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Nairaland Forum / Nairaland / General / Health / My Fiancée Has Amyotrophic Lateral Sclerosis (ALS), She Is Always In Pains (68357 Views)
My Fiancée Just Took Her Own Life / Stem Cell Amyotrophic Lateral Sclerosis Treatment / Please Help, My Kid Sister Is In Pains (pics) (2) (3) (4)
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Re: My Fiancée Has Amyotrophic Lateral Sclerosis (ALS), She Is Always In Pains by MarianaTrench: 11:12am On May 19, 2019 |
Newguyhere: What this guy said is the bitter truth OP, you're toying with financial ruination! |
Re: My Fiancée Has Amyotrophic Lateral Sclerosis (ALS), She Is Always In Pains by Newguyhere: 11:12am On May 19, 2019 |
Just dump her my guy. This country is too hard to be nursing one chronic illness. Do you want to father children with someone with terrible genes 3 Likes |
Re: My Fiancée Has Amyotrophic Lateral Sclerosis (ALS), She Is Always In Pains by orisunmibare01(m): 11:12am On May 19, 2019 |
only if we can do some jazz to transfer that sickness to those people advertising bet and sex stuffs on the front page 25 Likes 2 Shares |
Re: My Fiancée Has Amyotrophic Lateral Sclerosis (ALS), She Is Always In Pains by rusep: 11:13am On May 19, 2019 |
I am sorry about your fiancee, I pray you will have a solution 3 Likes |
Re: My Fiancée Has Amyotrophic Lateral Sclerosis (ALS), She Is Always In Pains by MarianaTrench: 11:14am On May 19, 2019 |
ainas247: Must you people bring religion into every topic here. He wants practical solutions not wishful thinking! 11 Likes 1 Share |
Re: My Fiancée Has Amyotrophic Lateral Sclerosis (ALS), She Is Always In Pains by OtemAtum: 11:15am On May 19, 2019 |
ainas247:This is a true life story, not some kind of fiction. Jesus is a fictitious character. He can't come out of the book where they wrote him in. Medicine remains the best way to tackle it and we hope it works good. Aferk 29: 32-33 32. I do not want to say this, but I shall do so; you have heard that you should not mix religion with the matter of health. I also add this; do not mix religion with the matter of business. 33. For whatever you mix religion with shall not succeed. For many great nations have been brought down by 9 Likes 2 Shares |
Re: My Fiancée Has Amyotrophic Lateral Sclerosis (ALS), She Is Always In Pains by monib1: 11:16am On May 19, 2019 |
ALS is a progressive degenerative disease. No cure yet. Riluzole (a drug) can help delay it's progression though. The best that can be done is supportive treatment of symptoms she presents with. I am really sorry. I hope she finds relief. Best advice: Let her see a neurologist (a doctor specialist); it might go a long way. Sorry. 5 Likes |
Re: My Fiancée Has Amyotrophic Lateral Sclerosis (ALS), She Is Always In Pains by tillaman(m): 11:16am On May 19, 2019 |
I hope you guys find help bro! I wish her sound health 2 Likes 1 Share |
Re: My Fiancée Has Amyotrophic Lateral Sclerosis (ALS), She Is Always In Pains by donshady(m): 11:16am On May 19, 2019 |
Newguyhere: 2 Likes |
Re: My Fiancée Has Amyotrophic Lateral Sclerosis (ALS), She Is Always In Pains by jideflash(m): 11:17am On May 19, 2019 |
So sorry to hear this. I know what it means to have a loved one who has a chronic and progressive illness. My fiance has Pulmonary Hypertension. The illness has no cure, and can only to manage. Prognosis is 5years. 1 Like
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Re: My Fiancée Has Amyotrophic Lateral Sclerosis (ALS), She Is Always In Pains by Nobody: 11:17am On May 19, 2019 |
