₦airaland Forum

Cupidkc: op nice wrt up. Though ur campaign shld b championin against AS/AS marriages because dts d bst way 2kil sickle cell and sav ppl 4rm d crisis whc u rgtly said u wont wish ur worst enemies.

I am against AS/AS couples marrying. I am only telling my story, because a lot of people are mis-informed about the kind of life SS people live. When most SS people get to marriageable age, the stigma against them begins. Forget that so many people are educated and "enlightened" but it is only very few people that are open minded, including people that should know better....THE DOCTORS.

johnsonerhis: @Abali and @ All pls can u pple share light on wot AS pple go tru. I have AS friend and he seems to experience some of d things u ve described so far, pls share some light

AS people are have the Traits of Sickle cell. That means, that some of there red blood cells are SICKLE in shape. In other words they are mutated. (if I am wrong Doctors should correct me, we are all learning).
Even if the person should have some of the experiences SS people have, it should be very mild. (Don't forget that some SS people who look healthy, will not want people to know that they are SS).
my advice, go to a good lab for genotype testing before you go too far.

amarush: Hubby had been tested in naija and was told he was AA, but the hospital wanted to test him also, Anyway, hubby was tested and he was also AS, he was sooooooo shocked as tested as a teen and always belived he was AA. We have two kids, the first is AA (3 years old) and the second is AS (7 months old).

btw his older sister was tested in naija and told she was AA, she was retested over here (UK) and is infact AS, luckily her husband is AA. They were both tested a number of years ago and i hope that the procedures have tightned up. Misdiagnosis is no joke.

This is the type of "Miracle Lab Result" you get from some Naija lab. Then someone will tell you that S/he was once a SS and now AA.

kpozite: SCD persons have higher resistance to malaria than AS and AA. i.e. theirs is mild

Please, I have had this arguement with someone else on another thread. You can read my story in this thread, and I beg you do not mis-inform the public. Malaria attack if not handled well, will result to the death of a SCD person.

apocalypse: Your analysis is wrong , the thing is an AS/AS couple can have four of any kind of combination : one AA and three SS , one AA and three AS , one AS and three AA , one AS and three SS , one SS and three AA , one SS and three AS , two AA and two AS , two AA and two SS ... Infact they can have all round AA , AS or SS . The thing is every birth is independent of the other , so for every birth the probability of having an AA is 25% , AS 50% and SS 25%.
More so the gene pool remains the same if there is no manipulation.
I wouldn't want to have SS children but I know science has gone a long way to address issues that might arise from genotype incompatibility.

I still give my vote to love on this one

[b][quote author=apocalypse]You are simply saying the same thing she said. It is all based on probabilty.

@betrani, God in His wisdom created each and every one of us in a Unique way. You are a Warrior and a Survivor, don't let anyone tell you otherwise. Stick to your medications and if you want, you can join those of us taking cellod-s. The drug has been very useful.

[quote author=Unimke_Ak][s][/s]A know of some facts about SCD, being a suffer my self and I have also had of some myths concerning SCD. I will like others to add the fact and myth the also know or have heared of. Thank You.
FACTS:
SCD, is a blood disease. It is inherited from from the HB s genes of both parents.(so it's both parents that should share the blame game, if any)

SCD crisis occurs when you have a mutation of the red blood cells(the doctors and lab scientists should explain better
Crisis is not always painful ,but it can also be extreemly painful (you wouldn't wish your enemies that can of pain)

In summation, this is a LOUSY WRITE UP.[/quote]Thank you Sir, for stating your OPINION.

Tlinkz: @abali, I'll like to contact you.

I even tried contacting yesterday, but I don't know if NL sent you a message. Anyway, mail me at abiaaba4gmail.com using Tlinkz as the subject.
I await your mail, cheers.

it depends on a lot of factors, like environment/city where U live (cost of living there), transportation, are U fending for yourself alone or do you have dependent, housing (do you live with somebody or do pay rent where you live).
If you live with somebody, u don't need to spend much. But if you are paying rent, then you will factor in sundry expenses like electricity bill, sanitation money etc.

