patrickdarlins:
@treasuremabel....hear my story....

i hardly take my pills...3yrs ago....cos i was doing fine...i only take water...eat vegetables...eat fruits(which i still do till now)...and eat well..but i forgot one thing....BY STRENGTH SHALL NO MAN PREVAIL...I was eating well...playing football....had girlfriend then.(.u know na..we must rock too)...i go everyday without single drugs and checkups...for almost 2years....when you see me self...you will think i am as normal as an AA patient...

strong and healthy...full of life....i never took drugs i repeat it again...for almost two years...dont doubt me please....i was in in school then..you know school life na....and it was my final year period...i did strong works..i hit the gym every weekends..(i dey play full time football...90mins self.)....

towards my final paper...sickness struck...
it was just like a dream to me...instantly..i became dry..
i was having headache..(mind you..anytime i feel headache..i know my blood rate has become 14%)..and constant dehydration...almost one week..i wasn't bothered either...i thought its one of those things..i took folic acid two days..and i was fine....

two days after... i saw hell...
i fainted...and was rushed to hospital...my joints in every part of my body was not it again...i couldnt sleep...i couldnt wake up....i couldnt lie down..i couldn't seat down...i couldnt open my eyes..i couldnt close my eyes...i was dead alive...the pains is in- explainable...i lost it....i was transfused...given drips almost 10 at ago..the drip was fastened..

i opened my eyes after 3days...(lols)
the mr strong man was alive again..now..doctors were sitting all around me...real doctors..physicians..not just any other doc..

they asked me...mr patrick...when was the last time u took ur drugs...i was just looking at dem like a lost sheep...they said....TO BE CONTINUED.

Abali1:

I have been here all day waiting for the younger ones to champion the Crusade. I am happy, the OP, started this thread.

DankemzI:
I don't know much about sickle cell I've never encountered any one with before!
@Op fight on, you're a warrior. Though I don't have a clue what you're talking about......

treasuremabel:

a. Am a smart 18years old girl
b. No way! Am 18!
c. Well, I don't seem to understand this question, please shed more light if you don't mind

UnknownT:
I have a friend, a sickler. He is in his late 20's. He enjoys smoking and alcohol. We have tried talking to him to stop such lifestyle

sirabbey:


Great. You're indeed a smart, brave and tough lady.

My third questions is precipitated on the herditary nature of sickle cell anaemia (union of AS & AS, AS & SS and SS & SS). However I have come across some sickle cell sufferers and carriers who would not be guided by this scientific rule but choose their spouse irrespective of his/her genotype.

Many of these people are people of faith who choose miracle & faith over scientific guidance. What is your take on this?

animality:



YOU DID NOT LOST YOUR MUM DUE TO THIS ILLNESS.

ONCE YOU HAVE REACH THE AGE OF 26, THAT SICKNESS WILL BECOME DORMANT.

Capital NO #BeInformed

Picomon:


Don't use hydroxyurea yet, u shud only use it when d doctor prescribe it for u.

Folic acid is okay. Water and vegatables too do wonders. And stay away from blood tonic.

I'm also a warrior. Keep holding on!

#WeSurvive #GodWin... Survive on bro

treasuremabel:


My own bible says wisdom is profitable to him that has it, therefore, get wisdom!
I can't no, I will never under any circumstance have anything intimate to do with an AS/SS guy not to talk of marriage
I chose to be guided by my experience as a warrior n the scientific rule
Don't get me wrong, I believe in faith n miracles but seeing a danger n jumping into it with the hope that a miracle would happen n protect you is absolute foolishness

Leem4:
Also a warrior, my parents are AC and AA . but am SC, God see me through

Kay005:
Pls guys i think SS is quiet different from SC. It is only SS that is sickle cell anaemia why are SC's too calling theirself warriors?

treasuremabel:

My own bible says wisdom is profitable to him that has it, therefore, get wisdom!
I can't no, I will never under any circumstance have anything intimate to do with an AS/SS guy not to talk of marriage
I chose to be guided by my experience as a warrior n the scientific rule
Don't get me wrong, I believe in faith n miracles but seeing a danger n jumping into it with the hope that a miracle would happen n protect you is absolute foolishness

sirabbey:


Great answer @treasuremabel. Wisdom is profitable to direct Ecc 10:10

The situation of not taking your drugs as a sickle cell patient is akin to choosing one's partner irrespective of his/her genotype- it is a recipe for disaster. While I understand and respect the peculiarities of your choice, I think it should not be encouraged. Hence I advise you pay a second thought at patrickdalins experience.

People of faith should realised that miracles also happen by taking your drugs, afterall many others took the same drugs but it never worked for them.

You're a great girl, you're a warrior, keep fighting for you shall conquer.

okpurukata:


May God continue to sustain you. I have a warrior son. He is 8 and doing great. Learnt of a supplement called Cellod S. It has been very helpful.

Leem4:
Also a warrior, my parents are AC and AA . but am SC, God see me through

animality:


YOU DID NOT LOST YOUR MUM DUE TO THIS ILLNESS.
ONCE YOU HAVE REACH THE AGE OF 26, THAT SICKNESS WILL BECOME DORMANT.

mavelo:
please how sure are you? I need prove.

stonecoldcafe:


AC? Is there AC? I know AA, AS and SS. I now need to immerse my head in wikipedia for the next few minutes. BRB

In other news God bless yall warriors. His grace is sufficient.

treasuremabel:

Following a mysterious bone pains at age 8, I found out I had sickle cell anaemia,
It wasn't easy to mange it then.
To start with,

Sickle cell is a blood disorder that is hereditary n starts from when one is born,
So what happened? Why did mine wait till I was 8 before it started?

Funny enough, my mum said I was never sick as a baby n the only problem I had was measles,
I grew curious n asked my doctor,
After a number of 'no idea' replies he came up with an hypoyhesis where he claimed that my healthy look n lack of crisis or sickle cell symptoms till age 8 was as a result of extensive breast feeding.
Still don't know if his hypothesis is wrong or right.

Life as a warrior wasn't easy but what helped me was the refusal to accept self pity in my life,
Crazy enough, I happen to belong to a class of people who are intelligent,
After coming first in exams, I kept telling myself on n on that I was better than those with normal RBCs
I believed it too n that worked for me!
I had a dream n I wanted to accomplish it irrespective of my health difference n the set backs I suffered as a sickler
I refused to receive pitied love, in fact I got disgusted when people became nicer to me just cos they found out I have sickle cell anaemia.
I refused to compromise, I dreamed like every normal person.

How did I do it all??
1. I just believed in myself
2. I took care of my health, you know, eat at the right time, avoided stuff that contained iron, avoided extremely bitter things, made sure the weather was conducive for me, drank lots of water n took fruits.
3. I never depended on the drugs
4. I set goals for myself
5. I discovered who I am n who I wanted to be
6. I gave no room to self pity or pity from others
7. I saw sickle cell anaemia as a challenge not a disease
8. I never allowed myself to get intimidated by those with normal RBCs
9. I just kept FIGHTING n NEVER GAVE UP.

Tell you what, I don't take folic acid everyday, I don't take any drugs at all currently but my lifestyle has kept me away from hospital for 1year n 8months now,

If I can do it....you can do better cos we all are warriors.

To those who have loved ones who are warriors, keep encouraging,
Its not easy but its POSSIBLE!


Let's spread the awareness n keep FIGHTING!