₦airaland Forum

alutacontinua:
No one can give their words on how the chemo will go.
A stage 4 cancer is not something anybody can boldly say chemotherapy will do this or that.

However, the alternative treatments you mentioned (which btw, I am absolutely not in support of) would have to be agreed upon by the house. TeHN, as you can see, are no longer calling the shots! If you have to go that route, lay it bare and let the house decide if that is what they want. Don't put this on TeHN, that is what they're totally trying to avoid.

You have written all that have to be said.

Originalsly:
@TeHN......I'm asking yet again....what is the EXPECTED outcome of this 18 week full treatment?...is it that he would be pain free for the duration?...is it he would be cancer free?....is it the cancer would be beaten back to stage 1? Only you guys can answer this so can you do so before you fade into the background?

Please if you have alternative idea different from what is being proposed, I suggest you make it open. It doesn't matter whether TeHN buys it or not, if many people here agree with it, we will all run with it.

DJDOLA:
PLS TEHN DON'T GIVE UP ON ME PLS TEHN DON'T GIVE UP ON ME

Be rest assured that we are not giving up on you. TeHN is already part of your family, you have some of our numbers on speed dial, we just need more people to get involved for your own good so TeHN can focus on being your family.

ochon:
Remsonik, I don't know if you reading TeHN's posts at all. It's not easy for TeHN to get new volunteers. The ones they had can no longer continue. Do you think it's easy for them to get new volunteers? Some of them don't live in Nigeria. We've been on this case since yesterday and yet nobody has volunteered. Not everyone lives in Lagos and those that do might have work they can't afford to miss for DJ's case. And TeHN said they ain't backing out entirely, they're just gonna limit their roles.

This back and forth ain't helping matters. They have given us two options, let's choose from them and move on. Time is of the essence. Time is ticking away.


What I think needs to be done is for TeHN to go for option A, pay the money for the Chemo treatment in full or half and have DJ's brother cater to him while they hold on to the rest of the funds and release them occasionally when GENEUINE cause for such arises like Oam4j suggested. That way, we've combated our fears of the family spending money indiscriminately to a larger extent. While this is going on, there should be a thread on FP requesting for field workers that would volunteer at least for each Chemo sessions. 6 people should be enough. One for each session while DJ's brother keep us updated of his progress at least WEEKLY. Also anyone on this thread in Lagos can check on DJ even if it's once in a month during his or her free period to find out how he's doing or the state of things. I don't live anywhere in Lag or else I'd have volunteered or check on him whenever I'm chanced. This is now a collective effort, anyone that can visit DJ once in a while, it'll be appreciated. For the future volunteers, TeHN should notify them that the money for their transport won't be from their pockets unless an individual decides to do it on his own. That way, it'll help open up more chances for people to volunteer.

This to me is the best way forward. Except that I don't think we need a new thread to seek for volunteers. Volunteers should come from stakeholders on this thread.

If we can leave arguments, blame passing and insults and discuss way forward the better for all of us.

We have one volunteer already Jaybee3. We need 5 more. Please volunteer if you can.

The task is simple, follow JB and his family member for a session and update the house at the end the session. TeHN will provide the payment for Treatment and logistics.

gbadexy:
l think the next reasonable step is to find a cheaper hospital with effective chemo treatment.
l believe his family should be able to be taking him to and from the hospital for treatment.
The way l see it, at this stage, after deciding on the best treatment plan and hospit by tehn, the only next thing they woukd be doing if handling the case is taking him to and back from the hospital for treatment.
Once the teatment cost is determined, money for logistics and treatment can be released as at when needed for each session so that the money goes into its inteded use.
Alternate option can also be decided and discussed with the doctor attending to him. lt can be used as a supplement complementing the chemo treatment. The doctors should be made aware in case of drug interaction.
l think tehn has made up its mind. what we need now is the next practical steps forward.
Can tehn research for the cheapest hospital with effective treatment plan so they can have a something workable to handover.

