Health › Re: US Approves First Gene Therapies To Treat Sickle Cell Patients by Tonytonex(m): 8:25am On Dec 11, 2023 |
Blake755: Even at that but the treatment should be affordable As a medical doctor living with sickle cell disease, Isn’t it shocking that despite the recent approvals of revolutionary gene therapies for the treatment and potential cure of sickle cell disease, I can't seem to share in the excitement.
In my column titled “Removing Financial Barriers for the Treatment of Sickle Cell Disease”, I have delved into the reasons behind my lack of enthusiasm. Here are a few excerpts below from my sickle cell disease column on BioNews:
“But the staggering cost associated with this type of treatment raises concerns. How can someone living with sickle cell disease improve when these treatments are financially unattainable? When do we get therapies that genuinely benefit the entire sickle cell disease community?”
“ While it is undoubtedly positive to witness advancements in treatments and a potential cure for sickle cell disease, it is imperative that these treatments are both affordable and accessible to the patients around the world who need them. Without addressing this crucial point, the ultimate goal of enhancing quality of life and improving life expectancy for sickle cell patients will be missed.” That's where the government has to come in. Government can subsidize it. |
Politics › Re: Bishop Kukah Endorses ‘japa’, Encourages Young Nigerians To Leave by Tonytonex(m): 9:22am On Dec 10, 2023 |
nurey: Nah who get money dey japa
Besides if I have 5million now, i will just buy land upto 2 to 3 hectares plant rubber tree in 7years i will.be making 1.5m monthly from the produce for minimum 25years and max 35years if well managed. Better than going abroad to uncertainty |
Politics › Re: Bishop Kukah Endorses ‘japa’, Encourages Young Nigerians To Leave by Tonytonex(m): 9:22am On Dec 10, 2023 |
nurey: Nah who get money dey japa
Besides if I have 5million now, i will just buy land upto 2 to 3 hectares plant rubber tree in 7years i will.be making 1.5m monthly from the produce for minimum 25years and max 35years if well managed. Better than going abroad to uncertainty so people are still making money from it? |
Nairaland General › Re: Dey Play, Idan, No Evidence, Other Popular Nigerian Slangs In 2023 by Tonytonex(m): 8:06am On Dec 10, 2023 |
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Nairaland General › Re: Dey Play, Idan, No Evidence, Other Popular Nigerian Slangs In 2023 by Tonytonex(m): 8:05am On Dec 10, 2023 |
Lukepeter: Nice compilation, my favourite is no evidence; I no wan plenty talk. dey play  |
Health › Re: US Approves First Gene Therapies To Treat Sickle Cell Patients by Tonytonex(m): 7:57am On Dec 10, 2023 |
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Health › Re: US Approves First Gene Therapies To Treat Sickle Cell Patients by Tonytonex(m): 7:12am On Dec 10, 2023 |
KingAzubuike: Uts only a greedy man that will make his family suffer to get $2.2M for treatment. Just due and let them use the money for better thing. If you guys are rich and worth more than that, no problem. That disease don't just happens . It's caused by negligence and carelessness. It's preventive. Prevention is free, cure is not affordable. There was no cure before sef. Make dem even thank God say dem don discover am. |
Celebrities › Re: Only 2 People You Cant Drag In My Presence Are My Father & Tinubu - Yul Edochie by Tonytonex(m): 7:06am On Dec 10, 2023 |
OlawaleBammie: But wait ooh, u sure say Bulaba and the Edochies are not into something sinister together??
Because a no dey understand this romance again ooh money talks . They have been bought over . |
Celebrities › Re: Only 2 People You Cant Drag In My Presence Are My Father & Tinubu - Yul Edochie by Tonytonex(m): 7:04am On Dec 10, 2023 |
ahnie: Weyrey be disgracing ndi Igbo,we've dashed him to the ndi ofe mmanu's.
Turu ugo ndi ofe'mmanu lota. Aru'ala tufia!!! Always acting like someone whose brain dem bury inside redoil. sharap! Birds of a feather. You would do worst if BAT give you half of the money he gave him. |
Celebrities › Re: Only 2 People You Cant Drag In My Presence Are My Father & Tinubu - Yul Edochie by Tonytonex(m): 7:02am On Dec 10, 2023 |
Feintline: Young boy but brainless. Your brainlessnes destroyed your beautiful home but you never still get sense. it's not his fault. Majority of Those people can do anything for Money. |
Health › Re: US Approves First Gene Therapies To Treat Sickle Cell Patients by Tonytonex(m): 6:48am On Dec 10, 2023 |
DKM123: This is good news!! We are 100million light years away from these progressive countries and it keeps getting worse.
Actually, there brain is not special, they just have a better enabling environment to thrive. That's why Nigerians who go there in educational pursuit also thrive even though they mostly go at adulthood and don't have a good head start..
If we had good leaders in Nigerian who allowed our educational system blossom instead of continuously stifling it, this people will not see our back because we Nigerians are hardworking and determined and that's why you will see even secondary school students studying all night. I concur. |
Health › Re: US Approves First Gene Therapies To Treat Sickle Cell Patients by Tonytonex(m): 6:44am On Dec 10, 2023 |
eldoradoxx: While Africans are investing so much in going to church and mosques 5 times daily, the Western world is advancing in medicine, technological innovations etc in rescuing mankind from the disease and conditions that Africans spend their whole lives in churches and mosques. So finally, who is doing the work of God/Allah better, who is showing that he is the better representative of God here on earth?
