Busy_body:



This should be your anthem. I don't want to rain on your parade, but here goes:

dr Balogun is one of the most, if not the most influential and definitely the most selfless and invaluable person on NL, so anyone of his professional standing would equally dismiss you outrightly as a malingerer and hypochondriac. These people spend on average a decade in Medical School, so if i read you correctly, no Doctor will take you serious for plucking your "diagnosis" out of thin air/the internet. It is a dangerous and foolhardy path to tread.

I am not in the Medical field, but from the little i know, from the symptoms you have listed such as the fractures, the out-of-proportion chronic pain, the jerking and feeling as if someone is yanking your legs out of the socket, the shortening of the limbs, etc, you could equally be diagnosed with Osteoporosis+Fibromyalgia+Restless legs syndrome. YOU ARE ALREADY GETTING MEDICATION FOR THESE TRIO OF DIAGNOSIS, for which some could even say you are already being over-medicated for. And for your information, all those medication you are on have the potential to make you gain weight as one of their side effects.

If you manage to get to the US, they will bombard you with all sorts of tests and eventually  loads of medication, not because it is the right thing to do, bt because it is a highly litiguos environment whereby Doctors can be sued for near-misses and mishaps and misdiagnosis and whatnot. If you come to the UK, you would not get that much pain relief, you would get xrays and tests 18 months part at least, after spenging around 2 years on the waiting list, and if you wanna start telling your Doctor you have found out what is wrong with you on the internet and it is so, so, so and so syndrome, the next referral you would be getting would be to a Psychiatrist because in reality, most illnesses with the blanket term "syndrome" attached to it as a suffix is kinda like a temporary unbrella term for "we don't know what to file these symptoms under", hence the many other names these "syndromes are often known by.


To cut the long story short, at your age, you will not be deemed a suitable candidate for surgery, because, these joints have to be replaced every 10 to 15 years once they wear out, meaning you have to be replacing them based on the ones you get fitted with, and hey not every surgery works, i have met tons of people who regrets having operations as it did nothing to alleviate their pain and suffering and sometimes made it worse.


Based on those 3 diagnosis i listed up there, according to you, all you have had was an MRI scan, so you need to get yourself to an Hospital in Nigeria where you can have a bone density scan or an isotope scan or whatever to rule out whether your fractures is being caused by early onset of severe Osteoporosis.


Peradventure you have already been told you have a diagnosis of Fibromyalgia, this means damaged tissues, which means you would never be recommended for surgery because every joint would have to be replaced every 3 years on average, and there isn't enough downtime to recuperate from surgery if you have to be having them that close, so all you would keep getting is pain relief as you already are on, and you might possibly be referred to an intensive rehabilitation for pain management programme to help you learn pacing and coping skills to deal with these chronic pain.     


Anxiety and stress would not get you anywhere, cast your absolute faith in God, It is well.

Whats all these fights and arguments for on this thread anyway? terrible distractionssssssssssssssss

@busybody - Thanks for your post. I did not state that I got my diagnosis from thin air/internet. I stated that since d docs in my state refused to do my surgery and said go abroad, I have emailed doctors in Europe, u.s.a and India my reports, x-rays, MRI and symptoms for their diagnosis, treatment and cost. They all gave different diagnosis/medical names including some of the ones u stated in your post and more but the one that fits my symptoms or what I have been experiencing for the past 4 years mostly is the RSD/CRPS when i checked them online.

the mri i did in luth cost[b] over 80k. they took over 4 hours to do it, i was in pain all through, i do not live in lagos, it was hell travelling to lag by road[/b]. on getting to my uncle's house after 4 hrs of mri, i got a call 1 hour later that i have to come back to luth the next day and do d mri again, wtf? they do not even know how to do it or give good reports properly. my coz in uk told me that mri does not take more than 30 minutes to do or get the results, then tell me where can i do d others u mentioned in nigeria and get a good result or diagnosis a hospital in the states said i should do a nerve conduction test and send d result to them via email. where do i do that in nigeria

As for doctor balogun I don’t give a damn how good u or people think he is, he cannot b good in all medical areas, he might be a pediatrician for all I know and has no idea about orthopedic or surgery. The fact is that I sent him an x-ray of my left fractured hip and my doctor's medical report which he requested for but he kept telling me that it is d x-ray of my right leg not left so I am a liar and said hurtful things through email. I DID NOT ASK HIM FOR MONEY, JUST HIS OPINION. NA WA OH

Just because whoever scanned and sent it to him did it upside down or didn’t position it properly b4 scanning/emailing it to him, he refused to believe me or what he saw. i sent the same things via email to docs/hospitals in u.s.a, europe and india but they never called me a liar or scammer - balogun is only in the uk but he has a typical/fool.ish mentality like some Nigerians = dumb as an arse