Bro. I agree with you.

please if you can help us find a cheaper hospital, we will appreciate, we have checked through many suggested places.

Also anyone who know hospitals where we can get it cheaper can come forward and tell the house.

And time is of essence here. DJ needs to start his treatment ASAP.

remsonik:
The truth is that before then hands off pls get volunteers that you are sure will continue from where mynd44 stopped. We can't leave DJ hanging, please bring on people that are commited to this cause that's the only way tehn can be guilt free

DJ will not be left hanging. Please we are not mean and wicked people to allow that.

remsonik:
I think in the beginning of this thread we got volunteers on teams. Put out the call again. I am sure people will respond

The kind of volunteers needed now is different. But if there are people willing to do the job, let them speak up.

Fhemmmy:
Thanks for your reassurance that you are NOT giving up on DJ, and i respect your word and believe you . . . There is NOTHING wrong in Nairalanders, family of DJ stepping up and get more involved, but i think the fact that you guys managed it all since the start, you guys can control things and delegate trusted hands to do more for THeN. . . . Your response will help to lie down tonight and sleep well knowing that DJ is not abandoned . . . . Once again, thanks a lot

You can sleep well bro and focus on getting chaircover, my mother in law a good X7 for her birthday next month.

Hoping to celebrate it with Buhari's victory too. Time to vote for change. If our government has been responsible, Ahmed will not be in this situation today.

Cheers bro.

remsonik:
The best you guys can do in my opinion is get 3 volunteers who will release money for his treatment and chemo section every week. One person should be in charge of monitoring him and giving feedback to Tehn and another person in charge of keeping accounts and receipts of money spent. Then they can take turns in checking on him and visiting him so they won't get tired

Question is; where are the volunteers? And time is of essence here, reason we think the brother/family are the better volunteers.

Fhemmmy:
[center]To ALL my OGAS at the Top, r321, Jaybee3, peakabeau1 (Not sure if spelled right), Mynd44, OAM4J, and my wonderful sister Chaircover . . .
[/center]
[b]There is no one that could been under such so much attack that you have been with THeN that wont wanna back off, i give so much kudos to you guys, cos nothing tougher than being in possession of other people's money, with humility and one love, i say thanks for all that you have done.

Chaircover, from the little i know about you in the Family section, you are a great family oriented woman and with such a great heart as well, and that is why i will call you OUT on this one, please inasmuch as the actions and lashing out on the THeN group might not be encouraging, i knew you are not a quiter and that is one of the greatest attribute that i respect about YOU.

Jaybee3, my chairman, please i will need you too on this one, i know you personally and you know i have so much respect for you, and for real, your great heart speaks volume and that is why i am calling you OUT too on this one, when i realize you are on the board of the THeN, i knew they are in great hands, cos i have seen how you have used your own hard earn money to help the needy, BUT not yet time for you to look away.

Mynd44 . . . .Your love for basketball is one thing that we have in common, Nothing worse than someone going out of their way to work so hard for someone else and all they get is insult and called names that mama and papa never named you, but it will be a thing of waste all the time and money invested if you give up now, trust me, i feel you and i wish i have some magical powers to make you change your mind, a quitter will NOT go to 5 hospital in 1 day in the madness of the streets of Lagos . . .Biko, look into this.

Pickabeau1 . . . Chairman, i first noticed your activities on charity threads and i so much respect how you coordinated the activities, and from what i saw there, i am so sure you will never quit on anything you have started, thus my plea to YOU to please coordinate the meeting of THeN to re-think the decision of backing off . . . . Trust me, if i was in your shoes too, i MIGHT wanna back off, but each time i have to do such, i will go back to the pix of that young man and imagine what he would be saying to YOU if you guy tell him to his face that you are handing off his case.

OAMJ4 . . . .What a great heart you have and i have read so much from you on political section that you control, trust me, you got it together and you wont wanna quit bro, cos now, DJ needs you, just go back few pages and stare into his face in that picture where he lie there helpless, speak to him via that picture and tell him that you are only doing this because of him, and my chairman, i bet you, he will hear you, speak to his heart and dont quit on him, i take Baba God beg you.

