funshiba:

Thanks alot....My ex was a former beauty pageant and a former Ms Lacasera, she defines beauty and a great heart....if i were AA i will go ahead and know i have to bother about keeping my wife alive and stay strong but, battling with the kids genotype and waiting till we get it right? No i dont want to put her through such, How many DandC WILL I SUBJECT HER TRU?

She is a strong woman and hardly fall ill except for Ulcer due to the strong pain killers, I wish i can make a difference


The truth is we knew bout our genotype from the beginning, but she is a lady with a great heart you will be a stone not to fall in love with her....I wished I could be strong for her, I wished I could be the one to make her happy...talking about it now makes me sad and tearing apart again...

A friend once told me that the way we can eradicate the ss Armenia is people stop crossing the s.... that was the point I tot i could make a strong decision for us... LORD PLEASE MAKE HER HAPPY AND GRANT HER A GOOD HOME...SHE DESERVES IT

mikedore: Gudday poster,i just came across ur post. Am a sickle cell sufferer,i have passed tru many challenges and i thank God 4 good health. I wil lik to meet other sufferes. Do we have a union. Pls reach me on cal or text. 0813xxxxxxx God bless.

standfirm:
Wow!! I never knew that dis is possible cos am a carrier an my girlfriend is also AS and i hve told her we cnt get married bt she refuse 2 understand bt with dis, i cn go along with d relationship. Tanx.

Grahamjnr: I used to vent my anger on my mum during d early years of my crisis. But wit years, I've learnt 2 bear d pain, agony, fear of d unknown as a sufferer of Sickle Cell with hope of eternal bliss some day!

Grahamjnr: I used to vent my anger on my mum during d early years of my crisis. But wit years, I've learnt 2 bear d pain, agony, fear of d unknown as a sufferer of Sickle Cell with hope of eternal bliss some day!

Bay1970: Being AS and having AS wife/husband is not end of the world, it gives you only 25% of having SS(sickle cell), 25% of AA and 50% of AS. Can it be avoided if posible? yes, but education is only the answer. If you love your AS boy/girl friend, do not let AS stop you from having someone you really love as a life partner; you might end up having a bitch with AA and in hell for the rest of your life. If you are AS with AS wife/husband, please remember to do CVS on every pregency. CVS will detect SC at 12 wks 100%.

Bay1970: Being AS and having AS wife/husband is not end of the world, it gives you only 25% of having SS(sickle cell), 25% of AA and 50% of AS. Can it be avoided if posible? yes, but education is only the answer. If you love your AS boy/girl friend, do not let AS stop you from having someone you really love as a life partner; you might end up having a bitch with AA and in hell for the rest of your life. If you are AS with AS wife/husband, please remember to do CVS on every pregency. CVS will detect SC at 12 wks 100%.

Abali1: YOU CAN NOT SEE MY SCD BY JUST LOOKING AT ME.
I MAY LOOK A LITTLE TIRED BUT THAT COULD BE BECAUSE OF ANYTHING.
YES SCD IS A INVISIBLE ILLNESS BECAUSE IF WE DON'T SAY "I HAVE SCD" YOU MAY NEVER KNOW.

blink182: Oga only once a year you come out to really help with all you know. Do you think that is fair enough, ignorant sufferers should probably die in pain or hang on until June 19 when you come out to say something?

What have you done in the past year to alleviate crisis? Personally, I have become a crusader of cellod-s, taking the message to as far as UK and trying to get it registered in Kenya and Ghana.

Instead of telling people not to get married, why not let them get married to whoever they choose provided they do not forget to put their child on cellod-s.

I have seen so many patients become healthy, some even going as far as claiming they changed from ss to aa. I used to be the very worst case of sickle cell, mine is so bad that even after becoming healthy, I still developed avascular necrosis.

You mostly get infected with malaria when you sleep but is that to say we shouldn't sleep?...hell no! We sleep knowing fully well that worse case scenario will see us having anti malaria drug and in time we will be as good as new. Let's match together against this monster and make it an ordinary illness like headache.

I may be wrong, you might have done something to impact sufferers during the year but it pains me when I see the people really pushing the gospel of cellod-s are business people who simply want to make their money and have no true commitment to their patients.

