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Nairaland Forum / Nairaland / General / Health / 19th June - World Sickle Cell Anaemia Day. My Story As A Warrior (24238 Views)
World Sickle Cell Day / June 19th: World Sickle Cell Anaemia Day / University Of Ibadan Discovers Cure For Sickle Cell (2) (3) (4)
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Re: 19th June - World Sickle Cell Anaemia Day. My Story As A Warrior by GodMode: 5:35am On Jun 20, 2015 |
lepasharon: Eat 4 times daily... And drink water.. 1 Like |
Re: 19th June - World Sickle Cell Anaemia Day. My Story As A Warrior by GodMode: 5:36am On Jun 20, 2015 |
mta003: Was he a coza member |
Re: 19th June - World Sickle Cell Anaemia Day. My Story As A Warrior by SWAGGAVILLAGE(m): 7:02am On Jun 20, 2015 |
Dahjhi:I SWAGGAVILLAGE Support a #SickleCellFreeGeneration lost a cousin early this year to this same stuff just 12 years old,my best cousin ever. I miss you osiwe,RIP Let's do it ... We can make it happen .. 1 Like 2 Shares |
Re: 19th June - World Sickle Cell Anaemia Day. My Story As A Warrior by Nobody: 8:15am On Jun 20, 2015 |
Re: 19th June - World Sickle Cell Anaemia Day. My Story As A Warrior by RapLawd(m): 9:16am On Jun 20, 2015 |
Dahjhi: :-P whole hearted I'm in support of the movement... #SickleCellFreeGeneration... |
Re: 19th June - World Sickle Cell Anaemia Day. My Story As A Warrior by Leem4: 9:49am On Jun 20, 2015 |
tabontabon:https://www.nairaland.com/2053511/it-possible-aa-genotype-give everyOne I told did story to always say that my parent is hidding something from me. An mls scientists once told us DAT , it might be a genetic mutations. And I have seen similar case on did in Nairaland. |
Re: 19th June - World Sickle Cell Anaemia Day. My Story As A Warrior by Leem4: 9:58am On Jun 20, 2015 |
lepasharon:we are nt always slim sis, Take folic acid atleast twice in a week. Sleep a lot and eat. Avoid streneus activities, and pray. Am going obese nowadays if not for SKul stress and reducing me. 1 Like |
Re: 19th June - World Sickle Cell Anaemia Day. My Story As A Warrior by Nobody: 10:16am On Jun 20, 2015 |
GodMode:think so, he was my brother's friend and a senior in sec sch |
Re: 19th June - World Sickle Cell Anaemia Day. My Story As A Warrior by tabontabon: 12:06pm On Jun 20, 2015 |
My Dear,b4 you conclude it's genetic mutation do a DNA,If d results prove they are your parents,then it's mutation. Atimes,Seeking for truth is a difficult task Leem4: 1 Like |
Re: 19th June - World Sickle Cell Anaemia Day. My Story As A Warrior by Mikwus(f): 12:14pm On Jun 20, 2015 |
shadowripper: I am a warrior. I don't use drugs. I had my last blood transfusion at age 8. I last had crisis about 7yrs ago. Before I completely stopped medication, I used to take jobelyn. I stopped about 3yrs ago. I just eat healthy, stay away from stress, drink lots of water and cover up well when its cold. . My PCV is always above 35%. I check every month and my doctor is amazed. So if she says she isn't using any medication. Believe it. All things are possible if we just believe. #SickleStrongByTheBloodOfJesus 4 Likes 3 Shares |
Re: 19th June - World Sickle Cell Anaemia Day. My Story As A Warrior by Leem4: 12:18pm On Jun 20, 2015 |
tabontabon:k tanks |
Re: 19th June - World Sickle Cell Anaemia Day. My Story As A Warrior by Nobody: 12:20pm On Jun 20, 2015 |
Mikwus: Wow! I've never had blood transfusion but currently my PCV is around 28% that's why doc prescribed astymine. What's your secret to stable PCV? Any special diets? Please share cos I'd like to learn more And do you take folic acids everyday or mayb bico, or multivitamins? |
Re: 19th June - World Sickle Cell Anaemia Day. My Story As A Warrior by tabontabon: 12:47pm On Jun 20, 2015 |
Dont let the current situation affect your person negatively. Coping with SS is stress on its own,coupled with having doubts about one's parenthood. If I may ask,where do you reside? Leem4: |
Re: 19th June - World Sickle Cell Anaemia Day. My Story As A Warrior by LeSaint(m): 3:17pm On Jun 20, 2015 |