Oga r321, what can i say, you are a man with great credibility and no amount of words spoken online will re-shape your personality, but please gather the THeN together and look into how you guys could get things moving . . .

I know there are more that i am yet to mention, however, it is not about the mention of names, but about looking into the eyes of that young man, and let us do the right thing, no amount of insult or name calling will make us give up if we share same last name (Surname) and i know you are all bigger than allowing the faceless with just fingers to type to make you guys make a decision that you MIGHT wish you never did . .

The face that the clinics knows that the young man is cared for by Nairaland community, that alone has opened doors that DJ's brother handling things might not be able to, and i am sure that with pride DJ could log on to this thread and tell the doctors that a community is right behind him, so please gents and madam, let us all get back to the drawing table to make this happen.

If you guys need more field worker, let us ask people on the thread that on ground in Nigeria to help, someone said on few pages back that you guys could appoint someone to communicate on your behalf, while another take care of finances, by so doing, it wont be stress out only one person and please when you guys need help, let us know here and WE ALL will find a way to make it happen.....

Chaircover said and i quote " if we win, we all WIN together, and i hope we wont ALL lose together in this . . . It is ALL about DJ's health and we could all hold hands and tell him we are behind him in action, prayers and money . . . .

Please forgive ALL and let us move forward . . . . So all being said, Next step is what, and how could we be of help. [/b]

Oga mi, much respect sir. Appreciate you kind words.

But trust me, we are not giving up on Ahmed. Its not possible for us to do that. Ahmed has become part of us and we cant abandon him, especially at this stage.

People may think we don't have a heart but we do. If we are not kindhearted in the 1st place, there wouldn't have been anything called TeHN. We have been through a lot but our passion to keep putting smiles on crying faces had kept us going. And we will continue to do what we are doing irrespective of all the challenges, attacks and insults.

Now to the issue. The truth remains this is not about the insults and attacks, but on facing realities. TeHN cannot keep on with this case even if we want. It is beyond our capacities to continue to run it as we are presently doing. I know the pressure we put on a Mynd44 daily, we cannot afford to keep him on for another 3/4 months. So the family or some new volunteers have to step up managing Ahmed everyday. And if we can be freed of the animosity and the whole bureaucracy involved with the case, the better so we can channel our strength as best as we can, while still looking after DJ in our own little way.

So we can pay for the treatment, allow his brother/family to manage him. If there is a fear that the remaining money will not be well spent, we can release it in bits as I explained earlier.

Please disregard any notion that we are giving up on Ahmed. We love him too much to abandon him, and Ahmed knows this too.

Fhemmmy:
.I think that would be the biggest mistake and even NOT sure if DJ would agree with this kinda decision . . . . Someone in charge of millions of Naira and they have personal immediate needs, you think they will not touch the money that was meant for the young man's treatment?

Now this is moving forward.

You have a point oga Femmy.

What we can do (my thinking/not speaking for TeHN now) is not handing the whole money at once but release it in bits and on genuine request.

That way we can provide a bit of control and monitoring and present the state if the account periodically till exhausted.

ileobatojo:
I choose option A. If DJ were in the much touted India, wouldn't the funds have been in the care of his family? So what's the big deal in making payments to the hospital and handing the rest to the family? There is already a plan in motion for his treatment going forward so where does abandonment come into play here? By the way, the treatment may last weeks, months and if he's extremely lucky, years. So we expect the Tehn volunteer to keep following him here and there for unknown amounts of time? What other goal do we have for Tehn please? Abi is cancer treatment a one time thing then it's over?

Let Tehn ensure the hospital is paid and the chemo starts like the option A suggestion and hand the rest over to the family. They would still be able to check in on him now and again. Or will the chemo only work if a Tehn member is physically present to watch it drip into his veins?

Thanks.

That is our preferred option too. We have the estimate for the full treatment already and we have enough money to cover it. We can make the payment for the full treatment and hand over the rest to his family for his welfare and logistics and close the case from our end.