Good Morning Nairalanders before I get attacked please I want you to use an open mind to listen to my predicament I school in ilorin a student of civil engineering 300 level my family is going through a very rough patch I mean my problem is so turgid am doing everything in my might to get out if this but all effort proved fruitless I have been here like twice and y'all aided me please I really appreciated your efforts before but now am near my limit nothing to do again both my parents don't have no relatives to aid me no friends absolutely no one below are pictures of early morning chats with my parents am fed up I walk around the streets of ilorin daily thinking of why my life is like this I am thinking so much my mind is glancing towards suicide but I don't want to die I know it will be better I keep hoping but am afraid if this persist I might eventually do it... But I pray it doesn't end up like that I need just 7k for a school project the deadline is near we are asked to make a micro Digester which the cost of production is 7k I don't know who to run to again so I just decided to come here please anything at all anything.. I know some people here might not fall folly of this post but it's okay for what will really help me is an assistance of any means I really appreciate all of y'all God bless the Nairaland Community My account details 0072808222 Diamond Bank Ayodamola Olaosebikan Emmanuel
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Re: My Fiancée Has Amyotrophic Lateral Sclerosis (ALS), She Is Always In Pains by Uyi168: 11:18am On May 19, 2019 |
..... ALS is an auto immune disease.. Sadly, there is no cure.. Try and manage the pains.. |
Re: My Fiancée Has Amyotrophic Lateral Sclerosis (ALS), She Is Always In Pains by Nobody: 11:18am On May 19, 2019 |
Halleumini: my account details 0072808222 Diamond Bank Ayodamola Olaosebikan Emmanuel |
Re: My Fiancée Has Amyotrophic Lateral Sclerosis (ALS), She Is Always In Pains by kendu3310(m): 11:18am On May 19, 2019 |
God I feel for u just googled it and what I saw is heartbreaking God will see u guys through ijn amen |
Re: My Fiancée Has Amyotrophic Lateral Sclerosis (ALS), She Is Always In Pains by IvarTheTerrible: 11:21am On May 19, 2019 |
As i look at these heartless adverts in DISDAIN I feel your PAIN. Though i have nothing to GAIN. Her aches last like RAIN. My tears are pouring out, my shirt will STAIN I am as close to you as Abel was to CAIN. Sorry my friend. I would write a story for her one of these days to make her smile, ease the pain 3 Likes
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Re: My Fiancée Has Amyotrophic Lateral Sclerosis (ALS), She Is Always In Pains by ambush: 11:21am On May 19, 2019 |
Amyotrophic lateral sclerosis is a type of motor neuron disease. It refers to a group of progressive, neurological diseases that cause dysfunction in the nerves that control muscle movement. This leads to muscle weakness and changes in how the body works. In the later stages, amyotrophic lateral sclerosis (ALS) affects the nerves that control breathing, and this can be fatal. ALS is the most common type of motor neuron disease (MND). It is sometimes called Lou Gehrig's disease, after the famous baseball player who had the condition. The 2014 Ice Bucket Challenge aimed to raise awareness and funds for research. The Centers for Disease Control and Prevention (CDC) estimate that between 14,500 and 15,000 people in the United States (U.S.) had ALS in 2016, with around 5,000 people receiving a diagnosis annually. Worldwide, it is thought to affect between 2 and 5 people in every 100,000. Most people with ALS will live for 3 to 5 years after first experiencing symptoms, but around 10 percent of patients will live for another 10 years or longer. There is no cure, but treatment can relieve symptoms and improve quality of life. Fast facts on ALS Here are some key points about ALS. More detail is in the main article. ALS affects nerve cells in the brain and spinal cord, leading to muscle weakness, a loss of motor function, paralysis, breathing problems, and, eventually, death. Most people with ALS will live between 3 and 5 years after symptoms appear. The exact cause is unknown, but environmental and genetic factors may be involved. There is currently no cure, and treatment aims to relieve symptoms, provide social and emotional support, and possibly slow disease progression. What is ALS? Adaptive equipment can enable people with ALS to retain mobility. Adaptive equipment can help people with ALS to stay mobile. ALS is a kind of MND. It attacks the nerve cells that are used in voluntary muscle actions, known as motor neurons. These are actions that we can control, such as those in the arms, face, and legs. Motor neurons are found in the brain and spinal cord. As ALS