@treasuremabel, thank you for starting this, and sticking with the discussions so far! Bravo to all you warriors! God is your strength. My son is 10+, and we have not experienced anything that can be described as a crisis. Just frequent bouts of malaria, until we started him on Paludine daily at firs, now 3 - 4 times a week. Folic acid and BCo daily. No health issue in the past one year at least. He is quite lean tho, but I think that's because he hates any good food. It's a battle at every mealtime. My fear is I don't know how the future will be for him - better or worse. Hope he never gets one of those crisis. He's my second child, and we stopped after discovering his status at 2yrs. Would appreciate any advice or perspectives. 1 Like 2 Shares |
Re: 19th June - World Sickle Cell Anaemia Day. My Story As A Warrior by Mikwus(f): 4:09pm On Jun 20, 2015 |
[quote author=treasuremabel post=34958087] Wow! I've never had blood transfusion but currently my PCV is around 28% that's why doc prescribed astymine. What's your secret to stable PCV? Any special diets? Please share cos I'd like to learn more And do you take folic acids everyday or mayb bico, or multivitamins?[Comple I don't take folic acid and B Complex all the time. I only use those whenever I'm treating malaria which is like every 4 months. Jobelyn is a good herbal supplement. Its a wonder drug made by 'health forever' try it for just 1 week and check your PCV, you will be amazed. Though I've not used it in about 3yrs but I used it for so many years and I never had issues. In fact we used it (my siblings and I, 2 older siblings of mine are also warriors - aged 40 and 38.) I am 30 years old. So for eating healthy, I eat lots of vegetables even in with noodles. I drink lots of water and anything that's fluid. I don't take alcohol at all, no matter the pressure. I don't stress myself at all. Growing up, doctors used to warn my parents. So anything that would give me heartache, I avoid it like a plague. Whatever I can't do, I don't force myself to do it. I cover up real well when its cold. I sometimes wear socks in the office and I just don't care who is looking. When its hot, water is my Buddy. When its cold I force myself to drink lots of water as well. I try not to worry about things after all HE said 'cast my burden in HIM' My family loves me. My friends are a blessing so I'm never looking for care or love out there but find ways to give love back, this in turn keeps me very happy. I just believe and tell myself each passing moment that I'm beautiful, I'm loved, I'm brilliant and I'm stronger than even someone with the AA genotype. (Trust me, it works). As you can see, nothing really extraordinary, but you can try anything here you haven't been doing or use jobelyn. One of my favorite food is unripe plantain. Its really healthy, I prefer to eat it as porridge with lots of vegetable in it 1 Like 2 Shares |
Re: 19th June - World Sickle Cell Anaemia Day. My Story As A Warrior by Mikwus(f): 4:11pm On Jun 20, 2015 |
treasuremabel: don't take folic acid and B Complex all the time. I only use those whenever I'm treating malaria which is like every 4 months. Jobelyn is a good herbal supplement. Its a wonder drug made by 'health forever' try it for just 1 week and check your PCV, you will be amazed. Though I've not used it in about 3yrs but I used it for so many years and I never had issues. In fact we used it (my siblings and I, 2 older siblings of mine are also warriors - aged 40 and 38.) I am 30 years old. So for eating healthy, I eat lots of vegetables even in with noodles. I drink lots of water and anything that's fluid. I don't take alcohol at all, no matter the pressure. I don't stress myself at all. Growing up, doctors used to warn my parents. So anything that would give me heartache, I avoid it like a plague. Whatever I can't do, I don't force myself to do it. I cover up real well when its cold. I sometimes wear socks in the office and I just don't care who is looking. When its hot, water is my Buddy. When its cold I force myself to drink lots of water as well. I try not to worry about things after all HE said 'cast my burden in HIM' My family loves me. My friends are a blessing so I'm never looking for care or love out there but find ways to give love back, this in turn keeps me very happy. I just believe and tell myself each passing moment that I'm beautiful, I'm loved, I'm brilliant and I'm stronger than even someone with the AA genotype. (Trust me, it works). As you can see, nothing really extraordinary, but you can try anything here you haven't been doing or use jobelyn. One of my favorite food is unripe plantain. Its really healthy, I prefer to eat it as porridge with lots of vegetable in it 1 Like 2 Shares |