An average Nigerian whether Christian or Muslim once he goes to Western advanced world pockets his religion into his pocket upon realizing that those societies are doing better without too much religion. Religion inhibits capacity of human mind to think critically
Kudos to the inventors of this life saving drugs Nobody has it all. There are always a good and bad side in every nation or continent. |
Health › Re: US Approves First Gene Therapies To Treat Sickle Cell Patients by Tonytonex(m): 6:39am On Dec 10, 2023 |
Blake755: How affordable is it that's the problem can you buy life? How affordable is Bugatti, Ferrari or a private jet? Those are material things. Do you know what it takes for them to come out with that innovation and treatment? How many years of research? |
Health › Re: US Approves First Gene Therapies To Treat Sickle Cell Patients by Tonytonex(m): 6:35am On Dec 10, 2023 |
sslcrypt: Brother, these guys are seriously blessed with Brains. Just imagine if Yankee wasn't there? They are truly a global superpower honestly. They're the real co-creators . |
Health › Re: US Approves First Gene Therapies To Treat Sickle Cell Patients by Tonytonex(m): 6:31am On Dec 10, 2023*. Modified: 8:10am On Dec 10, 2023 |
KingAzubuike: You forgot to add that it costs $2.2M per treatment.  no matter the cost my dear, life is priceless you know! People are buying material things worth far more than that. And to come out with that innovation and/or treatment is not a month or year job. It took years of research. Kudos to them. |
Health › Re: US Approves First Gene Therapies To Treat Sickle Cell Patients by Tonytonex(m): 6:24am On Dec 10, 2023 |
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Politics › Re: Refineries Are Not Created To Reduce Fuel Price. Kyari by Tonytonex(m): 5:40am On Dec 10, 2023 |
APC supporters, una don hear ba? |
Food › Re: I Cooked Beans Within 32 Minutes! by Tonytonex(m): 8:57pm On Dec 09, 2023 |
dominique: The sealing gasket rubber did not last at all and I heard there are too many fakes in the market. okay |
Food › Re: See The Items I Bought For ₦5,650 (Picture) by Tonytonex(m): 11:35am On Dec 09, 2023 |
salbis: Las las if naira no take time, e fit compete with Zimbabwean dollar. how is Zimbabwean dollar |
Food › Re: See The Items I Bought For ₦5,650 (Picture) by Tonytonex(m): 11:33am On Dec 09, 2023 |
Mindlog: And some deluded folks are boldly screaming it is way cheaper to live in Nigeria not considering the very low earning capacity of overwhelming majority of Nigerians.
How can a private school teacher, earning N25k a month afford this?  you mean those mushrooms schools right? No good school will pay teachers that peanut. |
Health › Re: 100 Level NSUK Student Commits Suicide Over Failed Relationship (Photos) by Tonytonex(m): 10:06am On Dec 09, 2023 |
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Food › Re: See The Oha Soup My Female Neighbor Brought For Me This Morning. by Tonytonex(m): 10:04am On Dec 09, 2023 |
Chibuzoripob: That thing is real.Man don see orisirisi otumophor.Make I nor 👄 🦜 🗣 na for people wey dey believe on such things. |
TV/Movies › Re: Multichoice Hikes Dstv, GOTV Prices After $72m Forex Loss by Tonytonex(m): 10:01am On Dec 09, 2023 |
VicDs: Values are fast depreciating. I remember when gotv used to be for common man Get a Professional Company Logo or Letterhead for Businesses for 2k only
pay on delivery Drop us your Company name for your Logo https:///5ZpMW1py52sLyjQZ9 . na dollar effect. The Naira is valueless. Always convert the Naira to dollar to know the real value. |
Food › Re: See The Oha Soup My Female Neighbor Brought For Me This Morning. by Tonytonex(m): 9:01am On Dec 09, 2023 |
adecz: Small, by small, she go come help you tidy & clean your oza room 👉👌& oyibo adage says, all cats are grey in the dark😉😉😉😉
Keep us posted 😎😎😎😎 I like the bolded. |
Food › Re: See The Oha Soup My Female Neighbor Brought For Me This Morning. by Tonytonex(m): 9:00am On Dec 09, 2023 |
Chibuzoripob:
dem never knack u otumophor b4.I don see much LOL 😆. So you mean say one girl or lady don ever give you love portion before? |
Politics › Re: Betta Edu: Oyedepo Prayed For Me To Become Minister by Tonytonex(m): 8:03am On Dec 09, 2023 |
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Food › Re: Families Face Bleak Yuletide Over Rising Food Prices, Fares, Others by Tonytonex(m): 7:43am On Dec 09, 2023 |
Beremx: That moment you buy an item for 200 naira in the morning and when you go get same item in the evening, it's sold for 400 naira, such astronomical increase calls for concern. Me wey wan buy rice now, fear dey catch me to enter market.  Tinubu should open the border and let food come in for crying out loud!! this border thing don tire me . How many time dem open the border? |
Food › Re: Families Face Bleak Yuletide Over Rising Food Prices, Fares, Others by Tonytonex(m): 7:40am On Dec 09, 2023 |
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Food › Re: See The Oha Soup My Female Neighbor Brought For Me This Morning. by Tonytonex(m): 7:21am On Dec 09, 2023 |
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Food › Re: See The Oha Soup My Female Neighbor Brought For Me This Morning. by Tonytonex(m): 7:18am On Dec 09, 2023 |
gbaskiboy: The day the deed go happen you go change your moniker you go con dey tell us to advise you. Enjoy the meal for now shall give us update when it sup what deed please? What will happen? |
Food › Re: See The Oha Soup My Female Neighbor Brought For Me This Morning. by Tonytonex(m): 7:16am On Dec 09, 2023 |
Chibuzoripob:
sha nor ho chop poison, love portion. Hope she follow u swallow the balls of eba LOL at love portion. Do people believe that trash? |
Food › Re: See The Oha Soup My Female Neighbor Brought For Me This Morning. by Tonytonex(m): 7:14am On Dec 09, 2023 |
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