progresses, these cells degenerate and die. They stop sending messages to muscles. The brain can no longer control voluntary movement, and the muscles weaken and waste away. As ALS progresses, it affects all the voluntary muscles. The person can no longer control their arms, face, and legs. In time, the inability to breathe unsupported can lead to respiratory failure. Half of all people with ALS will live for 3 years or more after diagnosis, but some live for longer. Around 20 percent of people will live 5 years or more after diagnosis, 10 percent will live for 10 years or more, and 5 percent will live for 20 years. Steven Hawking, the famous physicist, received a diagnosis of ALS aged 21 years. Now well over 70 years old, he remains a leader in the field of science. powered by Rubicon Project Causes and types of ALS It is unclear exactly what causes ALS. There are different types, according to their signs and symptoms and whether or not there is a clear genetic association. ALS can be sporadic or familial. Sporadic ALS occurs randomly, and it accounts for 90 to 95 percent of cases. There is no clear risk factor or cause. Familial ALS is inherited. Around 5 to 10 percent of cases are familial. The child of a person with ALS will have a 50 percent chance of developing the condition. Rarely, it can affect a person in their teens. Researchers are investigating which genes are involved. Other possible causes of ALS include: Disorganized immune response: The immune system may attack some of the body's cells, possibly killing nerve cells. Chemical imbalance: People with ALS often have higher levels of glutamate, a chemical messenger in the brain, near the motor neurons. Glutamate in high quantities is known to be toxic to nerve cells. Mishandling of proteins: If proteins are not processed correctly by nerve cells, abnormal proteins could potentially accumulate and cause the nerve cells to die. Possible environmental factors Environmental factors may also play a role. One study has reported that military personnel deployed in the Gulf region during the 1991 war were more likely to develop ALS than military personnel deployed elsewhere. Some possible links have been found between ALS and exposure to: mechanical or electrical trauma military service high levels of exercise high levels of agricultural chemicals high levels of a variety of heavy metals However, there is no conclusive evidence that specific lifestyle changes can decrease the risk. ALS Ice Bucket Challenge fuels novel gene discovery ALS Ice Bucket Challenge fuels novel gene discovery How did the Ice Bucket Challenge help people with ALS? READ NOW Signs and symptoms The symptoms of ALS usually appear when a person is in their late 50s or early 60s, but it can happen at other ages. Progression varies between individuals. In the early stages, signs and symptoms may be barely noticeable, but the weakness becomes more visible over time. Common symptoms include: difficulty carrying out daily activities, including walking increased clumsiness weakness in the feet, hands, legs, and ankles cramping and twitching in the arms, shoulders, or tongue difficulty maintaining good posture and holding the head up uncontrolled outbursts of laughing or crying, known as emotional lability cognitive changes slurring of speech and difficulty with voice projection pain fatigue problems with saliva, and mucus difficulty breathing and swallowing, in the later stages Progressive muscle weakness occurs in all cases of ALS, but this may not be the first indication of the condition. Early symptoms often include clumsiness, abnormal limb fatigue, muscle cramps and twitches, and slurred speech. Symptoms will spread to all parts of the body as ALS progresses. Some people may have problems with decision-making and memory, eventually leading to a form of dementia called frontotemporal dementia. Emotional lability can cause fluctuations in mood and emotional response. Treatment and prevention There is no cure for ALS, so treatment aims to alleviate symptoms, prevent unnecessary complications, and slow the rate of disease progression. ALS can cause a range of physical, mental, and social changes, so a team