good memory
Shit
I almost gave myself headache trying to remember this name

Greatzeus:
How this is strong I pray God give you the wisdom you need to take good care of him. It won't be easy but you shall overcome IJN

armyofone:
Abali1

@Abali, if you are reading this, hi to you and I hope you and your family are doing great.

sassysure:

Oh lala
He is still here o but don't log in again.
Hope all is well with him.
Joyfulgal, take your time to go through his posts. He is an encyclopeadia of anything sickle cell or related to it.
It's well.

Joyfulgal:


Thank you

sassysure:

Oh lala
He is still here o but don't log in again.
Hope all is well with him.
Joyfulgal, take your time to go through his posts. He is an encyclopeadia of anything sickle cell or related to it.
It's well.

armyofone:
That's great - family first i guess
Good morning

@ Joyfulgal please keep it up!. You are a wonderful person - Sourcing for help for your family is commendable! Please no churching pastors for prayers. Your usual prayers is okay.

Make sure his bed has nets, drinking water to stay hydrated, good food, vegetables, fruits etc
Like sassysure said, read through Abali's thread.

Joyfulgal:


Thanks dear. He is responding just joint ache and low PVC. He stays in warri but will deliver all the messages to my sister and ensure all measures are put in place.
Thanks

Joyfulgal:


Thanks dear

Joyfulgal:
We just discovered my nephew has ss gene.
Please we need help on how to manage him. Food, supplements and herbs if possible.
He is seven years old

armyofone:
Abali1

@Abali, if you are reading this, hi to you and I hope you and your family are doing great.