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Health / Re: A Nairalander With A Rare Disease In Dire Need Of Permanent Solution by ndbest650: 8:31am On Dec 08, 2020
MercyNMighty post=96846
408:

May you find healing
Thank you. May God answer our prayers
Health / Re: A Nairalander With A Rare Disease In Dire Need Of Permanent Solution by ndbest650: 8:29am On Dec 08, 2020
GogetterMD:
Ashkenazi Jews seem to usually have a high prevalence of such familial and autoimmune conditions.

Has anyone ever evaluated/screened you for autoimmune conditions?
No one yet. I have been making contact to see a geneticist for proper screening. Please you can recommend for me, I'm from ebonyi state. I need help as a matter of urgency.
Nairaland / General / A Nairalander With A Rare Disease In Dire Need Of Permanent Solution by ndbest650: 8:19am On Dec 08, 2020
Admin. Please post this to the front page, so as to get enough viewers. I would try to Bea's brief as possible and please ignore my grammar, as I'm not in the right state of mind typing this.

From my childhood up to my present age, I have been faced with a rare disease, which appears to be progressive and degenerative with time. with the symptoms been mild from my childhood, but as I grew up they became chronic. The symptoms appear to affect the entire nervous systems (i.e, the central, the peripheral, the autonomic, and the sensory nervous systems).

The symptoms, not limited to the following are:
1. Diarrhea alternating with constipation
2. Burning sensations with electric shock and flashes kind of feelings.
3. Chest pain, shortness of breath and palpitations.
4. Severe body pain and difficulty walking.
5. Cognitive impairment and brain fog.
6. Blurry vision.
7. Intolerant to cold and heat.
8. Nausea and metallic tastes.

For the past 7 years in which the symptoms became chronic, I have visited many hospitals in which I was told to carry out a number of diagnosis. Some of the diagnosis include:
1. Blood tests
3. Stool culture
3. Chest X-ray
4. Ultrasound
5. Endoscopy
6. Colonoscopy
7. Ct scan of the brain
8. MRI, etc.

with those diagnosis done, nothing specific has been detected as been the root cause of these. So the doctors resulted to treating me symptomatically. The drugs sometimes seem to alleviate the symptoms, but at a point , they become resistant to the drugs.

I have been on a research since, and like a month ago, I came across a disease called FAMILIAL DYSAUTONOMIA. This disease captures my condition. However, the problem seem to be that; the doctors don't a have a clear knowledge of it, the disease is rare and i s not common to our people but a Jewish tribe, and there is no known cure for it presently.

with this, I am mentally, psychologically, emotionally and physically depressed. So family, I need your medical advice, suggestions, and most importantly your prayers to enable over come this challenge. IT IS SUICIDAL HELP ME PLEASE.
Health / A Nairalander With A Rare Disease In Dire Need Of Permanent Solution by ndbest650: 7:58am On Dec 08, 2020
Admin. Please post this to the front page, so as to get enough viewers. I would try to Bea's brief as possible and please ignore my grammar, as I'm not in the right state of mind typing this.

From my childhood up to my present age, I have been faced with a rare disease, which appears to be progressive and degenerative with time. with the symptoms been mild from my childhood, but as I grew up they became chronic. The symptoms appear to affect the entire nervous systems (i.e, the central, the peripheral, the autonomic, and the sensory nervous systems).

The symptoms, not limited to the following are:
1. Diarrhea alternating with constipation
2. Burning sensations with electric shock and flashes kind of feelings.
3. Chest pain, shortness of breath and palpitations.
4. Severe body pain and difficulty walking.
5. Cognitive impairment and brain fog.
6. Blurry vision.
7. Intolerant to cold and heat.
8. Nausea and metallic tastes.

For the past 7 years in which the symptoms became chronic, I have visited many hospitals in which I was told to carry out a number of diagnosis. Some of the diagnosis include:
1. Blood tests
3. Stool culture
3. Chest X-ray
4. Ultrasound
5. Endoscopy
6. Colonoscopy
7. Ct scan of the brain
8. MRI, etc.

with those diagnosis done, nothing specific has been detected as been the root cause of these. So the doctors resulted to treating me symptomatically. The drugs sometimes seem to alleviate the symptoms, but at a point , they become resistant to the drugs.

I have been on a research since, and like a month ago, I came across a disease called FAMILIAL DYSAUTONOMIA. This disease captures my condition. However, the problem seem to be that; the doctors don't a have a clear knowledge of it, the disease is rare and i s not common to our people but a Jewish tribe, and there is no known cure for it presently.

with this, I am mentally, psychologically, emotionally and physically depressed. So family, I need your medical advice, suggestions, and most importantly your prayers to enable over come this challenge. IT IS SUICIDAL HELP ME PLEASE.
Nairaland / General / A Nairalander With A Rare Disease In Dire Need Of Permanent Solution by ndbest650: 9:31am On Dec 06, 2020
Admin. Please post this to the front page, so as to get enough viewers. I would try to Bea's brief as possible and please ignore my grammar, as I'm not in the right state of mind typing this.