IykeWest: Its really not easy,at all! If i were to see two AS couples abt to get married i will definately kill one of them cos the pain is just too much for one to bear,but we do,am the kinda guy that likes to show my strength buh thanks to Sickle Cell i cant no problem though since i have been taking HYROXYUREA,i havent had any major crisis! I just take 3tabs at night before i sleep its worth it!

qualified:
the Lord is ur strength. Pls don't kill anybody but i hope d guy advising two AS people to marry can read ur post. I have not heard of ur drug. My prince jus started NIPRISAN. I am taking notes frm u guys and i wil ask a doctor.
I repeat: i can give anything to make his pains go forever.
U are a Warrior, so, be strong

IykeWest: You just said something that my mum would say,she would give anything to make my pains go away,at some point in my life i became a junkie,i took painkillers everyday three times daily,i took any type ibuprofen,ketoprofen,aspirin,NGC-valgin,paracetamol,panadol all of them! But i have stopped now,and make sure you get that Hydroxyurea for the kid,make sure he drinks it daily,according to his weight,its called 'HYDRINE' and chemical composition is 'HYROXYUREA' its the only way u can take away his pain,i will always be here if u need me,ok?

qualified:
tnx dear, where is ur location? My prince is in d East (onitsha precisely).

jude33084:


I hope you are not blind

IykeWest:
Its really not easy,at all! If i were to see two AS couples abt to get married i will definately kill one of them cos the pain is just too much for one to bear,but we do,am the kinda guy that likes to show my strength buh thanks to Sickle Cell i cant no problem though since i have been taking HYROXYUREA,i havent had any major crisis! I just take 3tabs at night before i sleep its worth it!

Picomon:
Hello Warriors , I'm also a warrior.. Life sucks mehn.. Going tru crisis is not something I will wish for my enemy..

Just last week, I was given 4 injections.. every nurse in the hospital I used know me.. They do make jest of me in a funny way.. I don't blame them tho..

Any tips on how to manage this? I do take folic acid once per day.. But not everyay though.. I'm a regular customer of Ibucap and Lofnac but of recent I noticed they are not working as usual..

Abali1:

I believe Ibucap and Lofnac are pain meds. If they are, then your observations are very correct. Cos after sometime, your body system becomes used to them and you will no longer feel the effect.
Tips on how to manage yourself;
.
Keep taking your daily folic acid
.
Drink a lot of water
.
Eat healthy....vegetables, fruits, fish, liver or kidney, etc
.
Cut down on junk food, alcohol, caffeine etc get enough rest, and try not to over stress yourself.
.
Take malaria preventives, at least once every month.
.
I hope the above will help you in managing yourself.
.
As per people (nurses) making side talks about your health, I will only ask that you ignore them.

funshiba:


Thanks alot....My ex was a former beauty pageant and a former Ms Lacasera, she defines beauty and a great heart....if i were AA i will go ahead and know i have to bother about keeping my wife alive and stay strong but, battling with the kids genotype and waiting till we get it right? No i dont want to put her through such, How many DandC WILL I SUBJECT HER TRU?

She is a strong woman and hardly fall ill except for Ulcer due to the strong pain killers, I wish i can make a difference


The truth is we knew bout our genotype from the beginning, but she is a lady with a great heart you will be a stone not to fall in love with her....I wished I could be strong for her, I wished I could be the one to make her happy...talking about it now makes me sad and tearing apart again...

A friend once told me that the way we can eradicate the ss Armenia is people stop crossing the s.... that was the point I tot i could make a strong decision for us... LORD PLEASE MAKE HER HAPPY AND GRANT HER A GOOD HOME...SHE DESERVES IT

Ralphlauren:


funshiba
this was the post you made in 2013.

why are you now telling lies now in 2015 on this forum?

your wife is SS.

why come here to lie that an AA + AS couple has given birth to a SS child?

Picomon:
Hello Warriors , I'm also a warrior.. Life sucks mehn.. Going tru crisis is not something I will wish for my enemy..

Just last week, I was given 4 injections.. every nurse in the hospital I used know me.. They do make jest of me in a funny way.. I don't blame them tho..

Any tips on how to manage this? I do take folic acid once per day.. But not everyay though.. I'm a regular customer of Ibucap and Lofnac but of recent I noticed they are not working as usual..

Need recommendations and tips pls.