Re: 19th June - World Sickle Cell Anaemia Day. My Story As A Warrior by Nobody: 5:44pm On Jun 20, 2015 |
Mikwus: Huh?? Unripe plantain? I thought we are supposed to avoid those cos of its iron content?? Wow thank you so much! You are the only one here who has made me known that am on the right track on my refusal not to depend on drugs. Thanks for sharing, am also trying out a routine free of drugs, just taking fruits n enough water n I want to see how it goes, if you can do it, I can do better after all,we are all warriors! Thank you very much ma |
Re: 19th June - World Sickle Cell Anaemia Day. My Story As A Warrior by Nobody: 5:56pm On Jun 20, 2015 |
LeSaint: To start with, am an 18years old warrior, i would just say things about my experience n from my doctors. he has to stay away from bitter stuff, you know, herbs, bitterkola, (the day my mum gave me a bitter herb for the first time I almost died, doctors were quite angry with her at the hospital too), anything stressful he should stay away, even playing football as a boy, and try making him drink astymine frequently to build up his blood, as for his stature, you have to look for a way to make him eat. Some of the reasons am looking healthy today is cos mum made sure I fed properly, you can check my dp to confirm, people even say I look older than my age whereas warriors are supposed to look way younger than their age, so healthy foods is the key if you don't want him looking like a sickled when he's grown, look for a way to make him eat, you could ask your doc for help cos my doc helped me to be eating. Plenty water is another friend of ours, irrespective of the weather, make him drink water n lots of it! My doc said I should avoid foods like unripe plantain cos of its high iron content so, maybe you can try that too. |
Re: 19th June - World Sickle Cell Anaemia Day. My Story As A Warrior by LeSaint(m): 7:24pm On Jun 20, 2015 |
treasuremabel: Thanks very much. You're really a treasure! 1 Like 1 Share |
Re: 19th June - World Sickle Cell Anaemia Day. My Story As A Warrior by Mikwus(f): 8:01pm On Jun 20, 2015 |
treasuremabel: You're most welcome dear. The iron in unripe plantain is different from the iron in drugs. So unripe plantain is good for you (feel free to verify from your doctor) Feel free to eat anything that has been given to us by GOD. Eat foods and fruits in season. Some other things I do are the use of natural remedy for very simple ailments. I use honey a lot. I never run out of honey. Garlic for antibacterial purposes ....etc. You can inbox me for more info Take care. 1 Like 1 Share |
Re: 19th June - World Sickle Cell Anaemia Day. My Story As A Warrior by Leem4: 8:19pm On Jun 20, 2015 |
tabontabon:ogbomosho |
Re: 19th June - World Sickle Cell Anaemia Day. My Story As A Warrior by Nobody: 8:32pm On Jun 20, 2015 |
LeSaint: You are welcome sir, God that didn't allow my mum to mourn me will not allow you to mourn him IJN |
Re: 19th June - World Sickle Cell Anaemia Day. My Story As A Warrior by Nobody: 8:33pm On Jun 20, 2015 |
Mikwus: Thanks ma, really appreciate |
Re: 19th June - World Sickle Cell Anaemia Day. My Story As A Warrior by Dahjhi: 8:35pm On Jun 20, 2015 |