From my childhood up to my present age, I have been faced with a rare disease, which appears to be progressive and degenerative with time. With the symptoms been mild from my childhood, but as I grew up they became chronic. The symptoms appear to affect the entire nervous systems (i.e, the central, the peripheral, the autonomic, and the sensory nervous systems).

The symptoms, not limited to the following are:
1. Diarrhea alternating with constipation
2. Burning sensations with electric shock and flashes kind of feelings.
3. Chest pain, shortness of breath and palpitations.
4. Severe body pain and difficulty walking.
5. Cognitive impairment and brain fog.
6. Blurry vision.
7. Intolerant to cold and heat.
8. Nausea and metallic tastes.

For the past 7 years in which the symptoms became chronic, I have visited many hospitals in which I was told to carry out a number of diagnosis. Some of the diagnosis include:
1. Blood tests
3. Stool culture
3. Chest X-ray
4. Ultrasound
5. Endoscopy
6. Colonoscopy
7. Ct scan of the brain
8. MRI, etc.

With those diagnosis done, nothing specific has been detected as been the root cause of these. So the doctors resulted to treating me symptomatically. The drugs sometimes seem to alleviate the symptoms, but at a point , they become resistant to the drugs.

I have been on a research since, and like a month ago, I came across a disease called FAMILIAL DYSAUTONOMIA. This disease captures my condition. However, the problem seem to be that; the doctors don't a have a clear knowledge of it, the disease is rare and i s not common to our people but a Jewish tribe, and there is no known cure for it presently.

With this, I am mentally, psychologically, emotionally and physically depressed. So family, I need your medical advice, suggestions, and most importantly your prayers to enable over come this challenge. IT IS SUICIDAL HELP ME PLEASE.
Politics / Re: Tinubu In Kano, Goes On A Ride With Ganduje (Video, Photos) by ndbest650: 10:36am On Dec 05, 2020
Ganduje will eternally be grateful and loyal to tinube for helping secure second term through inconclusive strategy. If not for tinubu, ganduje would have been a forgotten person in the history of Nigerian politics.
Forum Games / Re: Great Riddles That Will Make You Think Outside The Box by ndbest650: 9:35am On Sep 16, 2017
Explorers:
More
avocado pears
Crime / Re: Evans Begs For Forgiveness: "My Wife Collects Ransom Money For Me Sometimes" by ndbest650: 4:01pm On Sep 02, 2017
Ken4Christ:


Give your life to Jesus first. Then command the stooling to stop in the name of Jesus. It will obey you.
thank u for ur advice. I will also request u to remember me in your prayers.
Politics / Re: Asset Declaration: Appeal Court Quashes Orubebe’s Conviction by ndbest650: 3:59pm On Sep 02, 2017
Pidgin2:


Change your diet
i have done that and im still watching my diet as u rightly advised still it has not stopped
Health / Re: 7 Easy Ways To Get Yourself A Healthy Digestive System by ndbest650: 9:51am On Sep 02, 2017
pls doctors in the house, i was diagnosed of irritable bowel syndrome. The symptoms like diarrhoe, constipation, excretion of mucus, ocassiona fever, joint and body pain have all persisted even after taking a no of drugs prescribed a doctor.it confines me to the house and am so bothered about it. Any body with solution to the problem should pls help. thank u for ur suggestion.
Politics / Re: Asset Declaration: Appeal Court Quashes Orubebe’s Conviction by ndbest650: 9:47pm On Jun 14, 2017
Please help me with suggessions on how to cure irritable bowel syndrom

1 Like

Crime / Re: Evans Begs For Forgiveness: "My Wife Collects Ransom Money For Me Sometimes" by ndbest650: 9:39pm On Jun 14, 2017
Sorry i have to deviate from this topic. Please nairalander i am having what they call irritable bowel syndrom which causes me frequent stooling. my stool comes with mucous and sometimes when i go to toilet, the only thing i will pass out will be micous. In a day, i can go tio toilet for like 10 or more times and taken all possible medications but all to no avail. Please help me with suggessions on what to do tocome out from this problem.
Politics / Re: Nigerians React After CCT Clears Saraki Of False Asset Declaration Charges by ndbest650: 4:24pm On Jun 14, 2017
there is a common saying that an accused is innocent until proved otherwise by a court of competent jurisdiction. Mr saraki has thus been extricated of any financial embezzlement. However, my only worry is that there has been cases of people accused of looting of public fund, but our judiciary has not been able to convict.

1 Like

Politics / Re: EFCC Seizes Shema's Mansions & Properties (Photos) by ndbest650: 7:28pm On Sep 25, 2016
those who keep saying witch hunt when ever corruption case is opened against our former political office holders must have a rethink. because these people looted fund that could been judiciously used to address the bad roads, dilapidated structures in our schools and the bad conditions of our hospitals. no matter the angle it is coming from-be the person a PDP or APC member, we must all support this fight so that our children will not get acculturated with this evil act.

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