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Help! My Brother Has Sickle Cell - Health (2) - Nairaland

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This Snake Just Bit My Brother / Sickle Cell Patient On Oxygen Dies After Power Outage In Lagos / 93yrs Old Nigerian Sickle Cell Lady, Narrates How She Survived Against All Odds (2) (3) (4)

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Re: Help! My Brother Has Sickle Cell by Kemabassi: 4:05pm On Nov 16, 2023
Join the Alter of fire. #nsppd by 7AM Nigeria time every weekdays and you will people testifying how genotypes are changing. I have seen it.

Go's is your quickest rout to the solution. My prayer for is that God will use this to make a name for himself through you.

They might no be wind blowing and the clouds forming but be rest assured that there is water in the valley. Be blessed.

3 Likes

Re: Help! My Brother Has Sickle Cell by peacettw: 4:06pm On Nov 16, 2023
Sickle cell is a very manageable disease. Reach out to me for more details
Re: Help! My Brother Has Sickle Cell by jackmrandy: 4:08pm On Nov 16, 2023
Emma513:
I have an issue that is bothering me. My brother is sickle cell due to my parents mistake during marriage. I have been reading topics about sicklers and it has being bothering me. It there any sickler here or has an experience. Please help. How do you overcome it. And what are things to do

let me be candid with you, i know you are the one. You will just kill yourself with over thinking because of what people are saying about sickle cell. leave your normal life. Eat, rest and sleep. play games, have fun, anything that will bring sickness to you stay far away from it. I know most of them don't like stressful job, so avoid such. Nothing will do you. only thing is don't date or marry another genotype like yours.

1 Like

Re: Help! My Brother Has Sickle Cell by Eduadolero(f): 4:09pm On Nov 16, 2023
marlow1962:
Bro go straight to the point and say you're the one with the sickle cell anemia.
SS patients can live normal life just like other, get married and have kids too. Stop letting rubbish people talk online discourage you.
Some SS people even live long and healthy more than the so called AA, even AS people have tendency of sickle cell anemia in them but they are not carriers of the disease.
Bro take care of yourself, eat good foods and take your meds regularly and you will be fine, also avoid strenuous activities.

You lack knowledge because you don't make research.
Are you for real? Then who is a carrier?
The life expectancy of an SS with good medical care is around 50 years which is even about the same life expectancy of the general population of your beloved country
Be that as it may pls OP go to a hospital and assess the services of a haemato oncology to live a healthy pain free/crisis free life. Online will not help you
Re: Help! My Brother Has Sickle Cell by ovie8200: 4:10pm On Nov 16, 2023
post=127002462:
A blood and bone marrow transplant is currently the only cure for sickle cell disease, but it is not for everyone.
Many patients who have sickle cell disease do not have a relative who is a close enough genetic match to be a donor.


Yes, but very risky. I know a woman who did it for their daughter and she passed on. They said if they knew, they shouldn't have done it. Just be wise!!! At the end, God is the decider.

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Re: Help! My Brother Has Sickle Cell by DrAda(f): 4:10pm On Nov 16, 2023
I manage children with sickle cell disease and all of them are doing quite well on their routine meds. Like many have posited, sickle cell is not a death sentence.

If you want us to discuss more on this, do let me know
Re: Help! My Brother Has Sickle Cell by DEBJOCH1(m): 4:10pm On Nov 16, 2023
YOUR PARENTS COULD HAVE AVOIDED THIS, BUT RATHER THEY WERE BLINDED BY MUMU LOVE, ANY WAYS JUST SEEK FOR A PROPER MEDICAL ADVICE FROM AN EXPERT OR BETTER STILL VISIT THE NATIONAL CENTRE FOR SICKLE CELL ANEAMIA PATIENCE AT IDI-ARABA ISHAGA LAGOS, JUST OPPOSIT LUTH {LAGOS UNIVERSITY TECHING HOSPITAL).