If you as me I will say... NIKE....JUST DO IT.

patrick2: Abali.. Pls I need the following information from you. (1) Are you male or female and how old are you? (2)How long (Months or years) have you been using the Cellod-S? (3) Have you had any crisis since then? (4) In your opinion is the drug curative or preventive? (5) Does the drug have any side effect?. I will appreciate your feedback based on your past experience with the drugs. I am making these enquiries for my younger brother who is 37 years old. Thanks

Patrick, am sorry that my response is a bit late. I just got back from an official journey.
1) I am male
2) i started using cellod-s from July/August of this year. Like I said I got the info about the drug, from here NL and the website blink provided.
3) Even before I started using the drug, I rarely have crisis. I was using another herbal medicine called DIOSCOVITE. It's a clear colorless liquid like water. I do combine it with my monthly malaria preventive.
4) Since I started taking Cellod-s, I have stopped taking any other medication. But, I still do take a lot of water everyday. Apart from headache, I have not had any problem.
In my position (as a lay man, I believe cellod-s is curative. But I can't prove that ).

5) To the best of my knowledge, I have not noticed any side effect. And like I said earlier, the EFFECT OF WATER CANNOT BE OVEREMPHASISED. A lot of water can do wonders, believe me.

Your brother is just a couple of years older than me. A little reading and research can do sicklers a world of good. Awareness is very important, spread it.

blink182: can you imagine. So he wants †☺ take you off the drug and start administering folic acid. Sometimes I feel doctors are just ignorant and wicked, they simply do not care about sufferers. Not all doctors are like this though as some have accepted the drug.

blink, I believe they are not wicked or heartless, but the years they have put in studying for there profession makes them believe that after God, they are the next authority here on earth.
Moreover not all Herbal practitioners are getting it right. If you ask me, I will suggest that Medical doctors and herbal practitioners should find a middle ground. If they can lay aside their ego, they will be unstoppable.

Like I stated on this thread, I have only had one doctor ( that is a doctor who knows all about my medical history) but he has long left the country. Every SCD person should be able to understand his/her system, and know the things that work for him/her.

The doctors go by what you tell them and the lab test result. They have been equipped professionally, but they have not really experienced what you are experiencing. And last time I checked, EXPERIENCE IS STILL THE BEST TEACHER.

Tlinkz: Thank you all once again for your feedbacks.
In all, let's jointly discourage couples from "risking" bringing children into this world to live with SCD.

Share the news, and not the risk.

@abali.... I get where you've been and what you're aiming at, but you sometimes need to keep it cool, as not all SCD people can be as strong as you think they should be. Keep encouraging them, and they'll get there.

Once again, I do hope this thread served its purpose. Thank you all

Yeah sis, I will do my best to keep encouraging other warriors out there. For those who have genotype incompatibility, I pray they heed the voice of wisdom.

blink182: it is not a cold war, it is a bloody war with many casualties. You have seen cellod, I believe its the most processed herbal drug in Nigeria, if you are not told, you will conclude its an orthodox medicine. When the results of the clinical trial come out, I will see excuses doctors will present for rejecting it.

One of the reasons of starting this thread is to enlighten people about the SCD, with real life experiences of people who are living with it. Their battles and their victories.
Like I mentioned on this thread, Doctors opinion is just what it is... an opinion.
A friend who is a doctor have actually tried to convince me to stop using it ( not because there was any test he conducted on the drug, but just because it comes from herb extracts).
Since I started using Cellod-s I have noticed a significant change in my body. People now see me and say " guy you are adding weight". I have not had a need to take the monthly malaria preventive. And I feel good with myself.

i understand. I believe there is a kind of cold war between modern medical practitioners and there herbal counter part.

blink182: visit their website, www.ormedsupremeoption.com all the information you need is there.

Patrick2, just visit the website as blink suggested. Actually I aslo got to know about the drug here on NL. Believe you me, the drug has really been very helpful. Since I started taking it, I have not taken any other drug... including my once a month malaria preventive.
As per your brother pleasing his wife, bros I no sure if you can perform better than him. God built us in a special way.

Am truely sorry about the one you lost. Awareness of the SCD will go a long way to help. Thank God for social websites like NL.

blink182: is the sickle cell foundation at luth the one being headed by Professor Akinyaju?

I believe the sickle cell foundation is at Idiaraba, I mentioned LUTH cos it's opposite it. I have not been there myself.