We of course will still check up on him from time to time.

babe4chi:
What implications please? And why do u think u'll be termed failure. Is there any other thing apart from field workers disturbing this mission?

I mean the implications of stepping back from the case.

When you dont finish what you started irrespective of your reasons/excuses there is high possibility of being called a failure and other names... we are simply prepared to be called such names. Even before now, we have been called all sorts, accused of many things and our integrity questioned, we just have to accept them.

Thanks.

coogar:
how soon can new field workers be recruited? that's the angle you guys should be brainstorming about - quitting leaves a bad taste in the mouth.

oga OAM4J, biko - don't quit!

Trust me, it was not an easy decision to take, but its our best option after all factors were put into consideration.

We have considered the implications too and know we will be termed failure and called names....we will have to accept those too.

Originalsly:
Hmmm....so alternative treatment have been ruled out mainly because it is hard to go against the four doctors.Fine. If we are forging ahead with this 18 week chemo plan....what is the EXPECTED outcome?....and what is this based on?....hope?....theory?...and have they tried this before on other patients with stage 4 or even stage 3 cancer? what were the results and how are they now?.....or is this just an 18 week pain relief treatment? ...referred to as "quality of life?" Shouldn't we know these answers before going down the chemo road? I'm hoping the doctors be asked these questions and be pressed for pointed answers.We can't be passive again. LUTH already put wool over our eyes for a month and pulled almost a million out of our pockets before we faced reality. I am surprised that LUTH is again considered to be/in the mix. This is by no means intended to be an attack nor an insult to TeHN but an effort to make sure we leave no stone unturned before moving forward.

Nothing is ruled out or concluded. We only gave the options and presented our own opinions about them. The decision is for the whole house and the new team to make on which option they want to follow.

babyosisi:
The part highlighted in red is your explanation why you cannot continue abi?
You don't have the resource please break it down,I went to night school
You can't manage the situation anymore,because
Please fill me in

find more explanations below:

OAM4J:
The most important resource is having reliable persons who can sacrifice their time and programs, become available to run through the length and breath of Lagos and other places at short notices and doing that constantly.

When you no longer have that kind of resource, then you become incapable and prone to mistakes which we can no longer afford on this case.

But if you disagree with me, then put all the resourceful people together, we will support them.

jaybee3:
It's almost impossible for us to change our decision simply because we can't function without a field worker on ground. We currently have 3 field workers on our team out of which 2 are full time workers.

The 3rd field worker who has had to put his life on hold for this noble cause now have other pressing issues which practically means we are unable to function effectively as we would have liked on this case going forward.

We were never set up to work on cases that will demand this much resource as our strengths are somewhat restricted to planning and coordination due to obvious reasons.

It's very important that we focus on the options provided so we can find an adequate/sufficient plan for the next critical phase

rayo2002:
Also, looking at it from another perspective. Asides the field worker issue, they may just not have the wherewithal to continue. This case has been on since October and the chemotherapy treatment will cover another 18weeks that means they will be on this matter till May. I do not think they envisaged this at the beginning and may really not have the resources to continue.

My suggestion is that we get new volunteers to share the work with them. The new people can do the field worker role i.e taking Hamed for his sessions and seeing to his well being while TeHN gets updates and handles the finances.

You are not far from the truth also.

babyosisi:
There are no other stakeholders
You people are already holding the stake from day one so you are not relinquishing any stakes to anyone at this last minute to hold

Please don't make me relive the painful memory of how support could have been drummed up to fly this young man to India long ago when enthusiasm was at it's peak.
But Tehns held the stake and didn't think it was a wise decision at the time
Good
We are here now and forward we must go
Biko hold that stake o
There is a patient whose life is dependent on it
I thought you folks educated us it was about DJ

You and everyone who is concerned about DJ's case and have contributed in cash or kind are stakeholders.

babyosisi:
Not forgetting that family may choose to take him to a marabout or spiritual church instead of using conventional medicine
With people's hard earned money?
No way

What we can (my personal opinion, not TeHN's) do in this case is to release the money on need basis subject to approval of the stakeholders on this thread, so we all can be sure the money contributed is well spent by the family or the new team.

babyosisi:
Can you please state the reason why you are unable to continue
I have searched and couldn't find it

If you have read through R231, pickabeau1, jaybee3 and my posts today on this thread and you still couldn't find the reason, then i doubt you will find the reason even if i rewrite them all over again.