SICKLE CELL PATIENCE CAN LIVE A NORMAL LIFE, IF THEY DO WHAT THEIR DOCTOR'S OR HEALTH CARE GIVERS ADVISE THEM TO DO.
Re: Help! My Brother Has Sickle Cell by Gattuzo05: 4:12pm On Nov 16, 2023
Dear OP,
Having sickle cell disorder (SCD) is one hell on its own. This minute, you are sound and playful, the next minute, you are groaning in pain because of on white blood cell. There is nothing you can do whether is you or your brother that has it than to eat well, avoid stressful lifestyle, taking your meds regularly. I know a scd carrier in his 40s and he's doing fine. He is one of the strongest scd carrier I have ever seen. He lives in my neighborhood. He is lucky to have lived his childhood with his grandma who dedicated her existence in ensuring the guy lives. Nothing dey bitter for the guy mouth as he don drink agbo (herbs) sotey herbs dey fear him lol. The guy strong eehn , I mean for the scd. He can fight an AS of his stature in physical combat. If you see the kind punna the guy the f**k like this, he has his own house and cars.
I remember a day he told us that he would have have many properties as achievement but he didn't bother to invest because he thought he will die early because of the crisis he had while growing. The guy is overly intelligent and brilliant. Kudos to him and his creator. He's a great among SCD.

1 Like

Re: Help! My Brother Has Sickle Cell by Barrylord4040: 4:13pm On Nov 16, 2023
Live,study and work in Canada.No payment is required... 08100128975
Re: Help! My Brother Has Sickle Cell by ikeno(m): 4:13pm On Nov 16, 2023
Don't listen to anyone that said you should call them. Also people that we tell you to start going to one church or the other.There's no two ways to it but just to manage it.
1)he should always be drinking water lots of water.
2)take his medication especially folic acid and also malaria drugs maybe once a month
3)he shouldn't do anything strenuous or tasking
3) whenever he has crisis he can take diclofenac(it's for pain relief)

5 Likes

Re: Help! My Brother Has Sickle Cell by ppogba: 4:13pm On Nov 16, 2023
Puss360:
Lol... Typical Nigerian dishing out absurd ideas...

Op, what exactly are you asking about? This your brother is he just being conceived? Abi him don grow?
Are you just noticing it?
If yes, then go to government hospital and get direct information on how to "Manage" the disease....
He is born with it, so there's no cure... You can only manage it...
I wonder what u are doing online?
Do u need help or what??
Abi na prayers you want? If it's prayer, can't you Nd your family pray??


Pardon him.
They are both babies.

But on the other hand, nothing,cures Nigerians these days that online sympathies.
Re: Help! My Brother Has Sickle Cell by Mvnster: 4:14pm On Nov 16, 2023
Google search sickle cell foundation and get in contact with them, they are really helpful.
Re: Help! My Brother Has Sickle Cell by FoggedBrain: 4:14pm On Nov 16, 2023
OboOlora:
What help do you want from us, are your parents illiterates that didn’t consider genotypes before fvcking raw?
Blame ur parents and leave us out of this crap.
I blame the slowpoke m0derat0r that pushed this to FP, bunch of incompetent servants of a Sango Otta programmer!

Have Sense!

2 Likes

Re: Help! My Brother Has Sickle Cell by IamMobisola(f): 4:15pm On Nov 16, 2023
Emma513:
I have an issue that is bothering me. My brother is sickle cell due to my parents mistake during marriage. I have been reading topics about sicklers and it has being bothering me. It there any sickler here or has an experience. Please help. How do you overcome it. And what are things to do
You can't OVERCOME it, you can only try to manage it.

Firstly, you need to register your brother with an Hematologist(LUTH or LASUTH). If you guys are financially loaded, then (Next Hematology, Surulere). They will place him on the routine Sickle cell maintenance drugs like the Hydroxylurea, folic acid, Reludrin, Astymin Zinc and other medications.

Depending on how frequent his crisis are, he would need at least two exchange blood transfusions in a year.

Then, for self-care tips, he needs to stay away from cold things(weather or drinks), try to stay under mosquito nets; always warm up. Stock up on Antimalaria drugs

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Re: Help! My Brother Has Sickle Cell by Puss360(f): 4:16pm On Nov 16, 2023
ppogba:


Pardon him.
They are both babies.