@ozReal, thanks for that wonderful post. Let's keep it real bro. I used to try that building stuff, before my friend cautioned me. I for don spoil this beautiful slim body.
@abil, I will do that when am ready.... just need to take one babe to the alter before I start.

abiL: I am from African descent. But like most things in life, people aren't really concerned until its happening to someone else close to them. Which I'm guilty of having that mentality.

If you've got any charity in Nigeria on creating awareness for sickle cell, I'll be happy to contribute financially and with research

My dear I have a project in mind, but I will really love to start it after am married with kids. So that when I talk, I will be using myself as a Living Testimony. I believe in a year or two I will be ready.
I can really vouch for the Sickle Cell Foundation at LUTH. It's recognised by the government, but I don't know what they use the money the realise for.
Making research and reading up literature about SCD will help you to be in a better position to spread the awareness.
Thank you.

Amynamerica: Don't wait!!! Start taking CELLOD-s. I am on it already (started 3months ago) and it works wonders. I couldn't thrive on NICOSAN cos while I was on that, whenever my period starts, I used to experience serious crisis.

Drink lots of water. Water helps to detoxify the system thereby cleansing the liver and ridding ur eyes of the yellow tinge.

Cellod - S is really doing wonders. I got to know about it here on NL( thanks to the NL TEAM).
The usefulness of water in the life of a sickler cannot be over emphasised. Please, Warriors out there drink as many "portable water" as you can find. I believe God in His wisdom made water to be free. Yes Free. Get water from the tap and boil it or even fetch it from a clean running stream and boil it.

abiL: On another note, Abali1 I'm really enjoying your posts and I'm learning from your story.

Just had to ask my mum now what my blood group is because I've never really felt a need to know. It's not very common in the western society for people to start worrying about their blood group.

I learnt about SCA in college, but I didn't feel I was in danger of having an AS blood type, none of us did (silly me).

But yeah I've asked my mum, and I'm AA. I feel relieved.


Thanks for sharing your story with us, and I pray you never relapse or suffer another crisis.

Thanks for your contribution. Please, you also need to show more concern now that you already know your genotype. SCD, like I have pointed out earlier occurs mainly in people of African descent. Awareness and knowledge of this blood disease will go a long way to help.

Amynamerica: Its actually as a result of the malaria in ur system that your blood kept drying up so fast. That's the reason why SCD patients are advised to avoid getting bitten by mosquitoes.

Thank you for your contribution. I honestly didn't know what was happening and this happened in the early 90's.

Yellowing of the skin and eyes: these are signs of jaundice, resulting from rapid breakdown of RBC. This is one of the most recognizable feature of a sickler.

Delayed growth and puberty in children and adults: the slow rate of growth is caused by a shortage of red blood cells.
( To me this is a blessing in disguise. I can actually pass off as someone in his early twenties. And you can imagine the effect it has on people when they see someone who has achieved somethings at a very young age, especially the University babes.... LOL)

Infections: In general, both children and adults with SCD are more vunerable to infections and have a harder time fighting them off once they start. Especially bacterial Infection.
Personall hygiene is highly necessary for those who have SCD. More especially, they should be careful what they eat and drink and where such food is being prepared. (My last serious crises was caused by food poisoning)

Pain that occurs unpredictably in any body organ or joint, wherever the sickled blood cells block oxygen flow to the tissues: The frequency and amount of pain varies. Some may have as many as 15 or even more crises in a year. Others may not even have any or just once in a year.

In my case, I hardly have painful crises when I was growing up. Initially my doctor and my family thought I faking it.
Most of these crises episodes may require the patient being taken to the hospital and treated with painkillers and intravenous fluids (AKA drip).

My dad makes sure I take drips, at least once every two months, whether am sick or not . (that was when I was still growing up).

These complications can result in the following conditions:

HAND-FOOT SYNDROME:
When the small vessels in the hands or feet are blocked, pain & swelling can result, along with fever. This maybe the first symptom of sickle cell anemia in infants. (In my case, I experienced this in my early twenties as I stated above. Thank God my leg was not amputated, by a doctor who thought I had a tumor).

FATIGUE; PALENESS & SHORTNESS OF BREATH.
All these are symptoms of anemia, or shortage of red blood cells. When any of these become severe a crisis is witnessed.