Mikwus:Now this is wonderful... I will try out Jobelyne also.. Although my story is also similar to all. Do play like other kids as a toddler, soccer, running e.t.c. (although I do feel weak after those activities but the next hours I will be fine). Missed many classes in school due to malaria as a kid, I do wounder why are other children not having !malaria like myself -my bro is also a warrior but I noticed he's more fit than me-... until one day in J.S.S 1 I will say a friend said to me after a fierce fight 'you that you won't reach 14 before ur death.' Since that day I knew what I'm I, the next available person is my mum, I asked her if thats true. Then she said to me 'You shall not die but live'.. Since then I tried to know myself. I got answers: I knew the reasons why my mum want me to be a doctor (lol, ala n shiere.. For her dream..) Along the line my mum got saved and belief solely in God.. Then her faith was transfered to me too. Whenever a warrior in the neighborhood 'stopped running' mum will come to us and lay her hands on us and prayed.. We've got an uncaring dad though.. He want another male (which aren't coming till date).. Finished my sec school.. Warriors stopping running at the left n right.. 2008 was the last time i got admitted and it was malaria. Anytime i fall sick and mum ask shall we go to hospital if i said yes then she knew im really sick, i hate the four walls of clinics.. I was admitted and just transfused with 5packs of water 'I'm dehydrated- Twas that years I gain my admission. My 4 years in school was fun at its peak. I took part in every activities (each year with one political post or the other, from S.U.G. to association.) Through my years in school i met other 2 warriors 1 'Stop running' in the second year the other after weve graduated. Till date I haven't been transfused nor admitted again. Only treating malaria as a matter of whenever it arises.. I will clock 28 in July why my bro will clock 30....To make it easier I'm recruited into a govt hospital.. Surviving on and on with the spirit like..''I Cheated on my death, broke up with my fears.. Though it took so long but now I'm married to my future'' 7 Likes 2 Shares |
Re: 19th June - World Sickle Cell Anaemia Day. My Story As A Warrior by lepasharon(f): 10:25pm On Jun 20, 2015 |
Amynamerica: Pls what do you eat ? |
Re: 19th June - World Sickle Cell Anaemia Day. My Story As A Warrior by lepasharon(f): 10:26pm On Jun 20, 2015 |
treasuremabel: What do you eat plss? 1 Like 1 Share |
Re: 19th June - World Sickle Cell Anaemia Day. My Story As A Warrior by Nobody: 11:23pm On Jun 20, 2015 |
lepasharon: Heheheh to tell you the truth I am not a food person, My secret is rest of mind n good sleep. I will advice you not to try adding weight Let your body take its time 1 Like 2 Shares |
Re: 19th June - World Sickle Cell Anaemia Day. My Story As A Warrior by daveP(m): 12:38am On Jun 21, 2015 |
Dahjhi: (as he dismounts the top podium, several guys in casual wears doff their hats and gradually an encouraging applause fills the entire room.) Shalom! 1 Like 1 Share |
Re: 19th June - World Sickle Cell Anaemia Day. My Story As A Warrior by tabontabon: 5:06pm On Jun 21, 2015 |
Leem,go to any general hospital/federal medical center explain to the doctors and ask to see a hematology for better clarification.assuming u are in lagos,LASUTH would have been d best. Leem4: |
Re: 19th June - World Sickle Cell Anaemia Day. My Story As A Warrior by Mikwus(f): 5:14pm On Jun 21, 2015 |
Dahjhi: You're such an inspiration.Whenever people told me I could not live to a certain age, I always respond 'I will attend your funeral' seemed harsh but I had to make a confession more superior to theirs. Fear is the only thing that limits humans. For a warrior, its good you've broken up with it. I'm 30yrs old. I have 2 siblings who are warriors as well, ages 38 and 40 respectively. We will keep being a wonder to our world and generation. Keep trusting God. And please try out jobelyn 2 Likes 3 Shares |
Re: 19th June - World Sickle Cell Anaemia Day. My Story As A Warrior by Dahjhi: 6:34pm On Jun 21, 2015 |
Mikwus:Lol. @attending their funeral. Thanks a bunch... You are wonderful also... Keep on Surviving and #StayAlife Shalom ! ! ! 1 Like 1 Share |
Re: 19th June - World Sickle Cell Anaemia Day. My Story As A Warrior by Dahjhi: 6:37pm On Jun 21, 2015 |
daveP:See u ehn? |
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