But on the other hand, nothing,cures Nigerians these days that online sympathies.
Lolss... Or is he looking for financial sympathies? Coz an average Nigerian is ready to dupe the next person.... grin grin grin
Re: Help! My Brother Has Sickle Cell by IjebuWarrior: 4:16pm On Nov 16, 2023
ConfidentialDoc:
I have a few (clients) 35 - 55 and they're doing very well.

Some things are essential for SCD management.
And some others are deadly to sicklers
If you don't know , book a discussion with ..

confidentialdoc88.ng@gmail.com


You dey MADDD angry
Re: Help! My Brother Has Sickle Cell by Eduadolero(f): 4:16pm On Nov 16, 2023
Puss360:
Lol... Typical Nigerian dishing out absurd ideas...

Op, what exactly are you asking about? This your brother is he just being conceived? Abi him don grow?
Are you just noticing it?
If yes, then go to government hospital and get direct information on how to "Manage" the disease....
He is born with it, so there's no cure... You can only manage it...
I wonder what u are doing online?
Do u need help or what??
Abi na prayers you want? If it's prayer, can't you Nd your family pray??

Wrong info, there is actually a cure, STEM CELL TRANSPLANT, however it is very expensive
STEM cell transplant center was established in UBTH then but no longer functional I think. Politics and Nigerian problem
Re: Help! My Brother Has Sickle Cell by BigMoneyeye: 4:16pm On Nov 16, 2023
AS and As must not marry

1 Like

Re: Help! My Brother Has Sickle Cell by gbaskiboy: 4:17pm On Nov 16, 2023
Righteousness2:
Run to the GOD of Chosen.
Sickle cell is a moi moi matter.
delusional!!
Re: Help! My Brother Has Sickle Cell by Bmaster(m): 4:20pm On Nov 16, 2023
Emma513:
I have an issue that is bothering me. My brother is sickle cell due to my parents mistake during marriage. I have been reading topics about sicklers and it has being bothering me. It there any sickler here or has an experience. Please help. How do you overcome it. And what are things to do
I dey suffer sickle cell,buh if you see me,you no go gree. grin
Fine and very smart,with 3 girlfriends.
Here is the secret:
Every morning before he eat,let him take 3 folic and 3 aspirin Tab together.
let him sleep with mosquito net always.
Let him take livercap forte,it will help reduce spleen diseases (2 capsules every week)
Encourage him to drink water as much as possible
Let him take penicillin tab every month end
Let him avoid masturbation,or at least reduce it to two 2 three times a week.
**Masturbation effects may not reflect on normal people,buh we the sticklers are at it's mercy,I am talking from experience!
Let him avoid cold weather by wearing hoodies during cold seasons.
Let him avoid strong exercises,(he should reduce his exercises to a maximum of 30 minutes so as not to trigger the crises.
Let him take folic and vitamin c together after dinner before going to bed.
Encourage him to drink a cup of water in the middle of the night when he woke up to ease himself (it will help to reduce the yellowish eyeballs)
There is a medicine called *hydroxyurea* he should be taking it.

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Re: Help! My Brother Has Sickle Cell by tiswell(m): 4:21pm On Nov 16, 2023
OboOlora:
What help do you want from us, are your parents illiterates that didn’t consider genotypes before fvcking raw?
Blame ur parents and leave us out of this crap.
I blame the slowpoke m0derat0r that pushed this to FP, bunch of incompetent servants of a Sango Otta programmer!
Shut up!
How many older generation parents were aware of genotype.
You had to drag his parents in your foolery.
Must you bring your poor parental upringing to the public glare.

4 Likes 1 Share

Re: Help! My Brother Has Sickle Cell by izibili44: 4:22pm On Nov 16, 2023
Well said. Confirm quote author=marlow1962 post=126996500]Bro go straight to the point and say you're the one with the sickle cell anemia.
SS patients can live normal life just like other, get married and have kids too. Stop letting rubbish people talk online discourage you.
Some SS people even live long and healthy more than the so called AA, even AS people have tendency of sickle cell anemia in them but they are not carriers of the disease.
Bro take care of yourself, eat good foods and take your meds regularly and you will be fine, also avoid strenuous activities.