More of the SCD conditions to come. If there is any Warrior viewing this thread, you input will be highly welcomed.

These days the life expectancy of people with SCD is on the increase. It is not uncommon to see people with SCA living well above their mid- 60's (I mentioned my mum's friend above, as a case in point). This can only be attributed to the advances in medical science (credit must also be given to herbal practitioners).
Note, these advances do not make SCD any less deadly or less a health issue of great concern.
Some people with SCD lead lives that are normal. But others may also be less fortunate and suffer from a variety of complications.
I will list some of the complications in my next update.

Thanks Dreystar, I need the Warrior to make this thread lively. A lot of people out of ignorance will do more harm to themselves and their loved one.
SCD is real and people with real life experiences should tell their stories. The Doctors opinion is just what it is.... An opinion (yes with theories). If you already have a child with SCD don't give up on him/her cos there is a whole lot of beautiful life experiences awaiting that child.
BUT, if you are AS/AS and you considering getting married.... please am on my knees don't. WHY TEMPT FATE?

According to medical science a SCD person's Red Blood Cell (RBC) has the shape of a sickle (i.e. where the disease derives it's name). The red cells are the oxygen transporters of the body. The trouble is that people with SCD often have their RBC sickled when deprived of oxygen.
In 1949 medical science came to the conclusion that SCD was inherited and that people with sickle trait were heterozygous (carriers or AS) for the gene, whereas people with the disease were homozygous (i.e., had a double dose of the gene or SS).

please, the doctors and other medical scientists in the house should correct me anywhere I go wrong.

pinky85: @Abali

I know what you mean about stigma. There some type of stigma you can avoid and some you wouldn't.
Growing up I had so many experiences, its like they're better left unsaid. Also, pray that when the time for marriage comes these 'stigma' won't pop up again.
You'll find people 20 years older than you who don't even know how to be 'mature' about your condtion. Some people even believe you did something in a past life or your parents sins put you in this situation.
The truth is you grow a thick skin as you grow older,because you know you are a lot STRONGER than all those people. You've fought more battles than they can ever imagine themselves confronting and you WON.

Just be thankful for all the good days of health, don't allow the prejudice and perceptions of others stress you out.

Pinky, I have grown more than a thick skin to the stigma. I will like you to make your input on the other thread FACTS & MYTHS about SCD. Am counting on you guys to help tell the world our stories.... The survivor story.... The Warriors Story.... The story of a breed that dared Death and came out victorious...
IMPOSSIBLE IS JUST AN OPINION.

blink182: I strongly believe in God and His power to make anything possible. Doctors have waited for me to die up to 5 times. I've had crisis where I had to be dosed with anaesthetic as normal pain killers were not effective. The anaesthetic only lasts for an hour or so before I start screaming till the next day when another dose is administered.

Psychologists may want to say I had one reason or the other why I never gave up the ghost but I know I had non. I really couldn't relate with peoples feelings towards me. I am still learning to do that, most people call me heartless but that's just me.

I can't find anyone or anything else to give credit to but God, only Him. With Him all things are possible.

blink my brother, I need you guys input in the other thread I opened, Facts and Myths about sickle cell disease. Am counting on you to tell the NL people your experiences and how you have managed it.

Thanks Idowuogbo.

Most children with Sickle cell die at the age of two, due mainly to lack of knowledge about the disease and also given that those children cannot really express themselves coherently.
Awareness on the scourge of SCD is really important in our society. If am correct, as far back as 1910 SCD has been discovered by medical science. But so many people, even in the West know next to nothing about SCD.
WHY? I can only guess; because the West and "the healthy" blacks could care less. Mind you, this so called "discovery" in 1910 occured not in Africa but in the United States. Africa and people of African descent has been living with SCD for at least 5000 years (this is not an exageration, do some readings).

Apart from bone marrow transplant there are no other known cure for SCD. The SCD is the "black man's scourge" I doubt if the western scientists are really keen in researching to find a cure for. And most medical researchers will rather focus in, HIV/AIDS; CANCER; etc.
So SCD person will have to do themselves a favour by reading up a lot of literature that will help them manage the disease and live a healthy and normal Life.
There are a lot of herbs and natural food stuff that can really help someone living with SCA.