tearoses:


Moca it is well sis
How are you all doing
Thank you so much for the support
God bless you ma

Wonderful and loving lady.

Tearoses

Thanks for the update.

I like the fact that metro eyes didn't waste any time with unnecessary back and forth and they've laid bare what options we've got. Softandmoist, many thanks again for your help.

I know Eye Foundation Hospital at Isaac John, Ikeja and I have been there. A friend with cataract had a successful surgery there some few years ago and I remember going to pick him up after the surgery. So I can recommend them.

Before we try any other hospital, I think the best thing to do is to have his parents go back to LUTH to retrieve copies of his medical notes (that's if LUTH still has it)

Pointless taking Tomiwa to any other consultant as they will obviously insist on seeing his previous hospital notes (which is the logical thing to ask for).

Tearoses, how soon do you think they can go to LUTH to get his medical notes?

How on earth did a doctor not give his patient, at least photocopies of medical report. Even if he wanted to give a sponsor, the patient deserves a copy. What the hell did he learn in medical school.

I never liked LUTH anyway. Once the report is gotten, other hospitals recommended can be tried aside LUTH.

bellong:
How on earth did a doctor not give his patient, at least photocopies of medical report . Even if he wanted to give a sponsor, the patient deserves a copy. What the hell did he learn in medical school.

I never liked LUTH anyway. Once the report is gotten, other hospitals recommended can be tried aside LUTH .

my exact thoughts!

Good Morning everyone & thank you for your support.

The issue is that there are are no volunteers coming forward to do the running around so option one is proving very challenging.
From experience it means many trips to the hospital and a lot of time and effort involved which may be the reason why this is proving challenging.

I am not in Nigeria so I am unable to do the running around that is required for the requirments for option one to be fulfilled.

TEHN have said even before this case that they are no longer accepting medical cases which I fully understand why, so I cant expect them to do the running around and in fairness to them they have made it quite clear what they are prepared to do for this case from the onset.

There is also the added issue of finance. One of the reasons why the parents did not go to their follow up apppointments back then was due to lack of funds and this problem still persists. The father is a daily worker and did not go to work yesterday to take Tomiwa to the hospital. They didnt have transport money, so that had to be provided for them.

Any suggestions are welcome please.

As a reminder, these are the options again that TEHN have agreed to.

1) A one off donation to meet the cost of any corrective surgery if possible – We will only make the donation if and when any respectable volunteer has helped manage the process to a logical conclusion (We will expect them to do the facilitation of getting appointment and receiving a definite diagnosis and cost from any reputable hospital)

2) If option 1 is not feasible either by lack of a respectable volunteer or we receive feedback that corrective surgery is impossible, we will instruct our field workers to investigate the possibility of having the little boy admitted into a specialist school and work out a budget that we will be willing to make one-off donation towards.

Erm. . Tearoses

I don't think his parents need a volunteer to accompany them to LUTH to get their son's medical notes. They should be able to do that themselves.

I feel we should get the medical notes and take it from there.

Tomiwa might still need some sort of surgery. For example to stop the water seeping through his eyes and to remove the "white"/"bluish" film covering the eyeballs. Also don't forget that he shakes his head continously. That will need to be sorted out as it might affect his ability to learn while he is at a special school or even prevent the school from accepting him.

Please don't let us write off the medical angle just yet.

Regarding volunteers, if push gets to shove, an ad can be placed at the job section. I'm sure we will be able to get an unemployed smart graduate that will be willing to accompany his parents to the hospital if he or she is given some sort of cash incentive.

Excellent idea RalphLauren

Thanks a lot ralphlauren. I am with you.

The 2 things required now are Finance and Time.
Finance to assist the parents pay for transportation to their appointments and to the volunteer as a cash incentive and also time required by the volunteer.

I may be wrong, but realisticly they will need someone to accompany them to LUTH to collect those medical files or they just be going backwards and forwards on a daily basis and they may even have to "pay" some people to find the notes for them.
I dont think its that easy, but like I said, I may be wrong.