You lack knowledge because you don't make research.[/quote]
Re: Help! My Brother Has Sickle Cell by OZIOGU1: 4:22pm On Nov 16, 2023
https://www.nairaland.com/7908943/two-love-birds-both

That is the same journey these two fellow want to embark on
Re: Help! My Brother Has Sickle Cell by Primebuilders(m): 4:23pm On Nov 16, 2023
Emma513:
I have an issue that is bothering me. My brother is sickle cell due to my parents mistake during marriage. I have been reading topics about sicklers and it has being bothering me. It there any sickler here or has an experience. Please help. How do you overcome it. And what are things to do

Plz contact me as soon as possible. There is solution for sickle cell. I mean it can be cute permanently but people don't know
Re: Help! My Brother Has Sickle Cell by Puss360(f): 4:24pm On Nov 16, 2023
Eduadolero:

Wrong info, there is actually a cure, STEM CELL TRANSPLANT, however it is very expensive
STEM cell transplant center was established in UBTH then but no longer functional I think. Politics and Nigerian problem
Okay.. maybe I'm not up-to-date....Then maybe the OP can try that... With the hope say him money go reach ooo... lol
Re: Help! My Brother Has Sickle Cell by Enemona001: 4:25pm On Nov 16, 2023
My brother you can manage sickle cell...... Also my neighbor child sickle cell treatment from herbal medicine is a testimony which I can recommend for you
Re: Help! My Brother Has Sickle Cell by Blake755: 4:26pm On Nov 16, 2023
Emma513:
I have an issue that is bothering me. My brother is sickle cell due to my parents mistake during marriage. I have been reading topics about sicklers and it has being bothering me. It there any sickler here or has an experience. Please help. How do you overcome it. And what are things to do
Use bitter kola thank me later
My own was so pathetic until i started making research i use bitter kola since July till now no crisis although i still treat malaria once in a month but it has been a relief to me

2 Likes 1 Share

Re: Help! My Brother Has Sickle Cell by OboOlora(f): 4:27pm On Nov 16, 2023
tiswell:
Shut up!
How many older generation parents were aware of genotype.
You had to drag his parents in your foolery.
Must you bring your poor parental upringing to the public glare.
May it not be well with you and yours, Amin!
Re: Help! My Brother Has Sickle Cell by Officialenny1: 4:27pm On Nov 16, 2023
Emma513:
I have an issue that is bothering me. My brother is sickle cell due to my parents mistake during marriage. I have been reading topics about sicklers and it has being bothering me. It there any sickler here or has an experience. Please help. How do you overcome it. And what are things to do
I'm sorry to say this but don't call your parents selfish attitude a mistake
Re: Help! My Brother Has Sickle Cell by Thegamingorca(m): 4:28pm On Nov 16, 2023
Emma513:
I have an issue that is bothering me. My brother is sickle cell due to my parents mistake during marriage. I have been reading topics about sicklers and it has being bothering me. It there any sickler here or has an experience. Please help. How do you overcome it. And what are things to do


I can see that this is actually of great concern to you. How old is your brother exactly?
Re: Help! My Brother Has Sickle Cell by Thegamingorca(m): 4:29pm On Nov 16, 2023
marlow1962:
Bro go straight to the point and say you're the one with the sickle cell anemia.
SS patients can live normal life just like other, get married and have kids too. Stop letting rubbish people talk online discourage you.
Some SS people even live long and healthy more than the so called AA, even AS people have tendency of sickle cell anemia in them but they are not carriers of the disease.
Bro take care of yourself, eat good foods and take your meds regularly and you will be fine, also avoid strenuous activities.

You lack knowledge because you don't make research.


That AS submission is rubbish

1 Like

Re: Help! My Brother Has Sickle Cell by ConfidentialDoc: 4:32pm On Nov 16, 2023
Officialenny1:

I'm sorry to say this but don't call your parents selfish attitude a mistake

I have a 60 year old cousin who has the condition but you will not know unless they told you.
He was born before screening became mainstream, so can we blame the parents ?

The op said his brother is only 16, so what will we say about the parents ?

Mistake ?
Carelessness?
Ignorance ?
Illiteracy ?

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