of specialists will often help patients manage their symptoms and care, improve their qualify of life, and prolong survival. Riluzole (Rilutek) was approved for ALS treatment by the Food and Drug Administration (FDA) in 1995, and it appears to slow the progression of the disease. It may work by reducing the body's levels of glutamate, an excitotoxin that has been linked to neuronal damage. In May 2017, Radicava (Edaravone) was approved to treat ALS. It may slow the decline in physical function by one third. A number of research projects are looking at ways to use new and existing drugs to treat different aspects of ALS. Doctors can also prescribe medications to treat the different symptoms. Therapy Physical therapy can help people with ALS manage pain and address mobility issues. A physical therapist can provide help and information with: low-impact exercises to enhance cardiovascular fitness and overall well-being mobility aids, such as walkers and wheelchairs devices to make life easier, such as ramps Occupational therapy can help a patient maintain their independence for longer by: helping patients choose adaptive equipment and assistive technologies to help them keep up their daily routines train them in ways to compensate for hand and arm weaknesses Breathing therapy may be needed in time, as the respiratory muscles get weaker. Breathing devices can help the patient breathe better at night. Some patients may need mechanical ventilation. One end of a tube is connected to a respirator, while the other end is inserted into the windpipe through a surgically-created hole in the neck, or tracheostomy. Speech therapy is useful when ALS begins to make it harder to talk. Speech therapists can help by teaching adaptive techniques. Other methods of communication include writing and computer-based communications equipment. Nutritional support is important, as difficulty with swallowing can make it hard to get enough nutrients. Nutritionists can advise on preparing nutritious meals that are easier to swallow. Suction devices and feeding tubes may help. Diagnosis No single test can diagnose ALS, so diagnosis is based on symptoms and the results of tests to rule out other conditions with similar symptoms. Tests that may help diagnose ALS are: electromyography (EMG), which detects electrical energy in muscles nerve conduction study (NCS), which tests how well the nerves send signals These tests can help rule out peripheral neuropathy, or peripheral nerve damage, and myopathy, or muscle disease. An MRI scan can detect other problems that could be causing symptoms, such as a spinal cord tumor or a herniated disk in the neck. Further tests to rule out other conditions may include blood and urine tests and a muscle biopsy. Medical problems that can produce similar symptoms to ALS include HIV, Lyme disease, multiple sclerosis (MS), the polio virus, and West Nile virus. If there are symptoms in both the upper and lower motor neurons, ALS may be present. Upper motor neuron symptoms include stiffness and resistance to movement in the muscles and brisk reflexes. Lower motor neuron symptoms include weakness, muscle atrophy, and twitching. Tips for living with ALS A number of tips may help people with ALS and their loved ones to adjust to their changing situation. Keep in touch: Social contact is important. Stay in touch with friends and keep up with as many previous activities as possible. There may be a local or online support groups that can answer questions and offer insight through shared experiences. Be practical: Have a bag ready with tissues, hand wipes, and easy-to-hold cutlery for going out. Register to get a disability placard for the car. Make adjustments at home, for example, a device to raise the toilet seat. Plan ahead: It can be hard when a loved one finds they can no longer do something they could do before, but foreseeing possible restrictions can help you be prepared for when they come. Research financial help: As the disease progresses, treatment can become expensive. Find out if you are entitled to help through Social Security Disability, Medicare, Medicaid and Veteran Affairs benefits. Arrange relief for caregivers: Arrange for a friend, relative, or caregiver to come and stay for a weekend or to take the person with ALS out for the day. Caregivers should make sure they look after their own health, as well as that of their loved one. What you can do will depend to some extent on your finances, but local support groups can help people cope with the financial and emotional challenges involved with ALS, through advice or practical help. Thank you Google. 18 Likes 3 Shares |