TO BE CONTINUED

CONTINUED
I cannot go to the internet café and scan it myself. The x-ray even had the letter L written/printed boldly on it which means left and not R for right, my doc report stated left too. I pointed it out to balogun and he was still adamant. this was before my right leg got affected too. ARRANT NONSENSE. How dare he call me a fraud even when I only asked for[b] his medical opinion not money[/b]. he does not even know how to view x-rays correctly. what an excellent doc indeed. na me get my body, so i no know where break or dey pain me? NA WA OH

He/anyone else thinking of - "malingering" - the term applies to persons who deliberately pretend to have an illness or "hypochondria" - Psychiatry or a person suffering from or subject to hypochondria or a person who worries or talks excessively about his or her health, should pray that doc balogun/u/whoever never gets a serious illness like mine/than mine so people dont call him a liar or a scammer because Karma comes around.

i have all my tests, docs reports in nigeria, emails from doctors/hospitals abroad etc, so to hell with whomever says i am a liar just because they are a quack doc or silly person. I WON'T SMILE AT THOSE INSULTS BUT YOU'VE GOT YOUR CHOICE & SO DO I.  i have different medical docs/labs numbers for verification. will u still believe or change your mind after seeing all that? noooo, because it is in u! U SAID U ARE NOT IN THE MEDICAL FIELD BUT YOU ARE GOING ON AND ON ABOUT MEDICAL THINGS AND CALLING ME NAMES/INSULTS. KILODE? SMH

i am getting agitated and upset now, i dont need this at all - some symptoms that makes my condition worse but i do not blame u though cos u do not know me or seen me like this. ITS EVERYONE'S CHOICE TO BELIEVE ME OR NOT - I CANNOT CONTROL THAT. come see for yourself if u want. yes i have gone from slim to fat from d beginning of my illness to now that i am on different medication. sooo what i cannot even move around properly with aid/help let alone do exercises or burn fat. U DO WELL OH busybody

@all u good and supportive people of NL (u know who u are) - GOD BLESS YOU ALL WITH GOOD HEALTH, JOY AND MUCH MORE IJN AMEN!

i wanted to start my blog today as some suggested but writing d above has made me tensed but i will be strong enough soon to start it soones[/b]t

Busy_body:



This should be your anthem. [s]I don't want to rain on your parade, but here goes:

Anxiety and stress would not get you anywhere[/s], cast your [b]absolute faith in God, It is well.

Ivynwa:

Perx I opened threads asking for contact info of charity organisations from nairalanders living abroad. I posted it in the family, Romance, Properties, Auto and Politics section where people frequent most and here are the links below for you to be monitoring in case somebody sends you a useful piece of information there okay.


Romance Section              https://www.nairaland.com/nigeria/topic-836032.0.html

Properties Section    https://www.nairaland.com/nigeria/topic-835896.0.html

Autos Section               https://www.nairaland.com/nigeria/topic-835895.0.html

Family Section      https://www.nairaland.com/nigeria/topic-835893.0.html

Politics Section         https://www.nairaland.com/nigeria/topic-835892.0.html

Please Sweetie, I am sorry but I do not know whether you are feminine or masculine (you did not affix your gender in your profile), do let me know so that I can write your right gender as you can see I referred to you as a "he". Please don't be offended about that----just let me know and I will quickly change it.

Do you have an e-mail address that can be left on those threads so that whoever needs to contact you can do that. Have you ever googled for charity organisation as in searched for the contact address of some in the internet? Such info may be online. Your e-mail address is important, leave it here so that if I get info on any I can forward it to you. If your email address has your full names and you still want to maintain your anonymity, you can get another e-mail address that does not have your real names on it.

See whether you can do this - open a thread and copy on the details you listed here about the illness with pictures if possible and I can add the link to that your particular thread and remove the link to this thread so that people can easily go to your own very thread to read about it.
If there is something you wish changed in the thread do let me know okay Baby. Do keep your spirit up.

maclatunji:

Busy_Body, For the love of God- why are you being insensitive to Perx? Pls. Keep whatever 'frank advice' you want to give her to yourself. I can try to ignore your back/forth with Shy-One/others  but when you start upsetting someone in serious pain who needs all the help she can get- I have to ask you to please SHUT-UP!

@Perx, I  urge you to try and ignore those hurtful things that Busy_Body has typed/copied and please focus on positive things like your blog. I suggest that you start with your blog early in the morning before reading anything on Nairaland. Stay strong and save your strength for your blog. By the way, where do you stay and when are you due to be in Lagos again?