If the financial strength is there, the father should be able to get off work for a day or two and take his son to the hospital. His wife is pregnant with two daughters to take care of, so I guess we can excuse her. However, that means the bread winner of the house may be unable to provide for his family if he has to get off work for days. I don't think he would agree to that either.

Can we just pay him the wages he would earn in a month so he could concentrate in Tomiwa in one month? But then again, the hospital visits could last several months. I know LUTH. So that option doesn't seem feasible.

This is just me thinking loud.

@tearoses, is it possible to know the days of the week the ophthalmologist at LUTH attend to patients so we can plan towards that? We could even get a Nairalander that works at LUTH and could be our "eyes" there.

Let's not give up on him yet.

PLEASE!!!

tearoses:
Thanks a lot ralphlauren. I am with you.

The 2 things required now are Finance and Time.
Finance to assist the parents pay for transportation to their appointments and to the volunteer as a cash incentive and also time required by the volunteer.

I may be wrong, but realisticly they will need someone to accompany them to LUTH to collect those medical files or they just be going backwards and forwards on a daily basis and they may even have to "pay" some people to find the notes for them.
I dont think its that easy, but like I said, I may be wrong.

Okay.

The thing about eye treatments if done in sensible, well equipped hospitals is that it doesn't require too many hospital visits ("too many hospital visits" doesn't apply to LUTH). In one/two visits, all the required tests can be done to decide on the next course of action/treatment and a honest diagnosis can be received (for example, if eye sight can be restored either fully or partially or not).

In some cases, surgery does not require over night hospital stay. It's done, eye patches placed over the eyes and the patient is sent home to return at a later date for a follow-up appointment.

I think we should work on getting a paid volunteer then. Maybe someone that resides around the parents neighbourhood or around LUTH. Then we work out how much we would need to sort out the LUTH angle. This is a charity project on a "budget". There's no need for cabs or a driver to take the family back and forth. There's always the cheaper BRT/danfo option.

Does anybody know someone working in LUTH? The person can help trace their file before the visit.

Will ask my doctors friend if any of them has good LUTH connection.

In my opinion, retrieving the case file is the most important thing at this stage. It will determine the final direction.

@ralphlauren, you are making a lot of sense.

We could get a honest paid volunteer. There are several people waiting to get busy. We could pay him/her per visits.

bellong:
Does anybody know someone working in LUTH? The person can help trace their file before the visit.

Will ask my doctors friend if any of them has good LUTH connection.

In my opinion, retrieving the case file is the most important thing at this stage. It will determine the final direction.

Cc: kaffy4bill

Cc: omicron

I think kaffy4bill has LUTH connections. Ma'am your help will be appreciated.

Omicron is also super helpful at the health section. He might have LUTH connections as well. Bro, your help will be appreciated.

Caracta:
@ralphlauren, you are making a lot of sense.

We could get a honest paid volunteer. There are several people waiting to get busy. We could pay him/her per visits.

Exactly!

bellong:
Does anybody know someone working in LUTH? The person can help trace their file before the visit.

Will ask my doctors friend if any of them has good LUTH connection.

In my opinion, retrieving the case file is the most important thing at this stage. It will determine the final direction.

Thank you very much sir
We are moving forward

Ralphlauren:


Cc: kaffy4bill

Cc: omicron

I think kaffy4bill has LUTH connections. Ma'am your help will be appreciated.

Omicron is also super helpful at the health section. He might have LUTH connections as well. Bro, your help will be appreciated.

Thank you

tearoses:


Thank you

Thank you too dear.

Please, did the consultant at metroeyes say anything about tomiwa's continuous shaking of his head?

Secondly, the eye drop that was prescribed. What's it meant to do?

Ralphlauren:


Okay.

The thing about eye treatments if done in sensible, well equipped hospitals is that it doesn't require too many hospital visits ("too many hospital visits" doesn't apply to LUTH). In one/two visits, all the required tests can be done to decide on the next course of action/treatment and a honest diagnosis can be received (for example, if eye sight can be restored either fully or partially or not).