Re: My Fiancée Has Amyotrophic Lateral Sclerosis (ALS), She Is Always In Pains by grandstar(m): 11:24am On May 19, 2019 |
She has Stephen Hawking's disease. So sorry. He lived for 55 years after the diagnosis. 1 Like |
Re: My Fiancée Has Amyotrophic Lateral Sclerosis (ALS), She Is Always In Pains by Nobody: 11:24am On May 19, 2019 |
People laugh when I say that this nonsense diseases are what they whiteman gave to us through vaccines. Before the whitemen Brought his vaccines to Africa, we were healthy, our ancestors lived above 100 years. We relied on nature for cure..... My brother, help your fiancée. Let her eat only fruits and vegetables for 4 months. Just fruits..... Contact any fruit seller and enter a contract with them. Let them supply you various fruits weekly. Just fruits, vegetables and lots of water.... No soft drinks, no refined sugar, no donut, meatpie etc.... Just fruits.... If that als abi na sms no comot her body after 3 months, call me barstard. 11 Likes 2 Shares |
Re: My Fiancée Has Amyotrophic Lateral Sclerosis (ALS), She Is Always In Pains by Nobody: 11:25am On May 19, 2019 |
Newguyhere: |
Re: My Fiancée Has Amyotrophic Lateral Sclerosis (ALS), She Is Always In Pains by Sterope(f): 11:27am On May 19, 2019 |
You mentioned that it was degenerative condition and in the same breath claimed that you can treat it. @Nairaland is the wrong place to seek medical help. You are only going to get help from heartless crooks. Stick to what your doctors have told you and what your research digs up. You already know that ALS is incurable and they still cannot pinpoint what causes it. There is little you can do other than to spend make the little time you both have together memorable. Every other medical treatment from a credible hospital may extend her life for a short while but it will not stop the pains. Adalassy: 5 Likes |
Re: My Fiancée Has Amyotrophic Lateral Sclerosis (ALS), She Is Always In Pains by crackhouse(m): 11:27am On May 19, 2019 |
paul1995:pls share the pain if u can...so she can be free... |
Re: My Fiancée Has Amyotrophic Lateral Sclerosis (ALS), She Is Always In Pains by Lexusgs430: 11:28am On May 19, 2019 |
paul1995: Take a cue from Stephen Hawking..... But he had enough financial resources to sustain and prolong....... 3 Likes |
Re: My Fiancée Has Amyotrophic Lateral Sclerosis (ALS), She Is Always In Pains by lonelydora: 11:29am On May 19, 2019 |
paul1995: God is your strength. May she find help in Jesus Name Just googled ALS. Haa! That's serious. 3 Likes |
Re: My Fiancée Has Amyotrophic Lateral Sclerosis (ALS), She Is Always In Pains by cookiesho(f): 11:29am On May 19, 2019 |
Give STC30 a try, it's a stem cell therapy. |
Re: My Fiancée Has Amyotrophic Lateral Sclerosis (ALS), She Is Always In Pains by damtan(m): 11:29am On May 19, 2019 |
doctor306:It was in Empire I first heard of ALS Considering traveling to Canada with ease? Check my signature |
Re: My Fiancée Has Amyotrophic Lateral Sclerosis (ALS), She Is Always In Pains by ainas247: 11:29am On May 19, 2019 |
MarianaTrench: If you read the OP very well he said No cure to the disease base on what man said... try Jesus bro. I have seen a case that worst than that of OP if you must know HIV. After its we have no hope then Jesus stepped in and He made away. 2 Likes 2 Shares |
Re: My Fiancée Has Amyotrophic Lateral Sclerosis (ALS), She Is Always In Pains by omixtolu(m): 11:34am On May 19, 2019 |
CBD Oil should work for the pains. Google it paul1995: |
Re: My Fiancée Has Amyotrophic Lateral Sclerosis (ALS), She Is Always In Pains by Mekanus(m): 11:36am On May 19, 2019 |
ainas247:Stop bringing fairy tales to serious issues 4 Likes 1 Share |
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