Just go through our posts for today and you will find the reason.

Thanks.

colossus2:
Then you guys should stop explaining.
Handover to DJ's brother and move on with your lives.
Remit all funds to his family also let them treat him in their way.
Do you want the whole of nairaland to beg you guys on a case you happily took over even when we wanted it when the admin of this site kicked against the idea

We suggested 2 options, we have noted your preference for option1 which is also our preferred option, but you are just one out of many stakeholders on this case, so let other stakeholders suggest their preferred option and we will go with the majority.

No we are not asking for people to beg us, we are not kids, we want people to understand our position and come to agreement on a way forward.

babyosisi:
I will just lay it like it is,let the chips fall where they may

A young man comes down very sick sometime in October
Contacts his e friends on NL for help
Kind hearted citizens respond,monies pour in
A coordinated effort is needed Tehns steps in to take charge very early in the process
Tehns has cordinated and overseen doctor's visited,consulted with various doctors on this case,made decisions on the case and deciding which course if action to be pursued ,disbursed all funds,gave all updates on patient.
Patient is now said to be stage 4 adenocarcinoma of unknown primary and about to start chemo and at this very critical stage Tehns wants to back down and find a new volunteer group ,totally green who has not been privy of any of the aforementioned to take over or have DJ's family take over completely
Am I the only one that sees everything grossly wrong with that picture.

If I am not mistaken,this new decision seems to have been prompted by the latest fracas,it appears very much so
I know exactly how you feel,I have been there at various times,sometimes Tehns members have fanned the embers
many other people here have also been ripped apart at various times
IMHO that is not enough to make you throw in the towel at this late stage.
You simply cannot
If you do that,you have failed
It looks tacky and insensitive for you to even suggest backing out now
It's like a woman asking a man she had previously said yes to,to reverse and pull out his ojolima when he is just about to release
That is a no no
She is expected to grit her teeth and allow him finish what she allowed him start.
In the same vein,I expect that Tehns should see this case to it's logical conclusion
I say this to make sure you don't set an ugly precedence
If you drop this case,you might as well announce the disbandment of Tehns
There will be no need for Tehns
It will be useless to have the group in existence if it abandons projects midway
And since these monies are from the readers,how do you expect them to take any other projects you get into seriously?

I agree wholeheartedly with olu4life
You cannot abandon this case,which is pretty much what you are proposing,call it whatever name you wish,that is the summary of all you have written.
There is nothing you can say to convince me otherwise.

I think my earlier post applies.

OAM4J:
I respect your verdict... but even if we are judged to have failed in this case, we will have to agree with Henry Ford that "failure is the opportunity to begin again more intelligently".

Hopefully we will succeed in our next assignment.

Thanks

And No, you cannot suggest or call for disbandment of TeHN because you think we have have failed in this case. The future cases will decide if we are needed or not.

Cheers.

Lateralmaths:
Option Z is best.

We cannot make that conclusion since other options have not been tried. TeHN is not indispensable. Let's give other options a chance.

Gboliwe:
It is only death that has no solution. If you can't volunteer to do, please, do not start with the 100 and 1 reasons why someone else can't. I am sure there is someone who will read thru this thread and be touched to volunteer. If TeHN repackages this aright and ask for volunteers, I am sure one or two will emerge.

How about you becoming the 1st new volunteer. I will support you.

Lateralmaths:
Tehn pulling out now will be seen as failure on your path. This is a challenge you guys can overcome. If you need more volunteers say so. It should not be said in the nearest future that tehn fled when the going became rough and tough.