In some cases, surgery does not require over night hospital stay. It's done, eye patches placed over the eyes and the patient is sent home to return at a later date for a follow-up appointment.

I think we should work on getting a paid volunteer then. Maybe someone that resides around the parents neighbourhood or around LUTH. Then we work out how much we would need to sort out the LUTH angle. This is a charity project on a "budget". There's no need for cabs or a driver to take the family back and forth. There's always the cheaper BRT/danfo option.

The driver for yesterdays appointment was because it was a first appointment and they needed to be there before 9 and with no excuses.
I know that people work on the Island and live in those parts of Lagos, and still get to work before 9, but this is unfamilair territory to them and I didnt want them to be late especially as they were being seen for free.
The volunteer also had a busy day yesterday and I didnt want them hanging around waiting for them.
Of course for future appointments, it will have to be a cheaper option of transportation.

Ralphlauren:


Thank you too dear.

Please, did the consultant at metroeyes say anything about tomiwa's continuous shaking of his head?

Secondly, the eye drop that was prescribed. What's it meant to do?

Nothing was mentioned in the volunteers report about the head shaking
I am not sure if softandmoist can ask the consultant when next she sees him/her
I also dont know what the eye drops are supposed to do
I can ask the volunteer for the name of the drops so we can investigate what its for

tearoses:


The driver for yesterdays appointment was because it was a first appointment and they needed to be there before 9 and with no excuses.
I know that people work on the Island and live in those parts of Lagos, and still get to work before 9, but this is unfamilair territory to them and I didnt want them to be late especially as they were being seen for free.
The volunteer also had a busy day yesterday and didnt want them hanging around waiting for them.
Of course for future appointments, it will have to be a cheaper option of transportation.

Ha. That's true. It won't have been funny if they had gotten there late. God bless you.

Caracta:
@ralphlauren, you are making a lot of sense.

We could get a honest paid volunteer. There are several people waiting to get busy. We could pay him/her per visits.

Ma'am please can you help with this? I mean sourcing a honest volunteer
Thank you very much

Caracta:
If the financial strength is there, the father should be able to get off work for a day or two and take his son to the hospital. His wife is pregnant with two daughters to take care of, so I guess we can excuse her. However, that means the bread winner of the house may be unable to provide for his family if he has to get off work for days. I don't think he would agree to that either.

Can we just pay him the wages he would earn in a month so he could concentrate in Tomiwa in one month? But then again, the hospital visits could last several months. I know LUTH. So that option doesn't seem feasible.

This is just me thinking loud.

@tearoses, is it possible to know the days of the week the ophthalmologist at LUTH attend to patients so we can plan towards that? We could even get a Nairalander that works at LUTH and could be our "eyes" there.

Let's not give up on him yet.

PLEASE!!!

Your thinking aloud is my concern
Youve seen the family and know their financial strenght
The reason why the poor boy is where he is now is becasue of financial incapability causing the parents to abandon the LUTH followups in the first instance
The man works away from home washing clothes
Somehow I worry that if he has to take too many days off work unpaid he may not take the child as he has to still use his wages to fend for the rest of the family.
All this we are doing is for the innocent child who has no say in all of this.
May God teach us what to do for this child and open doors of favour for him.

tearoses:


Nothing was mentioned in the volunteers report about the head shaking
I am not sure if softandmoist can ask the consultant when next she sees him/her
I also dont know what the eye drops are supposed to do
I can ask the volunteer for the name of the drops so we can investigate what its for

Please ask the volunteer/softandmoist these questions.