@all, please if what you are going to type here does not help those whom this thread is supposed to help- kindly stay away. Don't attract ill to yourself because if you consciously cause some of the people on this thread pain- God himself will not forgive you.

Nekai:

Perx,

No advice, just ((HUGS))

For you to still have a positive disposition means that you must have the patience of Job.

Good luck and God bless!

jay bee:

^^^
Don't you think it's better to channell all your energy into getting better albeit getting the right info and contacts you are seeking rather than engaging in back and forth bickering.
Good luck with you quest though and I pray everything goes well

@perx
Note this

In one of the threads we opened asking for direction/contacts to charity organisation somebody reminded me of the "DOCTORS WITHOUT BORDERS" organisation which wasn't a bad idea.
Their website indicated that-----
Doctors Without Borders/Médecins Sans Frontières (MSF) is an international medical humanitarian organization working in nearly 70 countries to assist people whose survival is threatened by violence, neglect, or catastrophe. Doctors and nurses volunteer to provide urgent medical care in countries to victims of war and disaster regardless of race, religion, or politics. You can read more about them here    http://www.doctorswithoutborders.org

I highlighted some areas there to draw your attention to a factor you can lay your hand on and use to approach them.

This is their contact Info in the United States

USA Headquarters
333 7th Avenue, 2nd Floor
New York, NY  10001-5004

Phone: 212-679-6800
Fax: 212-679-7016

I didn't find any email address for them but if you want to send an e-mail you can click  on this http://www.doctorswithoutborders.org/contact/ and click on the arrow in the menu bar at the place they wrote Email, choose "Questions/Research about MSF" and an e mail box will open through which you can send them an e-mail.

Hey! If your words are properly worded this can make the impact you need. I have no doubt that if you handle this well that you will get a listening ear from them. In your first mail you can request that an officer give you a good e-mail address through which you can forward them the pictures,X- rays and other stuffs okay or you can call them on the phone to get an e-mail address. You can get started on this first and send them a mail to begin communication with them. See how you can follow this organisation until you get a positive response from them, we truly want to see you get the medical help you need. I am still available to render any secretarial service/help you need when mailing them okay.

malaika:

Prayers to all of you feeling down and troubled and (((HUGS)))

@Perx I know you've considered most places abroad but have you also considered South Africa? Our medical care is not bad at all and being on the continent still, it might be a more affordable option (not sure though just throwing it out there for you to investigate). There is a sizeable number of Nigerian specialists here who might want to take your case on and be more willing to negotiate on price seeing as it'll be a fellow country-man/woman. Good luck and never give up on yourself.

Ivynwa:

@Perx
Girlfriend all these happened to show us what an indomitable spirit you have inside of you.
You shall not die dear, you shall live. When all this is over you will look back and be blessing God.
It is not good to get a bit rude sweetheart but we understand how you feel and you already
admitted to your mistake and corrected yourself. We all love peace and want to see you get the
help you need and recover quickly.


@Madam Chaircover
Madam you earned my respect again and again. I salute you for the way you brought on warm
sunshine like milk into this thread even though negative vibes did not allow that sun to shine out in the thread.
I was so wishing for a cool spirit to come into the thread then and thinking of
how to bring in that warmth but did not see.

When a good spirited person speaks one can't help but know that.
_{When the voting was going on, i wished for some other nairalander to win and smile because you
have won before but when I came across the way you advised a "troubled woman" very tactfully
in a thread during the xmas holiday----I gave it up to you then and voted for you as my candidates
were not nominated---lol. This is by the way.}

Please let us keep loving and supporting ourselves people, you amazing people are already doing
a great job in this section and changing lives. May God bless everybody. Amen o-o-o.

mukina2:

Thread Unlocked!

Please no more more insults or derailment.

Thanks.

Idowuogbo:

^hey perx how u doing,were you singin that song to me .I still await your mail and a couple others also need an email to contact you,by d way happy new year and my name is Badosky

Idowuogbo:

^hey perx how u doing,were you singin that song to me .I still await your mail and a couple others also need an email to contact you,by d way happy new year and my name is Badosky

tlops:

its funny what is legal is some places!

http://www.exitinternational.net/page/Switzerland

IT STATES THAT "A PEACEFUL DEATH IS EVERYBODY'S RIGHT" "Assisted suicide has been legal in Switzerland since the 1940s. Indeed, assisted suicide in this country need not be performed by a medical doctor". U DO WELL OHHHH

it's legal there does not mean it shud b done but i can understand in some chronic or terminal cases sha but still

maclatunji:

^Oga that concept[b] is not what we want to encourage on this thread[/b]. The very fact that it is mentioned could give people we are trying to help negative ideas. I beg you to remove it and modify the post. Thank you and God bless!