I respect your verdict... but even if we are judged to have failed in this case, we will have to agree with Henry Ford that "failure is the opportunity to begin again more intelligently".

Hopefully we will succeed in our next assignment.

Thanks bro.

Gboliwe:
Lol. Stop twisting my idea. The thing is, TeHN wants to handover to a a new group, my suggestion is if the mobile arm of Tehn is lacking volunteer, please call for volunteers. TeHN will still call the shots and not act as supervisor or support group

We dont want to call the shots or supervise the project, let all the stakeholders jointly call the shots on the new team.

Gboliwe:
Please, call for volunteers who can work with tehn on this case, I mean those who will do the leg work. I am sure we will find one or two when you package this aright

That is exactly what we are calling for - New Volunteers for this case. We will support them when they show up. If there are none coming up, we will trust the family to do the job.

Thanks.

Gboliwe:
Whatever resource(s) TeHN needs to continue with this project can be easily called for from this house faster than any group or even Dj's brother. We all have come toooooo far to let go at this juncture. I strongly believe that we are mostly young people, and we should never see challenges as enemies but steps towards becoming better persons for tomorrow.
Please I beg every one of you to STOP considering the option of letting go. This is a very critical point in the life of DJ, any wrong decision will make or destroy our individual and collective effort. Mbok, please, let's not let go at this point.

The most important resource is having reliable persons who can sacrifice their time and programs, become available to run through the length and breath of Lagos and other places at short notices and doing that constantly.

When you no longer have that kind of resource, then you become incapable and prone to mistakes which we can no longer afford on this case.

But if you disagree with me, then put all the resourceful people together, we will support them.

taryour:
OAM4J. Jaybee3. r231. Pickabeau1,Tehn crew please don't ball out of this. I doubt if any crew/team can do as much or more than what you have done and continually bless you.

You started this project and with God grace and favour you have come this far. Not many of us here can be as committed to this case as you all have. We all have our different lives/schedule/issues to attend to BUT YOU all in tehn group have left yours aside to face this cause with all dedication. All we can do is appreciate and continue to pray for God favour over you all.

Once again thumbs up tehn.

Thank you for your good words. As much as we will like to continue with the case fact remains we we simply don’t have the resource to continue. In the absence of a new competent team from NL to continue with the case, we will consider our 1st option of handing over to DJ's brother/family. We believe they can handle the case going forward.

Thank you.

olu4life:
Thank u. No twisting of words. We are still saying the same thing

Anyways,was in contact with my friend (Brian's dad) today and he's still insisting if possible we send the report to a particular surgeon in India to look into it. TEHN can that b possible? Whether we can look on the India option

If i may add to what jaybee3 wrote, our opinion on Indian remain

Re-visit overseas treatment option – TeHN is of the believe that there isn’t much to gain from this option if as suspected the case is at stage 4 and the only effective treatment option is targeted chemotherapy to the affected regions

But then, it is left for whichever team the house approves to take over from TeHN to decide their best way forward.

olu4life:
Option A is totally out of it. But for B,

"NLers to come up with a dedicated project team that’s capable of moving the project forward -
TeHN would be able to provide mechanism for funds collection and disbursement with this option but our involvement will be restricted to that alone"

Explain pls

Nothing to explain, it is as stated.

TeHN will like to step back. If the house approves a new group to manage the case, we can help with fund collection and disbursement, nothing more.

Originalsly:
Now the picture is becoming clearer.You should be privy to all information if you are representing DJ...it is the duty of a professional doctor to update you. You always talk about the four doctors on team TeHN and how can you guys not ask about what NY said bout the source? Now I am wondering if the 40 page report was ever sent or LCC simply spoke with someone in NY on the phone. There are more questions than answers. You TeHN guys are talking the talk but I'm not at all impressed that you can walk the walk.

OK brother.

Now you can set up a team and take over from TeHN soon as the house approve your group.

Cheers.

Those that the gods wanna kill, they first make mad...

GEJ has to keep committing blunders to prove those calling him clueless right...