Personally, I'm concerned about the way he continuously shakes his head. It's worrying.

tearoses:


Nothing was mentioned in the volunteers report about the head shaking
I am not sure if softandmoist can ask the consultant when next she sees him/her
I also dont know what the eye drops are supposed to do
I can ask the volunteer for the name of the drops so we can investigate what its for

I wanted to give them a token but they left before I got back from using the ATM.
What I saw from the case note (sorry I snooped, please do not report me to the law) was that the boys eyes has built up pressure besides a whole lot of things I didn't understand because of the handwriting.
I'll get back to you on that.
And the optometrist told me that barring a miracle, the eyes are gone. That is why the consultant was emphasising getting him enrolled in a school. The opthalmologist they saw even consults in LUTH too. I'm surprised he simply referred them back there.
This is what I suggest:
1. Get his case history.
2. Go to Mecure. I'm bringing Mecure up because they're mostly ophthalmic consultants.
Most of these consultants have 10 different places where they work. Don't be surprised you'll still run into him at Mecure.

Too much information.

Can one person or Tehn give the updates please?

ifyalways:
Too much information.

Can one person or Tehn give the updates please?

How's it too much information

The only people giving updates are tearoses and softandmoist and it has to be so considering the different roles they are both playing in this case.

Please don't knock down people's effort as this might discourage the key parties from making useful input. Typing/updating isn't easy.

Besides, Tehn hasn't taken up the case so why are you accepting an update from them?

I think while we are looking at the hospital or surgery angle , we should also start early to look for a school that can take him in cos regardless of the outcome of surgery/ hospital, education is still in the equation.

Ralphlauren:


How's it too much information

The only people giving updates are tearoses and softandmoist and it has to be so considering the different roles they are both playing in this case.

Please don't knock down people's effort as this might discourage the key parties from making useful input. Typing/updating isn't easy.

Besides, Tehn hasn't taken up the case so why are you accepting an update from them?

my bad. Accept my apologies

softandmoist:


I wanted to give them a token but they left before I got back from using the ATM.
What I saw from the case note (sorry I snooped, please do not report me to the law) was that the boys eyes has built up pressure besides a whole lot of things I didn't understand because of the handwriting.
I'll get back to you on that.
And the optometrist told me that barring a miracle, the eyes are gone. That is why the consultant was emphasising getting him enrolled in a school. The opthalmologist they saw even consults in LUTH too. I'm surprised he simply referred them back there.
This is what I suggest:
1. Get his case history.
2. Go to Mecure. I'm bringing Mecure up because they're mostly ophthalmic consultants.
Most of these consultants have 10 different places where they work. Don't be surprised you'll still run into him at Mecure.

Softandmoist, Thanks for the update.

I'm guessing the eye drops prescribed are to help in reducing the pressure.

I know nothing about Mecure. Never even heard of them. If they are the best hospital that you think can handle the case, then tomiwa should be taken there after his case notes have been retrieved from LUTH

tearoses:


Ma'am please can you help with this? I mean sourcing a honest volunteer
Thank you very much

Working on that.

@softandmoist's update, God is on the throne.

@ifyalways, the only school available (as far as we know) is located at surulere and wouldn't admit a child below 7 years.

ifyalways:
my bad. Accept my apologies

Ha. I can't vex for u. U are one of my favourite persons on this forum. I'm sorry if I came across as brash

Caracta:
If the financial strength is there, the father should be able to get off work for a day or two and take his son to the hospital. His wife is pregnant with two daughters to take care of, so I guess we can excuse her. However, that means the bread winner of the house may be unable to provide for his family if he has to get off work for days. I don't think he would agree to that either.

Can we just pay him the wages he would earn in a month so he could concentrate in Tomiwa in one month? But then again, the hospital visits could last several months. I know LUTH. So that option doesn't seem feasible.

This is just me thinking loud.

@tearoses, is it possible to know the days of the week the ophthalmologist at LUTH attend to patients so we can plan towards that? We could even get a Nairalander that works at LUTH and could be our "eyes" there.

Let's not give up on him yet.

PLEASE!!!

As per the eye can't we look for a hospital that specialises on treatment of eye issues or something. These Teaching hospitals,... i simply can't forget my experience with them in a hurry.. My two cents though....